>I don't give a toss what anyone thinks about me, or say, :-) >hopefully, you don't either. Well it would be nice to have that attitude but it's hard when people you've none for a very long time avoid you & look at you like you have 3 heads! Trying to adopt that way of thinking but it's hard. You do want to be accepted. It's human nature. And for sure it is very hard when it is family that thinks you're nuts when you are quite sane but in a lot of pain! However, I like it Kooky! Someone told me in years ago when I had the injury that I would have to make new friends & she was right on! Well except for a choice few that REALLY KNOW ME. Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:56 PM Yep, many are thought of as "loopy", "kooky" to put it nicely, it kinds of absolve them of responsibility and the reality. There are plenty of studies to show the harm ES/EMF/RF and so forth causes. Some countries take this seriously, perhaps, gathering info/research might help you when it crops up during proceedings. Too bad about your experience. I am glad I stayed from psychs, and those toxic meds, despite severe insomnia etc.. I hold them responsible and despise them. Two of my friends, this year, presceibed psychotropics, (depressed, ahem, not really, I would say unhappy and inability to cope), tried to commit suicide. It was defintitely a side effect of these drugs. The second friend, tried twice to commit suicide in April this year. Both were discharged from hospital with a little baggy full of more "happy pills", as if .. And, no, you are not insane, the world we live in is insane. I don't give a toss what anyone thinks about me, or say, :-) hopefully, you don't either. Keep strong, keep well. Kooky --- On Sat, 10/16/10, kikkie2004 <[hidden email]> wrote: From: kikkie2004 <[hidden email]> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:05 AM Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email], Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email], S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
Loni: Life is not easy for anyone. For some, its harder. I know how hard it is to loose everything and become totally isolated, ALONE, ill from head to toe, with horrid symptoms and serious ill health, threatening health issues for years on end. Sometimes, by letting go, we become stronger, more empowered, free. and no longer alone. Without being too philosphical here, going to the source of mental anguish, suffering, pain, dealing with it, can be liberating. Hard it is. Harder to acknowledge self inflicted pain, which could have been avoided. I read recently a book, which mentions, pleasure as being the absence of paiin ... (meaning anguish). Yep, its not easy, harsh lessons, jumping through hoops, continous battles, exhausting - physically, mentally, emotionally, financially. There are many of us out there, we are not alone. Many worse, much much worse. "Most Men Lead Lives of Quiet desperation" Henry David Thoreau - Writer and philospher Wishing all inner peace, and healing thoughts Kooky --- On Sat, 10/16/10, Loni <[hidden email]> wrote: From: Loni <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 5:29 PM >I don't give a toss what anyone thinks about me, or say, :-) >hopefully, you don't either. Well it would be nice to have that attitude but it's hard when people you've none for a very long time avoid you & look at you like you have 3 heads! Trying to adopt that way of thinking but it's hard. You do want to be accepted. It's human nature. And for sure it is very hard when it is family that thinks you're nuts when you are quite sane but in a lot of pain! However, I like it Kooky! Someone told me in years ago when I had the injury that I would have to make new friends & she was right on! Well except for a choice few that REALLY KNOW ME. Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:56 PM Yep, many are thought of as "loopy", "kooky" to put it nicely, it kinds of absolve them of responsibility and the reality. There are plenty of studies to show the harm ES/EMF/RF and so forth causes. Some countries take this seriously, perhaps, gathering info/research might help you when it crops up during proceedings. Too bad about your experience. I am glad I stayed from psychs, and those toxic meds, despite severe insomnia etc.. I hold them responsible and despise them. Two of my friends, this year, presceibed psychotropics, (depressed, ahem, not really, I would say unhappy and inability to cope), tried to commit suicide. It was defintitely a side effect of these drugs. The second friend, tried twice to commit suicide in April this year. Both were discharged from hospital with a little baggy full of more "happy pills", as if .. And, no, you are not insane, the world we live in is insane. I don't give a toss what anyone thinks about me, or say, :-) hopefully, you don't either. Keep strong, keep well. Kooky --- On Sat, 10/16/10, kikkie2004 <[hidden email]> wrote: From: kikkie2004 <[hidden email]> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:05 AM Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email], Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email], S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
Kooky,
Yes I'm trying to have tougher skin! I tell myself that all the time. I'll get there! I did see someone at the store much worse off than me & I had to really think about that. I believe also when you are dead tired with brain fog that it's harder to be strong emotionally because physically you are weak. It's the problematic times that set you back a little. But I always pick myself back up & continue on! The other choice isn't so appealing! I love Thoreau! My mom did too. Her ashes were spread at Waldon Pond as a matter of fact.j Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 4:27 PM Loni: Life is not easy for anyone. For some, its harder. I know how hard it is to loose everything and become totally isolated, ALONE, ill from head to toe, with horrid symptoms and serious ill health, threatening health issues for years on end. Sometimes, by letting go, we become stronger, more empowered, free. and no longer alone. Without being too philosphical here, going to the source of mental anguish, suffering, pain, dealing with it, can be liberating. Hard it is. Harder to acknowledge self inflicted pain, which could have been avoided. I read recently a book, which mentions, pleasure as being the absence of paiin ... (meaning anguish). Yep, its not easy, harsh lessons, jumping through hoops, continous battles, exhausting - physically, mentally, emotionally, financially. There are many of us out there, we are not alone. Many worse, much much worse. "Most Men Lead Lives of Quiet desperation" Henry David Thoreau - Writer and philospher Wishing all inner peace, and healing thoughts Kooky --- On Sat, 10/16/10, Loni <[hidden email]> wrote: From: Loni <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 5:29 PM >I don't give a toss what anyone thinks about me, or say, :-) >hopefully, you don't either. Well it would be nice to have that attitude but it's hard when people you've none for a very long time avoid you & look at you like you have 3 heads! Trying to adopt that way of thinking but it's hard. You do want to be accepted. It's human nature. And for sure it is very hard when it is family that thinks you're nuts when you are quite sane but in a lot of pain! However, I like it Kooky! Someone told me in years ago when I had the injury that I would have to make new friends & she was right on! Well except for a choice few that REALLY KNOW ME. Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:56 PM Yep, many are thought of as "loopy", "kooky" to put it nicely, it kinds of absolve them of responsibility and the reality. There are plenty of studies to show the harm ES/EMF/RF and so forth causes. Some countries take this seriously, perhaps, gathering info/research might help you when it crops up during proceedings. Too bad about your experience. I am glad I stayed from psychs, and those toxic meds, despite severe insomnia etc.. I hold them responsible and despise them. Two of my friends, this year, presceibed psychotropics, (depressed, ahem, not really, I would say unhappy and inability to cope), tried to commit suicide. It was defintitely a side effect of these drugs. The second friend, tried twice to commit suicide in April this year. Both were discharged from hospital with a little baggy full of more "happy pills", as if .. And, no, you are not insane, the world we live in is insane. I don't give a toss what anyone thinks about me, or say, :-) hopefully, you don't either. Keep strong, keep well. Kooky --- On Sat, 10/16/10, kikkie2004 <[hidden email]> wrote: From: kikkie2004 <[hidden email]> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:05 AM Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email], Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email], S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
Loni, Massachussets is beautiful, regretfully. have not been to Waldon Pond. Like the mixture of transcentalism/spirtual/politico approach of Throeau. Maybe time for a little civil disobedience, specially, with the medical establishment, he he .... they need a good shake up!! Yep, we have to keep forging ahead, no matter what.. Keep well, Kooky --- On Sun, 10/17/10, Loni <[hidden email]> wrote: From: Loni <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Sunday, October 17, 2010, 1:45 PM Kooky, Yes I'm trying to have tougher skin! I tell myself that all the time. I'll get there! I did see someone at the store much worse off than me & I had to really think about that. I believe also when you are dead tired with brain fog that it's harder to be strong emotionally because physically you are weak. It's the problematic times that set you back a little. But I always pick myself back up & continue on! The other choice isn't so appealing! I love Thoreau! My mom did too. Her ashes were spread at Waldon Pond as a matter of fact.j Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 4:27 PM Loni: Life is not easy for anyone. For some, its harder. I know how hard it is to loose everything and become totally isolated, ALONE, ill from head to toe, with horrid symptoms and serious ill health, threatening health issues for years on end. Sometimes, by letting go, we become stronger, more empowered, free. and no longer alone. Without being too philosphical here, going to the source of mental anguish, suffering, pain, dealing with it, can be liberating. Hard it is. Harder to acknowledge self inflicted pain, which could have been avoided. I read recently a book, which mentions, pleasure as being the absence of paiin ... (meaning anguish). Yep, its not easy, harsh lessons, jumping through hoops, continous battles, exhausting - physically, mentally, emotionally, financially. There are many of us out there, we are not alone. Many worse, much much worse. "Most Men Lead Lives of Quiet desperation" Henry David Thoreau - Writer and philospher Wishing all inner peace, and healing thoughts Kooky --- On Sat, 10/16/10, Loni <[hidden email]> wrote: From: Loni <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 5:29 PM >I don't give a toss what anyone thinks about me, or say, :-) >hopefully, you don't either. Well it would be nice to have that attitude but it's hard when people you've none for a very long time avoid you & look at you like you have 3 heads! Trying to adopt that way of thinking but it's hard. You do want to be accepted. It's human nature. And for sure it is very hard when it is family that thinks you're nuts when you are quite sane but in a lot of pain! However, I like it Kooky! Someone told me in years ago when I had the injury that I would have to make new friends & she was right on! Well except for a choice few that REALLY KNOW ME. Loni --- On Sat, 10/16/10, Kooky <[hidden email]> wrote: From: Kooky <[hidden email]> Subject: Re: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:56 PM Yep, many are thought of as "loopy", "kooky" to put it nicely, it kinds of absolve them of responsibility and the reality. There are plenty of studies to show the harm ES/EMF/RF and so forth causes. Some countries take this seriously, perhaps, gathering info/research might help you when it crops up during proceedings. Too bad about your experience. I am glad I stayed from psychs, and those toxic meds, despite severe insomnia etc.. I hold them responsible and despise them. Two of my friends, this year, presceibed psychotropics, (depressed, ahem, not really, I would say unhappy and inability to cope), tried to commit suicide. It was defintitely a side effect of these drugs. The second friend, tried twice to commit suicide in April this year. Both were discharged from hospital with a little baggy full of more "happy pills", as if .. And, no, you are not insane, the world we live in is insane. I don't give a toss what anyone thinks about me, or say, :-) hopefully, you don't either. Keep strong, keep well. Kooky --- On Sat, 10/16/10, kikkie2004 <[hidden email]> wrote: From: kikkie2004 <[hidden email]> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Saturday, October 16, 2010, 1:05 AM Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email], Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email], S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by kikkie2004
Hi Kikkie and Loni,
Eeugh.. I feel for you both (and for all others in the group facing similar problems).. The snag is that severe ES is so far outside people's normal experience and everyday "common sense" that it's really hard for them to deal with. A bit like, say, severe nut allergy, except that as nut allergy is officially recognised, people can believe in it much more easily. In an odd way we were fortunate - I saw the "trigger event" which gave ES to my wife Sue, so it was easier for me to believe in what was happening. Even then it was sometimes very hard to comprehend some of the changes and reactions which took place in the following few months. As a scientist/engineer it has given me lots of food for thought ... We have learnt, sadly, to be very careful who we talk to about Sue's ES. We have lost some of our friends who were totally sceptical - one of Sue's friends told me she was psychotic! But some others have been more open and accepting - not always the people you'd expect either. My boss at work, a hard-headed engineer, was surprisingly open - it turned out that he has a daughter with severe dust-mite allergy so has battled similar things himself. An extra reason to steer clear of psychiatrists - if your CFS and ES are down to immune system problems (which seems to be the most common initial root cause), these may be worsened by drugs if your body can't metabolise them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil etc), including some horrible "black fogs" - so the drugs actually ended up inducing clinical depression which she hadn't had before! Thankfully that is now long since behind us, and Sue's ES is also now much improved from where it was. Hopefully one day people in general will have better understanding, but it is a long haul. Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of kikkie2004 Sent: 16 October 2010 06:06 To: [hidden email] Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email] <mailto:eSens%40yahoogroups.com> , Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] <mailto:eSens%40yahoogroups.com> > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] |
Dear Ian
This helps me explain to others, why as an ES sufferous its so strange. As i can figure it out? Our brains are acting up, a "fright and flight mode" or "Tuned in" Ive had ES for a couple of years and i had it really bad at the beginning. We feel ES symptoms and our bodies are responding to the outside threat which is real, with warnings. "We are like canaries down a mine shaft" When are brains get occupied with pain or concentrating hard on other things we can control the ES side of things. Or fool it away from the danger. When we focus away from the threat, of wifi and EMF i personally have much more control. As an example when you go into a room with blue walls your body thinks its cold, when you go into a warm toned room your body thinks its warmer. But the real temperature is the same. Say if we go into a room that smells really badly and after a while, the smell seems to go, we can cope with it! Later someone else may go into the room and comment on the smell. we may say it no longer smells! But its smells for them! The smell has not gone, thats real. When someone has a cold, are they feeling excatlly the same all day, can one focus on something else during the day? Yes! I learn to focus, retrain the mind away from my "flight and fright mode", as much as i can. During the day i may feel emf or wifi, i try and control it, by not panicking and making it worst. occupy ones thoughts away from picking up the bad energies. Easier said then done i know but it helps me. When im relaxed and not moving I accidently focus on the outside forces, there it comes, bang! ES. We are picking up the EMF and wifi when i brains are more focused on it and have a clear period of time. Qi-Gong, or meditation does help me focus and control when relaxed, or for when im at work surrounded by wifi and mobile phones, im not running any more, i will calmly walk away, as much as i can if it to much. Good Luck! Best Giles Wireless radiation Headaches, Dizziness, chest Palpations, Tinnitus, Skin irritations and face redness. Pins and needles in the hands in the mornings. Short-term memory loss, Nauseas. Joint ache where mobile is placed. and Phantom text messages i.e. vibrations in the pocket. Waking up at around 4am if mobile, cordless phone, wifi is by the bed or close. Including pressure at the back of the head. Pressure in sinus or forehead area. British websites about ES: www.es-uk.info/ www.electrosensitivity.org A Canadian website about ES: www.weepinitiative.org The Swedish website about ES: http://www.feb.se/FEB/feb_techman.html http://fullsignalmovie.com/index.html http://wiredchild.org/ http://safeantenna.org/ Recent articles in the press. http://www.dailymail.co.uk/news/article-1318992/Mobile-phone-health-risk-Phone-giants-accused-burying-warnings-handsets-small-print.html http://www.telegraph.co.uk/health/healthnews/7725169/Landmark-study-set-to-show-potential-dangers-of-heavy-mobile-phone-use.html http://www.timesonline.co.uk/tol/news/uk/health/article7127799.ece http://www.gq.com/cars-gear/gear-and-gadgets/201002/warning-cell-phone-radiation?currentPage=1 http://www.independent.co.uk/life-style/health-and-families/health-news/mobile-phone-radiation-wrecks-your-sleep-771262.html http://www.thesun.co.uk/sol/homepage/features/2552553/Wi-fi-waves-make-top-DJ-Steve-Miller-sick-Steve-Miller-aka-Afterlife-Allergic-to-wifi-Wifi-allergy.html http://www.telegraph.co.uk/earth/earthcomment/geoffrey-lean/6175172/Mobiles-and-cancer-the-plot-thickens.html http://www.timesonline.co.uk/tol/news/world/europe/article6805895.e http://www.express.co.uk/posts/view/61725/Is-wi-fi-putting-our-children-in-danger- --- On Sun, 17/10/10, Ian Kemp <[hidden email]> wrote: From: Ian Kemp <[hidden email]> Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Sunday, 17 October, 2010, 21:29 Hi Kikkie and Loni, Eeugh.. I feel for you both (and for all others in the group facing similar problems).. The snag is that severe ES is so far outside people's normal experience and everyday "common sense" that it's really hard for them to deal with. A bit like, say, severe nut allergy, except that as nut allergy is officially recognised, people can believe in it much more easily. In an odd way we were fortunate - I saw the "trigger event" which gave ES to my wife Sue, so it was easier for me to believe in what was happening. Even then it was sometimes very hard to comprehend some of the changes and reactions which took place in the following few months. As a scientist/engineer it has given me lots of food for thought ... We have learnt, sadly, to be very careful who we talk to about Sue's ES. We have lost some of our friends who were totally sceptical - one of Sue's friends told me she was psychotic! But some others have been more open and accepting - not always the people you'd expect either. My boss at work, a hard-headed engineer, was surprisingly open - it turned out that he has a daughter with severe dust-mite allergy so has battled similar things himself. An extra reason to steer clear of psychiatrists - if your CFS and ES are down to immune system problems (which seems to be the most common initial root cause), these may be worsened by drugs if your body can't metabolise them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil etc), including some horrible "black fogs" - so the drugs actually ended up inducing clinical depression which she hadn't had before! Thankfully that is now long since behind us, and Sue's ES is also now much improved from where it was. Hopefully one day people in general will have better understanding, but it is a long haul. Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of kikkie2004 Sent: 16 October 2010 06:06 To: [hidden email] Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email] <mailto:eSens%40yahoogroups.com> , Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] <mailto:eSens%40yahoogroups.com> > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by Ian Kemp
Thanks for your response Ian! I do appreciate that! What caused your wife's ES that you witnessed if you don't mind me asking? Loni
--- On Sun, 10/17/10, Ian Kemp <[hidden email]> wrote: From: Ian Kemp <[hidden email]> Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Sunday, October 17, 2010, 1:29 PM Hi Kikkie and Loni, Eeugh.. I feel for you both (and for all others in the group facing similar problems).. The snag is that severe ES is so far outside people's normal experience and everyday "common sense" that it's really hard for them to deal with. A bit like, say, severe nut allergy, except that as nut allergy is officially recognised, people can believe in it much more easily. In an odd way we were fortunate - I saw the "trigger event" which gave ES to my wife Sue, so it was easier for me to believe in what was happening. Even then it was sometimes very hard to comprehend some of the changes and reactions which took place in the following few months. As a scientist/engineer it has given me lots of food for thought ... We have learnt, sadly, to be very careful who we talk to about Sue's ES. We have lost some of our friends who were totally sceptical - one of Sue's friends told me she was psychotic! But some others have been more open and accepting - not always the people you'd expect either. My boss at work, a hard-headed engineer, was surprisingly open - it turned out that he has a daughter with severe dust-mite allergy so has battled similar things himself. An extra reason to steer clear of psychiatrists - if your CFS and ES are down to immune system problems (which seems to be the most common initial root cause), these may be worsened by drugs if your body can't metabolise them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil etc), including some horrible "black fogs" - so the drugs actually ended up inducing clinical depression which she hadn't had before! Thankfully that is now long since behind us, and Sue's ES is also now much improved from where it was. Hopefully one day people in general will have better understanding, but it is a long haul. Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of kikkie2004 Sent: 16 October 2010 06:06 To: [hidden email] Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email] <mailto:eSens%40yahoogroups.com> , Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] <mailto:eSens%40yahoogroups.com> > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by Christina Steils
Giles, thanks for your interesting response, which actually highlights two
aspects of responding to ES. Sue's improvement over the years has been both physical (due to successful treatment of the underlying immune system problem) and psychological (learning to cope with all the new and unexpected problems, and the shock of it all happening). Of course I am not saying that it is "all in the mind" - instead it is a natural reaction to a startling and terrifying new situation where things are going unexpectedly wrong, there is much physical pain and as Sue put it, your environment no longer feels safe - it is as if it is conspiring against you. So, as you say, sufferers will go into "fight or flight" mode, suffering stress which can make the symptoms worse by stressing the body itself (one contributory factor to Sue's original problems was adrenal overload). Most people feel happier when they spend most of their time in safe and predictable situations. The onset of ES is of course the exact opposite, things don't seem to make sense and it's hard to know what to do about it. This group particularly helped us, as I'm sure it has so many other people, in those early stages when we were struggling to work out what was happening; we had never heard of ES. It was good to find somewhere where people didn't look at Sue (and me) as if we had two heads! As has been said before, we all owe a lot to Marc for setting this group up and keeping it going. It is very helpful and reassuring to have support and advice, and helps develop coping strategies, even if there are often no easy answers. Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of Christina Steils Sent: 17 October 2010 22:01 To: [hidden email] Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Dear Ian This helps me explain to others, why as an ES sufferous its so strang As i can figure it out? Our brains are acting up, a "fright and flight mode" or "Tuned in" Ive had ES for a couple of years and i had it really bad at the beginning. We feel ES symptoms and our bodies are responding to the outside threat which is real, with warnings. "We are like canaries down a mine shaft" When are brains get occupied with pain or concentrating hard on other things we can control the ES side of things. Or fool it away from the danger. When we focus away from the threat, of wifi and EMF i personally have much more control. As an example when you go into a room with blue walls your body thinks its cold, when you go into a warm toned room your body thinks its warmer. But the real temperature is the same. Say if we go into a room that smells really badly and after a while, the smell seems to go, we can cope with it! Later someone else may go into the room and comment on the smell. we may say it no longer smells! But its smells for them! The smell has not gone, thats real. When someone has a cold, are they feeling excatlly the same all day, can one focus on something else during the day? Yes! I learn to focus, retrain the mind away from my "flight and fright mode", as much as i can. During the day i may feel emf or wifi, i try and control it, by not panicking and making it worst. occupy ones thoughts away from picking up the bad energies. Easier said then done i know but it helps me. When im relaxed and not moving I accidently focus on the outside forces, there it comes, bang! ES. We are picking up the EMF and wifi when i brains are more focused on it and have a clear period of time. Qi-Gong, or meditation does help me focus and control when relaxed, or for when im at work surrounded by wifi and mobile phones, im not running any more, i will calmly walk away, as much as i can if it to much. Good Luck! Best Giles Wireless radiation Headaches, Dizziness, chest Palpations, Tinnitus, Skin irritations and face redness. Pins and needles in the hands in the mornings. Short-term memory loss, Nauseas. Joint ache where mobile is placed. and Phantom text messages i.e. vibrations in the pocket. Waking up at around 4am if mobile, cordless phone, wifi is by the bed or close. Including pressure at the back of the head. Pressure in sinus or forehead area. British websites about ES: www.es-uk.info/ www.electrosensitivity.org A Canadian website about ES: www.weepinitiative.org The Swedish website about ES: http://www.feb.se/FEB/feb_techman.html http://fullsignalmovie.com/index.html http://wiredchild.org/ http://safeantenna.org/ Recent articles in the press. http://www.dailymail.co.uk/news/article-1318992/Mobile-phone-health-risk-Pho ne-giants-accused-burying-warnings-handsets-small-print.html http://www.telegraph.co.uk/health/healthnews/7725169/Landmark-study-set-to-s how-potential-dangers-of-heavy-mobile-phone-use.html http://www.timesonline.co.uk/tol/news/uk/health/article7127799.ece http://www.gq.com/cars-gear/gear-and-gadgets/201002/warning-cell-phone-radia tion?currentPage=1 http://www.independent.co.uk/life-style/health-and-families/health-news/mobi le-phone-radiation-wrecks-your-sleep-771262.html http://www.thesun.co.uk/sol/homepage/features/2552553/Wi-fi-waves-make-top-D J-Steve-Miller-sick-Steve-Miller-aka-Afterlife-Allergic-to-wifi-Wifi-allergy .html http://www.telegraph.co.uk/earth/earthcomment/geoffrey-lean/6175172/Mobiles- and-cancer-the-plot-thickens.html http://www.timesonline.co.uk/tol/news/world/europe/article6805895.e http://www.express.co.uk/posts/view/61725/Is-wi-fi-putting-our-children-in-d anger- --- On Sun, 17/10/10, Ian Kemp <[hidden email] <mailto:ianandsue.kemp%40ukgateway.net> > wrote: From: Ian Kemp <[hidden email] <mailto:ianandsue.kemp%40ukgateway.net> > Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] <mailto:eSens%40yahoogroups.com> Date: Sunday, 17 October, 2010, 21:29 Hi Kikkie and Loni, Eeugh.. I feel for you both (and for all others in the group facing similar problems).. The snag is that severe ES is so far outside people's normal experience and everyday "common sense" that it's really hard for them to deal with. A bit like, say, severe nut allergy, except that as nut allergy is officially recognised, people can believe in it much more easily. In an odd way we were fortunate - I saw the "trigger event" which gave ES to my wife Sue, so it was easier for me to believe in what was happening. Even then it was sometimes very hard to comprehend some of the changes and reactions which took place in the following few months. As a scientist/engineer it has given me lots of food for thought ... We have learnt, sadly, to be very careful who we talk to about Sue's ES. We have lost some of our friends who were totally sceptical - one of Sue's friends told me she was psychotic! But some others have been more open and accepting - not always the people you'd expect either. My boss at work, a hard-headed engineer, was surprisingly open - it turned out that he has a daughter with severe dust-mite allergy so has battled similar things himself. An extra reason to steer clear of psychiatrists - if your CFS and ES are down to immune system problems (which seems to be the most common initial root cause), these may be worsened by drugs if your body can't metabolise them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil etc), including some horrible "black fogs" - so the drugs actually ended up inducing clinical depression which she hadn't had before! Thankfully that is now long since behind us, and Sue's ES is also now much improved from where it was. Hopefully one day people in general will have better understanding, but it is a long haul. Ian _____ From: [hidden email] <mailto:eSens%40yahoogroups.com> [mailto:[hidden email] <mailto:eSens%40yahoogroups.com> ] On Behalf Of kikkie2004 Sent: 16 October 2010 06:06 To: [hidden email] <mailto:eSens%40yahoogroups.com> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email] <mailto:eSens%40yahoogroups.com> <mailto:eSens%40yahoogroups.com> , Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] <mailto:eSens%40yahoogroups.com> <mailto:eSens%40yahoogroups.com> > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> <mailto:eSens%40yahoogroups.com> , S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by Loni Rosser
Hi Loni,
Su's ES began when we visited an "alternative" practitioner to try to solve her MCS problem. He used an "Oberon" diagnostic machine which irradiated her head with electromagnetic waves at 3 GHz (Gigahertz) which is in the microwave frequency range. Within an hour she was complaining of a strange ringing in her ears which developed rapidly into full-blown tinnitus which was greatly worsened by sources such as electric and magnetic fields, masts, mobile and cordless phones. I have not heard of anyone else being damaged by the Oberon machine in the same way, and it seems that Sue's immune system was at such a low ebb due to the MCS that she was extremely susceptible to the radiation, which acted as a trigger. Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of Loni Sent: 17 October 2010 23:10 To: [hidden email] Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks for your response Ian! I do appreciate that! What caused your wife's ES that you witnessed if you don't mind me asking? Loni --- On Sun, 10/17/10, Ian Kemp <[hidden email] <mailto:ianandsue.kemp%40ukgateway.net> > wrote: From: Ian Kemp <[hidden email] <mailto:ianandsue.kemp%40ukgateway.net> > Subject: RE: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] <mailto:eSens%40yahoogroups.com> Date: Sunday, October 17, 2010, 1:29 PM Hi Kikkie and Loni, Eeugh.. I feel for you both (and for all others in the group facing similar problems).. The snag is that severe ES is so far outside people's normal experience and everyday "common sense" that it's really hard for them to deal with. A bit like, say, severe nut allergy, except that as nut allergy is officially recognised, people can believe in it much more easily. In an odd way we were fortunate - I saw the "trigger event" which gave ES to my wife Sue, so it was easier for me to believe in what was happening. Even then it was sometimes very hard to comprehend some of the changes and reactions which took place in the following few months. As a scientist/engineer it has given me lots of food for thought ... We have learnt, sadly, to be very careful who we talk to about Sue's ES. We have lost some of our friends who were totally sceptical - one of Sue's friends told me she was psychotic! But some others have been more open and accepting - not always the people you'd expect either. My boss at work, a hard-headed engineer, was surprisingly open - it turned out that he has a daughter with severe dust-mite allergy so has battled similar things himself. An extra reason to steer clear of psychiatrists - if your CFS and ES are down to immune system problems (which seems to be the most common initial root cause), these may be worsened by drugs if your body can't metabolise them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil etc), including some horrible "black fogs" - so the drugs actually ended up inducing clinical depression which she hadn't had before! Thankfully that is now long since behind us, and Sue's ES is also now much improved from where it was. Hopefully one day people in general will have better understanding, but it is a long haul. Ian _____ From: [hidden email] <mailto:eSens%40yahoogroups.com> [mailto:[hidden email] <mailto:eSens%40yahoogroups.com> ] On Behalf Of kikkie2004 Sent: 16 October 2010 06:06 To: [hidden email] <mailto:eSens%40yahoogroups.com> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie Thanks Loni, I appreciate the validation and similar story. Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I also know being under their fluorescent lights and having CAT scans (which is what my mother wants me to have) will only make me a million times worse. She went to see one on her own though, and he explained to her all about psychosomatic disorders and how I needed help really soon. And that it did feel 'real' to me, because I now so much believed that it was real. And she rang my husband with all this news, so that he could persuade me to go to a psychiatrist. So he was 'very shocked' by all this, 'finding out that all these changes were just because of my mental problems'. My husband doesn't discuss this with other people, although we're getting divorced, so I'm sure it'll come up as a reason later on. But my mother I'm sure is discussing it with my siblings, relatives, etc, so probably quite a few people out there now that think I'm nuts. I have been to psychiatrists before any way (tried them as a possibility to get rid of CFS-induced depression and insomnia). So either way I've tried every class of psychiatric medicine (tons of them). And they did nothing for anything, just made me worse. To me the proof is in the pudding - what has helped most of all for fatigue, depression and insomnia is avoiding EMF gung-ho. But alas, it doesn't prove anything to them. My child is eight, so he's still along way off from not being actively mothered. Becoming actively involved in this group now (instead of lurking) (although I can't sit infront of the PC too long), has been the greatest blessing though - finding people going through the same thing, and feeling that I can say anything (no matter how strange it sounds). --- In [hidden email] <mailto:eSens%40yahoogroups.com> <mailto:eSens%40yahoogroups.com> , Loni <loni326@...> wrote: > > Kikkie! >  > Hey my husband is like your mom. I actually did the psychiatric thing & thought "oh they'll see that I am sane & tell my husband" But they didn't do any tests at all and just though it odd & slapped the delusional tag on me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my family bully me in to that. Now my husband can use that and does. >  > Sooooooo my EI doc told my husband that my perspective was fine & my injury was real but he still doesn't believe. Doc told us to go to a Neuropsychologist. They can do the tests & tell you for sure. So did that & he told my husband & sister that my perspective was fine but have some brain damage due to the exposures (memory) . The injury is real so on & so forth. >  > But you know my husband still is obstinate about it. He just doesn't WANT to believe because then he might have to move or make accomodations he doesn't want to deal with. >  > Your mom may just never understand & you just may have to let it go! Some people are very CLOSED MINDED and are "know it alls" Like my husband. >  > The unfortuneate thing for me is that my husband has ruined my reputation & it is hurtful because I am avoided basically. But I am dealing with the ostrazism too. Got a lot on my plate lately as well. >  > I'll forward some info that you can send to your mom & maybe give to your husband too. >  > How old is your child?. So sorry you are going through this having to raise a child. My kids are 17 & 19 so don't have to worry too much about them. I really feel for your situation. Can relate! >  > Loni >  >  >  >  > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@...> wrote: > > > From: kikkie2004 <kirsty.weight@...> > Subject: [eSens] Re: jobs anybody? > To: [hidden email] <mailto:eSens%40yahoogroups.com> > Date: Thursday, October 14, 2010, 10:19 PM > > >  > > > > Thanks, Stewart > > I've had CFS for many years, and these last few months were the best that far as possible. And that's after trying everything else, from 'alternative stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to conventional stuff like antidepressants, etc. So I would have thought this would be proof enough. > > I've also printed her off much literature regarding EMF, including info about 'first world countries' such as Sweden acknowledging it and bringing out guidelines about it. > > All to no avail. So I've pretty much given up on her. > > Being female cuts out some of the more hard labour EMF-free jobs for me; and the car and powerlines definitely affect me very much as well. > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> <mailto:eSens%40yahoogroups.com> , S Andreason <sandreas41@> wrote: > > > > kikkie2004 wrote: > > > My mother doesnt' believe me at all, and has begged me to see a psychiatrist. She's in fact even threatened to have me certified. Now we've agreed to disagree, and neither of us bring up the subject. > > > > > > It's all very painful to me, I wish I could have something 'conventional' wrong with me. > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > Since I don't know of any such test, perhaps a different approach could > > be useful. > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > bothering you? > > (or did she ignore you... probably not) > > > > When horses put their ears back and stomp their feet, do we conclude > > they are making it up or bluffing? > > or if they are limping, maybe they are faking it and don't want to > > work... Animals don't lie. Too bad people do, and believe other people > > all do too. > > > > Obviously the problem is Denial. > > and unfortunately, showing them a meter that proves there is EMF in the > > air does not make the leap to proving it is harmful, or hurting us, or > > torturing us. > > It might however, start the thinking process. > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > have been disabled since 1993. I have tried a few jobs that almost > > worked, if my other symptoms did not make me unemployable. > > I improved when retreating to the forest, and trimming trees in a tree > > farm. I think there are still forestry jobs out here that work in the field. > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > (Horses put out no magnetic field and don't require batteries. :) > > (Bio-electric fields don't qualify.) > > If you can find a quiet car, rural mail delivery may work, except for > > driving along the power lines. > > Being a farrier is also low tech, except again for lots of travel time, > > and barns that are not rural enough (which keeps me from pursuing that > > idea.) > > > > The best proof, is being able to turn off the emitting sources, (power > > off, or change location) and getting a positive result (less pain etc). > > So I know you are not crazy. > > > > Stewart > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by glitterglitter13
Hi, Glitter,
Welcome to the group! I have never been able to work outside of my home [MCS, celiac disease, liver disease, etc, etc, etc, and ES]. I can do limited design work at home. I think some types of designing might work for people so gifted. I have a hard time finding clients, tho, and a harder time meeting them in their environments. I will also soon be teaching music as I was once an accomplished musician till hand tremors caught up with me [violin and piano, mainly]. I only have one student, tho, so far. lol I did in the past teach music to nieces and my son, each who have their own bands now and perform publicly. People have often requested I teach them or their children music. It is my hubby (who has to listen, third-party) who always put the nix to that plan. lol Teaching music, while it would work in theory, is a hard sell for people with families. My hubby also doesn't like sharing his time with me with others. When do people want their lessons? Exactly the only times hubby is home! Good luck to you. I hope you find a way to work at home at exactly what you are best at, Diane --- On Wed, 10/13/10, glitterglitter13 <[hidden email]> wrote: From: glitterglitter13 <[hidden email]> Subject: [eSens] jobs anybody? To: [hidden email] Date: Wednesday, October 13, 2010, 9:50 PM Hi, the newbie has a starter question. What jobs do you all have? I just lost my last job due to eletrosensitivity (RFID both general and with these nasty scan guns) and the job I had before that to a chemical reaction. So, in the past couple of months I've been job hunting and quickly discovering that there are plenty of jobs to be had out there if you can tolerate excessive light, harsh chemicals and wifi. Beyond those criteria the pickings start getting pretty darn slim and nobody has health insurance (which I desperately need). So...what do you all do? [Non-text portions of this message have been removed] |
In reply to this post by Marc Martin
Hi, Kikkie,
Welcome to the group! I hope you find the help you seek. I do almost the same things as Marc, plus some stuff of my own. I have minimal ES now, but I still practice avoidance when possible. Especially, I have been better since detoxing my bone-marrow thru homeopathy (I just eluded to that in another email so won't go further on that topic). I also have worked on supplementation and nutrient loading thru eating healthier and organically. For me, personally, I could not have gotten anywhere if I had not gone completely gluten-free (and I mean 0 gluten--none in health/ beauty products, none in home, I avoid restaurants and processed foods due to contaminated manufacturing lines. I even avoid airborne glutens. O glutens, period). That was how I recovered from fibromyalgia and CFS, too. There were also gut flora issues I had to address, plus raising my pH to recover from CFS. Long story, but if you want to know more I can share privately. (But since I am not often online, lately, if you miss me, know SOME DAY you will hear from me, but don't hold your breathe or you will surely pass-out! ;) I am behind on about 200 emails right now.) Pretty much, I just do the normal anti- parasitic (fungi, bacteria, virus, etc) diet and "germicidals" (natural parasitic killers) and follow anti-candida protocols. I used hydrogen supplements and alkaline water and foods to raise my pH. I also avoid eating sugars and sugar-alcohols. While I don't go as crazy with this as with the gluten, it helps when I am zero sugars. I work at raising my pH to between 7.35 and 7.50, and as Snoshoe and Stephen here will tell you, that also means my cell voltage is then also correct, which is also a good thing! ;) (Thankyou Snoshoe and Stephen for enlightening me!) I pretty much follow Dr Tennant's protocol to a T. (By accident--I didn't know I followed a protocol until Stephen sent me a 86? page excerpt from the Tennant book, which I think is accessible on-line at his site.) So if you need more info on what I do, reading his book or the 80+ pg excerpt should explain it better than I would. I don't have the site address where the excerpt is, but ask if you want it and Stephen (thanks, Stephen), will probably be kind and send it to you. :) If you have thyroid, adrenal, or liver disease, you need to work on targeted supplements to those. Again, you can ask me privately if you need more help. I also have autonomic nervous system disorder and that is how emfs most present themselves with me lately. But even that is much better since doing detoxing, etc. Good luck. I hope you find the help you need, Diane --- On Thu, 10/14/10, Marc Martin <[hidden email]> wrote: From: Marc Martin <[hidden email]> Subject: Re: [eSens] ES under control To: [hidden email] Date: Thursday, October 14, 2010, 10:00 AM > How have you got your ES under control? By trying everything possible and continuing to use most everything that I've found to be helpful. For example: -- using a few select EMF protection devices -- "easy" alterations of EMF environment (move some things further away from me, switch to old-fashion technology in some cases -- incandescent lightbulbs, wired phones, wired internet, monochrome-screen cellphone) -- changing diet to one loaded with nutrients (minimal junk food) -- supplements to help rebuild my adrenal glands -- supplements to help detoxify heavy metals / chemicals -- some anti-oxidant & mineral & vitamin supplements -- replacing all metal dental work with non-metal -- reducing the amount of metal worn (including eyeglasses, watches, belt buckles) -- non-metal bed (frame, mattress) helps -- static-dissipative shoes *might* help Some have reported being completely cured by completing a heavy metal detox, so this is what I'm pursuing as a long-term solution. However, a complete heavy metal detox can take many years for some people... depends on how fast you can tolerate getting that stuff out of your system. Marc [Non-text portions of this message have been removed] |
In reply to this post by Steph Smith
Hey, Steph,
What about jewelry designing, seriously! You love stringing beads. You might not get rich, but you might surprise yourself! Diane --- On Thu, 10/14/10, Stephanie Smith <[hidden email]> wrote: From: Stephanie Smith <[hidden email]> Subject: Re: [eSens] jobs anybody? To: [hidden email] Date: Thursday, October 14, 2010, 11:29 AM what's a scan gun? es - job wise for me - rules out so much - I find computers difficult for anything longer than short periods and cell phones cause me intense pain and fatigue not to mention the scrambled brain I'm thinking if i could build up my stamina and energy levels [plus could come to terms with my problems with leaf mould LOL] I might be capable of a little light gardening out in the wilderness somewhere or something artistic [provided the chemicals were on the low side] - maybe some creative needlework? big demand for that these days [not!] yes slim pickings indeed workwise and the government here in the UK totally accepts the line fed to them by Freud and Simon Wellesley that ES is a psychosomatic illness curable [or at least treatable] with a course of cognitive behavioural therapy, in one clean sweep negating any entitlement to benefits and making sure that no one can sue the government which has installed all the wifi and licensed the cell phone companies [at great bounty to the UK treasury] and our economy is now so dependent on this infrastructure that in a time of recession Essers like us are nothing more than a bit of collateral damage. Google Simon Wellesley and electrosensitvity and sooner or later in the search results that is what you will come across. He is the psychiatrist which has totally convinced the UK government that ME/ CFS is not a serious illness requiring medical treatment leaving 250,000 (and rising) people to suffer in this country and he sees ES as being part of the same paradigm. The hypocrisy is nauseating indeed. ________________________________ From: "[hidden email]" <[hidden email]> To: [hidden email] Sent: Thu, 14 October, 2010 12:00:50 Subject: Re: [eSens] jobs anybody? puk replies - yes job wise things getter slimmer and slimmer ! as for the scan guns are you aware of the sweedish guy voted top salesman of the year at some stage who became ES due to these guns, he apparently ended up on the street after being branded mentally ill.... not sure what the story is entitled In a message dated 14/10/2010 11:06:57 GMT Daylight Time, [hidden email] writes: Hi, the newbie has a starter question. What jobs do you all have? I just lost my last job due to eletrosensitivity (RFID both general and with these nasty scan guns) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by kikkie2004
Hi again, Kikkie,
Some here will say stones will not help you, but rose quartz certainly did help me sleep soundly. And not just me, I know at least 2 others who it helped. I will try to find a past post I wrote on the subject and send you privately so you know how to do it. I also just wrote to Stephen on this subject privately, so will send you that mail too. Will do right away so I don't forget, Diane --- On Thu, 10/14/10, kikkie2004 <[hidden email]> wrote: From: kikkie2004 <[hidden email]> Subject: [eSens] Re: ES under control To: [hidden email] Date: Thursday, October 14, 2010, 11:45 AM Thanks Marc I've done pretty much all of that: I cook on gas, use incandescent bulbs, switch cell on once a week to check smss, and don't reply via cell, dont' watch tv at all, hardly ever go to malls. My only 'vice' is this CRT monitor PC (which I tolerate somewhat with these ELF protector' thingies. I've done extensive chelation, first with the Cutler protocol (DMSA and ALA rounds), then DMSA and EDTA drips, them DMPS tablets. Somewhere along the line with this (or lots of antibiotics) I lost my brain fog, mostly, but other than that not much change. My levels stayed sky-high, I think I was really just mobilizing the metals and not getting rid of them. And all that started a six year insomnia phase which I'm still not quite out of (I now sleep so-so if I avoid EMF gung ho). These last four months (starting with overexposure to fish tank fluorescent lights) I've become so sensitive that I can hardly go out. --- In [hidden email], "Marc Martin" <marc@...> wrote: > > > How have you got your ES under control? > > By trying everything possible and continuing to use most everything that > I've found to be helpful. For example: > > -- using a few select EMF protection devices > -- "easy" alterations of EMF environment (move some things further away > from me, switch to old-fashion technology in some cases -- incandescent > lightbulbs, wired phones, wired internet, monochrome-screen cellphone) > -- changing diet to one loaded with nutrients (minimal junk food) > -- supplements to help rebuild my adrenal glands > -- supplements to help detoxify heavy metals / chemicals > -- some anti-oxidant & mineral & vitamin supplements > -- replacing all metal dental work with non-metal > -- reducing the amount of metal worn (including eyeglasses, watches, belt buckles) > -- non-metal bed (frame, mattress) helps > -- static-dissipative shoes *might* help > > Some have reported being completely cured by completing a heavy metal detox, > so this is what I'm pursuing as a long-term solution. However, a complete > heavy metal detox can take many years for some people... depends on how > fast you can tolerate getting that stuff out of your system. > > Marc > [Non-text portions of this message have been removed] |
In reply to this post by Marc Martin
I personally know a yoga instructor, a pilates instructor, and a massage therapist. All 3 of them make great money! Great ideas, Marc!
Diane --- On Thu, 10/14/10, Marc Martin <[hidden email]> wrote: From: Marc Martin <[hidden email]> Subject: Re: [eSens] Re: ES under control To: [hidden email] Date: Thursday, October 14, 2010, 12:27 PM > I've done pretty much all of that: Yes, it sounds like you know what you are *supposed* to do, just that it's not working for you so far. As for jobs, I do know a few people who have jobs that an ES person should be able to do -- yoga teacher, massage therapist, etc. Not saying that one can earn a living doing these things, but certainly there are jobs that don't need to involve EMF. Marc [Non-text portions of this message have been removed] |
In reply to this post by Ian Kemp
IMO, any friends you lost due to their non-empathetic skepticism, were not true "friends" to begin with, so it's no real loss. My siblings and dad are skeptical too, but my nieces act more open-mindedly, indicative of less arrogance.
Re: Diet I find that astringent drinks such as low-acid coffee (with molasses & creamer or soymilk to counteract acidity & GERD) helps vs. eye inflammation (note that coffee helps diabetes, Parkinsons & Alzheimers too). Also, berry teas (cherry-berry/wildberry) followed by probiotic-yogurts are excellent, ..as are yams & hot oatmeal & flaxoil & eggs. Salt doesn't mix well w/computer use (it's dehydrating & exacerbates irritation). Nor do high acids or spices, due to triggering nerves. Though popcorn may not be so bad, since the corn part of it is calming, maybe due to lysine, or that it's starchy (thus sorta grounding). Minni --- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote: > > Hi Kikkie and Loni, > Eeugh.. I feel for you both (and for all others in the group facing similar > problems).. > > The snag is that severe ES is so far outside people's normal experience and > everyday "common sense" that it's really hard for them to deal with. A bit > like, say, severe nut allergy, except that as nut allergy is officially > recognised, people can believe in it much more easily. > > In an odd way we were fortunate - I saw the "trigger event" which gave ES to > my wife Sue, so it was easier for me to believe in what was happening. Even > then it was sometimes very hard to comprehend some of the changes and > reactions which took place in the following few months. As a > scientist/engineer it has given me lots of food for thought ... > > We have learnt, sadly, to be very careful who we talk to about Sue's ES. We > have lost some of our friends who were totally sceptical - one of Sue's > friends told me she was psychotic! But some others have been more open and > accepting - not always the people you'd expect either. My boss at work, a > hard-headed engineer, was surprisingly open - it turned out that he has a > daughter with severe dust-mite allergy so has battled similar things > himself. > > An extra reason to steer clear of psychiatrists - if your CFS and ES are > down to immune system problems (which seems to be the most common initial > root cause), these may be worsened by drugs if your body can't metabolise > them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil > etc), including some horrible "black fogs" - so the drugs actually ended up > inducing clinical depression which she hadn't had before! Thankfully that > is now long since behind us, and Sue's ES is also now much improved from > where it was. > > Hopefully one day people in general will have better understanding, but it > is a long haul. > > Ian > > _____ > > From: [hidden email] [mailto:[hidden email]] On Behalf Of > kikkie2004 > Sent: 16 October 2010 06:06 > To: [hidden email] > Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie > > > > > Thanks Loni, I appreciate the validation and similar story. > > Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I > also know being under their fluorescent lights and having CAT scans (which > is what my mother wants me to have) will only make me a million times worse. > > She went to see one on her own though, and he explained to her all about > psychosomatic disorders and how I needed help really soon. And that it did > feel 'real' to me, because I now so much believed that it was real. And she > rang my husband with all this news, so that he could persuade me to go to a > psychiatrist. So he was 'very shocked' by all this, 'finding out that all > these changes were just because of my mental problems'. > > My husband doesn't discuss this with other people, although we're getting > divorced, so I'm sure it'll come up as a reason later on. But my mother I'm > sure is discussing it with my siblings, relatives, etc, so probably quite a > few people out there now that think I'm nuts. > > I have been to psychiatrists before any way (tried them as a possibility to > get rid of CFS-induced depression and insomnia). So either way I've tried > every class of psychiatric medicine (tons of them). And they did nothing for > anything, just made me worse. To me the proof is in the pudding - what has > helped most of all for fatigue, depression and insomnia is avoiding EMF > gung-ho. But alas, it doesn't prove anything to them. > > My child is eight, so he's still along way off from not being actively > mothered. > > Becoming actively involved in this group now (instead of lurking) (although > I can't sit infront of the PC too long), has been the greatest blessing > though - finding people going through the same thing, and feeling that I can > say anything (no matter how strange it sounds). > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , Loni > <loni326@> wrote: > > > > Kikkie! > >  > > Hey my husband is like your mom. I actually did the psychiatric thing & > thought "oh they'll see that I am sane & tell my husband" But they didn't > do any tests at all and just though it odd & slapped the delusional tag on > me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my > family bully me in to that. Now my husband can use that and does. > >  > > Sooooooo my EI doc told my husband that my perspective was fine & my > injury was real but he still doesn't believe. Doc told us to go to a > Neuropsychologist. They can do the tests & tell you for sure. So did that & > he told my husband & sister that my perspective was fine but have some brain > damage due to the exposures (memory) . The injury is real so on & so > forth. > >  > > But you know my husband still is obstinate about it. He just doesn't WANT > to believe because then he might have to move or make accomodations he > doesn't want to deal with. > >  > > Your mom may just never understand & you just may have to let it go! Some > people are very CLOSED MINDED and are "know it alls" Like my husband. > >  > > The unfortuneate thing for me is that my husband has ruined my reputation > & it is hurtful because I am avoided basically. But I am dealing with the > ostrazism too. Got a lot on my plate lately as well. > >  > > I'll forward some info that you can send to your mom & maybe give to your > husband too. > >  > > How old is your child?. So sorry you are going through this having to > raise a child. My kids are 17 & 19 so don't have to worry too much about > them. I really feel for your situation. Can relate! > >  > > Loni > >  > >  > >  > >  > > > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@> wrote: > > > > > > From: kikkie2004 <kirsty.weight@> > > Subject: [eSens] Re: jobs anybody? > > To: [hidden email] <mailto:eSens%40yahoogroups.com> > > Date: Thursday, October 14, 2010, 10:19 PM > > > > > >  > > > > > > > > Thanks, Stewart > > > > I've had CFS for many years, and these last few months were the best that > I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as > far as possible. And that's after trying everything else, from 'alternative > stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to > conventional stuff like antidepressants, etc. So I would have thought this > would be proof enough. > > > > I've also printed her off much literature regarding EMF, including info > about 'first world countries' such as Sweden acknowledging it and bringing > out guidelines about it. > > > > All to no avail. So I've pretty much given up on her. > > > > Being female cuts out some of the more hard labour EMF-free jobs for me; > and the car and powerlines definitely affect me very much as well. > > > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , S > Andreason <sandreas41@> wrote: > > > > > > kikkie2004 wrote: > > > > My mother doesnt' believe me at all, and has begged me to see a > psychiatrist. She's in fact even threatened to have me certified. Now we've > agreed to disagree, and neither of us bring up the subject. > > > > > > > > It's all very painful to me, I wish I could have something > 'conventional' wrong with me. > > > > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > > Since I don't know of any such test, perhaps a different approach could > > > be useful. > > > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > > > bothering you? > > > (or did she ignore you... probably not) > > > > > > When horses put their ears back and stomp their feet, do we conclude > > > they are making it up or bluffing? > > > or if they are limping, maybe they are faking it and don't want to > > > work... Animals don't lie. Too bad people do, and believe other people > > > all do too. > > > > > > Obviously the problem is Denial. > > > and unfortunately, showing them a meter that proves there is EMF in the > > > air does not make the leap to proving it is harmful, or hurting us, or > > > torturing us. > > > It might however, start the thinking process. > > > > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > > > have been disabled since 1993. I have tried a few jobs that almost > > > worked, if my other symptoms did not make me unemployable. > > > I improved when retreating to the forest, and trimming trees in a tree > > > farm. I think there are still forestry jobs out here that work in the > field. > > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > > (Horses put out no magnetic field and don't require batteries. :) > > > (Bio-electric fields don't qualify.) > > > If you can find a quiet car, rural mail delivery may work, except for > > > driving along the power lines. > > > Being a farrier is also low tech, except again for lots of travel time, > > > and barns that are not rural enough (which keeps me from pursuing that > > > idea.) > > > > > > The best proof, is being able to turn off the emitting sources, (power > > > off, or change location) and getting a positive result (less pain etc). > > > So I know you are not crazy. > > > > > > Stewart > > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > [Non-text portions of this message have been removed] >
Electrostatically Yours,
Minni, Lysine4flu blog |
In reply to this post by Ian Kemp
I've heard of NAET helping some people, but it was such a long drawn out process, that the prospect of trying it gave me cold feet, not to mention the certified NAET pr who used to work in my area wasn't available anymore.
I did bark down similar trees such as FCT, NMT, Neurocognitive Therapy, NES (nutrienergetics), QXCI, QRS-mat, ad nauseum, and each was a huge letdown for various reasons & huge disillusionment along the way. All these were just the tip of iceberg of stuff I tried. But for people who have lots of money & lots of luck (which I lack), who knows, NAET might be worth investigating. I've also been researching Cosmodic Modific since it sounded pretty advanced. But by now I'm over-jaded & cynical. Minni --- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote: > > I have not heard of anyone else being damaged by the Oberon machine in the > same way, and it seems that Sue's immune system was at such a low ebb due to > the MCS that she was extremely susceptible to the radiation, which acted as > a trigger. > > Ian > > _____ >
Electrostatically Yours,
Minni, Lysine4flu blog |
In reply to this post by Minni
Good Point about friends! Loni
--- On Mon, 10/18/10, minnimall <[hidden email]> wrote: From: minnimall <[hidden email]> Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie To: [hidden email] Date: Monday, October 18, 2010, 12:51 AM IMO, any friends you lost due to their non-empathetic skepticism, were not true "friends" to begin with, so it's no real loss. My siblings and dad are skeptical too, but my nieces act more open-mindedly, indicative of less arrogance. Re: Diet I find that astringent drinks such as low-acid coffee (with molasses & creamer or soymilk to counteract acidity & GERD) helps vs. eye inflammation (note that coffee helps diabetes, Parkinsons & Alzheimers too). Also, berry teas (cherry-berry/wildberry) followed by probiotic-yogurts are excellent, ..as are yams & hot oatmeal & flaxoil & eggs. Salt doesn't mix well w/computer use (it's dehydrating & exacerbates irritation). Nor do high acids or spices, due to triggering nerves. Though popcorn may not be so bad, since the corn part of it is calming, maybe due to lysine, or that it's starchy (thus sorta grounding). Minni --- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote: > > Hi Kikkie and Loni, > Eeugh.. I feel for you both (and for all others in the group facing similar > problems).. > > The snag is that severe ES is so far outside people's normal experience and > everyday "common sense" that it's really hard for them to deal with. A bit > like, say, severe nut allergy, except that as nut allergy is officially > recognised, people can believe in it much more easily. > > In an odd way we were fortunate - I saw the "trigger event" which gave ES to > my wife Sue, so it was easier for me to believe in what was happening. Even > then it was sometimes very hard to comprehend some of the changes and > reactions which took place in the following few months. As a > scientist/engineer it has given me lots of food for thought ... > > We have learnt, sadly, to be very careful who we talk to about Sue's ES. We > have lost some of our friends who were totally sceptical - one of Sue's > friends told me she was psychotic! But some others have been more open and > accepting - not always the people you'd expect either. My boss at work, a > hard-headed engineer, was surprisingly open - it turned out that he has a > daughter with severe dust-mite allergy so has battled similar things > himself. > > An extra reason to steer clear of psychiatrists - if your CFS and ES are > down to immune system problems (which seems to be the most common initial > root cause), these may be worsened by drugs if your body can't metabolise > them. Certainly Sue got all sorts of nasty side effects from SSRI's (Paxil > etc), including some horrible "black fogs" - so the drugs actually ended up > inducing clinical depression which she hadn't had before! Thankfully that > is now long since behind us, and Sue's ES is also now much improved from > where it was. > > Hopefully one day people in general will have better understanding, but it > is a long haul. > > Ian > > _____ > > From: [hidden email] [mailto:[hidden email]] On Behalf Of > kikkie2004 > Sent: 16 October 2010 06:06 > To: [hidden email] > Subject: [eSens] Re: Family/Psychiatrists/Social Ostracizism/Kikkie > > > > > Thanks Loni, I appreciate the validation and similar story. > > Yeah, definitely won't go to a psychiatrist, I know I'm not insane, and I > also know being under their fluorescent lights and having CAT scans (which > is what my mother wants me to have) will only make me a million times worse. > > She went to see one on her own though, and he explained to her all about > psychosomatic disorders and how I needed help really soon. And that it did > feel 'real' to me, because I now so much believed that it was real. And she > rang my husband with all this news, so that he could persuade me to go to a > psychiatrist. So he was 'very shocked' by all this, 'finding out that all > these changes were just because of my mental problems'. > > My husband doesn't discuss this with other people, although we're getting > divorced, so I'm sure it'll come up as a reason later on. But my mother I'm > sure is discussing it with my siblings, relatives, etc, so probably quite a > few people out there now that think I'm nuts. > > I have been to psychiatrists before any way (tried them as a possibility to > get rid of CFS-induced depression and insomnia). So either way I've tried > every class of psychiatric medicine (tons of them). And they did nothing for > anything, just made me worse. To me the proof is in the pudding - what has > helped most of all for fatigue, depression and insomnia is avoiding EMF > gung-ho. But alas, it doesn't prove anything to them. > > My child is eight, so he's still along way off from not being actively > mothered. > > Becoming actively involved in this group now (instead of lurking) (although > I can't sit infront of the PC too long), has been the greatest blessing > though - finding people going through the same thing, and feeling that I can > say anything (no matter how strange it sounds). > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , Loni > <loni326@> wrote: > > > > Kikkie! > >  > > Hey my husband is like your mom. I actually did the psychiatric thing & > thought "oh they'll see that I am sane & tell my husband" But they didn't > do any tests at all and just though it odd & slapped the delusional tag on > me! So DO NOT GO TO A PSYCHIATRIST. Biggest mistake in my life letting my > family bully me in to that. Now my husband can use that and does. > >  > > Sooooooo my EI doc told my husband that my perspective was fine & my > injury was real but he still doesn't believe. Doc told us to go to a > Neuropsychologist. They can do the tests & tell you for sure. So did that & > he told my husband & sister that my perspective was fine but have some brain > damage due to the exposures (memory) . The injury is real so on & so > forth. > >  > > But you know my husband still is obstinate about it. He just doesn't WANT > to believe because then he might have to move or make accomodations he > doesn't want to deal with. > >  > > Your mom may just never understand & you just may have to let it go! Some > people are very CLOSED MINDED and are "know it alls" Like my husband. > >  > > The unfortuneate thing for me is that my husband has ruined my reputation > & it is hurtful because I am avoided basically. But I am dealing with the > ostrazism too. Got a lot on my plate lately as well. > >  > > I'll forward some info that you can send to your mom & maybe give to your > husband too. > >  > > How old is your child?. So sorry you are going through this having to > raise a child. My kids are 17 & 19 so don't have to worry too much about > them. I really feel for your situation. Can relate! > >  > > Loni > >  > >  > >  > >  > > > > --- On Thu, 10/14/10, kikkie2004 <kirsty.weight@> wrote: > > > > > > From: kikkie2004 <kirsty.weight@> > > Subject: [eSens] Re: jobs anybody? > > To: [hidden email] <mailto:eSens%40yahoogroups.com> > > Date: Thursday, October 14, 2010, 10:19 PM > > > > > >  > > > > > > > > Thanks, Stewart > > > > I've had CFS for many years, and these last few months were the best that > I've ever felt energy-wise, sleepwise, moodwise. Providing I avoid EMF as > far as possible. And that's after trying everything else, from 'alternative > stuff' like chelation, nutrient therapy, scio, rife, antibiotics, to > conventional stuff like antidepressants, etc. So I would have thought this > would be proof enough. > > > > I've also printed her off much literature regarding EMF, including info > about 'first world countries' such as Sweden acknowledging it and bringing > out guidelines about it. > > > > All to no avail. So I've pretty much given up on her. > > > > Being female cuts out some of the more hard labour EMF-free jobs for me; > and the car and powerlines definitely affect me very much as well. > > > > --- In [hidden email] <mailto:eSens%40yahoogroups.com> , S > Andreason <sandreas41@> wrote: > > > > > > kikkie2004 wrote: > > > > My mother doesnt' believe me at all, and has begged me to see a > psychiatrist. She's in fact even threatened to have me certified. Now we've > agreed to disagree, and neither of us bring up the subject. > > > > > > > > It's all very painful to me, I wish I could have something > 'conventional' wrong with me. > > > > > > > > > > All we need is a medical "test" that "Proves" you are in pain. > > > Since I don't know of any such test, perhaps a different approach could > > > be useful. > > > > > > Tell mom when you were a baby, and cried, Did mom conclude something was > > > > bothering you? > > > (or did she ignore you... probably not) > > > > > > When horses put their ears back and stomp their feet, do we conclude > > > they are making it up or bluffing? > > > or if they are limping, maybe they are faking it and don't want to > > > work... Animals don't lie. Too bad people do, and believe other people > > > all do too. > > > > > > Obviously the problem is Denial. > > > and unfortunately, showing them a meter that proves there is EMF in the > > > air does not make the leap to proving it is harmful, or hurting us, or > > > torturing us. > > > It might however, start the thinking process. > > > > > > > > > Back to the original question, I'll stop lurking long enough to say... I > > > > have been disabled since 1993. I have tried a few jobs that almost > > > worked, if my other symptoms did not make me unemployable. > > > I improved when retreating to the forest, and trimming trees in a tree > > > farm. I think there are still forestry jobs out here that work in the > field. > > > I was able to "chase" and monitor cows on a dairy farm from horseback. > > > (Horses put out no magnetic field and don't require batteries. :) > > > (Bio-electric fields don't qualify.) > > > If you can find a quiet car, rural mail delivery may work, except for > > > driving along the power lines. > > > Being a farrier is also low tech, except again for lots of travel time, > > > and barns that are not rural enough (which keeps me from pursuing that > > > idea.) > > > > > > The best proof, is being able to turn off the emitting sources, (power > > > off, or change location) and getting a positive result (less pain etc). > > > So I know you are not crazy. > > > > > > Stewart > > > http://seahorseCorral.org/ehs1.html > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > [Non-text portions of this message have been removed] > [Non-text portions of this message have been removed] |
In reply to this post by evie15422
Forgot about that Diane LOLOL although it is more of a hobby than anything else
- for the moment at least! love Steph ________________________________ From: Evie <[hidden email]> To: [hidden email] Sent: Mon, 18 October, 2010 4:20:35 Subject: Re: [eSens] jobs anybody? Hey, Steph, What about jewelry designing, seriously! You love stringing beads. You might not get rich, but you might surprise yourself! Diane --- On Thu, 10/14/10, Stephanie Smith <[hidden email]> wrote: From: Stephanie Smith <[hidden email]> Subject: Re: [eSens] jobs anybody? To: [hidden email] Date: Thursday, October 14, 2010, 11:29 AM what's a scan gun? es - job wise for me - rules out so much - I find computers difficult for anything longer than short periods and cell phones cause me intense pain and fatigue not to mention the scrambled brain I'm thinking if i could build up my stamina and energy levels [plus could come to terms with my problems with leaf mould LOL] I might be capable of a little light gardening out in the wilderness somewhere or something artistic [provided the chemicals were on the low side] - maybe some creative needlework? big demand for that these days [not!] yes slim pickings indeed workwise and the government here in the UK totally accepts the line fed to them by Freud and Simon Wellesley that ES is a psychosomatic illness curable [or at least treatable] with a course of cognitive behavioural therapy, in one clean sweep negating any entitlement to benefits and making sure that no one can sue the government which has installed all the wifi and licensed the cell phone companies [at great bounty to the UK treasury] and our economy is now so dependent on this infrastructure that in a time of recession Essers like us are nothing more than a bit of collateral damage. Google Simon Wellesley and electrosensitvity and sooner or later in the search results that is what you will come across. He is the psychiatrist which has totally convinced the UK government that ME/ CFS is not a serious illness requiring medical treatment leaving 250,000 (and rising) people to suffer in this country and he sees ES as being part of the same paradigm. The hypocrisy is nauseating indeed. ________________________________ From: "[hidden email]" <[hidden email]> To: [hidden email] Sent: Thu, 14 October, 2010 12:00:50 Subject: Re: [eSens] jobs anybody? puk replies - yes job wise things getter slimmer and slimmer ! as for the scan guns are you aware of the sweedish guy voted top salesman of the year at some stage who became ES due to these guns, he apparently ended up on the street after being branded mentally ill.... not sure what the story is entitled In a message dated 14/10/2010 11:06:57 GMT Daylight Time, [hidden email] writes: Hi, the newbie has a starter question. What jobs do you all have? I just lost my last job due to eletrosensitivity (RFID both general and with these nasty scan guns) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by evie15422
I just had a thought, depending on location, etc.
How about dog walking? :) I can't hold a job either. I housesit out in the country here, and the wifi has crept into the area the past couple years making it wuite uncomfortable even here at times. ~ Snoshoe --- In [hidden email], Evie <evie15422@...> wrote: > > Hey, Steph, >  > What about jewelry designing, seriously! You love stringing beads. You might not get rich, but you might surprise yourself! >  > Diane > |
In reply to this post by evie15422
Hi Diane
Many thanks for your reply. I'm glad to hear that some people's ES gets much better, that's something to look forward to. I'm moving to a farm tomorow for a few weeks, and if it goes well, I'll move there on a long term basis. The house I'll be staying in seems good re EMF. There is cell phone coverage, but at least it should be much less than where I stay now. I'll be helping the farmer with admin work (minimum PC etc and no fluorescents) half day in return for the accommodation. So really a good thing if it all works well. I am also gluten free and don't have it in the house either. Although I do succumb to it once in a blue moon, and also accidentally get it in when I (rarely) eat out, as it's in everything. The moment I have any, my stomach gets upset, my throat burns and it affects me mentally as well. I'll look into Dr Tennant's protocol as well, I can't find his site googling. My diet isn't very nutritious, I react so much to food, and especially to salicylates, that I pretty much eat (organic) meat and white rice. I do supplement some with Cellfood and other stuff though (must look into hydrogen supplements as well). Yes, I would love more information. Thanks again K --- In [hidden email], Evie <evie15422@...> wrote: > > Hi, Kikkie, >  > Welcome to the group! I hope you find the help you seek. >  > I do almost the same things as Marc, plus some stuff of my own. I have minimal ES now, but I still practice avoidance when possible. Especially, I have been better since detoxing my bone-marrow thru homeopathy (I just eluded to that in another email so won't go further on that topic). I also have worked on supplementation and nutrient loading thru eating healthier and organically.  For me, personally, I could not have gotten anywhere if I had not gone completely gluten-free (and I mean 0 gluten--none in health/ beauty products, none in home, I avoid restaurants and processed foods due to contaminated manufacturing lines. I even avoid airborne glutens. O glutens, period). That was how I recovered from fibromyalgia and CFS, too. There were also gut flora issues I had to address, plus raising my pH to recover from CFS. Long story, but if you want to know more I can share privately. (But since I am not often online, lately, if you > miss me, know SOME DAY you will hear from me, but don't hold your breathe or you will surely pass-out! ;)  I am behind on about 200 emails right now.)  Pretty much, I just do the normal anti- parasitic (fungi, bacteria, virus, etc) diet and "germicidals" (natural parasitic killers) and follow anti-candida protocols. I used hydrogen supplements and alkaline water and foods to raise my pH. >  > I also avoid eating sugars and sugar-alcohols. While I don't go as crazy with this as with the gluten, it helps when I am zero sugars. I work at raising my pH to between 7.35 and 7.50, and as Snoshoe and Stephen here will tell you, that also means my cell voltage is then also correct, which is also a good thing! ;) (Thankyou Snoshoe and Stephen for enlightening me!) I pretty much follow Dr Tennant's protocol to a T.  (By accident--I didn't know I followed a protocol until Stephen sent me a 86? page excerpt from the Tennant book, which I think is accessible on-line at his site.) So if you need more info on what I do, reading his book or the 80+ pg excerpt should explain it better than I would. I don't have the site address where the excerpt is, but ask if you want it and Stephen (thanks, Stephen), will probably be kind and send it to you. :) If you have thyroid, adrenal, or liver disease, you need to work on targeted supplements to > those. Again, you can ask me privately if you need more help. I also have autonomic nervous system disorder and that is how emfs most present themselves with me lately. But even that is much better since doing detoxing, etc. >  > Good luck. I hope you find the help you need, > Diane > > --- On Thu, 10/14/10, Marc Martin <marc@...> wrote: > > > From: Marc Martin <marc@...> > Subject: Re: [eSens] ES under control > To: [hidden email] > Date: Thursday, October 14, 2010, 10:00 AM > > >  > > > > > How have you got your ES under control? > > By trying everything possible and continuing to use most everything that > I've found to be helpful. For example: > > -- using a few select EMF protection devices > -- "easy" alterations of EMF environment (move some things further away > from me, switch to old-fashion technology in some cases -- incandescent > lightbulbs, wired phones, wired internet, monochrome-screen cellphone) > -- changing diet to one loaded with nutrients (minimal junk food) > -- supplements to help rebuild my adrenal glands > -- supplements to help detoxify heavy metals / chemicals > -- some anti-oxidant & mineral & vitamin supplements > -- replacing all metal dental work with non-metal > -- reducing the amount of metal worn (including eyeglasses, watches, belt buckles) > -- non-metal bed (frame, mattress) helps > -- static-dissipative shoes *might* help > > Some have reported being completely cured by completing a heavy metal detox, > so this is what I'm pursuing as a long-term solution. However, a complete > heavy metal detox can take many years for some people... depends on how > fast you can tolerate getting that stuff out of your system. > > Marc > > > > > > > > > > > > [Non-text portions of this message have been removed] > |
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