oversensitive, burning fingertips?

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oversensitive, burning fingertips?

Wolf Man
Hi

Has anyone had this? Whenever I touch something (keyboard, pages of a book,my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.

The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thingI have tried is juice called Limu Plus. Could it have re-distributed toxins?

Anyone else with this?

Thnx

Joni

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Re: oversensitive, burning fingertips?

evie15422
Hi, Joni,
 
Yes, I have that too--burning on my fingertips--but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and arms can also sometimes react. 
 
Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy--I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates--lessening when I have successfully detoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
 
Are you the same Joni who had the bad reaction to homeopathy earlier this year?  I noticed after the dust settled with the bad homeopathy reaction Ihad, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your fingerburning.
 
my best to you,
Diane

--- On Wed, 10/21/09, Joni <[hidden email]> wrote:


From: Joni <[hidden email]>
Subject: [eSens] oversensitive, burning fingertips?
To: [hidden email]
Date: Wednesday, October 21, 2009, 8:17 AM


 



Hi

Has anyone had this? Whenever I touch something (keyboard, pages of a book,my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.

The weird thing is, this symptom disappeared 90% one year ago when I got myamalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?

Anyone else with this?

Thnx

Joni

















     

[Non-text portions of this message have been removed]

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Re: oversensitive, burning fingertips?

furstc0404-2



Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial metabolic dysfunction.  

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.

from what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neural death (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.

"Immunohistochemical quantification demonstrates a significant restoration of cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."

"One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i-base.info/guides/side/neuropathy.html

Worth a try,

Kooky





--- In [hidden email], Evie <evie15422@...> wrote:

>
> Hi, Joni,
>  
> Yes, I have that too--burning on my fingertips--but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, achemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and arms can also sometimes react. 
>  
> Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy--I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates--lessening when I have successfully detoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
>  
> Are you the same Joni who had the bad reaction to homeopathy earlier thisyear?  I noticed after the dust settled with the bad homeopathy reactionI had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
>  
> my best to you,
> Diane
>
> --- On Wed, 10/21/09, Joni <napanft@...> wrote:
>
>
> From: Joni <napanft@...>
> Subject: [eSens] oversensitive, burning fingertips?
> To: [hidden email]
> Date: Wednesday, October 21, 2009, 8:17 AM
>
>
>  
>
>
>
> Hi
>
> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
>
> The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
>
> Anyone else with this?
>
> Thnx
>
> Joni
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>      
>
> [Non-text portions of this message have been removed]
>

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Re: oversensitive, burning fingertips?

evie15422
Hi, Kooky,
 
I took L-acetyl carnitine for about a year after being dxed with celiac disease 10 years ago (due to extreme deficiency of carnitine) but I did not dowell on it.  Not saying it won't work for you, for one thing, I now suspect part of what was going on while taking it was some big detoxing, which I mistook for reacting to the LAC.  But on top of that, I felt like it was stressing my body.  For people with PN burning/tingling, B12 shots or high-dose sublingual B12 tablets are often also prescribed.  And I have seen help taking that.  I have mentioned this often here, but nobody else has said it helps them, so maybe the carnitine is what they need instead. Btw, after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid amino acid complex for awhile and I did very well on that product--gaveme more energy and my heart seemed to quit racing, etc, afterwards, and I no longer had the stressed out feeling.
 
Thanks for the info re carnitine, Kooky,
Diane

--- On Fri, 10/23/09, furstc0404 <[hidden email]> wrote:


From: furstc0404 <[hidden email]>
Subject: [eSens] Re: oversensitive, burning fingertips?
To: [hidden email]
Date: Friday, October 23, 2009, 8:50 PM


 





Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.

from what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neuraldeath (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.

"Immunohistochemica l quantification demonstrates a significant restorationof cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."

"One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

--- In eSens@yahoogroups. com, Evie <evie15422@. ..> wrote:

>
> Hi, Joni,
>  
> Yes, I have that too--burning on my fingertips-- but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and armscan also sometimes react. 
>  
> Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy-- I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates-- lessening when I have successfullydetoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
>  
> Are you the same Joni who had the bad reaction to homeopathy earlier thisyear?  I noticed after the dust settled with the bad homeopathy reactionI had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
>  
> my best to you,
> Diane
>
> --- On Wed, 10/21/09, Joni <napanft@... > wrote:
>
>
> From: Joni <napanft@... >
> Subject: [eSens] oversensitive, burning fingertips?
> To: eSens@yahoogroups. com
> Date: Wednesday, October 21, 2009, 8:17 AM
>
>
>  
>
>
>
> Hi
>
> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
>
> The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
>
> Anyone else with this?
>
> Thnx
>
> Joni
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

















     

[Non-text portions of this message have been removed]

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Re: oversensitive, burning fingertips?

Steph Smith
Hi Kooky / Diane
 
I have come across PN quite a lot but don't know what the sensation is - could either of you describe what it is like ? is what I describe as being the zzz zzz zzzz or does it feel more like a very rapid sort of moving pins and needles type of a feeling?? I'm wondering if I have it.
 
BW
 
Steph

--- On Sat, 24/10/09, Evie <[hidden email]> wrote:


From: Evie <[hidden email]>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: [hidden email]
Date: Saturday, 24 October, 2009, 17:15


 



Hi, Kooky,
 
I took L-acetyl carnitine for about a year after being dxed with celiac disease 10 years ago (due to extreme deficiency of carnitine) but I did not dowell on it.  Not saying it won't work for you, for one thing, I now suspect part of what was going on while taking it was some big detoxing, which I mistook for reacting to the LAC.  But on top of that, I felt like it was stressing my body.  For people with PN burning/tingling, B12 shots or high-dose sublingual B12 tablets are often also prescribed.  And I have seen help taking that.  I have mentioned this often here, but nobody else has said it helps them, so maybe the carnitine is what they need instead. Btw, after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid amino acid complex for awhile and I did very well on that product--gaveme more energy and my heart seemed to quit racing, etc, afterwards, and I no longer had the stressed out feeling.
 
Thanks for the info re carnitine, Kooky,
Diane

--- On Fri, 10/23/09, furstc0404 <furstc0404@yahoo. com> wrote:

From: furstc0404 <furstc0404@yahoo. com>
Subject: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.

from what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neuraldeath (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.

"Immunohistochemica l quantification demonstrates a significant restorationof cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."

"One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

--- In eSens@yahoogroups. com, Evie <evie15422@. ..> wrote:

>
> Hi, Joni,
>  
> Yes, I have that too--burning on my fingertips-- but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and armscan also sometimes react. 
>  
> Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy-- I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates-- lessening when I have successfullydetoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
>  
> Are you the same Joni who had the bad reaction to homeopathy earlier thisyear?  I noticed after the dust settled with the bad homeopathy reactionI had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
>  
> my best to you,
> Diane
>
> --- On Wed, 10/21/09, Joni <napanft@... > wrote:
>
>
> From: Joni <napanft@... >
> Subject: [eSens] oversensitive, burning fingertips?
> To: eSens@yahoogroups. com
> Date: Wednesday, October 21, 2009, 8:17 AM
>
>
>  
>
>
>
> Hi
>
> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
>
> The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
>
> Anyone else with this?
>
> Thnx
>
> Joni
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

















     

[Non-text portions of this message have been removed]

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Re: oversensitive, burning fingertips?

furstc0404-2

Hi Diane:

Severe deficiency of L-Carnitine, can lead to renal failure, heart failure,cardiomyopathy, liver problems, coma, and sudden death, if not addressed. Other metabolic dysfunction concerning L-Carnitine are also very serious.

The symptoms for me were very severe, and I am quite sure that if I had notsupplemented with high dose of L-Carnitine, I would have either ended up in a coma or died.

Having severe PN in both hands, legs and feet, is also a symptoms of L-Carnitine deficiency along with other symptoms I have. This is diagnosed through blood and a muscle biopsy, and sometime, liver biopsy.  

I will probably have a muscle biopsy in the near future.

Good point about Vitamin B12 is also helpful for neuropathy, except that many of us with CFS/ME and other health issues are unable to tolerate Vit B12.

There is contention and different theories floating around about which is the safest form of Vitamin B12, in particular, for methylation.

If deficient in Vitamin B12, NP can occur, equally, if over dosing or some taking Vit B12, it can also trigger PN.  

I have no idea if the PN was triggered by ES/EMS or the Carnitine deficiency, or mitochondrial trifunctional protein deficiency, I suspect I may be suffering from both.

I am also reading up on Carnosine, and may supplement with all essential amino acids


Diane:  

The sensation of PN for me is tingling, bzzzzz, numbness, but sensitivity, and pins and needles, and lack of coordination, hands and fingers, (worse in fingertips). I had it in my legs and feet also last week for a few days.

Although the worse is over, there are some sensation in the left hand today. This is odd, because it does not feel like PN. They are usually symmetrical for me.

I am not sure if the PN is from a deficiency, or EMF/eS

Kooky







--- In [hidden email], Stephanie Smith <reader41@...> wrote:

>
> Hi Kooky / Diane
>  
> I have come across PN quite a lot but don't know what the sensation is - could either of you describe what it is like ? is what I describe as being the zzz zzz zzzz or does it feel more like a very rapid sort of moving pinsand needles type of a feeling?? I'm wondering if I have it.
>  
> BW
>  
> Steph
>
> --- On Sat, 24/10/09, Evie <evie15422@...> wrote:
>
>
> From: Evie <evie15422@...>
> Subject: Re: [eSens] Re: oversensitive, burning fingertips?
> To: [hidden email]
> Date: Saturday, 24 October, 2009, 17:15
>
>
>  
>
>
>
> Hi, Kooky,
>  
> I took L-acetyl carnitine for about a year after being dxed with celiac disease 10 years ago (due to extreme deficiency of carnitine) but I did not do well on it.  Not saying it won't work for you, for one thing, I now suspect part of what was going on while taking it was some big detoxing, which I mistook for reacting to the LAC.  But on top of that, I felt like it was stressing my body.  For people with PN burning/tingling, B12 shots orhigh-dose sublingual B12 tablets are often also prescribed.  And I have seen help taking that.  I have mentioned this often here, but nobody elsehas said it helps them, so maybe the carnitine is what they need instead.  Btw, after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid amino acid complex for awhile and I did very well on that product--gave me more energy and my heart seemed to quit racing, etc, afterwards, andI no longer had the stressed out feeling.
>  
> Thanks for the info re carnitine, Kooky,
> Diane
>
> --- On Fri, 10/23/09, furstc0404 <furstc0404@yahoo. com> wrote:
>
> From: furstc0404 <furstc0404@yahoo. com>
> Subject: [eSens] Re: oversensitive, burning fingertips?
> To: eSens@yahoogroups. com
> Date: Friday, October 23, 2009, 8:50 PM
>
>  
>
> Same here, with peripheral neuropathy, in finger tips, legs and feet.
>
> The pathogenesis of PN is poorly understood. It is could be mitochondrialmetabolic dysfunction.
>
> In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.
>
> From what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.
>
> I read this info from various sites. It could also involved, sensory neural death (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.
>
> I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.
>
> I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.
>
> "Immunohistochemica l quantification demonstrates a significant restoration of cutaneous innervation after 6 months of oral LAC
>
> * Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."
>
> "One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i- base.info/ guides/side/ neuropathy. html
>
> Worth a try,
>
> Kooky
>
> --- In eSens@yahoogroups. com, Evie <evie15422@ ..> wrote:
> >
> > Hi, Joni,
> >  
> > Yes, I have that too--burning on my fingertips-- but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and arms can also sometimes react. 
> >  
> > Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy-- I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates-- lessening when I have successfully detoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
> >  
> > Are you the same Joni who had the bad reaction to homeopathy earlier this year?  I noticed after the dust settled with the bad homeopathy reaction I had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
> >  
> > my best to you,
> > Diane
> >
> > --- On Wed, 10/21/09, Joni <napanft@ > wrote:
> >
> >
> > From: Joni <napanft@ >
> > Subject: [eSens] oversensitive, burning fingertips?
> > To: eSens@yahoogroups. com
> > Date: Wednesday, October 21, 2009, 8:17 AM
> >
> >
> >  
> >
> >
> >
> > Hi
> >
> > Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
> >
> > The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
> >
> > Anyone else with this?
> >
> > Thnx
> >
> > Joni
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>      
>
> [Non-text portions of this message have been removed]
>

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Re: oversensitive, burning fingertips?

BiBrun
I do get sensations in my fingers after using the computer/mouse.

Also coldness. Some foot symptoms too.

It seems I have to wash my hands after touching anything plastic...



On Sat, Oct 24, 2009 at 6:35 PM, furstc0404 <[hidden email]> wrote:

>
>
>
> Hi Diane:
>
> Severe deficiency of L-Carnitine, can lead to renal failure, heart failure,
> cardiomyopathy, liver problems, coma, and sudden death, if not addressed.
> Other metabolic dysfunction concerning L-Carnitine are also very serious.
>
> The symptoms for me were very severe, and I am quite sure that if I had not
> supplemented with high dose of L-Carnitine, I would have either ended up in
> a coma or died.
>
> Having severe PN in both hands, legs and feet, is also a symptoms of
> L-Carnitine deficiency along with other symptoms I have. This is diagnosed
> through blood and a muscle biopsy, and sometime, liver biopsy.
>
> I will probably have a muscle biopsy in the near future.
>
> Good point about Vitamin B12 is also helpful for neuropathy, except that
> many of us with CFS/ME and other health issues are unable to tolerate Vit
> B12.
>
> There is contention and different theories floating around about which is
> the safest form of Vitamin B12, in particular, for methylation.
>
> If deficient in Vitamin B12, NP can occur, equally, if over dosing or some
> taking Vit B12, it can also trigger PN.
>
> I have no idea if the PN was triggered by ES/EMS or the Carnitine
> deficiency, or mitochondrial trifunctional protein deficiency, I suspect I
> may be suffering from both.
>
> I am also reading up on Carnosine, and may supplement with all essential
> amino acids
>
> Diane:
>
> The sensation of PN for me is tingling, bzzzzz, numbness, but sensitivity,
> and pins and needles, and lack of coordination, hands and fingers, (worse in
> fingertips). I had it in my legs and feet also last week for a few days.
>
> Although the worse is over, there are some sensation in the left hand
> today. This is odd, because it does not feel like PN. They are usually
> symmetrical for me.
>
> I am not sure if the PN is from a deficiency, or EMF/eS
>
> Kooky
>
>
> --- In [hidden email] <eSens%40yahoogroups.com>, Stephanie Smith
> <reader41@...> wrote:
> >
> > Hi Kooky / Diane
> >
> > I have come across PN quite a lot but don't know what the sensation is -
> could either of you describe what it is like ? is what I describe as being
> the zzz zzz zzzz or does it feel more like a very rapid sort of moving pins
> and needles type of a feeling?? I'm wondering if I have it.
> >
> > BW
> >
> > Steph
> >
> > --- On Sat, 24/10/09, Evie <evie15422@...> wrote:
> >
> >
> > From: Evie <evie15422@...>
>
> > Subject: Re: [eSens] Re: oversensitive, burning fingertips?
> > To: [hidden email] <eSens%40yahoogroups.com>
> > Date: Saturday, 24 October, 2009, 17:15
> >
> >
> >
> >
> >
> >
> > Hi, Kooky,
> >
> > I took L-acetyl carnitine for about a year after being dxed with celiac
> disease 10 years ago (due to extreme deficiency of carnitine) but I did not
> do well on it. Not saying it won't work for you, for one thing, I now
> suspect part of what was going on while taking it was some big detoxing,
> which I mistook for reacting to the LAC. But on top of that, I felt like it
> was stressing my body. For people with PN burning/tingling, B12 shots or
> high-dose sublingual B12 tablets are often also prescribed. And I have seen
> help taking that. I have mentioned this often here, but nobody else has
> said it helps them, so maybe the carnitine is what they need instead. Btw,
> after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid
> amino acid complex for awhile and I did very well on that product--gave me
> more energy and my heart seemed to quit racing, etc, afterwards, and I no
> longer had the stressed out feeling.
> >
> > Thanks for the info re carnitine, Kooky,
> > Diane
> >
> > --- On Fri, 10/23/09, furstc0404 <furstc0404@yahoo. com> wrote:
> >
> > From: furstc0404 <furstc0404@yahoo. com>
> > Subject: [eSens] Re: oversensitive, burning fingertips?
> > To: eSens@yahoogroups. com
> > Date: Friday, October 23, 2009, 8:50 PM
> >
> >
> >
> > Same here, with peripheral neuropathy, in finger tips, legs and feet.
> >
> > The pathogenesis of PN is poorly understood. It is could be mitochondrial
> metabolic dysfunction.
> >
> > In my case, since taking very high dose of 6000 mg of Carnitine daily,
> burning in finger tips is lessening to almost none.
> >
> > From what I read it affects fatty acids chain transport in mitochondria,
> which of course, is relevant with PN.
> >
> > I read this info from various sites. It could also involved, sensory
> neural death (which will heal by means of new neural circuitry) or cutaneous
> sensory dysfunction.
> >
> > I read that L-Acetyl Carnitine is being prescribed for PN as you
> described in some countries.
> >
> > I will probably swap the L-Carnitine for the LAC, having stumbled on
> those sites today, a week after starting the L-Carnitine.
> >
> > "Immunohistochemica l quantification demonstrates a significant
> restoration of cutaneous innervation after 6 months of oral LAC
> >
> > * Oral LAC treatment improves the clinical symptoms of symmetrical
> neuropathy, ....."
> >
> > "One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500
> mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be
> prescribed on a named-patient basis. Some clinics in the UK already use this
> treatment routinely." http://www.i- base.info/ guides/side/ neuropathy.
> html
> >
> > Worth a try,
> >
> > Kooky
> >
> > --- In eSens@yahoogroups. com, Evie <evie15422@ ..> wrote:
> > >
> > > Hi, Joni,
> > >
> > > Yes, I have that too--burning on my fingertips-- but only when I touch
> things my body perceives as noxious. For instance, they burn when I touch
> foods with glutens in them, or fruits/veggies at the market which have
> pesticide residues (I realized this after having a bad pesticide exposure
> several years ago). They can also burn if I touch something with mold on
> it, a chemical my body dislikes, or if I touch metals with alot of EMFs in
> the area or from no touching--just the emfs themselves. My face and arms
> can also sometimes react.
> > >
> > > Is this how it is for you or do you have this sensation all the time?
> (If you do, is it possible you have something present in your surroundings
> your fingers are "intolerant" to?) I have read that this is a type of
> peripheral neuropathy-- I think I it was called "small nerve" neuropathy.
> But I also notice it fluctuates-- lessening when I have successfully detoxed
> (just about any type of detox) and getting worse with toxic exposures or
> exposures to things I am chemically and otherwise sensitive to.
> > >
> > > Are you the same Joni who had the bad reaction to homeopathy earlier
> this year? I noticed after the dust settled with the bad homeopathy
> reaction I had, my burning/tingling sensations were actually better. But
> for you, perhaps it could have redistributed toxins which has heightened
> your finger burning.
> > >
> > > my best to you,
> > > Diane
> > >
> > > --- On Wed, 10/21/09, Joni <napanft@ > wrote:
> > >
> > >
> > > From: Joni <napanft@ >
> > > Subject: [eSens] oversensitive, burning fingertips?
> > > To: eSens@yahoogroups. com
> > > Date: Wednesday, October 21, 2009, 8:17 AM
> > >
> > >
> > >
> > >
> > >
> > >
> > > Hi
> > >
> > > Has anyone had this? Whenever I touch something (keyboard, pages of a
> book, my hair when showering etc), my fingertips (especially right hand)
> feel kinda burning, oversensitive. Really annoying.
> > >
> > > The weird thing is, this symptom disappeared 90% one year ago when I
> got my amalgams out. But now its back and I have no idea why. The only new
> thing I have tried is juice called Limu Plus. Could it have re-distributed
> toxins?
> > >
> > > Anyone else with this?
> > >
> > > Thnx
> > >
> > > Joni
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>


[Non-text portions of this message have been removed]

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Re: oversensitive, burning fingertips?

evie15422
In reply to this post by Steph Smith
Hi, Steph,
 
Well, I definitely have PN--I was dxed long before I recognized I reacted to ES.  That is a bit different than the ES zzzzzzzs for me (not that PN symptoms are not also caused by emfs; I suspect very much that they can be).  What Kooky wrote in her answer is the same as what I experiencefor PN.  The ES zzzzzzs I mention I get upon laying down--as you mention as well (you don't have this other than laying or sometimes sitting, right?), I get full body, in my spine and arms and legs and even my head somewhat, so that could, by definition, not be the same as "peripheral" neuropathy.  But the other symptom we were discussing--burning fingertips most likely would be PN related. 
 
Did this answer your question?  If not, ask further.  Are the full-body zzzzzzs a type of neuropathy but not PN?  I think, probably (not that I have read of that connection).  The full-body zzzzzs respond for me to B12 supplementation, which PN also responds to for some people.  I think you might be a good candidate for trying essential aminos/carnitine supplementation, Steph.  You have tried B12 without seeing a difference and you also have CFS/ME which carnitine/full essential amino supplementation can help alot with.  (It can help fatigue and mitochondrial function.)  I sometimes forget about things which helped me years before.  The full essential amino complex definitely was a big help for me, as was/is the hydrogen for addressing the serotonin dumping (both CFS related).  And these both seem to help people with ES, as well.
 
My 2 cents,
Diane

--- On Sat, 10/24/09, Stephanie Smith <[hidden email]> wrote:


From: Stephanie Smith <[hidden email]>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: [hidden email]
Date: Saturday, October 24, 2009, 6:42 PM


 



Hi Kooky / Diane
 
I have come across PN quite a lot but don't know what the sensation is - could either of you describe what it is like ? is what I describe as being the zzz zzz zzzz or does it feel more like a very rapid sort of moving pins and needles type of a feeling?? I'm wondering if I have it.
 
BW
 
Steph

--- On Sat, 24/10/09, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Saturday, 24 October, 2009, 17:15

 

Hi, Kooky,
 
I took L-acetyl carnitine for about a year after being dxed with celiac disease 10 years ago (due to extreme deficiency of carnitine) but I did not dowell on it.  Not saying it won't work for you, for one thing, I now suspect part of what was going on while taking it was some big detoxing, which I mistook for reacting to the LAC.  But on top of that, I felt like it was stressing my body.  For people with PN burning/tingling, B12 shots or high-dose sublingual B12 tablets are often also prescribed.  And I have seen help taking that.  I have mentioned this often here, but nobody else has said it helps them, so maybe the carnitine is what they need instead. Btw, after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid amino acid complex for awhile and I did very well on that product--gaveme more energy and my heart seemed to quit racing, etc, afterwards, and I no longer had the stressed out feeling.
 
Thanks for the info re carnitine, Kooky,
Diane

--- On Fri, 10/23/09, furstc0404 <furstc0404@ yahoo. com> wrote:

From: furstc0404 <furstc0404@ yahoo. com>
Subject: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.

from what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neuraldeath (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.

"Immunohistochemica l quantification demonstrates a significant restorationof cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."

"One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

--- In eSens@yahoogroups. com, Evie <evie15422@. ..> wrote:

>
> Hi, Joni,
>  
> Yes, I have that too--burning on my fingertips-- but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and armscan also sometimes react. 
>  
> Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy-- I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates-- lessening when I have successfullydetoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
>  
> Are you the same Joni who had the bad reaction to homeopathy earlier thisyear?  I noticed after the dust settled with the bad homeopathy reactionI had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
>  
> my best to you,
> Diane
>
> --- On Wed, 10/21/09, Joni <napanft@... > wrote:
>
>
> From: Joni <napanft@... >
> Subject: [eSens] oversensitive, burning fingertips?
> To: eSens@yahoogroups. com
> Date: Wednesday, October 21, 2009, 8:17 AM
>
>
>  
>
>
>
> Hi
>
> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
>
> The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
>
> Anyone else with this?
>
> Thnx
>
> Joni
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

















     

[Non-text portions of this message have been removed]

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Re: oversensitive, burning fingertips?

Steph Smith
Hi Diane
 
I don't get that oversensitive burning fingertips thing going on that you and other describe - thank goodness because I have enough going on without that - but can imagine it would be very unpleasant and anyone on here who does have that would have my 100% sympathy. I just get the zzz zzzz zzzz in the legs primarily but sometimes the whole body - always lying down but sometimes sitting up, and then at other times get this fizzing rapidly moving pins and needles sensation as if my blood is all fizzy - i'm struggling to describe it and this is the best I can come up with.
 
I am going to save this email re th carnitine and amino acids because I think I would need to get the test done for the serotonin dumping before trying anything - but I rekon I would be positive for that - it fits and makes alot of sense - it will be sometime before I can get the test for that done- would need to find a doc who would see the need to do it!!! But it is onmy list.
 
Thanks as always for the info!.
 
BW
 
Steph

--- On Mon, 26/10/09, Evie <[hidden email]> wrote:


From: Evie <[hidden email]>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: [hidden email]
Date: Monday, 26 October, 2009, 18:50


 



Hi, Steph,
 
Well, I definitely have PN--I was dxed long before I recognized I reacted to ES.  That is a bit different than the ES zzzzzzzs for me (not that PN symptoms are not also caused by emfs; I suspect very much that they can be).  What Kooky wrote in her answer is the same as what I experiencefor PN.  The ES zzzzzzs I mention I get upon laying down--as you mention as well (you don't have this other than laying or sometimes sitting, right?), I get full body, in my spine and arms and legs and even my head somewhat, so that could, by definition, not be the same as "peripheral" neuropathy.  But the other symptom we were discussing-- burning fingertips most likely would be PN related. 
 
Did this answer your question?  If not, ask further.  Are the full-body zzzzzzs a type of neuropathy but not PN?  I think, probably (not that I have read of that connection).  The full-body zzzzzs respond for me to B12 supplementation, which PN also responds to for some people.  I think you might be a good candidate for trying essential aminos/carnitine supplementation, Steph.  You have tried B12 without seeing a difference and you also have CFS/ME which carnitine/full essential amino supplementation can help alot with.  (It can help fatigue and mitochondrial function.)  I sometimes forget about things which helped me years before.  The full essential amino complex definitely was a big help for me, as was/is the hydrogen for addressing the serotonin dumping (both CFS related).  And these both seem to help people with ES, as well.
 
My 2 cents,
Diane

--- On Sat, 10/24/09, Stephanie Smith <reader41@ymail. com> wrote:

From: Stephanie Smith <reader41@ymail. com>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Saturday, October 24, 2009, 6:42 PM

 

Hi Kooky / Diane
 
I have come across PN quite a lot but don't know what the sensation is - could either of you describe what it is like ? is what I describe as being the zzz zzz zzzz or does it feel more like a very rapid sort of moving pins and needles type of a feeling?? I'm wondering if I have it.
 
BW
 
Steph

--- On Sat, 24/10/09, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Saturday, 24 October, 2009, 17:15

 

Hi, Kooky,
 
I took L-acetyl carnitine for about a year after being dxed with celiac disease 10 years ago (due to extreme deficiency of carnitine) but I did not dowell on it.  Not saying it won't work for you, for one thing, I now suspect part of what was going on while taking it was some big detoxing, which I mistook for reacting to the LAC.  But on top of that, I felt like it was stressing my body.  For people with PN burning/tingling, B12 shots or high-dose sublingual B12 tablets are often also prescribed.  And I have seen help taking that.  I have mentioned this often here, but nobody else has said it helps them, so maybe the carnitine is what they need instead. Btw, after the prescription LAC didn't helpme 10 yrs ago, I changed to liquid amino acid complex for awhile and I did very well on that product--gaveme more energy and my heart seemed to quit racing, etc, afterwards, and I no longer had the stressed out feeling.
 
Thanks for the info re carnitine, Kooky,
Diane

--- On Fri, 10/23/09, furstc0404 <furstc0404@ yahoo. com> wrote:

From: furstc0404 <furstc0404@ yahoo. com>
Subject: [eSens] Re: oversensitive, burning fingertips?
To: eSens@yahoogroups. com
Date: Friday, October 23, 2009, 8:50 PM

 

Same here, with peripheral neuropathy, in finger tips, legs and feet.

The pathogenesis of PN is poorly understood. It is could be mitochondrial metabolic dysfunction.

In my case, since taking very high dose of 6000 mg of Carnitine daily, burning in finger tips is lessening to almost none.

from what I read it affects fatty acids chain transport in mitochondria, which of course, is relevant with PN.

I read this info from various sites. It could also involved, sensory neuraldeath (which will heal by means of new neural circuitry) or cutaneous sensory dysfunction.

I read that L-Acetyl Carnitine is being prescribed for PN as you described in some countries.

I will probably swap the L-Carnitine for the LAC, having stumbled on those sites today, a week after starting the L-Carnitine.

"Immunohistochemica l quantification demonstrates a significant restorationof cutaneous innervation after 6 months of oral LAC

* Oral LAC treatment improves the clinical symptoms of symmetrical neuropathy, ....."

"One study has shown that L-acetyl carnitine (Alcar) at a dose of 1500 mg, twice daily, can lead to nerve improvement. L-acetyl carnitine can be prescribed on a named-patient basis. Some clinics in the UK already use this treatment routinely." http://www.i- base.info/ guides/side/ neuropathy. html

Worth a try,

Kooky

--- In eSens@yahoogroups. com, Evie <evie15422@. ..> wrote:

>
> Hi, Joni,
>  
> Yes, I have that too--burning on my fingertips-- but only when I touch things my body perceives as noxious.  For instance, they burn when I touch foods with glutens in them, or fruits/veggies at the market which have pesticide residues (I realized this after having a bad pesticide exposure several years ago).  They can also burn if I touch something with mold on it, a chemical my body dislikes, or if I touch metals with alot of EMFs in the area or from no touching--just the emfs themselves.  My face and armscan also sometimes react. 
>  
> Is this how it is for you or do you have this sensation all the time?  (If you do, is it possible you have something present in your surroundings your fingers are "intolerant" to?)   I have read that this is a type of peripheral neuropathy-- I think I it was called "small nerve" neuropathy.  But I also notice it fluctuates-- lessening when I have successfullydetoxed (just about any type of detox) and getting worse with toxic exposures or exposures to things I am chemically and otherwise sensitive to. 
>  
> Are you the same Joni who had the bad reaction to homeopathy earlier thisyear?  I noticed after the dust settled with the bad homeopathy reactionI had, my burning/tingling sensations were actually better.  But for you, perhaps it could have redistributed toxins which has heightened your finger burning.
>  
> my best to you,
> Diane
>
> --- On Wed, 10/21/09, Joni <napanft@... > wrote:
>
>
> From: Joni <napanft@... >
> Subject: [eSens] oversensitive, burning fingertips?
> To: eSens@yahoogroups. com
> Date: Wednesday, October 21, 2009, 8:17 AM
>
>
>  
>
>
>
> Hi
>
> Has anyone had this? Whenever I touch something (keyboard, pages of a book, my hair when showering etc), my fingertips (especially right hand) feel kinda burning, oversensitive. Really annoying.
>
> The weird thing is, this symptom disappeared 90% one year ago when I got my amalgams out. But now its back and I have no idea why. The only new thing I have tried is juice called Limu Plus. Could it have re-distributed toxins?
>
> Anyone else with this?
>
> Thnx
>
> Joni
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

















     

[Non-text portions of this message have been removed]