The Source of My EHS

>
> I've been in and out of this group for years and I haven't been active at all in some time.  The reason being I felt it necessary to prioritize communications with the ME/CFS community, of which I'm a suffering member.  
>
> I'm posting because I believe I've discovered what's behind my EHS.  On several occasions I've been able to turn off and on this symptom.  The first way I accomplished this was to get stinking drunk over a few days.  This has the effect of calming glutamate excitotoxicity and oxidative stress.  Interestingly after cessation of alcohol the EHS wouldn't hit again until I ate.  This reaction would start within ten minutes of eating when the food is still in the stomach, so what's happening here isn't clear.  However I suspected some sort of bacterial translocation or toxic bile being reabsorbed in to the system and triggering a miniature cytokine storm.
>
> The second way I was able to halt EHS symptoms was with a Hulda Clarke liver flush.  There's a certain amount of fasting that goes on with this which will have some effect on my EHS, but the bile release is what turbo charges the effect, and makes the symptom completely eliminated by the next morning.  Again the effect would last until I have something to eat.
>
> The third way I was able to eliminate symptoms completely was to practice what is referred to as extreme mold avoidance.  This involves going down to one of various places in the desert and exposing yourself only to guaranteed toxin free garments and objects.  It only takes about 3 days to reach washout.  Now eating wasn't a problem.
>
> What I think is pretty clear from this is that there's an inflammatory reaction to mold toxins and/or LPS (lipopolysaccharide) that leads to oxidative stress and EHS.  Both these substances are capable of producing chronic inflammatory response syndrome (CIRS).  This is the term Dr Ritchie Shoemaker coined to describe what's happening with various illnesses from ME/CFS to Fibromyalgia to Lyme Disease, etc.  I believe his work is groundbreaking and it seems doctors who specialize in the above mentioned conditions are all accepting his work.  You can find a breakdown of it in his book Surviving Mold, and a synopsis on his website.  Among his patients it's common knowledge that EHS is one of the first symptoms to clear when you start addressing the underlying problem.
>
> http://www.survivingmold.com/
>
> It's also worth noting that there is a study that finds a synergistic effect between mold toxin and anything else that could produce oxidative stress where the combined effect far surpasses the sum of the components.  For some of us this might be something like Lyme and mold (a very common combination), or for others LPS and mold toxins, or any number of possible combinations.  What seems to be the case though is that there has to be some stimulation of the innate immune system.
>
> For information about extreme hold avoidance look up Lisa Petrison, who does a lot of work online to spread this idea.
>
> Graeme
> All that said I'm still electrically sensitive, but I know how I'm going to beat it, and hopefully my ME/CFS.
>

>
> I too thought glutamate excitotoxicity might be the source of my problem. For years I took L-glutamine because it was supposed to help prevent/repair leaky gut syndrome. After stopping that, my symptoms did reduce.
>
> Christine
>
> --- In [hidden email], "yiranimal" <geronimog@> wrote:
> >
> > I've been in and out of this group for years and I haven't been active at all in some time.  The reason being I felt it necessary to prioritize communications with the ME/CFS community, of which I'm a suffering member.  
> >
> > I'm posting because I believe I've discovered what's behind my EHS.  On several occasions I've been able to turn off and on this symptom.  The first way I accomplished this was to get stinking drunk over a few days.  This has the effect of calming glutamate excitotoxicity and oxidative stress.  Interestingly after cessation of alcohol the EHS wouldn't hit again until I ate.  This reaction would start within ten minutes of eating when the food is still in the stomach, so what's happening here isn't clear.  However I suspected some sort of bacterial translocation or toxic bile being reabsorbed in to the system and triggering a miniature cytokine storm.
> >
> > The second way I was able to halt EHS symptoms was with a Hulda Clarke liver flush.  There's a certain amount of fasting that goes on with this which will have some effect on my EHS, but the bile release is what turbo charges the effect, and makes the symptom completely eliminated by the next morning.  Again the effect would last until I have something to eat.
> >
> > The third way I was able to eliminate symptoms completely was to practice what is referred to as extreme mold avoidance.  This involves going down to one of various places in the desert and exposing yourself only to guaranteed toxin free garments and objects.  It only takes about 3 days to reach washout.  Now eating wasn't a problem.
> >
> > What I think is pretty clear from this is that there's an inflammatory reaction to mold toxins and/or LPS (lipopolysaccharide) that leads to oxidative stress and EHS.  Both these substances are capable of producing chronic inflammatory response syndrome (CIRS).  This is the term Dr Ritchie Shoemaker coined to describe what's happening with various illnesses from ME/CFS to Fibromyalgia to Lyme Disease, etc.  I believe his work is groundbreaking and it seems doctors who specialize in the above mentioned conditions are all accepting his work.  You can find a breakdown of it in his book Surviving Mold, and a synopsis on his website.  Among his patients it's common knowledge that EHS is one of the first symptoms to clear when you start addressing the underlying problem.
> >
> > http://www.survivingmold.com/
> >
> > It's also worth noting that there is a study that finds a synergistic effect between mold toxin and anything else that could produce oxidative stress where the combined effect far surpasses the sum of the components.  For some of us this might be something like Lyme and mold (a very common combination), or for others LPS and mold toxins, or any number of possible combinations.  What seems to be the case though is that there has to be some stimulation of the innate immune system.
> >
> > For information about extreme hold avoidance look up Lisa Petrison, who does a lot of work online to spread this idea.
> >
> > Graeme
> > All that said I'm still electrically sensitive, but I know how I'm going to beat it, and hopefully my ME/CFS.
> >
>

> On the ME/CFS front [I have that too] I stumbled on a website yesterday www.autoimmunityresearch.org
> which mentioned the Marshall Protocol which seems to be offering a treatment - based on the underlying premise that at the core of ME is an inflammatory process - which also made a lot of sense - is that what you are talking about?
>
> best wishes
>
> Steph
>
>
> ________________________________
>  From: yiranimal <geronimog@...>
> To: [hidden email]
> Sent: Saturday, 29 June 2013, 3:00
> Subject: [eSens] The Source of My EHS
>  
>
>
>  
> I've been in and out of this group for years and I haven't been active at all in some time.  The reason being I felt it necessary to prioritize communications with the ME/CFS community, of which I'm a suffering member.
>
> I'm posting because I believe I've discovered what's behind my EHS.  On several occasions I've been able to turn off and on this symptom.  The first way I accomplished this was to get stinking drunk over a few days.  This has the effect of calming glutamate excitotoxicity and oxidative stress.  Interestingly after cessation of alcohol the EHS wouldn't hit again until I ate.  This reaction would start within ten minutes of eating when the food is still in the stomach, so what's happening here isn't clear.  However I suspected some sort of bacterial translocation or toxic bile being reabsorbed in to the system and triggering a miniature cytokine storm.
>
> The second way I was able to halt EHS symptoms was with a Hulda Clarke liver flush.  There's a certain amount of fasting that goes on with this which will have some effect on my EHS, but the bile release is what turbo charges the effect, and makes the symptom completely eliminated by the next morning.  Again the effect would last until I have something to eat.
>
> The third way I was able to eliminate symptoms completely was to practice what is referred to as extreme mold avoidance.  This involves going down to one of various places in the desert and exposing yourself only to guaranteed toxin free garments and objects.  It only takes about 3 days to reach washout.  Now eating wasn't a problem.
>
> What I think is pretty clear from this is that there's an inflammatory reaction to mold toxins and/or LPS (lipopolysaccharide) that leads to oxidative stress and EHS.  Both these substances are capable of producing chronic inflammatory response syndrome (CIRS).  This is the term Dr Ritchie Shoemaker coined to describe what's happening with various illnesses from ME/CFS to Fibromyalgia to Lyme Disease, etc.  I believe his work is groundbreaking and it seems doctors who specialize in the above mentioned conditions are all accepting his work.  You can find a breakdown of it in his book Surviving Mold, and a synopsis on his website.  Among his patients it's common knowledge that EHS is one of the first symptoms to clear when you start addressing the underlying problem.
>
> http://www.survivingmold.com/
>
> It's also worth noting that there is a study that finds a synergistic effect between mold toxin and anything else that could produce oxidative stress where the combined effect far surpasses the sum of the components.  For some of us this might be something like Lyme and mold (a very common combination), or for others LPS and mold toxins, or any number of possible combinations.  What seems to be the case though is that there has to be some stimulation of the innate immune system.
>
> For information about extreme hold avoidance look up Lisa Petrison, who does a lot of work online to spread this idea.
>
> Graeme
> All that said I'm still electrically sensitive, but I know how I'm going to beat it, and hopefully my ME/CFS.
>
>
>  
>
> [Non-text portions of this message have been removed]
>

>
> On June 28, yiranimal <geronimog@...> wrote:
> > I'm posting because I believe I've discovered what's behind my EHS.  
> > On several occasions I've been able to turn off and on this symptom.  
>
> Very interesting!  I can't say that I've actually been "stinking drunk"
> since I've gotten my ES, but I also seem rather alcohol intolerant
> so I tend to not drink much.
>
> I've done several liver flushes many years ago, but didn't notice it
> improving anything.
>
> Never heard of extreme mold removal before.  :-)
>
> I *can* recall several instances where my ES levels dropped noticeably
> for a short period of time.  The circumstances of these are:
>
>   -- whenever I have some kind of virus (e.g., the flu)
>   -- a couple of times when I was taking antibiotics for something
>   -- right after I had my mercury dental fillings removed
>
> Marc
>

>
> Hi Steph,
>
> My condolences on the ME/CFS.  It's been by far the hardest thing I've ever gone through in my life.  
>
> I think Trevor Marshall is overstepping when he claims `this is the cause of ME/CFS."  The Marshall Protocol is effective for some, but more often than not it isn't.  And this is usually the case when that person is suffering from straight Lyme.  What's more is one has to go through hell for an indeterminate period of time to find out if it'll work.  Trevor Marshall's discovery about vitamin D imbalance is a significant contribution, whether it's happening for the reason he posits or not.  I, myself, tested very high on D 1,25 and low on D 25 -remember D 1,25 is the bioactive form, and for some reason it's building up instead of activating the immune system as it should -but that's another topic altogether.  I've also tested positive for borrelia (Lyme), so this fits with his theory.  However I've good reason to believe there's more going on in my case so am choosing to focus on other aspects of my illness first.  
>
> Another problem treating ME/CFS with the MP is that it uses an off-label blood pressure lowering medication.  Theoretically this is contraindicated in ME/CFS  
>
> Lyme doctors around the world are discovering that 90-95% of their patients are testing positive for Dr Shoemaker's biotoxin-succeptable genes.  These are genes that only occur in 24% of the population, so that is significant.  It seems the only people to stay sick with Lyme are those born with these genes that make it difficult to detoxify certain toxins.  This is all relatively new information so it hasn't yet hit the main stream.  It doesn't really lend itself easily to medical journals and so will likely just continue on in internet chats and pieces written by pioneering doctors.
>
> The most convenient thing about biotin (mold, Lyme, etc,) illness is that you can usually identify if this is a problem for you with a simple $15 VCS test you can take online on Dr Shoemaker's site.  This identifies 92% of patients who have this problem.  I believe it's the best fifteen bucks one with a chronic illness can spend.  
>
>
>
> > On the ME/CFS front [I have that too] I stumbled on a website yesterday www.autoimmunityresearch.org
> > which mentioned the Marshall Protocol which seems to be offering a treatment - based on the underlying premise that at the core of ME is an inflammatory process - which also made a lot of sense - is that what you are talking about?
> >
> > best wishes
> >
> > Steph
> >
> >
> > ________________________________
> >  From: yiranimal <geronimog@>
> > To: [hidden email]
> > Sent: Saturday, 29 June 2013, 3:00
> > Subject: [eSens] The Source of My EHS
> >  
> >
> >
> >  
> > I've been in and out of this group for years and I haven't been active at all in some time.  The reason being I felt it necessary to prioritize communications with the ME/CFS community, of which I'm a suffering member.
> >
> > I'm posting because I believe I've discovered what's behind my EHS.  On several occasions I've been able to turn off and on this symptom.  The first way I accomplished this was to get stinking drunk over a few days.  This has the effect of calming glutamate excitotoxicity and oxidative stress.  Interestingly after cessation of alcohol the EHS wouldn't hit again until I ate.  This reaction would start within ten minutes of eating when the food is still in the stomach, so what's happening here isn't clear.  However I suspected some sort of bacterial translocation or toxic bile being reabsorbed in to the system and triggering a miniature cytokine storm.
> >
> > The second way I was able to halt EHS symptoms was with a Hulda Clarke liver flush.  There's a certain amount of fasting that goes on with this which will have some effect on my EHS, but the bile release is what turbo charges the effect, and makes the symptom completely eliminated by the next morning.  Again the effect would last until I have something to eat.
> >
> > The third way I was able to eliminate symptoms completely was to practice what is referred to as extreme mold avoidance.  This involves going down to one of various places in the desert and exposing yourself only to guaranteed toxin free garments and objects.  It only takes about 3 days to reach washout.  Now eating wasn't a problem.
> >
> > What I think is pretty clear from this is that there's an inflammatory reaction to mold toxins and/or LPS (lipopolysaccharide) that leads to oxidative stress and EHS.  Both these substances are capable of producing chronic inflammatory response syndrome (CIRS).  This is the term Dr Ritchie Shoemaker coined to describe what's happening with various illnesses from ME/CFS to Fibromyalgia to Lyme Disease, etc.  I believe his work is groundbreaking and it seems doctors who specialize in the above mentioned conditions are all accepting his work.  You can find a breakdown of it in his book Surviving Mold, and a synopsis on his website.  Among his patients it's common knowledge that EHS is one of the first symptoms to clear when you start addressing the underlying problem.
> >
> > http://www.survivingmold.com/
> >
> > It's also worth noting that there is a study that finds a synergistic effect between mold toxin and anything else that could produce oxidative stress where the combined effect far surpasses the sum of the components.  For some of us this might be something like Lyme and mold (a very common combination), or for others LPS and mold toxins, or any number of possible combinations.  What seems to be the case though is that there has to be some stimulation of the innate immune system.
> >
> > For information about extreme hold avoidance look up Lisa Petrison, who does a lot of work online to spread this idea.
> >
> > Graeme
> > All that said I'm still electrically sensitive, but I know how I'm going to beat it, and hopefully my ME/CFS.
> >
> >
> >  
> >
> > [Non-text portions of this message have been removed]
> >
>

>
> Hi Steph,
>
> My condolences on the ME/CFS.  It's been by far the hardest thing I've ever gone through in my life.  
>
> I think Trevor Marshall is overstepping when he claims `this is the cause of ME/CFS."  The Marshall Protocol is effective for some, but more often than not it isn't.  And this is usually the case when that person is suffering from straight Lyme.  What's more is one has to go through hell for an indeterminate period of time to find out if it'll work.  Trevor Marshall's discovery about vitamin D imbalance is a significant contribution, whether it's happening for the reason he posits or not.  I, myself, tested very high on D 1,25 and low on D 25 -remember D 1,25 is the bioactive form, and for some reason it's building up instead of activating the immune system as it should -but that's another topic altogether.  I've also tested positive for borrelia (Lyme), so this fits with his theory.  However I've good reason to believe there's more going on in my case so am choosing to focus on other aspects of my illness first.  
>
> Another problem treating ME/CFS with the MP is that it uses an off-label blood pressure lowering medication.  Theoretically this is contraindicated in ME/CFS  
>
> Lyme doctors around the world are discovering that 90-95% of their patients are testing positive for Dr Shoemaker's biotoxin-succeptable genes.  These are genes that only occur in 24% of the population, so that is significant.  It seems the only people to stay sick with Lyme are those born with these genes that make it difficult to detoxify certain toxins.  This is all relatively new information so it hasn't yet hit the main stream.  It doesn't really lend itself easily to medical journals and so will likely just continue on in internet chats and pieces written by pioneering doctors.
>
> The most convenient thing about biotin (mold, Lyme, etc,) illness is that you can usually identify if this is a problem for you with a simple $15 VCS test you can take online on Dr Shoemaker's site.  This identifies 92% of patients who have this problem.  I believe it's the best fifteen bucks one with a chronic illness can spend.  
>
>
>
> > On the ME/CFS front [I have that too] I stumbled on a website yesterday www.autoimmunityresearch.org
> > which mentioned the Marshall Protocol which seems to be offering a treatment - based on the underlying premise that at the core of ME is an inflammatory process - which also made a lot of sense - is that what you are talking about?
> >
> > best wishes
> >
> > Steph
> >
> >
> > ________________________________
> >  From: yiranimal <geronimog@>
> > To: [hidden email]
> > Sent: Saturday, 29 June 2013, 3:00
> > Subject: [eSens] The Source of My EHS

>
> Graeme, in the event one has this genetic inability to detox biotoxins properly, what can be done?
>
> --- In [hidden email], "yiranimal" <geronimog@> wrote:
> >
> > Hi Steph,
> >
> > My condolences on the ME/CFS.  It's been by far the hardest thing I've ever gone through in my life.  
> >
> > I think Trevor Marshall is overstepping when he claims `this is the cause of ME/CFS."  The Marshall Protocol is effective for some, but more often than not it isn't.  And this is usually the case when that person is suffering from straight Lyme.  What's more is one has to go through hell for an indeterminate period of time to find out if it'll work.  Trevor Marshall's discovery about vitamin D imbalance is a significant contribution, whether it's happening for the reason he posits or not.  I, myself, tested very high on D 1,25 and low on D 25 -remember D 1,25 is the bioactive form, and for some reason it's building up instead of activating the immune system as it should -but that's another topic altogether.  I've also tested positive for borrelia (Lyme), so this fits with his theory.  However I've good reason to believe there's more going on in my case so am choosing to focus on other aspects of my illness first.  
> >
> > Another problem treating ME/CFS with the MP is that it uses an off-label blood pressure lowering medication.  Theoretically this is contraindicated in ME/CFS  
> >
> > Lyme doctors around the world are discovering that 90-95% of their patients are testing positive for Dr Shoemaker's biotoxin-succeptable genes.  These are genes that only occur in 24% of the population, so that is significant.  It seems the only people to stay sick with Lyme are those born with these genes that make it difficult to detoxify certain toxins.  This is all relatively new information so it hasn't yet hit the main stream.  It doesn't really lend itself easily to medical journals and so will likely just continue on in internet chats and pieces written by pioneering doctors.
> >
> > The most convenient thing about biotin (mold, Lyme, etc,) illness is that you can usually identify if this is a problem for you with a simple $15 VCS test you can take online on Dr Shoemaker's site.  This identifies 92% of patients who have this problem.  I believe it's the best fifteen bucks one with a chronic illness can spend.  
> >
> >
> >
> > > On the ME/CFS front [I have that too] I stumbled on a website yesterday www.autoimmunityresearch.org
> > > which mentioned the Marshall Protocol which seems to be offering a treatment - based on the underlying premise that at the core of ME is an inflammatory process - which also made a lot of sense - is that what you are talking about?
> > >
> > > best wishes
> > >
> > > Steph
> > >
> > >
> > > ________________________________
> > >  From: yiranimal <geronimog@>
> > > To: [hidden email]
> > > Sent: Saturday, 29 June 2013, 3:00
> > > Subject: [eSens] The Source of My EHS
> > >  
> > >
> > >
> > >  
> > > I've been in and out of this group for years and I haven't been active at all in some time.  The reason being I felt it necessary to prioritize communications with the ME/CFS community, of which I'm a suffering member.
> > >
> > > I'm posting because I believe I've discovered what's behind my EHS.  On several occasions I've been able to turn off and on this symptom.  The first way I accomplished this was to get stinking drunk over a few days.  This has the effect of calming glutamate excitotoxicity and oxidative stress.  Interestingly after cessation of alcohol the EHS wouldn't hit again until I ate.  This reaction would start within ten minutes of eating when the food is still in the stomach, so what's happening here isn't clear.  However I suspected some sort of bacterial translocation or toxic bile being reabsorbed in to the system and triggering a miniature cytokine storm.
> > >
> > > The second way I was able to halt EHS symptoms was with a Hulda Clarke liver flush.  There's a certain amount of fasting that goes on with this which will have some effect on my EHS, but the bile release is what turbo charges the effect, and makes the symptom completely eliminated by the next morning.  Again the effect would last until I have something to eat.
> > >
> > > The third way I was able to eliminate symptoms completely was to practice what is referred to as extreme mold avoidance.  This involves going down to one of various places in the desert and exposing yourself only to guaranteed toxin free garments and objects.  It only takes about 3 days to reach washout.  Now eating wasn't a problem.
> > >
> > > What I think is pretty clear from this is that there's an inflammatory reaction to mold toxins and/or LPS (lipopolysaccharide) that leads to oxidative stress and EHS.  Both these substances are capable of producing chronic inflammatory response syndrome (CIRS).  This is the term Dr Ritchie Shoemaker coined to describe what's happening with various illnesses from ME/CFS to Fibromyalgia to Lyme Disease, etc.  I believe his work is groundbreaking and it seems doctors who specialize in the above mentioned conditions are all accepting his work.  You can find a breakdown of it in his book Surviving Mold, and a synopsis on his website.  Among his patients it's common knowledge that EHS is one of the first symptoms to clear when you start addressing the underlying problem.
> > >
> > > http://www.survivingmold.com/
> > >
> > > It's also worth noting that there is a study that finds a synergistic effect between mold toxin and anything else that could produce oxidative stress where the combined effect far surpasses the sum of the components.  For some of us this might be something like Lyme and mold (a very common combination), or for others LPS and mold toxins, or any number of possible combinations.  What seems to be the case though is that there has to be some stimulation of the innate immune system.
> > >
> > > For information about extreme hold avoidance look up Lisa Petrison, who does a lot of work online to spread this idea.
> > >
> > > Graeme
> > > All that said I'm still electrically sensitive, but I know how I'm going to beat it, and hopefully my ME/CFS.
> > >
> > >
> > >  
> > >
> > > [Non-text portions of this message have been removed]
> > >
> >
>