The reason I ask is because a casting producer for a show on Discover
Health/Mystery Diagnosis is looking for people with unusual illnesses. Prerequisites are that the patient needs to live in the US, a medical doctor must have given you the diagnosis (no self-diagnosed electrosensitives), and the doctor must practice in your area and be willing to get involved. Here is the info: Please contact MYSTERY DIAGNOSIS at: [hidden email] or (212) 645-0904 and leave a message on their hotline. Be sure to include your full name, phone number, email address, and disease. I have severe electrosensitivities myself, but unfortunately I have not been diagnosed "officially" by a medical doctor. If you are interested, please write to the producer. Carol |
it is hard to find a dr & very Expensive! suffer myself & since p/t & hmo ins no diagnosis yet hoping someone will step fwd
thanks! God Bless Sheila Carol <[hidden email]> wrote: The reason I ask is because a casting producer for a show on Discover Health/Mystery Diagnosis is looking for people with unusual illnesses. Prerequisites are that the patient needs to live in the US, a medical doctor must have given you the diagnosis (no self-diagnosed electrosensitives), and the doctor must practice in your area and be willing to get involved. Here is the info: Please contact MYSTERY DIAGNOSIS at: [hidden email] or (212) 645-0904 and leave a message on their hotline. Be sure to include your full name, phone number, email address, and disease. I have severe electrosensitivities myself, but unfortunately I have not been diagnosed "officially" by a medical doctor. If you are interested, please write to the producer. Carol --------------------------------- Never miss a thing. Make Yahoo your homepage. [Non-text portions of this message have been removed] |
I'm in the same boat. A poster on another ES forum is trying to put
me in touch with someone who knows Dr. Carlo. I am desperate for an official diagnosis because I believe my electrosensitivities are fueling my chronic Lyme, and with no doctor believing in either, life has been horrible for me. I think there is a Dr. Rea in Texas. Is there anyone here who sees him and received a diagnosis of ES. I'd go to him, but I live in PA so I'm too far away. I never get a break from EMF either, because I'm two houses away from some power lines, and the current travels along the ground wiring under my home. Peace, Carol --- In [hidden email], sheila wade <sheila_texas@...> wrote: > > it is hard to find a dr & very Expensive! suffer myself & since p/t & hmo ins no diagnosis yet hoping someone will step fwd > thanks! > God Bless > Sheila > > Carol <YoRed24@...> wrote: > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > I have severe electrosensitivities myself, but unfortunately I have > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > |
In reply to this post by sheila wade
hmm, that is an interesting question, for people in the US at least,
I would like to know if that is possible, best I could do was find a doctor who was glad that I figured out what was causing my problem. I hope that being diagnosed ES here doesn't require that the doctor and the ES person are one and the same. Jon --- In [hidden email], sheila wade <sheila_texas@...> wrote: > > it is hard to find a dr & very Expensive! suffer myself & since p/t & hmo ins no diagnosis yet hoping someone will step fwd > thanks! > God Bless > Sheila > > Carol <YoRed24@...> wrote: > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > I have severe electrosensitivities myself, but unfortunately I > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > |
In reply to this post by Carol
In a message dated 3/25/2008 7:02:55 AM GMT Standard Time, [hidden email] writes: > I have severe electrosensitivitie I have severe electrosens have not > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol What is the definition in medical terms of Diagnosis, what established criteria do we have and if so has the medical mainstream taken this on board and oficially endorsed the diagnostic criteria and so on... There are many diseases that have diagnostic markers,clues but often a process of illimination is used to arrive at a ultimate diagnosis, ES like so, for many the symptoms are so difuse that simply placing someone close to an offending device/devices will not serve as a diagnosis particularly as we are now swamped by esmog. I have had written oppinion from Dr David Dowson here in UK for purposes of employment tribunal, where he stated that he considered that I was ES on balance of subjective evidence, but a Diagnosis was not expressed. Who is qualified to diagnose and so on .... Paul UK [Non-text portions of this message have been removed] |
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In reply to this post by prentice_jon
prentice_jon wrote:
> hmm, that is an interesting question, for people in the US at least, > I would like to know if that is possible, best I could do was find a > doctor who was glad that I figured out what was causing my problem. > I hope that being diagnosed ES here doesn't require that the doctor > and the ES person are one and the same. I think that in order to be diagnosed with something, there has to be an official diagnosis "code", which means the illness has to be officially recognized? I know that when my ES was at it's worst and my employer required a diagnosis from my doctor for my medical disability, the best my doctor could come up with was "chronic fatigue syndrome", as there was a code for that... Marc |
In reply to this post by prentice_jon
Hi, Jon,
Dr. Rae's patient consultant (Dr Rae of the Environmental Health Clinic of Dallas) told me I "was probably ES" by phone. (Something I had already strongly suspected.) When I asked--2 years ago--whether Dr. Rae had a protocol for ES, she said he was trying to eliminate toxins and felt they were responsible and that lymphatic overload was somehow responsible. Again, this was something I already knew. I asked whether he has had success in helping people recover from ES symptoms, and she said only within the first 2 years; after that he sees little improvement. I asked alot of other questions also, about pesticides and liver detox pathway dysfunction. She mentioned to me (again, remember this is 2 years ago) that he was working on the liver detox pathway dysfunctions and had, at that time, not felt he had that worked out. (At least this was my take on what she said.) So, it is possible that we could get a dx of ES from Dr. Rae. Whether that dx would hold up in the medical profession as a whole is debatable. I still had problems getting a medical doc to accept celiac disease as a valid dx in 2003! But, if I were to be treated or get a dx, that would be where I would start. Dr. Rae gets some flack because his clinic's patient rooms are not set up for ES. To his credit, tho, he set his rooms up so his MCS patients would not react to woods, etc. (That is why so much metal furniture.) He was working with MCS patients way before he was aware of ES and so his rooms reflect that. I was told that many of his ES patients travel there and live in their own RVs at a nearby campground. This was all within the discussion I had with the patient consultant 2 years ago. Things may have changed since then. This is his site: http://www.ehcd.com/ Diane prentice_jon <[hidden email]> wrote: hmm, that is an interesting question, for people in the US at least, I would like to know if that is possible, best I could do was find a doctor who was glad that I figured out what was causing my problem. I hope that being diagnosed ES here doesn't require that the doctor and the ES person are one and the same. Jon --- In [hidden email], sheila wade <sheila_texas@...> wrote: > > it is hard to find a dr & very Expensive! suffer myself & since p/t & hmo ins no diagnosis yet hoping someone will step fwd > thanks! > God Bless > Sheila > > Carol <YoRed24@...> wrote: > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > I have severe electrosensitivities myself, but unfortunately I > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > > > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. [Non-text portions of this message have been removed] |
In reply to this post by PUK
Hi, Paul,
Here in the US, the dx has to be recognised by the AMA to take on credibility. But even then this is not actually always the case. As I mentioned earlier, celiac disease is still questioned by some docs. Also, prior to the arrival of Dr Alessio Fasano (from Italy) on America's shores in the late 1990's, celiac disease was taught in US med schools as a rare disease, mainly of children, causing wasting and diarrhea, which the normal physician would likely never encounter in his practice during his lifetime. We all now know this is bunk! Dr. Fasano did a study of the US Red Cross blood supply (in blood banks) in, I believe the late 1990's, and found an incidence of celiac disease in 1/133 people. Since then, in 2003, he redid his study on actual people in various parts of the US and found the incidence to be 1/100 people. This was not a genetic test, which would net a much larger incidence, but a blood test for active cd. So that tells you alot about how flawed our medical system is. I had cd from infancy and was dxed at age 49 (in 2000). I can thank Dr. Fasano directly for that, because without him, docs would still not be able to dx it. My 2 cents, Diane [hidden email] wrote: In a message dated 3/25/2008 7:02:55 AM GMT Standard Time, [hidden email] writes: > I have severe electrosensitivitie I have severe electrosens have not > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol What is the definition in medical terms of Diagnosis, what established criteria do we have and if so has the medical mainstream taken this on board and oficially endorsed the diagnostic criteria and so on... There are many diseases that have diagnostic markers,clues but often a process of illimination is used to arrive at a ultimate diagnosis, ES like so, for many the symptoms are so difuse that simply placing someone close to an offending device/devices will not serve as a diagnosis particularly as we are now swamped by esmog. I have had written oppinion from Dr David Dowson here in UK for purposes of employment tribunal, where he stated that he considered that I was ES on balance of subjective evidence, but a Diagnosis was not expressed. Who is qualified to diagnose and so on .... Paul UK [Non-text portions of this message have been removed] --------------------------------- Never miss a thing. Make Yahoo your homepage. [Non-text portions of this message have been removed] |
Lots of places you can get a QEEG test (look up neurofeedback therapy).
Slowing of the alpha rhythm has been seen in at least some EHS, and indicates serious problems (eg early stage Alzheimer's). Bill On Tue, Mar 25, 2008 at 11:30 AM, Evie <[hidden email]> wrote: > Hi, Paul, > > Here in the US, the dx has to be recognised by the AMA to take on > credibility. But even then this is not actually always the case. As I > mentioned earlier, celiac disease is still questioned by some docs. Also, > prior to the arrival of Dr Alessio Fasano (from Italy) on America's shores > in the late 1990's, celiac disease was taught in US med schools as a rare > disease, mainly of children, causing wasting and diarrhea, which the normal > physician would likely never encounter in his practice during his lifetime. > We all now know this is bunk! Dr. Fasano did a study of the US Red Cross > blood supply (in blood banks) in, I believe the late 1990's, and found an > incidence of celiac disease in 1/133 people. Since then, in 2003, he redid > his study on actual people in various parts of the US and found the > incidence to be 1/100 people. This was not a genetic test, which would net a > much larger incidence, but a blood test for active cd. So that tells you > alot about how flawed our > medical system is. I had cd from infancy and was dxed at age 49 (in 2000). > I can thank Dr. Fasano directly for that, because without him, docs would > still not be able to dx it. > > My 2 cents, > Diane > > > [hidden email] <paulpjc%40aol.com> wrote: > > In a message dated 3/25/2008 7:02:55 AM GMT Standard Time, > [hidden email] <prentice_jon%40yahoo.com> writes: > > > I have severe electrosensitivitie I have severe electrosens > have not > > been diagnosed "officially" by a medical doctor. If you are > interested, > > please write to the producer. > > > > Carol > > What is the definition in medical terms of Diagnosis, what established > criteria do we have and if so has the medical mainstream taken this on > board and > oficially endorsed the diagnostic criteria and so on... There are many > diseases > that have diagnostic markers,clues but often a process of illimination is > used to arrive at a ultimate diagnosis, ES like so, for many the symptoms > are > so difuse that simply placing someone close to an offending device/devices > > will not serve as a diagnosis particularly as we are now swamped by esmog. > > I have had written oppinion from Dr David Dowson here in UK for purposes > of > employment tribunal, where he stated that he considered that I was ES on > balance of subjective evidence, but a Diagnosis was not expressed. > Who is qualified to diagnose and so on .... > > Paul UK > > [Non-text portions of this message have been removed] > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > > > [Non-text portions of this message have been removed] |
In reply to this post by evie15422
Hi,
Two months ago I've been diagnosed EHS by Dr William Rea of the Environmental Health Center in Dallas. I did some EMF testing showing sensibility to 50Hz and 60Hz EMF fields. I think that the protocol they use to do the testing is probably the one reported in this article. http://www.aehf.com/articles/em_sensitive.html Best regards, Daniel --- In [hidden email], Evie <evie15422@...> wrote: > > Hi, Jon, > > Dr. Rae's patient consultant (Dr Rae of the Environmental Health Clinic of Dallas) told me I "was probably ES" by phone. (Something I had already strongly suspected.) When I asked--2 years ago--whether Dr. Rae had a protocol for ES, she said he was trying to eliminate toxins and felt they were responsible and that lymphatic overload was somehow responsible. Again, this was something I already knew. I asked whether he has had success in helping people recover from ES symptoms, and she said only within the first 2 years; after that he sees little improvement. I asked alot of other questions also, about pesticides and liver detox pathway dysfunction. She mentioned to me (again, remember this is 2 years ago) that he was working on the liver detox pathway dysfunctions and had, at that time, not felt he had that worked out. (At least this was my take on what she said.) So, it is possible that we could get a dx of ES from Dr. Rae. Whether that dx would hold up in the > medical profession as a whole is debatable. I still had problems getting a medical doc to accept celiac disease as a valid dx in 2003! But, if I were to be treated or get a dx, that would be where I would start. Dr. Rae gets some flack because his clinic's patient rooms are not set up for ES. To his credit, tho, he set his rooms up so his MCS patients would not react to woods, etc. (That is why so much metal furniture.) He was working with MCS patients way before he was aware of ES and so his rooms reflect that. I was told that many of his ES patients travel there and live in their own RVs at a nearby campground. This was all within the discussion I had with the patient consultant 2 years ago. Things may have changed since then. This is his site: > > http://www.ehcd.com/ > > Diane > > prentice_jon <prentice_jon@...> wrote: > hmm, that is an interesting question, for people in the US at least, > I would like to know if that is possible, best I could do was find a > doctor who was glad that I figured out what was causing my problem. > I hope that being diagnosed ES here doesn't require that the doctor > and the ES person are one and the same. > Jon > > --- In [hidden email], sheila wade <sheila_texas@> wrote: > > > > it is hard to find a dr & very Expensive! suffer myself & since > p/t & hmo ins no diagnosis yet hoping someone will step fwd > > thanks! > > God Bless > > Sheila > > > > Carol <YoRed24@> wrote: > > The reason I ask is because a casting producer for a > show on Discover > > Health/Mystery Diagnosis is looking for people with unusual > illnesses. > > Prerequisites are that the patient needs to live in the US, a > medical > > doctor must have given you the diagnosis (no self-diagnosed > > electrosensitives), and the doctor must practice in your area and > be > > willing to get involved. > > > > Here is the info: > > > > Please contact MYSTERY DIAGNOSIS at: > > > > eanniello@ or (212) 645-0904 and leave a message > > on their hotline. Be sure to include your full name, phone number, > > email address, and disease. > > > > I have severe electrosensitivities myself, but unfortunately I > have not > > been diagnosed "officially" by a medical doctor. If you are > interested, > > please write to the producer. > > > > Carol > > > > > > > > > > > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > [Non-text portions of this message have been removed] > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! > > [Non-text portions of this message have been removed] > |
In reply to this post by Carol
I have trouble with grains, too, not to mention all foods high in
calcium or iron. Anybody else have that problem? I recently read an article that magnetic iron oxides were increased in the brains of Alzheimer's patients, and I do show early symptoms. That may explain the problem with iron that I experience. I would think that the producer would be content with any medically licensed doctor who was willing to back up a diagnosis of ES publicly, and with some amount of scientific evidence. Maybe you should write her, Dan, if Dr. Rea has diagnosed you with this? I'm not sure why I was unable to post the direct link to the email address of this producer, so email eanniello AT trueentertainment DOT net if you are interested, and keep us posted if she responds. Or you can call her at the number in my previous post. Carol --- In [hidden email], "Carol" <YoRed24@...> wrote: > > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > > I have severe electrosensitivities myself, but unfortunately I have > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > |
Hi, Carol,
Not saying this is your problem, but celiacs have problems with grains, calcium, and iron. Sometimes other nutrients as well--carnitine, b12, molybdenum.... Have you had problems with excess of these or deficiencies? Celiacs can have either, tho it is usually deficiency. But sometimes testing will show excesses mainly because the sites where these nutrients are taken into the blood stream are damaged and they lack the needed "carriers" to be taken into the cells, and so they just clog up the blood stream and over tax the liver. Diane Carol <[hidden email]> wrote: I have trouble with grains, too, not to mention all foods high in calcium or iron. Anybody else have that problem? I recently read an article that magnetic iron oxides were increased in the brains of Alzheimer's patients, and I do show early symptoms. That may explain the problem with iron that I experience. I would think that the producer would be content with any medically licensed doctor who was willing to back up a diagnosis of ES publicly, and with some amount of scientific evidence. Maybe you should write her, Dan, if Dr. Rea has diagnosed you with this? I'm not sure why I was unable to post the direct link to the email address of this producer, so email eanniello AT trueentertainment DOT net if you are interested, and keep us posted if she responds. Or you can call her at the number in my previous post. Carol --- In [hidden email], "Carol" <YoRed24@...> wrote: > > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > > I have severe electrosensitivities myself, but unfortunately I have > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. [Non-text portions of this message have been removed] |
In reply to this post by Carol
Oh, sorry, should have mentioned, when you eat foods high in these and the sites in the gut are damaged where they are supposed to exit the gut to the bloodstream, you can get symptoms of liver dysfunction--I even sometimes had jaundice. So, if these are the type reactions you are having, you might suspect gut damage. This would not necessarily have to be from celiac disease (but you do mention glutens bothering you). It could also be due to lactose intolerance, overgrowth of bad gut flora, and other things.
diane Carol <[hidden email]> wrote: I have trouble with grains, too, not to mention all foods high in calcium or iron. Anybody else have that problem? I recently read an article that magnetic iron oxides were increased in the brains of Alzheimer's patients, and I do show early symptoms. That may explain the problem with iron that I experience. I would think that the producer would be content with any medically licensed doctor who was willing to back up a diagnosis of ES publicly, and with some amount of scientific evidence. Maybe you should write her, Dan, if Dr. Rea has diagnosed you with this? I'm not sure why I was unable to post the direct link to the email address of this producer, so email eanniello AT trueentertainment DOT net if you are interested, and keep us posted if she responds. Or you can call her at the number in my previous post. Carol --- In [hidden email], "Carol" <YoRed24@...> wrote: > > The reason I ask is because a casting producer for a show on Discover > Health/Mystery Diagnosis is looking for people with unusual illnesses. > Prerequisites are that the patient needs to live in the US, a medical > doctor must have given you the diagnosis (no self-diagnosed > electrosensitives), and the doctor must practice in your area and be > willing to get involved. > > Here is the info: > > Please contact MYSTERY DIAGNOSIS at: > > eanniello@... or (212) 645-0904 and leave a message > on their hotline. Be sure to include your full name, phone number, > email address, and disease. > > > I have severe electrosensitivities myself, but unfortunately I have > been diagnosed "officially" by a medical doctor. If you are interested, > please write to the producer. > > Carol > --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. [Non-text portions of this message have been removed] |
I was tested for Celiac's, and though it was negative, you won't find
me eating any glutens. I dropped to 88 lbs, and I now weight about 105, but only after eliminating glutens, milk products, and eggs - egg was my only blood-proven allergy, though they did not do any real comprehensive food allergy panel on me - just the basics. My B12 was very high at one point, but now it is low. I seem to have great difficulty digesting raw foods, so I don't know what to do. My A and D levels were low, also. I seem to have difficulty digesting foods like carrots. I'm wondering if the Accutane I was on in my 30's damaged my liver. Carol --- In [hidden email], Evie <evie15422@...> wrote: > > Oh, sorry, should have mentioned, when you eat foods high in these and the sites in the gut are damaged where they are supposed to exit the gut to the bloodstream, you can get symptoms of liver dysfunction- -I even sometimes had jaundice. So, if these are the type reactions you are having, you might suspect gut damage. This would not necessarily have to be from celiac disease (but you do mention glutens bothering you). It could also be due to lactose intolerance, overgrowth of bad gut flora, and other things. > > diane > Carol <YoRed24@...> wrote: > I have trouble with grains, too, not to mention all foods high in > calcium or iron. Anybody else have that problem? I recently read an > article that magnetic iron oxides were increased in the brains of > Alzheimer's patients, and I do show early symptoms. That may explain > the problem with iron that I experience. > > I would think that the producer would be content with any medically > licensed doctor who was willing to back up a diagnosis of ES > publicly, and with some amount of scientific evidence. Maybe you > should write her, Dan, if Dr. Rea has diagnosed you with this? > > I'm not sure why I was unable to post the direct link to the email > address of this producer, so email eanniello AT trueentertainment DOT > net if you are interested, and keep us posted if she responds. Or you > can call her at the number in my previous post. > > Carol > > --- In [hidden email], "Carol" <YoRed24@> wrote: > > > > The reason I ask is because a casting producer for a show on > Discover > > Health/Mystery Diagnosis is looking for people with unusual > illnesses. > > Prerequisites are that the patient needs to live in the US, a > medical > > doctor must have given you the diagnosis (no self-diagnosed > > electrosensitives), and the doctor must practice in your area and > be > > willing to get involved. > > > > Here is the info: > > > > Please contact MYSTERY DIAGNOSIS at: > > > > eanniello@ or (212) 645-0904 and leave a message > > on their hotline. Be sure to include your full name, phone > > email address, and disease. > > > > > > I have severe electrosensitivities myself, but unfortunately I have > not > > been diagnosed "officially" by a medical doctor. If you are > interested, > > please write to the producer. > > > > Carol > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! > > [Non-text portions of this message have been removed] > |
In reply to this post by danielferres
Hi Daniel,
I have heard of this health center and I just revisited their website. I am trying to decide whether or not to give this health center a try. Would you recommend it? What was your experience there? Did you do more than just the initial 1 week visit? Let me know. Any information you can give me would be helpful. Thanks! danielferres <[hidden email]> wrote: Hi, Two months ago I've been diagnosed EHS by Dr William Rea of the Environmental Health Center in Dallas. I did some EMF testing showing sensibility to 50Hz and 60Hz EMF fields. I think that the protocol they use to do the testing is probably the one reported in this article. http://www.aehf.com/articles/em_sensitive.html Best regards, Daniel --- In [hidden email], Evie <evie15422@...> wrote: > > Hi, Jon, > > Dr. Rae's patient consultant (Dr Rae of the Environmental Health Clinic of Dallas) told me I "was probably ES" by phone. (Something I had already strongly suspected.) When I asked--2 years ago--whether Dr. Rae had a protocol for ES, she said he was trying to eliminate toxins and felt they were responsible and that lymphatic overload was somehow responsible. Again, this was something I already knew. I asked whether he has had success in helping people recover from ES symptoms, and she said only within the first 2 years; after that he sees little improvement. I asked alot of other questions also, about pesticides and liver detox pathway dysfunction. She mentioned to me (again, remember this is 2 years ago) that he was working on the liver detox pathway dysfunctions and had, at that time, not felt he had that worked out. (At least this was my take on what she said.) So, it is possible that we could get a dx of ES from Dr. Rae. Whether that dx would hold up in the > medical profession as a whole is debatable. I still had problems getting a medical doc to accept celiac disease as a valid dx in 2003! But, if I were to be treated or get a dx, that would be where I would start. Dr. Rae gets some flack because his clinic's patient rooms are not set up for ES. To his credit, tho, he set his rooms up so his MCS patients would not react to woods, etc. (That is why so much metal furniture.) He was working with MCS patients way before he was aware of ES and so his rooms reflect that. I was told that many of his ES patients travel there and live in their own RVs at a nearby campground. This was all within the discussion I had with the patient consultant 2 years ago. Things may have changed since then. This is his site: > > http://www.ehcd.com/ > > Diane > > prentice_jon <prentice_jon@...> wrote: > hmm, that is an interesting question, for people in the US at least, > I would like to know if that is possible, best I could do was find a > doctor who was glad that I figured out what was causing my problem. > I hope that being diagnosed ES here doesn't require that the doctor > and the ES person are one and the same. > Jon > > --- In [hidden email], sheila wade <sheila_texas@> wrote: > > > > it is hard to find a dr & very Expensive! suffer myself & since > p/t & hmo ins no diagnosis yet hoping someone will step fwd > > thanks! > > God Bless > > Sheila > > > > Carol <YoRed24@> wrote: > > The reason I ask is because a casting producer for a > show on Discover > > Health/Mystery Diagnosis is looking for people with unusual > illnesses. > > Prerequisites are that the patient needs to live in the US, a > medical > > doctor must have given you the diagnosis (no self-diagnosed > > electrosensitives), and the doctor must practice in your area and > be > > willing to get involved. > > > > Here is the info: > > > > Please contact MYSTERY DIAGNOSIS at: > > > > eanniello@ or (212) 645-0904 and leave a message > > on their hotline. Be sure to include your full name, phone number, > > email address, and disease. > > > > I have severe electrosensitivities myself, but unfortunately I > have not > > been diagnosed "officially" by a medical doctor. If you are > interested, > > please write to the producer. > > > > Carol > > > > > > > > > > > > > > --------------------------------- > > Never miss a thing. Make Yahoo your homepage. > > > > [Non-text portions of this message have been removed] > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! > > [Non-text portions of this message have been removed] > --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. [Non-text portions of this message have been removed] |
In reply to this post by danielferres
Hi Daniel,
how much did you spend for this diagnosis ? have you treated for any therapy ? My regards Giorgio --- In [hidden email], "danielferres" <danielferres@...> wrote: > > Hi, > Two months ago I've been diagnosed EHS by Dr William Rea of the > Environmental Health Center in Dallas. > I did some EMF testing showing sensibility to 50Hz and 60Hz EMF > fields. > I think that the protocol they use to do the testing is > probably the one reported in this article. > http://www.aehf.com/articles/em_sensitive.html > > Best regards, > Daniel > > --- In [hidden email], Evie <evie15422@> wrote: > > > > Hi, Jon, > > > > Dr. Rae's patient consultant (Dr Rae of the Environmental Health > Clinic of Dallas) told me I "was probably ES" by phone. (Something > had already strongly suspected.) When I asked--2 years ago--whether > Dr. Rae had a protocol for ES, she said he was trying to eliminate > toxins and felt they were responsible and that lymphatic overload was > somehow responsible. Again, this was something I already knew. I > asked whether he has had success in helping people recover from ES > symptoms, and she said only within the first 2 years; after that he > sees little improvement. I asked alot of other questions also, about > pesticides and liver detox pathway dysfunction. She mentioned to me > (again, remember this is 2 years ago) that he was working on the liver > detox pathway dysfunctions and had, at that time, not felt he had that > worked out. (At least this was my take on what she said.) So, it is > possible that we could get a dx of ES from Dr. Rae. Whether that dx > would hold up in the > > medical profession as a whole is debatable. I still had problems > getting a medical doc to accept celiac disease as a valid dx in 2003! > But, if I were to be treated or get a dx, that would be where I would > start. Dr. Rae gets some flack because his clinic's patient rooms are > not set up for ES. To his credit, tho, he set his rooms up so his MCS > patients would not react to woods, etc. (That is why so much metal > furniture.) He was working with MCS patients way before he was aware > of ES and so his rooms reflect that. I was told that many of his ES > patients travel there and live in their own RVs at a nearby > campground. This was all within the discussion I had with the patient > consultant 2 years ago. Things may have changed since then. This is > his site: > > > > http://www.ehcd.com/ > > > > Diane > > > > prentice_jon <prentice_jon@> wrote: > > hmm, that is an interesting question, for people in the US > at least, > > I would like to know if that is possible, best I could do was find a > > doctor who was glad that I figured out what was causing my problem. > > I hope that being diagnosed ES here doesn't require that the doctor > > and the ES person are one and the same. > > Jon > > > > --- In [hidden email], sheila wade <sheila_texas@> wrote: > > > > > > it is hard to find a dr & very Expensive! suffer myself & since > > p/t & hmo ins no diagnosis yet hoping someone will step fwd > > > thanks! > > > God Bless > > > Sheila > > > > > > Carol <YoRed24@> wrote: > > > The reason I ask is because a casting producer for a > > show on Discover > > > Health/Mystery Diagnosis is looking for people with unusual > > illnesses. > > > Prerequisites are that the patient needs to live in the US, a > > medical > > > doctor must have given you the diagnosis (no self-diagnosed > > > electrosensitives), and the doctor must practice in your area > > be > > > willing to get involved. > > > > > > Here is the info: > > > > > > Please contact MYSTERY DIAGNOSIS at: > > > > > > eanniello@ or (212) 645-0904 and leave a message > > > on their hotline. Be sure to include your full name, phone number, > > > email address, and disease. > > > > > > I have severe electrosensitivities myself, but unfortunately I > > have not > > > been diagnosed "officially" by a medical doctor. If you are > > interested, > > > please write to the producer. > > > > > > Carol > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Never miss a thing. Make Yahoo your homepage. > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > --------------------------------- > > Looking for last minute shopping deals? Find them fast with > Search. > > > > [Non-text portions of this message have been removed] > > > |
Hi Giorgio, The EMF Testing costs about $500, the first visit cost $187 and letters with diagnostics can cost from $25 to $250. I'm not sure of the parameters of the EMF testing and I need to receive more information from them. I mean the magnetic field and electric field in the place I did the testing. They said that I'm sensitive to 50Hz and 60Hz EMFs but I do not know if they mean at all intensities or the sensitivity could start at some V/m or mGs. They do not test for microwave radiation only ELF electromagnetic fields. I also did some skin testing that showed some food alergies (most of them). I did also blood testings, orine testings... Dr Rea thought that I could have chemicals and I did the organophosphates and pyretroids testing, giving negative results. Then I had to do the CPST (Clhorinated pesticides) but I didn't do it because I prefered to do other tests. I did RBC elements and Hair elements, RBC was OK and Hair Elements showed Uranium (moderate) and Silver (Very High) but both elements could be only in Hair and not in blood so is not conclusive. I used a silver cap and this means that it could have silver in the hair for this reason. As an hypothesis for Uranium, it could come from the tap water I used in the shower in Los Angeles. I also think that hair analysis may not show some toxic elements that have been long time in the body, and are not in the blood. I think that I could have mercury, MSG and aspartame because it was showed in an ART Testing (Klinghardt) I did in last December. I did the Organix and RBC Fatty Acids testing from MetaMetrix labs, it gives some interesting information about your metabolism and supplement requirements, But I received the results later and I could need now a physician to help me to interpret it. I did sauna theraphy during some days. Some days I feel really better after it. They use an specific protocol reading the weight, pulse, pressure before exercising and after the sauna. I took Alhpa Ketoglutamic, L-Glutathione, Vit C, and niacin (a dose is staring at 25mg first day, increasing 25mg until you have a niacin flush, red burning skin). I did 15-20 min exercise (you decide the time), then I did sauna for 15-30 min (starting 15 min, increasing 5 min next day, depending on your tolerance). I started at 140F then 150F and I finished at 160F. They have 3 saunas (2 dry, 1 infrared) I tried also the Limphatic Drainage therapy, it is 80$ session, it seems that offers good results for MCS people but I didn't notice the effects. The first time I was there I was staying in a hotel for 50$, but was highly EMF polluted, electric and magnetic fields, and a cell phone tower at 50metres. The next time I used cheap place in a relatively low emf (They had only Wireless in the living room, but is possible to get a room far from there) in Dallas for 20$ in a hostel at 45 min using rail and metro. I tried also the environmental housing which is $110 (two beds), is really good for environmental alergies with ceramic floor and filtered water in the shower and tap water, air filters in each room... it is OK for ELF EMFs and you can turn OFF the electrical installation of the room if you want. In the microwave range I detected 20-40mV/m in a room in the base floor. Not bad, but I think it maybe too much for me. Here I put information I have about costs of all treatments and the therapies. =============================================================== Cost of treatment at EHCD Initial History and Physical = $ 187.00 Return visits = $83.00 Skin Testing = $23.00 an item Foods 30= $690.00 Pollens 13 = $299.00 Molds and Mold Mixes (19) = $437.00 Dust/Mite = $64.00 Peptides, hormones, terps = $800.00 App. Smuts, etc., danders Chemicals 10 = $230.00 Any combination of these items can be tested. Sauna = $37.00 a session Sauna is usually 5 days a week for a minimum of 2-3 weeks. Optimally participation occurs for 6 weeks. Participation is dependent on chemical or metal in blood or urine lab analyses. Oxygen therapy (18 days) = $1062.00 ($59.00 daily) Participation is dependent upon findings of elevated venous blood gases. Autogenous Lymphocytic Factor = $500.00 Required Lab analyses = $700.00 Monthly Treatment Cost = $150.00 for 30 day Yearly Treatment Cost = $2400.00 IV therapy (1) = $200.00 - $500.00 Usually 2 a week for 3 weeks Laboratory analyses vary from =$500.00 - $2,500.00 Participation in any program is dictated by symptoms, physician assessment, and laboratory analyses. Any program initiated at the clinic can be continued at home. Treatments options vary with each patient. Housing in environmentally controlled, less-toxic housing = $110.00 a night ========================================================== Best regards, Daniel --- In [hidden email], "giorgio" <CINCIRIPINI@...> wrote: > > Hi Daniel, > > how much did you spend for this diagnosis ? > > have you treated for any therapy ? > > My regards > Giorgio > > --- In [hidden email], "danielferres" <danielferres@> wrote: > > > > Hi, > > Two months ago I've been diagnosed EHS by Dr William Rea of the > > Environmental Health Center in Dallas. > > I did some EMF testing showing sensibility to 50Hz and 60Hz EMF > > fields. > > I think that the protocol they use to do the testing is > > probably the one reported in this article. > > http://www.aehf.com/articles/em_sensitive.html > > > > Best regards, > > Daniel > > > > --- In [hidden email], Evie <evie15422@> wrote: > > > > > > Hi, Jon, > > > > > > Dr. Rae's patient consultant (Dr Rae of the Environmental Health > > Clinic of Dallas) told me I "was probably ES" by phone. (Something > I > > had already strongly suspected.) When I asked--2 years ago--whether > > Dr. Rae had a protocol for ES, she said he was trying to eliminate > > toxins and felt they were responsible and that lymphatic overload > was > > somehow responsible. Again, this was something I already knew. I > > asked whether he has had success in helping people recover from ES > > symptoms, and she said only within the first 2 years; after that he > > sees little improvement. I asked alot of other questions also, > about > > pesticides and liver detox pathway dysfunction. She mentioned to me > > (again, remember this is 2 years ago) that he was working on the > liver > > detox pathway dysfunctions and had, at that time, not felt he had > that > > worked out. (At least this was my take on what she said.) So, it > is > > possible that we could get a dx of ES from Dr. Rae. Whether that dx > > would hold up in the > > > medical profession as a whole is debatable. I still had problems > > getting a medical doc to accept celiac disease as a valid dx in > 2003! > > But, if I were to be treated or get a dx, that would be where I > would > > start. Dr. Rae gets some flack because his clinic's patient rooms > are > > not set up for ES. To his credit, tho, he set his rooms up so his > MCS > > patients would not react to woods, etc. (That is why so much metal > > furniture.) He was working with MCS patients way before he was > aware > > of ES and so his rooms reflect that. I was told that many of his ES > > patients travel there and live in their own RVs at a nearby > > campground. This was all within the discussion I had with the > patient > > consultant 2 years ago. Things may have changed since then. This > is > > his site: > > > > > > http://www.ehcd.com/ > > > > > > Diane > > > > > > prentice_jon <prentice_jon@> wrote: > > > hmm, that is an interesting question, for people in the > US > > at least, > > > I would like to know if that is possible, best I could do was > find a > > > doctor who was glad that I figured out what was causing my > problem. > > > I hope that being diagnosed ES here doesn't require that the > doctor > > > and the ES person are one and the same. > > > Jon > > > > > > --- In [hidden email], sheila wade <sheila_texas@> wrote: > > > > > > > > it is hard to find a dr & very Expensive! suffer myself & since > > > p/t & hmo ins no diagnosis yet hoping someone will step fwd > > > > thanks! > > > > God Bless > > > > Sheila > > > > > > > > Carol <YoRed24@> wrote: > > > > The reason I ask is because a casting producer for a > > > show on Discover > > > > Health/Mystery Diagnosis is looking for people with unusual > > > illnesses. > > > > Prerequisites are that the patient needs to live in the US, a > > > medical > > > > doctor must have given you the diagnosis (no self-diagnosed > > > > electrosensitives), and the doctor must practice in your area > and > > > be > > > > willing to get involved. > > > > > > > > Here is the info: > > > > > > > > Please contact MYSTERY DIAGNOSIS at: > > > > > > > > eanniello@ or (212) 645-0904 and leave a message > > > > on their hotline. Be sure to include your full name, phone > number, > > > > email address, and disease. > > > > > > > > I have severe electrosensitivities myself, but unfortunately I > > > have not > > > > been diagnosed "officially" by a medical doctor. If you are > > > interested, > > > > please write to the producer. > > > > > > > > Carol > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > Never miss a thing. Make Yahoo your homepage. > > > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Looking for last minute shopping deals? Find them fast with > Yahoo! > > Search. > > > > > > [Non-text portions of this message have been removed] > > > > > > |
Hi, Daniel,
Thanks for all the info. I was sent testing info but not a total price sheet. Do you notice a big difference in the way you feel since treatment at EHCD and would you go this route again? I mentioned in a previous post that Dr Rae felt (2 years ago) that he had a 2 year window for helping people with ES, but I didn't clarify what I meant. I should have said that the 2 year window is from onset of ES symptoms or a toxic incident causing it. Does he still feel this is the window of time he can bring about a total recovery from ES? Thanks again for your time and info, Diane danielferres <[hidden email]> wrote: --------------------------------- Never miss a thing. Make Yahoo your homepage. [Non-text portions of this message have been removed] |
Hi Diane, > Do you notice a big difference in the way you feel since treatment > at EHCD and would you go this route again? It is very difficult to say. I personally think that I improved slightly. It is suppossed that with the saunas I did (7 days) I should lost some chemicals and heavy metals, but I think I could need dozens of saunas to have a substancial improvement. Doing sauna there is easy because you don't have to think about anything (supplements, water, weighting, pulse control, showers, exercise machines...). Now I'm repeating the sampe sauna protocol in a gym in my country but sometimes I get dizzy and I can't sleep well at night. I think that I improved slightly there after the saunas . I remember that after my last sauna of 30 minutes in a 160F infrared I felt very good during only some hours (feelings that I had lost). But anyway After 1 week of saunas I returned to a high microwave radiation place and I experienced again EMF simptoms. I would love to return there but Dallas is highly EMF polluted and I would prefer to find a similar place in a less populated area, but is really difficult to find it, EHCD is probably the best place. Now I'm living in a relatively (but still maybe anoying) low RF emfs but high EMFs (power lines 3mG), and I have less dizzyness but I have also some health problems, stress and insomnia maybe due to 50Hz EMFs. > Does he still feel this is the window of time he can bring about a > total recovery from ES? I think he saids that some people recovered of EHS in 3 years. It was interesting for me to know some people with MCS due to pesticides and mercury exposure and most of them are also EMF sensitive. Best Regards, Daniel --- In [hidden email], Evie <evie15422@...> wrote: > > Hi, Daniel, > > Thanks for all the info. I was sent testing info but not a total price sheet. Do you notice a big difference in the way you feel since treatment at EHCD and would you go this route again? I mentioned in a previous post that Dr Rae felt (2 years ago) that he had a 2 year window for helping people with ES, but I didn't clarify what I meant. I should have said that the 2 year window is from onset of ES symptoms or a toxic incident causing it. Does he still feel this is the window of time he can bring about a total recovery from ES? > > Thanks again for your time and info, > Diane > > danielferres <danielferres@...> wrote: > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > |
Hi, Daniel,
Thanks so much for your info you have given us! I really appreciate your time and effort you took to share it. When I talked to the patient consultant at EHCD, she told me I should invest in a sauna for my home. (I believe she said to buy the far-infrared sauna.) She said to overcome this I might have to use the sauna every day and also told me I'd need to move to a less toxic house first. Still working on that one; almost there! In the mean time, she told me epsom salts baths would help. Do you ever try those on your days off from the sauna? I don't know if these would help in your situation or not. I fit the profile for an MCS person who became ES as a result of pesticide exposure. Thanks again for all the info, Diane danielferres <[hidden email]> wrote: Hi Diane, > Do you notice a big difference in the way you feel since treatment > at EHCD and would you go this route again? It is very difficult to say. I personally think that I improved slightly. It is suppossed that with the saunas I did (7 days) I should lost some chemicals and heavy metals, but I think I could need dozens of saunas to have a substancial improvement. Doing sauna there is easy because you don't have to think about anything (supplements, water, weighting, pulse control, showers, exercise machines...). Now I'm repeating the sampe sauna protocol in a gym in my country but sometimes I get dizzy and I can't sleep well at night. I think that I improved slightly there after the saunas . I remember that after my last sauna of 30 minutes in a 160F infrared I felt very good during only some hours (feelings that I had lost). But anyway After 1 week of saunas I returned to a high microwave radiation place and I experienced again EMF simptoms. I would love to return there but Dallas is highly EMF polluted and I would prefer to find a similar place in a less populated area, but is really difficult to find it, EHCD is probably the best place. Now I'm living in a relatively (but still maybe anoying) low RF emfs but high EMFs (power lines 3mG), and I have less dizzyness but I have also some health problems, stress and insomnia maybe due to 50Hz EMFs. > Does he still feel this is the window of time he can bring about a > total recovery from ES? I think he saids that some people recovered of EHS in 3 years. It was interesting for me to know some people with MCS due to pesticides and mercury exposure and most of them are also EMF sensitive. Best Regards, Daniel --- In [hidden email], Evie <evie15422@...> wrote: > > Hi, Daniel, > > Thanks for all the info. I was sent testing info but not a total price sheet. Do you notice a big difference in the way you feel since treatment at EHCD and would you go this route again? I mentioned in a previous post that Dr Rae felt (2 years ago) that he had a 2 year window for helping people with ES, but I didn't clarify what I meant. I should have said that the 2 year window is from onset of ES symptoms or a toxic incident causing it. Does he still feel this is the window of time he can bring about a total recovery from ES? > > Thanks again for your time and info, > Diane > > danielferres <danielferres@...> wrote: > > > > > --------------------------------- > Never miss a thing. Make Yahoo your homepage. > > [Non-text portions of this message have been removed] > --------------------------------- Like movies? Here's a limited-time offer: Blockbuster Total Access for one month at no cost. [Non-text portions of this message have been removed] |
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