Supplements

I tried some cod liver oil must be low in D, it's helping lesson the
 nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any
tried GABA?
I react to  D3 for some reason.

She believes
glutamate is the bullet & calcium the gun.  We can get ammonia from
too much meat. Have to balance w more veggies. Calcium can excite the
nerves. Anybody read Russell Blaylock's peice on it?
http://www.whale.to/a/sudden_cardiac_death.html

I know many take calcium, but it causes more pain for me. I was taking the wrong kind though. She believes to keep your calcium
 levels in the low range of normal. It's hard w what emf's do to it. But maybe being low in cal caused my E Sens?

Kathy

[Non-text portions of this message have been removed]

So if I get this right, Baylock is stating that LOW magnesium, when taking Calcium supps is bad. That makes sense, as you have to have adeqaute Magnesium stores in order for the body to be abe to metabolize Calcium...otherwise you get calcium wasting......
Elizabeth
Dandelion root is also rich is calcium.
Omega three's....lots of sources.
But it can hold true, that when the body is low low on a mineral or vitamin, it can be hard to take.
Sort of like in the essentail oil arena, the one that people think smells yucky, will be the one they NEED. My daughter said the thryoid supp smelled yucky to her, and she didn't want to take them. Then one night, she got out of bed, and took 2 and felt immediately better. She'd remembered the essential oil rule* and applied it.

 


To: [hidden email]
From: [hidden email]
Date: Sat, 11 Jun 2011 15:42:33 -0700
Subject: [eSens] Supplements


 




I tried some cod liver oil must be low in D, it's helping lesson the
nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any
tried GABA?
I react to  D3 for some reason.

She believes
glutamate is the bullet & calcium the gun.  We can get ammonia from
too much meat. Have to balance w more veggies. Calcium can excite the
nerves. Anybody read Russell Blaylock's peice on it?
http://www.whale.to/a/sudden_cardiac_death.html

I know many take calcium, but it causes more pain for me. I was taking the wrong kind though. She believes to keep your calcium
levels in the low range of normal. It's hard w what emf's do to it. But maybe being low in cal caused my E Sens?

Kathy

[Non-text portions of this message have been removed]



     

[Non-text portions of this message have been removed]

Hi, Kathy,
 
Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.
 
Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 
 
B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.
 
Possibly a hydrogen supplement would help.
 
You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 
 
If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium channel blocker is taken.  If you take a calcium channel blocker, it will block the calcium from
 leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 
 
As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place to help with neighboring smart meters, as possible!]
 
On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 
 
Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 
 
Hope some of this is helpful; it sounds like you truly need something fast,
Bless you,
Diane

--- On Sat, 6/11/11, KathyB <[hidden email]> wrote:


From: KathyB <[hidden email]>
Subject: [eSens] Supplements
To: [hidden email]
Date: Saturday, June 11, 2011, 6:42 PM


 




I tried some cod liver oil must be low in D, it's helping lesson the
nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any
tried GABA?
I react to  D3 for some reason.

She believes
glutamate is the bullet & calcium the gun.  We can get ammonia from
too much meat. Have to balance w more veggies. Calcium can excite the
nerves. Anybody read Russell Blaylock's peice on it?
http://www.whale.to/a/sudden_cardiac_death.html

I know many take calcium, but it causes more pain for me. I was taking the wrong kind though. She believes to keep your calcium
levels in the low range of normal. It's hard w what emf's do to it. But maybe being low in cal caused my E Sens?

Kathy

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Diane,

Thanks. I didn't know GABA would cause a reaction from a leaky gut. I think I still have one.  It causes a reaction of not being able to sit still large doses, not small.
I'll keep working on it.

I need B12, have to get the right sublingual, react w nausea to some. I'll try cal AEP soon.
Do you take it w mag?

 I'm still confused on the best window shielding to try. Have limited funds for 2 weeks, oh.  Had a hard night, up until 4.
The cat layed  next to me for  awhile, then jumped off the bed. She was sleeping w me until the tower went up. She's feeling it.


Kathy
 <[hidden email]> wrote:
Re: [eSens] Supplements















 
 



 


   
     
     
      Hi, Kathy,

 

Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

 

Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

 

B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

 

Possibly a hydrogen supplement would help.

 

You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

 

If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium channel blocker is taken.  If you take a calcium channel blocker, it will block the calcium from

 leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

 

As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place to help with neighboring smart meters, as possible!]

 

On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

 

Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

 

Hope some of this is helpful; it sounds like you truly need something fast,

Bless you,

Diane







[Non-text portions of this message have been removed]

Hi again, Kathy,
 
You mention GABA in relation to leaky gut, but I was referring to a leaky blood-brain barrier.  I am guessing this was a typo on your part, but wanted to point it out incase you don't have a leaky bbb, but a leaky gut.  Yes, agitation or anxiety, needing to move around--that would be a sign GABA was leaking into your brain more than normal.  It is good you have to take a large dose to get this reaction, tho!  That means you don't have too much damage.  Back in the late 90s I reacted very badly to very small amounts of GABA.  About half of my BBB damage has actually healed since then, even tho I still have some emf effects!
 
As to magnesium....  I do not take cal AEP with magnesium, I do however take epsom salts baths which provide magnesium.  I take the baths, twice a week and soak 40 minutes, so there is magnesium in my body when I take the calcium AEP.  As to the calcium/pantethine, I now take 2 caps-- 300mg/ each with breakfast.  But at first I did take more to deal with deficiency.  Once I started taking manganese and taurine, I didn't have to take as much calcium, tho.  And actually (for much of the last 8 months) I only took the cal AEP and pantethine as I needed it--when I had actual calcium efflux.  But that is because I am not reacting so much.  You would likely at least need to take it at breakfast.  I realized recently how long it has been since I took it regularly and realized it would be good to take a bit more of it for awhile. 

Hope you can find something which helps soon.  The window screens might be the most reasonable (if you or your husband can make them yourselves), but it is hard to say.  All of the shieldings are expensive.  Like Charles, I favor the fabric emf panels I mentioned I made for some windows. 
 
What I did for our bedroom was I made cotton matelaise floor to ceiling drapes that I pull to close for privacy.  [I used 2 matelaise bed coverings which cover the entire 12 foot end wall of our bedroom, even tho the window there is small].  I then, behind that, made floor to ceiling emf-fabric panels.  It is also across the entire wall, but it is not gathered except a little in front of the window--it looks like regular sheers.  You would not know it was special fabric.  I attached it by velcro to a glued up lath strip as I mentioned in the last email. 
 
In my office, I made a straight panel--no sheering, to save on cost.  It is also the entire wall, but also behind drapes where there is only a small window, and in that room, it is in 3 strips so the window panel itself can be raised or lowered, like a roman shade.  (So far I have never raised it, tho, so I don't really know if this will work.  I haven't finished that room yet.)
 
Oh, behind our bed--I did also put a panel of emf fabric there behind a huge quilt.  It is brick wall there, but that wall is where the closest cell tower strikes. 
 
There is so much more you can do with the emf fabric than the other fixes, i think that is why I prefer it.  But be prepared to mortgage your house to pay for it.  ;)  If you need a quick, less pricey fix, buy the fabric and only cover the windows, themselves, for now.  That may be all you need, anyway.  If you don't mind the look of a straight, ungathered panel, you can do that for a lot less.
 
Hope you can get something soon, Kathy.
My love,
Diane

From: KathyB <[hidden email]>
Subject: : [eSens] Supplements
To: [hidden email]
Date: Sunday, June 12, 2011, 2:47 PM


 



Diane,

Thanks. I didn't know GABA would cause a reaction from a leaky gut. I think I still have one.  It causes a reaction of not being able to sit still large doses, not small.
I'll keep working on it.

I need B12, have to get the right sublingual, react w nausea to some. I'll try cal AEP soon.
Do you take it w mag?

 I'm still confused on the best window shielding to try. Have limited funds for 2 weeks, oh.  Had a hard night, up until 4.
The cat layed  next to me for  awhile, then jumped off the bed. She was sleeping w me until the tower went up. She's feeling it.

Kathy
 <[hidden email]> wrote:
Re: [eSens] Supplements

 

Hi, Kathy,

 

Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

 

Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

 

B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

 

Possibly a hydrogen supplement would help.

 

You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

 

If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium channel blocker is taken.  If you take a calcium channel blocker, it will block the calcium from

leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

 

As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place to help with neighboring smart meters, as possible!]

 

On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

 

Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

 

Hope some of this is helpful; it sounds like you truly need something fast,

Bless you,

Diane

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Evie,

 Sorry I misunderstood leaking BBB vs  the gut.

Thanks, I'll going to have to swing making my own emf blocking sheers. Wish they weren't so costly.

Kathy

<[hidden email]> wrote:
 Re: : [eSens] Supplements















 
 



 


   
     
     
      Hi again, Kathy,

 

You mention GABA in relation to leaky gut, but I was referring to a leaky blood-brain barrier.  I am guessing this was a typo on your part, but wanted to point it out incase you don't have a leaky bbb, but a leaky gut.  Yes, agitation or anxiety, needing to move around--that would be a sign GABA was leaking into your brain more than normal.  It is good you have to take a large dose to get this reaction, tho!  That means you don't have too much damage.  Back in the late 90s I reacted very badly to very small amounts of GABA.  About half of my BBB damage has actually healed since then, even tho I still have some emf effects!

 

As to magnesium....  I do not take cal AEP with magnesium, I do however take epsom salts baths which provide magnesium.  I take the baths, twice a week and soak 40 minutes, so there is magnesium in my body when I take the calcium AEP.  As to the calcium/pantethine, I now take 2 caps-- 300mg/ each with breakfast.  But at first I did take more to deal with deficiency.  Once I started taking manganese and taurine, I didn't have to take as much calcium, tho.  And actually (for much of the last 8 months) I only took the cal AEP and pantethine as I needed it--when I had actual calcium efflux.  But that is because I am not reacting so much.  You would likely at least need to take it at breakfast.  I realized recently how long it has been since I took it regularly and realized it would be good to take a bit more of it for awhile. 



Hope you can find something which helps soon.  The window screens might be the most reasonable (if you or your husband can make them yourselves), but it is hard to say.  All of the shieldings are expensive.  Like Charles, I favor the fabric emf panels I mentioned I made for some windows. 

 

What I did for our bedroom was I made cotton matelaise floor to ceiling drapes that I pull to close for privacy.  [I used 2 matelaise bed coverings which cover the entire 12 foot end wall of our bedroom, even tho the window there is small].  I then, behind that, made floor to ceiling emf-fabric panels.  It is also across the entire wall, but it is not gathered except a little in front of the window--it looks like regular sheers.  You would not know it was special fabric.  I attached it by velcro to a glued up lath strip as I mentioned in the last email. 

 

In my office, I made a straight panel--no sheering, to save on cost.  It is also the entire wall, but also behind drapes where there is only a small window, and in that room, it is in 3 strips so the window panel itself can be raised or lowered, like a roman shade.  (So far I have never raised it, tho, so I don't really know if this will work.  I haven't finished that room yet.)

 

Oh, behind our bed--I did also put a panel of emf fabric there behind a huge quilt.  It is brick wall there, but that wall is where the closest cell tower strikes. 

 

There is so much more you can do with the emf fabric than the other fixes, i think that is why I prefer it.  But be prepared to mortgage your house to pay for it.  ;)  If you need a quick, less pricey fix, buy the fabric and only cover the windows, themselves, for now.  That may be all you need, anyway.  If you don't mind the look of a straight, ungathered panel, you can do that for a lot less.

 

Hope you can get something soon, Kathy.

My love,

Diane



 



 
<



[Non-text portions of this message have been removed]

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing.  For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day.  I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.)  It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde.  These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.  I have noticed that body-agitation - that figety need to move around.  Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense:  my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling.  Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels.  Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state.  Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body.  I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity.  I've had to greatly reduce or even back off supplements altogether because of this type of reaction.  I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction.  It had caused agitation and insomnia - particularly the Twinlabs brand.  I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets.  Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though.  It sounds like what you've said about the leaky BBB could be a very real possibility with me.  I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds.  Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB?  I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.)  You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage.  I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet.  But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan



--- In [hidden email], Evie <evie15422@...> wrote:

Hi,
My 2 cents......for leaky gut, probiotics.  
Read this entire article. It explains why probiotics are vital gut health.
Also, candida problems are often rooted in the thryoid. Why? Low thryoid the candida levels go UP. Same as chlolesteral levels go UP with low thyroid.
Lizzie
Probiotics | Complete Probiotics Supplements by Dr. Mercola
 
That's exactly what's happened with this new probiotic formula that I'm ... I spent hours poring over the latest research and newest studies to be sure I had ..... The information on this website is not intended to replace a one-on-one ...probiotics.mercola.com/probiotics.html - Cached - Similar- Block all probiotics.mercola.com results
 


To: [hidden email]
From: [hidden email]
Date: Tue, 14 Jun 2011 00:39:31 +0000
Subject: [eSens] Re: Supplements


 





Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:


     

[Non-text portions of this message have been removed]



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Hi Kathy,

I second Diane - Carlson Labs seems to make a great D3 supplement that has worked for me.  I've been using their Vitamin D drops for almost two years, now - and this is one supplement that I seem to tolerate exceedingly well.  And I'm very sensitive when it comes to supplements - I seem to be much more sensitive to supplements than the average person.  I've shown an intolerance to many - but I tolerate these drops beautifully - even when I take several drops at a time.

The drops come in tiny bottles - but there are 365 drops per bottle. (One drop is either 1000 IU or 2000 IU - depending on what bottle you purchase.  I think they make drops in lower doses, as well.)  The only other ingredient is fractionated coconut oil.  The drops have no taste - I usually put a few drops on whatever food I'm eating, and I never taste it.  I love the simplicity of these drops - the fact that you don't have to bother with a much larger tablet or capsule, with their various filler ingredients.

What's more, my Vitamin D levels have risen substantially within the past year or two - they were way below the recommended levels in 2009 or 2010...now they are well within the "healthy" range.

~Svetaswan

--- In [hidden email], KathyB <calicocat477@...> wrote:

Hi,

I was reading about pyrluria.

http://www.drkaslow.com/html/pyroluria.html


Both zinc and B6 need to be
directed by the doctor as too much can be toxic, use of the wrong form will be
ineffective, and avoiding competing minerals and supplements may be necessary.
Other nutrients may assist in pyroluria include niacinamide, pantothenic acid, manganese, vitamins C and E, omega-6
fatty acids and cysteine.

Food sources and nutritional supplements containing
copper and red/yellow food dyes should be avoided.

I have anxiety myself, but haven't tested w that, yet anyway.

You might try a smaller dose of niacinamide. Some of us like me have to start slower w supps than others.

 It helped me, but caused this reaction of pain in the abdomen.  I hope someone else can help.

Kathy

From: svetaswan <[hidden email]>
Subject: [eSens] Re: Supplements















 
 



 


   
     
     
     



Hi Diane,



Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing.  For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day.  I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.)  It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde.  These are the reasons why I thought niacinamide would be great for me.



But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter.  I have noticed that body-agitation - that figety need to move around.  Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense:  my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling.  Other times, both my brain and my body feel agitated.



In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels.  Before I read your post, I had my little "theories", such as:



-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state.  Maybe it needs time to adjust.



-the niacinamide is somehow increasing acidity levels in my body.  I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity.  I've had to greatly reduce or even back off supplements altogether because of this type of reaction.  I've read that niacinamide can increase uric acid levels.



I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction.  It had caused agitation and insomnia - particularly the Twinlabs brand.  I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets.  Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.



Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.



It feels like there is a lot more going on with the niacinamide than just increased acidity, though.  It sounds like what you've said about the leaky BBB could be a very real possibility with me.  I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds.  Could this be a sign of leaky-gut and/or leaky BBB?



May I ask what you did nutritionally to heal your leaky BBB?  I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.)  You can just outline it - hopefully it won't be too much work!



It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage.  I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet.  But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.



Regards,



~Svetaswan



--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium channel blocker is taken.  If you take a calcium channel
 blocker, it will block the calcium from

>  leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place to help with neighboring smart
 meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

> --- On Sat, 6/11/11, KathyB <calicocat477@...> wrote:

>

>

> From: KathyB <calicocat477@...>

> Subject: [eSens] Supplements

> To: [hidden email]

> Date: Saturday, June 11, 2011, 6:42 PM

>

>

>  

>

>

>

>

> I tried some cod liver oil must be low in D, it's helping lesson the

> nerve pain. . I read Amy Yasko, refers to healing nerves.  Have any

> tried GABA?

> I react to  D3 for some reason.

>

> She believes

> glutamate is the bullet & calcium the gun.  We can get ammonia from

> too much meat. Have to balance w more veggies. Calcium can excite the

> nerves. Anybody read Russell Blaylock's peice on it?

> http://www.whale.to/a/sudden_cardiac_death.html

>

> I know many take calcium, but it causes more pain for me. I was taking the wrong kind though. She believes to keep your calcium

> levels in the low range of normal. It's hard w what emf's do to it. But maybe being low in cal caused my E Sens?

>

> Kathy

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>





   
     

   
   


 



 










[Non-text portions of this message have been removed]

Hi, Sveta,
 
No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!
 
Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.
 
Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.
 
Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 
 
What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 
 
The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.
 
Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)
 
Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol
 
Bless you,
Diane

--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:


From: svetaswan <[hidden email]>
Subject: [eSens] Re: Supplements
To: [hidden email]
Date: Monday, June 13, 2011, 8:39 PM


 





Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:  blocker, it will block the calcium from
> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 
>  
> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place to help with neighboring smart
 meters, as possible!]







[Non-text portions of this message have been removed]

Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?




Kathy

[hidden email]> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction
problem (leaky tjs cause calcium to efflux).  But, calcium has wide
ranging functions in the body, so it is hard to say what it is doing for
 you, but if it is having an effect which is good when using the
niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine
(B5), manganese, and taurine.  I don't do well with glutamine supps, but
 it is likely glutamine would help most people.  I do say over and over
here, tho, be very careful if you use manganese.  It is a toxic metal in
 excess.  I am very careful and only take a small amount UP TO twice a
week.  If you intend to use manganese, please write me and I will send
more pertinent information. 





--- On Sat, 6/18/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements















 
 



 


   
     
     
      Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol

 

Bless you,

Diane



--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:



From: svetaswan <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Monday, June 13, 2011, 8:39 PM



 



Hi Diane,



Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.



But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.



In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:



-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.



-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.



I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.



Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.



It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?



May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!



It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.



Regards,



~Svetaswan



--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium
 channel blocker is taken.  If you take a calcium channel

 blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place
 to help with neighboring smart

 meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>



[Non-text portions of this message have been removed]

hi yet again, Kathy!  ;)
 
No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.
 
Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.
 
As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 
 
Diane

--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:


From: KathyB <[hidden email]>
Subject: [eSens] Re: Supplements
To: [hidden email]
Date: Saturday, June 18, 2011, 6:23 PM


 




Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?

Kathy

[hidden email]> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction
problem (leaky tjs cause calcium to efflux).  But, calcium has wide
ranging functions in the body, so it is hard to say what it is doing for
you, but if it is having an effect which is good when using the
niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine
(B5), manganese, and taurine.  I don't do well with glutamine supps, but
it is likely glutamine would help most people.  I do say over and over
here, tho, be very careful if you use manganese.  It is a toxic metal in
excess.  I am very careful and only take a small amount UP TO twice a
week.  If you intend to use manganese, please write me and I will send
more pertinent information. 

--- On Sat, 6/18/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements

 

Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol

 

Bless you,

Diane

--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:

From: svetaswan <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium
channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place
to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Diane,

Now, that I know  emf's drain it. The key is finding a happy mediuam in dosing.
Mine is in the low range of normal on bloodwork. I don't want it to go below the accepted range.

I don't know the whole story w me.  I only react immediately to some supps.  My son
however, reacts to caclium as an excitory nutrient - takes what's in his multi. Maybe he wouldn't when his body's supported by enough magnesium.

Kathy

From: Evie <[hidden email]>Subject: Re: [eSens] Re: Supplements
Date: Sunday, June 19, 2011, 12:30 AM















 
 



 


   
     
     
      hi yet again, Kathy!  ;)

 

No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.

 

Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.

 

As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 

 

Diane



--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:



From: KathyB <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Saturday, June 18, 2011, 6:23 PM



 



Sorry to jump in here. I react to a sup. almost after taking too.



Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?



http://www.icswebsite.com/emf/emfissues/emfissues9.html



You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.



How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?



Kathy



[hidden email]> wrote



Interestingly, tho, calcium is implicated in the bbb tight junction

problem (leaky tjs cause calcium to efflux).  But, calcium has wide

ranging functions in the body, so it is hard to say what it is doing for

you, but if it is having an effect which is good when using the

niacinamide, I'd keep taking the supps with it in. 



 



What I took for healing my bbb was a combo of calcium AEP, pantethine

(B5), manganese, and taurine.  I don't do well with glutamine supps, but

it is likely glutamine would help most people.  I do say over and over

here, tho, be very careful if you use manganese.  It is a toxic metal in

excess.  I am very careful and only take a small amount UP TO twice a

week.  If you intend to use manganese, please write me and I will send

more pertinent information. 



--- On Sat, 6/18/11, Evie <[hidden email]> wrote:



From: Evie <[hidden email]>

Subject: Re: [eSens] Re: Supplements



 



Hi, Sveta,



 



No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!



 



Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.



 



Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.



 



Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 



 



What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 



 



The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.



 



Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)



 



Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol



 



Bless you,



Diane



--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:



From: svetaswan <[hidden email]>



Subject: [eSens] Re: Supplements



To: [hidden email]



Date: Monday, June 13, 2011, 8:39 PM



 



Hi Diane,



Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.



But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.



In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:



-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.



-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.



I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.



Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.



It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?



May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!



It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.



Regards,



~Svetaswan



--- In [hidden email], Evie <evie15422@...> wrote:



>



> Hi, Kathy,



>  



> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.



>  



> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 



>  



> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.



>  



> Possibly a hydrogen supplement would help.



>  



> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 



>  



> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel



blocker, it will block the calcium from



> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 



>  



> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place

to help with neighboring smart



meters, as possible!]



>  



> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 



>  



> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 



>  



> Hope some of this is helpful; it sounds like you truly need something fast,



> Bless you,



> Diane



>



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]





   
     

   
   


 



 










[Non-text portions of this message have been removed]

hi diane-I dont know if you remember me or not? I work with that woman Dee who suffers severely from ES...she was looking to see if she can possibly talk with you on the phone? I think you had mentioned a while ago that you could possibly do that? If you would still be willing to do that it would be much appreciated! I can either give you her phone number or you could give me yours and a best time to call? Please let me know what you think...thank you so much!
 
Jackie

--- On Sun, 6/19/11, Evie <[hidden email]> wrote:


From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements
To: [hidden email]
Date: Sunday, June 19, 2011, 1:30 AM


 



hi yet again, Kathy!  ;)
 
No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.
 
Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.
 
As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 
 
Diane

--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:

From: KathyB <[hidden email]>
Subject: [eSens] Re: Supplements
To: [hidden email]
Date: Saturday, June 18, 2011, 6:23 PM

 

Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?

Kathy

[hidden email]> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction
problem (leaky tjs cause calcium to efflux).  But, calcium has wide
ranging functions in the body, so it is hard to say what it is doing for
you, but if it is having an effect which is good when using the
niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine
(B5), manganese, and taurine.  I don't do well with glutamine supps, but
it is likely glutamine would help most people.  I do say over and over
here, tho, be very careful if you use manganese.  It is a toxic metal in
excess.  I am very careful and only take a small amount UP TO twice a
week.  If you intend to use manganese, please write me and I will send
more pertinent information. 

--- On Sat, 6/18/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements

 

Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol

 

Bless you,

Diane

--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:

From: svetaswan <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium
channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place
to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Hi, Kathy,
 
You could try calcium AEP and pantethine (together) and see what happens?  When I took it, I had to repack the pills in tiny amounts to tolerate it (both calcium and pantethine.)  I was told to do this by a nutritionist I contacted by phone.  I was very intolerant to calcium back then too.  He told me to start out very small--like 1/20th or less of a capsule/ eachcal and pantethine.  I started out taking this amount every other day or maybe even just twice a week.  He told me when I saw no reaction from this dose, to take it more often--building up to this amount everyday.  When I no longer saw a reaction to this dose, I added a bit more to the repacked capsules (you buy empty capsules to do this).  Then I did the same thing--took that every other day or twice a week (keeping the old dose for days in between) and worked up to taking it everyday as I tolerated that dose better.  You follow this routine until you are taking one entire pill of
 each pantethine and calcium AEP daily.  Then I started over again till I could tolerate 2 pills of each for each meal.  This took many months to get to an entire dose. 
 
The calcium AEP and pantethine detox things--especially bad gut bugs and their wastes.  So this is why you want to go slow.  You will get detox symptoms and they can make you feel very ill if you are detoxing too much, too quickly.  The reason I take Calcium AEP is it is the type of calcium your brain uses.  If there is calcium efflux from the brain, you need to put back a calcium that the brain can utilize well. 
 
Once you get the calcium back into the cells, you ideally want to stay out of emfs to keep the calcium in there.  If you are in emfs and you experience calcium efflux, once you are on 2 caps each calcium and pantethine, you can carry these with you anywhere you go and take 2 caps each when you are experiencing symptoms of calcium efflux.  Take them with a large glass of water.  Now this probably only works if you are indeed experiencing calcium efflux, around emfs.  If you are in emfs for a long period and the efflux does not stop, you will need to supplement 2 more pills/ each cal and pantethine every 30 minutes or so until you are out of the emfs. 
 
On top of this, if/ when you would actually get to this point, you ideally should try to find a substance which works to keep the calcium in the cells (a type of calcium channel blocker).  This is where manganese and taurine have worked for me.  But they must be taken in very low doses and not abused.  You should ideally not be taking these more than 2 or 3 times a week (one dose that often).  And I would rather hope you not take these at all, and find a better solution.  ;)
 
Reacting immediately to some supps could be a sign that they are detox supps in the process of detoxing things.  Due to being gluten-free I must take molybdenum supplementation, but molyb is a very strong detoxer.  It will detox sulphur compounds and mercury.  If I have missed molyb supplementation for very long when I retake it, I can get bad reactions from it almost immediately.  This is because there is a back-log of compounds, which only molyb can detox, waiting to be detoxed. 
 
Also, sometimes one supp can't be taken on its own--it needs support in one way or another from another supp.  So, write down when you have reactions to supps.  Then you will need to do homework to find out whether you are taking supporting nutrients in large enough doses when this happens.
 
Interesting about your son.  How is it that you tracked his reaction down to calcium?  Does he react to calcium in foods the same way?  My son used to go bonkers on milk--hyperactivity.  Is this the same thing?  We had him on rice and almond milks/ no cheeses, etc for 3 years and then he started drinking regular milk at school and did okay, so we slowly added regular milk back to his diet.  He has had no problems since (and he's 35).  I am a tad suspicious that he had celiac damage to his gut back then which caused the dairy intolerance, tho. 
 
Well, I don't know if this will help you find your happy medium in dosing or not.  But this was how I finally found my happy medium. ;)
 
Good luck,
Diane


--- On Sun, 6/19/11, KathyB <[hidden email]> wrote:


From: KathyB <[hidden email]>
Subject: Re: [eSens] Re: Supplements
To: [hidden email]
Date: Sunday, June 19, 2011, 12:52 PM


 




Diane,

Now, that I know  emf's drain it. The key is finding a happy mediuam in dosing.
Mine is in the low range of normal on bloodwork. I don't want it to go below the accepted range.

I don't know the whole story w me.  I only react immediately to some supps.  My son
however, reacts to caclium as an excitory nutrient - takes what's in his multi. Maybe he wouldn't when his body's supported by enough magnesium.

Kathy

From: Evie <[hidden email]>Subject: Re: [eSens] Re: Supplements
Date: Sunday, June 19, 2011, 12:30 AM

 

hi yet again, Kathy!  ;)

 

No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.

 

Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.

 

As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 

 

Diane

--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:

From: KathyB <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Saturday, June 18, 2011, 6:23 PM

 

Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?

Kathy

[hidden email]> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction

problem (leaky tjs cause calcium to efflux).  But, calcium has wide

ranging functions in the body, so it is hard to say what it is doing for

you, but if it is having an effect which is good when using the

niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine

(B5), manganese, and taurine.  I don't do well with glutamine supps, but

it is likely glutamine would help most people.  I do say over and over

here, tho, be very careful if you use manganese.  It is a toxic metal in

excess.  I am very careful and only take a small amount UP TO twice a

week.  If you intend to use manganese, please write me and I will send

more pertinent information. 

--- On Sat, 6/18/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>

Subject: Re: [eSens] Re: Supplements

 

Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol

 

Bless you,

Diane

--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:

From: svetaswan <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Hi, Diane. I was reading your very informative e-mail to Kathy & was wondering: Is there anything else you take that has a very specific function (such as Molybdinum getting mercury out of certain types of cells) that you feel is necessary to help w/ EHS, heavy metal detox, &/or celiac? 
Love & blessings,Elysia

--- On Sun, 6/19/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements
To: [hidden email]
Date: Sunday, June 19, 2011, 8:30 PM















 
 



 


   
     
     
      Hi, Kathy,

 

You could try calcium AEP and pantethine (together) and see what happens?  When I took it, I had to repack the pills in tiny amounts to tolerate it (both calcium and pantethine.)  I was told to do this by a nutritionist I contacted by phone.  I was very intolerant to calcium back then too.  He told me to start out very small--like 1/20th or less of a capsule/ eachcal and pantethine.  I started out taking this amount every other day or maybe even just twice a week.  He told me when I saw no reaction from this dose, to take it more often--building up to this amount everyday.  When I no longer saw a reaction to this dose, I added a bit more to the repacked capsules (you buy empty capsules to do this).  Then I did the same thing--took that every other day or twice a week (keeping the old dose for days in between) and worked up to taking it everyday as I tolerated that dose better.  You follow this routine until you are taking one entire pill of

 each pantethine and calcium AEP daily.  Then I started over again till I could tolerate 2 pills of each for each meal.  This took many months to get to an entire dose. 

 

The calcium AEP and pantethine detox things--especially bad gut bugs and their wastes.  So this is why you want to go slow.  You will get detox symptoms and they can make you feel very ill if you are detoxing too much, too quickly.  The reason I take Calcium AEP is it is the type of calcium your brain uses.  If there is calcium efflux from the brain, you need to put back a calcium that the brain can utilize well. 

 

Once you get the calcium back into the cells, you ideally want to stay out of emfs to keep the calcium in there.  If you are in emfs and you experience calcium efflux, once you are on 2 caps each calcium and pantethine, you can carry these with you anywhere you go and take 2 caps each when you are experiencing symptoms of calcium efflux.  Take them with a large glass of water.  Now this probably only works if you are indeed experiencing calcium efflux, around emfs.  If you are in emfs for a long period and the efflux does not stop, you will need to supplement 2 more pills/ each cal and pantethine every 30 minutes or so until you are out of the emfs. 

 

On top of this, if/ when you would actually get to this point, you ideally should try to find a substance which works to keep the calcium in the cells (a type of calcium channel blocker).  This is where manganese and taurine have worked for me.  But they must be taken in very low doses and not abused.  You should ideally not be taking these more than 2 or 3 times a week (one dose that often).  And I would rather hope you not take these at all, and find a better solution.  ;)

 

Reacting immediately to some supps could be a sign that they are detox supps in the process of detoxing things.  Due to being gluten-free I must take molybdenum supplementation, but molyb is a very strong detoxer.  It will detox sulphur compounds and mercury.  If I have missed molyb supplementation for very long when I retake it, I can get bad reactions from it almost immediately.  This is because there is a back-log of compounds, which only molyb can detox, waiting to be detoxed. 

 

Also, sometimes one supp can't be taken on its own--it needs support in one way or another from another supp.  So, write down when you have reactions to supps.  Then you will need to do homework to find out whether you are taking supporting nutrients in large enough doses when this happens.

 

Interesting about your son.  How is it that you tracked his reaction down to calcium?  Does he react to calcium in foods the same way?  My son used to go bonkers on milk--hyperactivity.  Is this the same thing?  We had him on rice and almond milks/ no cheeses, etc for 3 years and then he started drinking regular milk at school and did okay, so we slowly added regular milk back to his diet.  He has had no problems since (and he's 35).  I am a tad suspicious that he had celiac damage to his gut back then which caused the dairy intolerance, tho. 

 

Well, I don't know if this will help you find your happy medium in dosing or not.  But this was how I finally found my happy medium. ;)

 

Good luck,

Diane



--- On Sun, 6/19/11, KathyB <[hidden email]> wrote:



From: KathyB <[hidden email]>

Subject: Re: [eSens] Re: Supplements

To: [hidden email]

Date: Sunday, June 19, 2011, 12:52 PM



 



Diane,



Now, that I know  emf's drain it. The key is finding a happy mediuam in dosing.

Mine is in the low range of normal on bloodwork. I don't want it to go below the accepted range.



I don't know the whole story w me.  I only react immediately to some supps.  My son

however, reacts to caclium as an excitory nutrient - takes what's in his multi. Maybe he wouldn't when his body's supported by enough magnesium.



Kathy



From: Evie <[hidden email]>Subject: Re: [eSens] Re: Supplements

Date: Sunday, June 19, 2011, 12:30 AM



 



hi yet again, Kathy!  ;)



 



No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.



 



Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.



 



As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 



 



Diane



--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:



From: KathyB <[hidden email]>



Subject: [eSens] Re: Supplements



To: [hidden email]



Date: Saturday, June 18, 2011, 6:23 PM



 



Sorry to jump in here. I react to a sup. almost after taking too.



Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?



http://www.icswebsite.com/emf/emfissues/emfissues9.html



You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.



How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?



Kathy



[hidden email]> wrote



Interestingly, tho, calcium is implicated in the bbb tight junction



problem (leaky tjs cause calcium to efflux).  But, calcium has wide



ranging functions in the body, so it is hard to say what it is doing for



you, but if it is having an effect which is good when using the



niacinamide, I'd keep taking the supps with it in. 



 



What I took for healing my bbb was a combo of calcium AEP, pantethine



(B5), manganese, and taurine.  I don't do well with glutamine supps, but



it is likely glutamine would help most people.  I do say over and over



here, tho, be very careful if you use manganese.  It is a toxic metal in



excess.  I am very careful and only take a small amount UP TO twice a



week.  If you intend to use manganese, please write me and I will send



more pertinent information. 



--- On Sat, 6/18/11, Evie <[hidden email]> wrote:



From: Evie <[hidden email]>



Subject: Re: [eSens] Re: Supplements



 



Hi, Sveta,



 



No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!



 



Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.



 



Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.



 



Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 



 



What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 



 



The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.



 



Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)



 



Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol



 



Bless you,



Diane



--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:



From: svetaswan <[hidden email]>



Subject: [eSens] Re: Supplements



To: [hidden email]



Date: Monday, June 13, 2011, 8:39 PM



 



Hi Diane,



Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.



But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.



In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:



-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.



-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.



I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.



Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.



It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?



May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!



It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.



Regards,



~Svetaswan



--- In [hidden email], Evie <evie15422@...> wrote:



>



> Hi, Kathy,



>  



> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.



>  



> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 



>  



> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.



>  



> Possibly a hydrogen supplement would help.



>  



> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 



>  



> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium



channel blocker is taken.  If you take a calcium channel



blocker, it will block the calcium from



> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 



>  



> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place



to help with neighboring smart



meters, as possible!]



>  



> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 



>  



> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 



>  



> Hope some of this is helpful; it sounds like you truly need something fast,



> Bless you,



> Diane



>



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[Non-text portions of this message have been removed]



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[Non-text portions of this message have been removed]





   
     

   
   


 



 










[Non-text portions of this message have been removed]

Hi Elysia,
 
You never did write back whether you received my private emails to you.  I asked because I had some other info to send you on lyme disease, but there is no sense sending it if you are not receiving it!  ;) 
 
As to supplements I have taken..... Whew, that is a long subject!  lol  I have taken many supps for very many things.  The molybdenum I started taking not for pulling out mercury, but for detoxing sulphur compounds.  I also take that because, since I am celiac, I don't get as much molybdenum in my foods.  [The "recipe" for detoxing sulphur compounds is: molybdenum, B12, and P5P or B6.  But like the calcium/ pantethine, you would want to work up to a normal dose very slowly.  You must go slowly with *any* of the detoxing supps.  If you are "allergic" to sulphites this might also help you tolerate those.  It did for me.] 
 
Probably the supps which have helped most for me for ES (and other problems, too), are:
 
natural D3--from Carlson Labs  (Helps with frequencies in general, energy, thyroid...)
 
B12, sublingual methyl cobalamin  (helps me with the vibration type feelings which go with ES, and actually works for me for ES only when taken before bed.)
 
Hydrogen capsules  [Marc took Mega-H which might be even better; I stuck with Hydrogen Boost because I could verify it was gluten-free.]  Hydrogen alkalizes and energizes me.  pH is very important in ES and every illness.  Our metabolic pH and body cell voltage are linked.  Correct pH is very important in the treatment of lyme disease, too.  There are perhaps as effective, or more effective pH balancers, but I found this and alkalizing drops for water to be very helpful when I took them.  I am now working on another way to alkalize, but since I am just starting it, it is too early for me to review how it is working.

Almost any supplement which helps the liver or helps in detox phases in the liver, such as molybdenum, the B vits as a whole, vits A, C, and E, various fatty acids, amino acids....  [the list is long] has helped me with ES and other ways.
 
Liver, kidney, lung and lymphatic system support supps as a whole are important.  Liver and kidney overload are problems with the amount of detoxing we have to do.  This is one reason detoxing from the feet and skin, as a whole, often works better for us (however, same story here as with all supps--you have to go slow.  Too much detoxing too quickly will make you sicker and will often give you a major set-back. 
 
Our problems are partly due to our bodies' holding onto toxic metals and toxins in general.  Why this is is complicated and maybe not even the same from one person to another.  I store alot of toxins in my adipose fat.  My body loaths giving up any adipose fat.  The only way I can lose toxins there is to eat a high fat diet while detoxing.  But also, we store toxins in our organs (more so the thinner you are!)  So you should be supporting each organ which might be storing toxins while detoxing, too.  Problem is, how do we know these things?  I always assume toxins want space in my brain, tho.  Next to adipose fat, the brain is pretty much the next best fatty place.  So brain support is crucial for me.
 
For brain support, I like 100% pure virgin coconut oil, butter, cal AEP and pantethine, aminos...
 
I am testing out some new liver support supps and will let you know in the future how that works.  The liver has always been a fairly big problem area for me.  I nearly died of liver failure multiple times; the first time when I was only in my late 20s. 
 
For kidneys, Renatropin is great, but I cannot take it due to it being not 100% gluten-free.  Various herbs etc work well for the kidneys....  Cranberries, of course, and garlic oil caps, cloves, if memory serves, cinnamon....  there is a long list of them and I forget them off-hand.    
 
Baking soda, sea salts, and epsom salts are things l have used to help detox from the skin.  (Lizzie says epsom salts are contaminated, but I have not had time to look further into that.  I'm just saying what I have done, not that it is necessarily the best thing one can do.)  Mini tramp exercises, alot of walking in nature (deep forests, state parks, along the river...), Pilates exercises, yoga, and beginners Qi-Gong...  I have done all of these; all of these are necessary to help get the lymphatics working well, and especially good for skin detoxing.
 
Glutamine is good for healing tight junctions, but I don't personally tolerate that well.
 
So you can see from this very spotty list I have written just off the top of my head, that supplements have played a huge part in my wellness plan.  lol  The best thing is to write yourself a type of flowchart.  Rank your needs in order of importance.  Figure the liver, kidneys, skin, pH, and brain towards the top of your list no matter what the other problems are.  Then, from there, do some research and write yourself lists of helpful supps/ other helps next to each problem area.  There will be a number of supps which will work for various things.  Take these first.  A very good multiple vit/min is essential  (I take Super 2 Daily from Carlson Labs). 
 
If you have specific needs other then these I have addressed, write me again and mention them, and I will see what I can do to help you find the most helpful supps.  I may or not be able to help, but I have some resources you might not.  I have a new therapy, for instance, I am personally trying out for immune system strengthening from a French doctor, sent to me by a European friend recently.  We are looking into whether that doctor would allow me to post it online.  My immune system is pretty much strengthened, but I am trying the therapy anyway to see what happens.  [I can test pH to see when it dips from emfs and to what degree the treatment brings me back to normal, etc.]  
 
This doctor treats lyme disease and this is the treatment he uses for that.  It doesn't kill lyme, but gets your immune system to the place it can kill the lyme.  A friend of my friend first took this treatment and it made her ES so much better that she mentioned it online to a forum of ES friends, of which many went to be tested for lyme as well.  She told my friend that all her ES friends who were tested for lyme were positive for it!  The treatment seems to have worked well for them, also, so this is potentially a great lead.   
 
My best to you,
Diane
 
 
--- On Tue, 6/21/11, Elysia Drew <[hidden email]> wrote:


From: Elysia Drew <[hidden email]>
Subject: Re: [eSens] Re: Supplements
To: [hidden email]
Date: Tuesday, June 21, 2011, 11:32 AM


 



Hi, Diane. I was reading your very informative e-mail to Kathy & was wondering: Is there anything else you take that has a very specific function (such as Molybdinum getting mercury out of certain types of cells) that you feel is necessary to help w/ EHS, heavy metal detox, &/or celiac? 
Love & blessings,Elysia

--- On Sun, 6/19/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>
Subject: Re: [eSens] Re: Supplements
To: [hidden email]
Date: Sunday, June 19, 2011, 8:30 PM

 

Hi, Kathy,

 

You could try calcium AEP and pantethine (together) and see what happens?  When I took it, I had to repack the pills in tiny amounts to tolerate it (both calcium and pantethine.)  I was told to do this by a nutritionist I contacted by phone.  I was very intolerant to calcium back then too.  He told me to start out very small--like 1/20th or less of a capsule/ eachcal and pantethine.  I started out taking this amount every other day or maybe even just twice a week.  He told me when I saw no reaction from this dose, to take it more often--building up to this amount everyday.  When I no longer saw a reaction to this dose, I added a bit more to the repacked capsules (you buy empty capsules to do this).  Then I did the same thing--took that every other day or twice a week (keeping the old dose for days in between) and worked up to taking it everyday as I tolerated that dose better.  You follow this routine until you are taking one entire pill of

each pantethine and calcium AEP daily.  Then I started over again till I could tolerate 2 pills of each for each meal.  This took many months to get to an entire dose. 

 

The calcium AEP and pantethine detox things--especially bad gut bugs and their wastes.  So this is why you want to go slow.  You will get detox symptoms and they can make you feel very ill if you are detoxing too much, too quickly.  The reason I take Calcium AEP is it is the type of calcium your brain uses.  If there is calcium efflux from the brain, you need to put back a calcium that the brain can utilize well. 

 

Once you get the calcium back into the cells, you ideally want to stay out of emfs to keep the calcium in there.  If you are in emfs and you experience calcium efflux, once you are on 2 caps each calcium and pantethine, you can carry these with you anywhere you go and take 2 caps each when you are experiencing symptoms of calcium efflux.  Take them with a large glass of water.  Now this probably only works if you are indeed experiencing calcium efflux, around emfs.  If you are in emfs for a long period and the efflux does not stop, you will need to supplement 2 more pills/ each cal and pantethine every 30 minutes or so until you are out of the emfs. 

 

On top of this, if/ when you would actually get to this point, you ideally should try to find a substance which works to keep the calcium in the cells (a type of calcium channel blocker).  This is where manganese and taurine have worked for me.  But they must be taken in very low doses and not abused.  You should ideally not be taking these more than 2 or 3 times a week (one dose that often).  And I would rather hope you not take these at all, and find a better solution.  ;)

 

Reacting immediately to some supps could be a sign that they are detox supps in the process of detoxing things.  Due to being gluten-free I must take molybdenum supplementation, but molyb is a very strong detoxer.  It will detox sulphur compounds and mercury.  If I have missed molyb supplementation for very long when I retake it, I can get bad reactions from it almost immediately.  This is because there is a back-log of compounds, which only molyb can detox, waiting to be detoxed. 

 

Also, sometimes one supp can't be taken on its own--it needs support in one way or another from another supp.  So, write down when you have reactions to supps.  Then you will need to do homework to find out whether you are taking supporting nutrients in large enough doses when this happens.

 

Interesting about your son.  How is it that you tracked his reaction down to calcium?  Does he react to calcium in foods the same way?  My son used to go bonkers on milk--hyperactivity.  Is this the same thing?  We had him on rice and almond milks/ no cheeses, etc for 3 years and then he started drinking regular milk at school and did okay, so we slowly added regular milk back to his diet.  He has had no problems since (and he's 35).  I am a tad suspicious that he had celiac damage to his gut back then which caused the dairy intolerance, tho. 

 

Well, I don't know if this will help you find your happy medium in dosing or not.  But this was how I finally found my happy medium. ;)

 

Good luck,

Diane

--- On Sun, 6/19/11, KathyB <[hidden email]> wrote:

From: KathyB <[hidden email]>

Subject: Re: [eSens] Re: Supplements

To: [hidden email]

Date: Sunday, June 19, 2011, 12:52 PM

 

Diane,

Now, that I know  emf's drain it. The key is finding a happy mediuam in dosing.

Mine is in the low range of normal on bloodwork. I don't want it to go below the accepted range.

I don't know the whole story w me.  I only react immediately to some supps.  My son

however, reacts to caclium as an excitory nutrient - takes what's in his multi. Maybe he wouldn't when his body's supported by enough magnesium.

Kathy

From: Evie <[hidden email]>Subject: Re: [eSens] Re: Supplements

Date: Sunday, June 19, 2011, 12:30 AM

 

hi yet again, Kathy!  ;)

 

No, the reacting to supplements quickly has nothing to do with calcium influx, I think.  I am not sure reacting quickly to supplements is all that predictive of bbb damage either, but it might be.  If you react really badly and quickly to medicines, that would be more predictive of bbb damage due to tight junction leaking.

 

Calcium efflux, not influx might cause you to feel shaky, crabby, and lack energy to clean, (as well as other symptoms and issues) due to tight junction leaking.

 

As far as whether you are having calcium efflux or calcium reacting as an excitatory nutrient....  I am not sure whether you would be able to tell this or not.  It depends upon your symptoms.  For me, I follow symptoms.  I notice when my bp falls, especially, my body craves calcium.  It is like calcium is draining out of me.  In a way it is literally draining out, at least from particular cells!  When my bp falls, I can take calcium and make it rise again to normal.  I think if calcium were only acting as an excitatory agent, it would not work to add more to raise bp.  I have seen calcium supplementation work on many symptoms during and after an ES episode. 

 

Diane

--- On Sat, 6/18/11, KathyB <[hidden email]> wrote:

From: KathyB <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Saturday, June 18, 2011, 6:23 PM

 

Sorry to jump in here. I react to a sup. almost after taking too.

Is that  calcium influx?  Instead of in cells it goes to the brain. Could that cause you to feel shaky, crabby,   or have energy to clean after a friend talks to you on a cordless?

http://www.icswebsite.com/emf/emfissues/emfissues9.html

You could try quitting gluten & see how you feel after a week or two. Made an amazing difference for me.

How would one know if you had efflux or have an issue w calcium acting as excitatory nutrient?

Kathy

[hidden email]> wrote

Interestingly, tho, calcium is implicated in the bbb tight junction

problem (leaky tjs cause calcium to efflux).  But, calcium has wide

ranging functions in the body, so it is hard to say what it is doing for

you, but if it is having an effect which is good when using the

niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine

(B5), manganese, and taurine.  I don't do well with glutamine supps, but

it is likely glutamine would help most people.  I do say over and over

here, tho, be very careful if you use manganese.  It is a toxic metal in

excess.  I am very careful and only take a small amount UP TO twice a

week.  If you intend to use manganese, please write me and I will send

more pertinent information. 

--- On Sat, 6/18/11, Evie <[hidden email]> wrote:

From: Evie <[hidden email]>

Subject: Re: [eSens] Re: Supplements

 

Hi, Sveta,

 

No problem with jumping in!  lol  If Lizzie and I wanted to discuss things personally, we could do it in a private mail!

 

Niacinamide can lead to an increase in serotonin, and serotonin can lead to an increase in GABA.  SOOOO, you could be having either a reaction to increased GABA crossing the bbb, or you could be having something a bit different--serotonin syndrome.  Look it up, Sveta, you will find much more online than I could tell you in a very long email.  ;)  Do you have hot flushes, turning red, spells of profuse sweating, with the anxiety?  This would be more likely serotonin syndrome.

 

Also, what you describe ACTUALLY sounds just to be a bad detox reaction (foggy-headed, anxiety....)  Maybe the niacinamide is detoxing alot of candida and you are just detoxing too quickly?  I would have to know a lot more about your symptoms to answer your question definitively, but look into all 3--it is likely detoxing, tho.  To detox less quickly, just cut the amount of niacinamide you are taking.  Over time, you can very slowly increase it and likely tolerate it better.

 

Interestingly, tho, calcium is implicated in the bbb tight junction problem (leaky tjs cause calcium to efflux).  But, calcium has wide ranging functions in the body, so it is hard to say what it is doing for you, but if it is having an effect which is good when using the niacinamide, I'd keep taking the supps with it in. 

 

What I took for healing my bbb was a combo of calcium AEP, pantethine (B5), manganese, and taurine.  I don't do well with glutamine supps, but it is likely glutamine would help most people.  I do say over and over here, tho, be very careful if you use manganese.  It is a toxic metal in excess.  I am very careful and only take a small amount UP TO twice a week.  If you intend to use manganese, please write me and I will send more pertinent information. 

 

The noticing the effects of supps so quickly does seem like it could mean you have some BBB issues.  Do you have this with all supps or just certain ones.  With certain ones, it could have more to do with detoxing, again.

 

Yes, going gluten-free would mean a huge life-style adjustment for you!  However, if you need to go there, you need to go there.  You cannot choose which illness you will treat and not treat.  Illness is illness; any illness will affect another.  You cannot treat ES without treating gluten issues (if you have them) or gut bug issues.  Also, the fact that you have gut bug issues in the first place is an indicator that gut damage has been first caused by something!  Gluten accomplishes that quite well in some people.  ;)

 

Sorry I am just answering your post.  I am only online weekends and I usually go offline Sunday afternoons (incase you have not yet read that on one of my umpteen weekend posts).  lol

 

Bless you,

Diane

--- On Mon, 6/13/11, svetaswan <[hidden email]> wrote:

From: svetaswan <[hidden email]>

Subject: [eSens] Re: Supplements

To: [hidden email]

Date: Monday, June 13, 2011, 8:39 PM

 

Hi Diane,

Pardon me for jumping in here - but some of what you've said here sounds like it could be exactly what I'm experiencing. For the past several days, I have been trying to take a 250mg capsule of niacinamide 2 to 3 times per day. I have read all of the info on niacinamide which states that it's supposed to be quite helpful for anxiety - even acting as sort-of a benzodiazepine (sp.) in the brain. (Supposedly, people have been able to reduce or stop taking their benzos by taking this nutrient.) It's also supposed to be helpful for reducing the toxic effects of Candida/yeast - by helping to clear that nasty alcohol byproduct acetaldehyde. These are the reasons why I thought niacinamide would be great for me.

But instead of a calming effect, I've gotten this frustrating paradoxical reaction - I've felt agitated, even more spacey/foggy than normal - off-kilter. I have noticed that body-agitation - that figety need to move around. Sometimes when I take it, I feel like the agitation might be coming more from my body than my brain, if that makes sense: my brain may be pretty calm, but my body will have this uncomfortable, keyed-up feeling. Other times, both my brain and my body feel agitated.

In light of what you've shared, I wonder if this is evidence that my BBB is leaky - as I believe niacinamide directly or indirectly increases GABA levels. Before I read your post, I had my little "theories", such as:

-My brain/body has been accustomed to a certain biochemical state, and it is "rebelling" against niacinamide's pushing it toward another biochemical state. Maybe it needs time to adjust.

-the niacinamide is somehow increasing acidity levels in my body. I've had a problem over the years with many supplements making me too "acidic" - and my body doesn't respond well to that increased acidity. I've had to greatly reduce or even back off supplements altogether because of this type of reaction. I've read that niacinamide can increase uric acid levels.

I have found that with Vitamin B6 (if a lab test I took in November is to be believed, I have severe pyroluria) - I've had somewhat of the same reaction. It had caused agitation and insomnia - particularly the Twinlabs brand. I seem to tolerate the Source Naturals' brand of B6 (50mg) well, though - I attributed this to the calcium phosphate that Source Naturals put in the tablets. Maybe the calcium phosphate somehow has a calming, and/or alkalinizing effect - or it helps the B6 to "land more softly" in my system.

Maybe switching to a niacinamide supplement that has calcium (phosphate) in it might be a partial solution - although I feel like this could only be a superficial, "band-aid" solution.

It feels like there is a lot more going on with the niacinamide than just increased acidity, though. It sounds like what you've said about the leaky BBB could be a very real possibility with me. I've also noticed that supplements seem to have a very rapid effect on me - I can often start to feel the effect of supplements within 10 - 20 seconds. Could this be a sign of leaky-gut and/or leaky BBB?

May I ask what you did nutritionally to heal your leaky BBB? I'm sure you've shared it before - but it can be difficult to wade through all of the messages. (Maybe I'll try to do a Google search later.) You can just outline it - hopefully it won't be too much work!

It would be nice if I could somehow get my intestines biopsied to see if there is any damage. Since the things one has to do to heal a damaged/leaky gut can be pretty labor-intensive, it would be nice to have actual, tangible confirmation that I have gut-damage. I've been "toying" with the idea of transitioning to a gluten-free and/or casein-free diet, or even going further than that and trying the Specific Carbohydrate diet. But you're talking about someone who never cooks - it would be a huge, HUGE lifestyle adjustment for me.

Regards,

~Svetaswan

--- In [hidden email], Evie <evie15422@...> wrote:

>

> Hi, Kathy,

>  

> Sorry to hear of your dilemma.  GABA won't help if you have tight junction permeability or blood-brain barrier leaking.  GABA is what some doctors actually use to see if you have BBB leaking.  If you do have it, you get very agitated instead of the calm, mellowed out feeling you are supposed to have with GABA.  [Sometimes, tho, you first get the calm mellow feeling and then after another dose get the bad agitated, angry feelings.]  This is perhaps a good way, however, to assess whether a leaky BBB and tight junctions have anything to do with your ES!  You would have good evidence if you took the GABA after being badly emf-ed.

>  

> Have you tried D3 from an all natural source?  Carlson's Labs has a D3 made from Fish oils.  It is pretty pricey, but you only take it every other day and so it lasts a long time. 

>  

> B12 is something which might help you.  Get a sublingual pill, which bypasses the gut, and the best quality you can find.  I use methylcobalamin.  There are different types.  B12 helps the nervous system.

>  

> Possibly a hydrogen supplement would help.

>  

> You mentioned not doing well on calcium, and I didn't either until I took calcium AEP.  I personally always take it with pantethine.  Emfs can cause calcium efflux from where it should be in the brain.  Calcium AEP is the type calcium the brain uses.  Again, this would pertain to you only if you know your BBB is leaking, and not necessarily pertain, if it is not. 

>  

> If you have a good doctor who you can go to, also, a calcium channel blocker might be helpful, if you know for sure you are having calcium efflux.  I take the natural calcium channel blockers manganese and taurine once in a while (I do not consider these safe for me to take on a daily basis, but then, I have no need for doing that anyway, since I am now rarely having ES symptoms).  [If you need to try these, however, do ask me for more info, because manganese can act as a toxic metal.  I am only here on weekends, tho, so expect to wait a few days before hearing from me.  (Sorry!)]  The way this works, from my understanding, if you have calcium efflux is:  the tight junction is opened by emfs, then this allows calcium migration to occur.  The tight junction cannot sometimes close properly, so sometimes the efflux doesn't stop till a calcium

channel blocker is taken.  If you take a calcium channel

blocker, it will block the calcium from

> leaking, often, in the first place.  (At least that is how it is with the manganese and taurine.)  However, know that many of us have conflicting medical needs for which calcium channel blockers are not a good therapy.  (If it were that easy, we could all go running to our docs for calcium channel blockers.  ;)  )  You may share this with your doctor and if she is a very good doc, she will check it out herself and may have even better ideas. 

>  

> As to shielding.....  There are a number of good options for windows: aluminum or steel screens for windows (I forget the size mesh, but it has to be small and you have to cover the windows including the window frames); there are anti-emf window films; there are anti-emf fabrics which can be made into curtain panels (I velcro mine to a painted lath board on the wall at the ceiling--glue the lath board up; my drapes are also ceiling height); I also use huge plants--fan palms, other palms, large ficus, scheffalera(?sp?); and I have used a large screen made from 3 doors hinged together and covered on one side with heavy aluminum foil, which is movable and portable.  Outside trees are even better shields, especially thick evergreens, but placement can be a challenge and it takes at least 3 years before they are large enough.  [However, as a home owner, I would like getting as many trees in  place

to help with neighboring smart

meters, as possible!]

>  

> On shielding with screen, fabric, foil....  It seems that if you double fabric or screen on itself, it will then negate shielding and allow emfs thru, so for edging and seams, you must make a 3 layer seam.  Odd thicknesses block emfs, even thicknesses let emfs pass thru.  Very hard to grasp, I know from experience.  lol 

>  

> Also, if there are aberrant, digital, or wireless frequencies inside your house, they will bounce off of some of these fixes and cause you problems from within.  You can try heavy aluminum foil taped to the wall to see how it works temporarily until you get something better in place.  Remember there might be also metal in the wall or nails in studding that could cause problems. 

>  

> Hope some of this is helpful; it sounds like you truly need something fast,

> Bless you,

> Diane

>

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Hi Lizzie - thanks for the suggestions (and sorry for the delay - and that goes for anyone else whom I might respond to!).  Seems like I've heard that Candida could be connected to low thyroid.  I believe I've also read where it can be connected to both high cortisol levels *and* low cortisol levels (hypoadrenia).  In the past, I've taken certain steps to test my levels of these hormones.  To make a long story short, the results of the conventional thyroid tests have always pretty much came back within the "normal" range.  Of course, hypothyroidism is more complex than what a blood test might show - and I could still be (well) below what is a good functional level for me personally.  But treatment for hypo can be challenging - especially when I would have to take an "alternative" route to treatment (since I would be one of those hypo cases not recognized by conventional medicine).  I'm just very leery of messing with hormones without supervision of a real-life doctor - and I simply cannot afford that.  Same goes for any "stealth" adrenal issues I may have.

So I'm trying to work the problems (if there are any - it's possible that my thyroid & cortisol levels are truly o.k.) from different angles. One thing I've been trying to do is take certain precursor nutrients - what little I can tolerate, anyway.  For example - selenium supposedly is involved in the conversion from T4 to T3 - so I've been trying to work selenium in my supplement rotation. (I also take selenium to deal with suspected mercury toxicity.)  

Another thing I've been trying to do - and this is more recent - is trying to deal with my possible Candida. Because I've run across a few sources which strongly suggest that the Candida-thyroid connection can be a chicken-egg issue.  Candida problems - i.e. all of the poisonous byproducts it produces - can supposedly block the action of thyroid hormone in the body, and/or can have a more direct effect on the functioning of the thyroid.  So, you can treat the thyroid to improve your Candida - but allegedly, you can also treat the Candida to improve your thyroid situation.  Maybe whichever approach is best depends on the person and their particular circumstances.

I'm in the very early stages of this, though - I'm a *long* way from any mastery of a good anti-Candida protocol.  What I struggle with the most is putting things into action.  Needless to say, switching my diet from one I've been accustomed to is rather daunting!

I haven't done too much with probiotics, yet - I eat organic yogurt and kefir here and there - but nothing really major.  Right now, I've been concentrating more on taking Candex (which is supposedly a good supplement to dissolve the cell walls of Candida without affecting the "good stuff"), and changing my diet.  I plan to work some probiotics in sooner or later.

Thanks for the links to Mercola.  I will have to go on there to see what all he has on probiotics.  The Mercola site is pretty great - chock full of some good stuff.  But he can come on rather strong - to the point of being overwhemling.  I was signed up to his newsletter for several years (well, I still am - on my "spam" account!) - but I'm one to get easily overwhelmed - and his daily newsletters just became too much.

Oh, and you mentioned that thyroid can increase cholesterol levels - well, over the past several years (same general period of time I've tested my thyroid on occasion) - my cholesterol levels have been pretty decent, even on the low side sometimes.  Maybe this is a sign that my thyroid levels aren't too much of a problem?  (Though I've certainly felt like I am hypothyroid!)

~Svetaswan



--- In [hidden email], Elizabeth thode <lizt777@...> wrote:

Thanks Kathy - my dream scenario is to be able to afford to go to Dr. Klinghardt (sp.?) or somewhere, but going to an actual alternative doctor is pretty much financially out-of-the-question.

I'll have to read more about why red and yellow food dyes should be avoided. I've heard that before - I just haven't focused that much on it.  (And assimilating all of this info is hard!)  As  for copper - well, I've been taking a copper supplement maybe a couple of times per week.  A late-2009 hair mineral analysis test showed that I was pretty low in this mineral....and the minerals I've been taking to deal with my iron deficiency anemia, supposed pyroluria, and suspected thyroid/mercury problems can deplete copper levels even more.  And there have been actual physical signs that my copper may be low - like suddenly-sprouted gray hairs, among other things.

It's hard balancing it all.  Even though I may need these minerals - I also may be existing somewhere near that fragile line of deficiency and toxicity.  Diane talks about this fragile area with manganese - yeah, we may need it to deal with blood-brain-barrier/tight-junction problems - but you have to know where to draw the line, because manganese can become toxic.

Maybe I'll try niacinamide again - sooner or later - and start *very* low and build up gradually. I was wise enough to buy the 250mg capsules along with the 500mg capsules I bought - but it looks like I needed to be even wiser and buy the 100mg tablets.  I guess I thought I didn't need to go that low, because I had been taking a B-complex capsule a few times per day that contained 100mg of niacinamide per capsule - and I seemed to handle it well. (I ran out of this B-complex a couple of weeks before I started the 250mg niacinamide disaster.)  But maybe that's because it had other B-vitamins to "offset" the effects of the niacinamide, I don't know.

But when I restarted the B-complex again today - I noticed a bit of that same "agitated" feeling that wasn't really present before with this supplement.  Weird.

Oh - and I'll try to get in touch with you regarding the orgonite, if you're still interested. :)

~Svetaswan

--- In [hidden email], KathyB <calicocat477@...> wrote: