Sun Light

I have ben ES for about 2 years. I recently feel that sunlight is
bothering me. I get aggitated, hands ache, teeth ache and generally
feel kinda weird. I have not seen many posts on problems with sun-
light. Has anyone else experienced this ploblem. It is really odd. Last
summer I jogged in the daytime almost every day without a problem. I
also fished for hours at a time in bright sunshine just six months ago.

Jim

born2grapple wrote:
> I have ben ES for about 2 years. I recently feel that sunlight is
> bothering me. I get aggitated, hands ache, teeth ache and generally
> feel kinda weird. I have not seen many posts on problems with sun-
> light. Has anyone else experienced this ploblem. It is really odd. Last
> summer I jogged in the daytime almost every day without a problem. I
> also fished for hours at a time in bright sunshine just six months ago.

Yeah, I had troubles with the sun for a few years... you should
try antioxidants or essential fatty acids, and see if that makes
any difference...

Marc

Any anti-oxs in particular that worked for you. What were your symptoms when
in the sun?

In a message dated 3/26/06 6:13:37 PM Eastern Standard Time,
[hidden email] writes:

born2grapple wrote:
> I have ben ES for about 2 years. I recently feel that sunlight is
> bothering me. I get aggitated, hands ache, teeth ache and generally
> feel kinda weird. I have not seen many posts on problems with sun-
> light. Has anyone else experienced this ploblem. It is really odd. Last
> summer I jogged in the daytime almost every day without a problem. I
> also fished for hours at a time in bright sunshine just six months ago.

Yeah, I had troubles with the sun for a few years... you should
try antioxidants or essential fatty acids, and see if that makes
any difference...

Marc



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[Non-text portions of this message have been removed]

This happened to me when I first became ill with Lyme Disease.
Eventually I learned it was due to biotoxins in the lipid fluids in the
eyes, from the bugs. Now that I detox daily it is much less of a
problem. I doubt this is related to ES directly, but could stem from
the same cause as the ES. Here is a website that can tell you if you
have biotoxins in your eyes, it is the Visual Constrast Sensitivity Test
(VCS).

www.chronicneurotoxins.com <http://www.chronicneurotoxins.com/>

The test costs a few dollars but is well worthwhile. If you take it I
recommend having someone who is not ill and does not have ES or your
other symptoms sit with you and look at the images alongside you. Then
compare notes, they probably will see the contrasting figures much
better then you do. That is a very convincing experience.

--Kurt

-----Original Message-----
From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: Sunday, March 26, 2006 3:49 PM
To: [hidden email]
Subject: SPAM-LOW: [eSens] Sun Light

I have ben ES for about 2 years. I recently feel that sunlight is
bothering me. I get aggitated, hands ache, teeth ache and generally
feel kinda weird. I have not seen many posts on problems with sun-
light. Has anyone else experienced this ploblem. It is really odd. Last
summer I jogged in the daytime almost every day without a problem. I
also fished for hours at a time in bright sunshine just six months ago.

Jim








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[Non-text portions of this message have been removed]

> Any anti-oxs in particular that worked for you. What were your symptoms when
> in the sun?

As I recall, I got sharp pains in my head (top of my head). I don't recall
feeling most of the symptoms you describe, but it *was* a long time ago.

Things that worked for me, anti-oxidant wise, were Megahydrin, Amrit,
and organic juiced carrots.

Marc

Sue developed sunlight sensitivity about 3 months after ES. (Also
sensitivity to other strong lighting). It is not just through her eyes, she
gets burning sensations if the back of her neck has been exposed to sun for
a time. We speculate that the neurological / myelin sheath problem may be
relevant to both. Sue is particularly sensitive in the yellow/red part of
the spectrum (from tests) and is being supplied with some special blue
glasses to see if those help.

Some ES people have extreme light sensitivity, we know of one guy who has to
sit in a darkened house permanently.

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 26 March 2006 21:49
To: [hidden email]
Subject: [eSens] Sun Light


I have ben ES for about 2 years. I recently feel that sunlight is
bothering me. I get aggitated, hands ache, teeth ache and generally
feel kinda weird. I have not seen many posts on problems with sun-
light. Has anyone else experienced this ploblem. It is really odd. Last
summer I jogged in the daytime almost every day without a problem. I
also fished for hours at a time in bright sunshine just six months ago.

Jim








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[Non-text portions of this message have been removed]

--- In [hidden email], Marc Martin <marc@...> wrote:
>
> born2grapple wrote:
> > I have ben ES for about 2 years. I recently feel that sunlight is
> > bothering me. I get aggitated, hands ache, teeth ache and generally
> > feel kinda weird. I have not seen many posts on problems with sun-
> > light. Has anyone else experienced this ploblem. It is really odd.
Last
> > summer I jogged in the daytime almost every day without a problem.
I
> > also fished for hours at a time in bright sunshine just six months
ago.
>
> Yeah, I had troubles with the sun for a few years... you should
> try antioxidants or essential fatty acids, and see if that makes
> any difference...
>
> Marc

I will try some antioxidants and see if it helps. Seems like the sun is
not a big problem for most people with ES. Had very few replies on the
topic.
>

Wow, Being housebound sounds horrible. Our Sue's burning sensations
just on her neck?

--- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote:
>
> Sue developed sunlight sensitivity about 3 months after ES. (Also
> sensitivity to other strong lighting). It is not just through her
eyes, she
> gets burning sensations if the back of her neck has been exposed to
sun for
> a time. We speculate that the neurological / myelin sheath problem
may be
> relevant to both. Sue is particularly sensitive in the yellow/red
part of
> the spectrum (from tests) and is being supplied with some special
blue
> glasses to see if those help.
>  
> Some ES people have extreme light sensitivity, we know of one guy
who has to
> sit in a darkened house permanently.
>  
> Ian
>
> _____  
>
> From: [hidden email] [mailto:[hidden email]] On
Behalf Of Last
> summer I jogged in the daytime almost every day without a problem.
I
> also fished for hours at a time in bright sunshine just six months
ago. <http://groups.yahoo.com/group/eSens> " on
> the web.
>  
>
> * To unsubscribe from this group, send an email to:
> [hidden email]
> <mailto:[hidden email]?subject=Unsubscribe>
>  
>
> * Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service

> born2grapple wrote:

I will try some antioxidants and see if it helps. Seems like the sun is not
a big problem for most people with ES. Had very few replies on the topic.
>
Not necessarily the case - lots of people read forum messages, but rarely
post. We have certainly met several ES people in the UK with light
sensitivity.
Ian and Sue

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 29 March 2006 23:53
To: [hidden email]
Subject: [eSens] Re: Sun Light


--- In [hidden email], Marc Martin <marc@...> wrote:
>









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[Non-text portions of this message have been removed]

Ian:
When you say light sensitivity, I assume you are referring to sun light
sensitivity or are you talking about sensitivity to light in general.



In a message dated 3/29/06 6:45:17 PM Eastern Standard Time,
[hidden email] writes:

> born2grapple wrote:

I will try some antioxidants and see if it helps. Seems like the sun is not
a big problem for most people with ES. Had very few replies on the topic.
>
Not necessarily the case - lots of people read forum messages, but rarely
post. We have certainly met several ES people in the UK with light
sensitivity.
Ian and Sue

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 29 March 2006 23:53
To: [hidden email]
Subject: [eSens] Re: Sun Light


--- In [hidden email], Marc Martin <marc@...> wrote:
>









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Jim,
Actually they seem to overlap. Sue had problems first with fluorescent
lights (more the EM field than the light), then with bright sunlight, and
now with moderate levels of indoor light too. All of them make the
ringing/buzzing in her head worse. This has taken a bit over a year to
develop to this level. Other people we've met have ranged from those who get
a rash in bright sun to a couple who need to sit in a darkened room almost
permanently.

Ian
_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
[hidden email]
Sent: 30 March 2006 00:50
To: [hidden email]
Subject: Re: [eSens] Re: Sun Light



Ian:
When you say light sensitivity, I assume you are referring to sun light
sensitivity or are you talking about sensitivity to light in general.



In a message dated 3/29/06 6:45:17 PM Eastern Standard Time,
[hidden email] writes:

> born2grapple wrote:

I will try some antioxidants and see if it helps. Seems like the sun is not
a big problem for most people with ES. Had very few replies on the topic.
>
Not necessarily the case - lots of people read forum messages, but rarely
post. We have certainly met several ES people in the UK with light
sensitivity.
Ian and Sue

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 29 March 2006 23:53
To: [hidden email]
Subject: [eSens] Re: Sun Light


--- In [hidden email], Marc Martin <marc@...> wrote:
>









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[Non-text portions of this message have been removed]

Sue gets the problem all over her head if it is exposed, but normally she
wears a hat at all times outdoors (and indoors under fluorescent lights)
which keeps things OK. We got caught out the other day by walking along the
beach and her neck got caught as it was the only exposed area. Sue can get
out and about, as long as she is careful (forests are very popular!), so we
are really lucky compared with the housebound guy.
Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 30 March 2006 00:04
To: [hidden email]
Subject: [eSens] Re: Sun Light


Wow, Being housebound sounds horrible. Our Sue's burning sensations
just on her neck?

--- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote:
>
> Sue developed sunlight sensitivity about 3 months after ES. (Also
> sensitivity to other strong lighting). It is not just through her
eyes, she
> gets burning sensations if the back of her neck has been exposed to
sun for
> a time. We speculate that the neurological / myelin sheath problem
may be
> relevant to both. Sue is particularly sensitive in the yellow/red
part of
> the spectrum (from tests) and is being supplied with some special
blue
> glasses to see if those help.
>
> Some ES people have extreme light sensitivity, we know of one guy
who has to
> sit in a darkened house permanently.
>
> Ian
>
> _____
>
> From: [hidden email] [mailto:[hidden email]] On
Behalf Of Last
> summer I jogged in the daytime almost every day without a problem.
I
> also fished for hours at a time in bright sunshine just six months
ago. <http://groups.yahoo.com/group/eSens> " on
> the web.
>
>
> * To unsubscribe from this group, send an email to:
> [hidden email]
> <mailto:[hidden email]?subject=Unsubscribe>
>
>
> * Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service





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[Non-text portions of this message have been removed]

Hi,

once ten/11 years ago i got a sudden problem with the sun. Also got an infection under the ear. although i was not really es back then, i know it was related// even though my skin is dark all of a sudden i got spots on my face, like burns//

I drank bitter teas (like hombre grande which is cassia and sorosy, a bitter blood cleanser, they are local treas here, but there are other bitter bloodcleansers). I always like to clean blood with brewers yeast as well//The best was another bitter product more native to Canada/US which is goldenseal. Used it internal and topical (was a topical with capsicum and gum myrrh) which took all symtomps away.. at that time the ear was the worse and puss seemed to pull from all over my body and out//

Not sure if this helps.. try antioxidants for sure and maybe a carrot cream, some have UV factor..

Love




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Hi,

once ten/11 years ago i got a sudden problem with the sun. Also got an infection under the ear. although i was not really es back then, i know it was related// even though my skin is dark all of a sudden i got spots on my face, like burns//

I drank bitter teas (like hombre grande which is cassia and sorosy, a bitter blood cleanser, they are local treas here, but there are other bitter bloodcleansers). I always like to clean blood with brewers yeast as well//The best was another bitter product more native to Canada/US which is goldenseal. Used it internal and topical (was a topical with capsicum and gum myrrh) which took all symtomps away.. at that time the ear was the worse and puss seemed to pull from all over my body and out//

Not sure if this helps.. try antioxidants for sure and maybe a carrot cream, some have UV factor..

Love




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To help with photo sensativity the antioxidants to take is beta carotine. You need the sun
so as to make Vitamin D. Until you can tolerate light you should supplementwith Vitamin
D too. Selenium and vitamin E help.

www.ceragem.com or similar product helps tremendously.

Best of luck and happy sunning.

Karen

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