People here have mentioned that heavy metal poisoning is a possible cause of ES. My Dr tests for it using an urine provocation test and then chelatesusing DMPS. I'm looking for opinions on the best way to chelate. There is another group that has a "my way or the highway" attitude and basically said doing it my doctor's way would kill me. (She hasn't lost anyone yet actually.) : )
I would love to hear opinion and success stories (& failure stories for that matter....) What books would y'all recommend on detoxing heavy metals and detoxing in general. Has anyone read "Natural Mercury Detoxification" by William Rasmussen? Isit worth buying? I don't yet know if heavy metal poisoning is my problem -- but I've done the adrenal/thyroid stuff, totally changed my diet to gf and ultra healthy and take handfuls of supplements -- and I'm not feeling any better. I'm discouraged! Amy |
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> People here have mentioned that heavy metal poisoning is a possible cause
> of ES. My Dr tests for it using an urine provocation test and then > chelates using DMPS. I'm looking for opinions on the best way to > chelate. There is another group that has a "my way or the highway" > attitude and basically said doing it my doctor's way would kill me. (She > hasn't lost anyone yet actually.) : ) Yes, but how many electrically sensitive people has she tried to chelate? :-) I have tried a lot of the different methods promoted to remove heavy metals. Unfortunately, I tend to get adverse effects at even miniscule dosages, which I interpret to mean that I'm very poisoned (especially since the only things these different methods have in common is that they are all supposed to chelate metal). I personally would avoid anything with an IV, and instead use something oral that you can experiment with very small doses and slowly build up your tolerance over time (or, if you tolerate it just fine, then I'd say that it is NOT addressing your problem). Some things to try: Oxidative Stress Relief, Alpha Lipoic Acid, R-Lipoic Acid, DHLA, ACZ Nano (a liquid zeolite product), NDF (chlorella & cilantro), HMD, chlorella, cilantro, activated charcoal, bentonite, DMSA, oral DMPS. And yes, I've tried most of these. During my most dramatic period of recovery I was taking NDF. For the past several months I've been taking various forms of Alpha Lipoic Acid (currently taking Geranovo liquid R-Lipoic Acid). My tolerance is low, I only try it on the weekends, and have definitely shown signs of improvement during this time. However, I'm also doing full-blown adrenal support, so it may be either things or the combination. Marc |
I would agree with Marc that IV chelation could be very dangerous for people as ill as we are. I do charcoal & clay as per my doc's recommendation butyou have to put back in the nutrients it might take out. There are cautions with everything you do concerning detoxification.
I think that the EHS is an accumulative effect of overexposure to all kinds of toxins; not just heavy metals. Loni --- On Sun, 4/25/10, Marc Martin <[hidden email]> wrote: From: Marc Martin <[hidden email]> Subject: Re: [eSens] heavy metal poisoning ideas To: [hidden email] Date: Sunday, April 25, 2010, 4:29 PM > People here have mentioned that heavy metal poisoning is a possible cause > of ES. My Dr tests for it using an urine provocation test and then > chelates using DMPS. I'm looking for opinions on the best way to > chelate. There is another group that has a "my way or the highway" > attitude and basically said doing it my doctor's way would kill me. (She > hasn't lost anyone yet actually.) : ) Yes, but how many electrically sensitive people has she tried to chelate? :-) I have tried a lot of the different methods promoted to remove heavy metals. Unfortunately, I tend to get adverse effects at even miniscule dosages, which I interpret to mean that I'm very poisoned (especially since the only things these different methods have in common is that they are all supposed to chelate metal). I personally would avoid anything with an IV, and instead use something oral that you can experiment with very small doses and slowly build up your tolerance over time (or, if you tolerate it just fine, then I'd say that it is NOT addressing your problem). Some things to try: Oxidative Stress Relief, Alpha Lipoic Acid, R-Lipoic Acid, DHLA, ACZ Nano (a liquid zeolite product), NDF (chlorella & cilantro), HMD, chlorella, cilantro, activated charcoal, bentonite, DMSA, oral DMPS. And yes, I've tried most of these. During my most dramatic period of recovery I was taking NDF. For the past several months I've been taking various forms of Alpha Lipoic Acid (currently taking Geranovo liquid R-Lipoic Acid). My tolerance is low, I only try it on the weekends, and have definitely shown signs of improvement during this time. However, I'm also doing full-blown adrenal support, so it may be either things or the combination. Marc [Non-text portions of this message have been removed] |
In reply to this post by Amy Green
There are a few protocols out there. Andy Cutler is one, Huggins is another. Not sure which is better or any others but avoid taking Alpha Lipoic Acidhaphazardly as it supposedly mobilizes mercury.
--- On Sun, 4/25/10, Amy <[hidden email]> wrote: > From: Amy <[hidden email]> > Subject: [eSens] heavy metal poisoning ideas > To: [hidden email] > Date: Sunday, April 25, 2010, 4:01 PM > People here have mentioned that heavy > metal poisoning is a possible cause of ES. My Dr tests > for it using an urine provocation test and then chelates > using DMPS. I'm looking for opinions on the best way > to chelate. There is another group that has a "my way > or the highway" attitude and basically said doing it my > doctor's way would kill me. (She hasn't lost anyone > yet actually.) : ) > > I would love to hear opinion and success stories (& > failure stories for that matter....) > > What books would y'all recommend on detoxing heavy metals > and detoxing in general. > Has anyone read "Natural Mercury Detoxification" by > William Rasmussen? Is it worth buying? > > I don't yet know if heavy metal poisoning is my problem -- > but I've done the adrenal/thyroid stuff, totally changed my > diet to gf and ultra healthy and take handfuls of > supplements -- and I'm not feeling any better. > > I'm discouraged! Amy > > > > > > > ------------------------------------ > > Yahoo! Groups Links > > > [hidden email] > > > |
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> There are a few protocols out there. Andy Cutler is one, Huggins is
> another. Not sure which is better or any others but avoid taking Alpha > Lipoic Acid haphazardly as it supposedly mobilizes mercury. The best protocol may be the one that you can withstand doing -- and I suspect that is highly individual. I'm currently doing a "Culter-like" method, but Cutler frowns upon use of R-Lipoic acid, which is what I'm doing now, as I find there are less adverse side effects than I had when doing the ALA (although both cause me ringing in the ears). Marc |
In reply to this post by Amy Green
Thank you all for your replies. I'm glad to hear your opinions of IV chelation -- I will avoid that -- it has made me a bit nervous from the beginning and fortunately, the Dr is not pushing it. (I'm always leery of the "have a hammer so everything looks like a nail" phenomenon.) She does think I have a toxicity issue -- I am heterozygous for MTHFR A1298C, so I don't detox well apparently. She has me on methylcobalamine and methyltetrafolate. I haven't noticed any difference after 3 mos of this. I did notice that Milk Thistle makes me feel bad (exacerbates my symptoms). Would that mean that it is detoxing me -- or would that more likely mean I should just quit taking it? Is that the kind of reaction you guys get when you take too much of something like ALA?
Sorry for all the questions! Thanks!! Amy : ) ________________________________ From: Amy <[hidden email]> To: [hidden email] Sent: Sun, April 25, 2010 6:01:25 PM Subject: [eSens] heavy metal poisoning ideas People here have mentioned that heavy metal poisoning is a possible cause of ES. My Dr tests for it using an urine provocation test and then chelates using DMPS. I'm looking for opinions on the best way to chelate. There is another group that has a "my way or the highway" attitude and basically said doing it my doctor's way would kill me. (She hasn't lost anyone yet actually.) : ) I would love to hear opinion and success stories (& failure stories for that matter....) What books would y'all recommend on detoxing heavy metals and detoxing in general. Has anyone read "Natural Mercury Detoxification" by William Rasmussen? Is it worth buying? I don't yet know if heavy metal poisoning is my problem -- but I've done the adrenal/thyroid stuff, totally changed my diet to gf and ultra healthy and take handfuls of supplements -- and I'm not feeling any better. I'm discouraged! Amy ------------------------------------ Yahoo! Groups Links [Non-text portions of this message have been removed] |
Milk Thistle clears crap out of your liver so it may make you feel worse atfirst. I get that reaction from it at times but AI still take it every dayto keep things from building up in my liver
--- On Sun, 4/25/10, Amy Green <[hidden email]> wrote: > From: Amy Green <[hidden email]> > Subject: Re: [eSens] heavy metal poisoning ideas/thanks all > To: [hidden email] > Date: Sunday, April 25, 2010, 5:23 PM > Thank you all for your replies. > I'm glad to hear your opinions of IV chelation -- I will > avoid that -- it has made me a bit nervous from the > beginning and fortunately, the Dr is not pushing it. > (I'm always leery of the "have a hammer so everything looks > like a nail" phenomenon.) She does think I have > a toxicity issue -- I am heterozygous for MTHFR A1298C, so I > don't detox well apparently. She has me on > methylcobalamine and methyltetrafolate. I haven't > noticed any difference after 3 mos of this. I did > notice that Milk Thistle makes me feel bad (exacerbates my > symptoms). Would that mean that it is detoxing me -- > or would that more likely mean I should just quit taking > it? Is that the kind of reaction you guys get when you > take too much of something like ALA? > > Sorry for all the > questions! Thanks!! Amy : ) > > > > ________________________________ > From: Amy <[hidden email]> > To: [hidden email] > Sent: Sun, April 25, 2010 6:01:25 PM > Subject: [eSens] heavy metal poisoning ideas > > People here have mentioned that heavy metal poisoning is a > possible cause of ES. My Dr tests for it using an > urine provocation test and then chelates using DMPS. > I'm looking for opinions on the best way to chelate. > There is another group that has a "my way or the highway" > attitude and basically said doing it my doctor's way would > kill me. (She hasn't lost anyone yet actually.) > : ) > > I would love to hear opinion and success stories (& > failure stories for that matter....) > > What books would y'all recommend on detoxing heavy metals > and detoxing in general. > Has anyone read "Natural Mercury Detoxification" by > William Rasmussen? Is it worth buying? > > I don't yet know if heavy metal poisoning is my problem -- > but I've done the adrenal/thyroid stuff, totally changed my > diet to gf and ultra healthy and take handfuls of > supplements -- and I'm not feeling any better. > > I'm discouraged! Amy > > > > > > > ------------------------------------ > > Yahoo! Groups Links > > > > > > > [Non-text portions of this message have been removed] > > > > ------------------------------------ > > Yahoo! Groups Links > > > [hidden email] > > > |
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In reply to this post by Amy Green
> I did notice that Milk Thistle makes me feel bad (exacerbates my
> symptoms). I had a horrible reaction to one of the Milk Thistles I tried -- it was as if I was allergic to it, as opposed to a "normal detox". > Is that the kind of reaction > you guys get when you take too much of something like ALA? I usually think of detox symptoms as being fatigue, dehydration, a metallic taste in my mouth, headache, nausea, sweaty skin, and "flu like symtoms" (which will turn into the flu if I don't stop). With the ALA, I have also seen symptoms like anxiety/chest pain, numbness in my arms/hands, and ringing ears. Marc |
It is recommended that a diet high in fiber (apples (apple pectin, dark leafy greens and fiber from grains) be included while detoxifying heavy metals.
________________________________ From: Marc Martin <[hidden email]> To: [hidden email] Sent: Mon, 26 April, 2010 3:58:57 Subject: Re: [eSens] heavy metal poisoning ideas/thanks all > I did notice that Milk Thistle makes me feel bad (exacerbates my > symptoms). I had a horrible reaction to one of the Milk Thistles I tried -- it was as if I was allergic to it, as opposed to a "normal detox". > Is that the kind of reaction > you guys get when you take too much of something like ALA? I usually think of detox symptoms as being fatigue, dehydration, a metallic taste in my mouth, headache, nausea, sweaty skin, and "flu like symtoms" (which will turn into the flu if I don't stop). With the ALA, I have also seen symptoms like anxiety/chest pain, numbness in my arms/hands, and ringing ears. Marc [Non-text portions of this message have been removed] |
In reply to this post by Marc Martin
> I usually think of detox symptoms as being fatigue, dehydration,
> a metallic taste in my mouth, headache, nausea, sweaty skin, > and "flu like symtoms" (which will turn into the flu if I don't > stop). With the ALA, I have also seen symptoms like > anxiety/chest pain, numbness in my arms/hands, and ringing ears. Hi Marc, does the numbness in your arms/hands and ringing in your ears go away when you stop using the ALA (between 'rounds')? Thanks, John. |
In reply to this post by Amy Green
puk replies - how do you check that you are really making progress from
this method, could the syptoms you describe be a direct reaction to the detox supplement itself ? How do you gauge this ? puk In a message dated 26/04/2010 10:30:07 GMT Daylight Time, [hidden email] writes: > I usually think of detox symptoms as being fatigue, dehydration, > a metallic taste in my mouth, headache, nausea, sweaty skin, > and "flu like symtoms" (which will turn into the flu if I don't > stop). With the ALA, I have also seen symptoms like > anxiety/chest pain, numbness in my arms/hands, and ringing ears. Hi Marc, does the numbness in your arms/hands and ringing in your ears go away when you stop using the ALA (between 'rounds')? [Non-text portions of this message have been removed] |
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In reply to this post by johnottawa80
> does the numbness in your arms/hands and ringing in your ears go away
> when you stop using the ALA (between 'rounds')? Yes, it all goes away... usually in a day or two. I've been trying to do rounds every weekend lately, but I think things went more smoothly when I was doing rounds ever OTHER weekend. Marc |
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In reply to this post by PUK
> puk replies - how do you check that you are really making progress from
> this method, could the syptoms you describe be a direct reaction to the > detox supplement itself ? How do you gauge this ? The only way I know of telling if you are making progress is to compare your health from when you started vs. your health today. If it is obviously better, then great! Although some of us are doing multiple things at once, so it's hard to say what the real cause of any improvements might be. Marc |
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In reply to this post by PUK
> could the symptoms you describe be a direct reaction to the
> detox supplement itself ? How do you gauge this ? Well, for me, I've tried several different types of detox supplements (some with no common ingredients), and there are certain symptoms that they all produce (e.g. metallic taste in mouth), while there are other symptoms that only occur with one supplement (e.g. numb hands is an ALA symptom, muscle aches is a liquid zeolite symptom). But yes, it can be difficult to figure out what symptoms are "detox", and what symptoms are "supplement adverse reaction". You just have to experiment and draw your own conclusions. Marc |
In reply to this post by Amy Green
I don't like the reaction I get from the chlorella. I get lots of side effects from the ALA that I don't get with R-ALA. So I don't take the ALA anymore.
[Non-text portions of this message have been removed] |
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> I don't like the reaction I get from the chlorella. I get lots of side
> effects from the ALA that I don't get with R-ALA. So I don't take the > ALA anymore. I guess the question is -- do you get the same benefits from taking R-ALA compared to ALA, just without the negative side effects? If so, then I would assume that the negative side effects are coming from the S-ALA (unnatural) part of the ALA, which is not present in the R-ALA. Marc |
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