Hello Ian
I am glad to hear that Sue is doing better and it is great that someone hasbeen able to get to the bottom of the problem she has been having. Can I ask you did she get these intravenous infusions from her GP or did she go toa private nutritionist or other practicioner? and did that person recognise her ES and advise this nutritional programme to help to treat it? I only ask because I have been trying to sort out my own supplement regimen without any medical input [I don't really know who to turn to in all of this] anddon't know whether any of it is doing any good since I could well have problems with absorption.Any advice or information you could give me would be very much appreciated. Best wishes Steph --- On Fri, 30/1/09, Ian Kemp <[hidden email]> wrote: From: Ian Kemp <[hidden email]> Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements To: [hidden email] Date: Friday, 30 January, 2009, 11:22 AM If one's gut or digestive system is not working properly, oral supplementation of all sorts of vitamins and nutrients even at high levels may be ineffective because they simply do not get out of the gut into the bloodstream. To quote Sue's case (as usual) - her magnesium and glutathione levels, and various other items, were desperately low despite long-term oral supplementation, and she tested positive for leaky gut syndrome. Intravenous infusions were the only way that the levels could be got up. As her liver function has improved, she has been able to take a wider range of medication without side effects. In the last few months she has been taking special digestive enzymes and phosphatidyl choline, which she could not tolerate before. These in turn seem to have improved her digestion capability and gut integrity, such that oral supplementation with reduced glutathione and magnesium sulphate (Epsom salts) now appear to be working and she has not needed infusions for 3 months. She is also beginning to be able to eat dairy products and chocolate again in moderation - first time for 4 years that this has not given noticeable side effects. Ian _____ From: eSens@yahoogroups. com [mailto:eSens@yahoogroups. com] On Behalf Of javamdnss@aol. com Sent: 30 January 2009 05:36 To: eSens@yahoogroups. com Subject: Re: [eSens] Vitamin D levels How can they possibly be in the bottom range of acceptable if you've been taking that much Vit. D for months?? How much did the test cost? I'm assuming insurance didn't cover it? Thanks for getting back to us about it Marc! Amy marc@ufoseries. <mailto:marc% 40ufoseries. com> com writes: Okay, I got my blood tests back -- my Vitamin D levels were in the acceptable range, but they were at the very bottom of the acceptable range. And I had been taking Vitamin D3 tablets for the last several months (400% of the RDA = 1600 IU). Immune testing showed that I am more likely to get sick, and will stay sick longer than a normal person. Heck, I could have told them that and saved money on the test... :-) Marc ************ **From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com? <http://aol.com? ncid=emlcntaolco m00000023> ncid=emlcntaolcom00 000023) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
Hi Steph
We have to go to a private hospital (Breakspear Hospital in Hemel Hempstead) to get the infusions done - rather costly I'm afraid. The equipment is normally only available in hospitals and clinics, not in normal surgeries (though even some enlightened dentists use Vitamin C infusions!). They did a battery of tests (again very expensive) that identified some particular deficiencies which could be treated. It was really looking at Sue's overall problems including MCS and allergies, but as these have improved the ES has also got better. Before this she had tried trial-and-error on a vast range of supplements which hadn't really solved the problem, especially as she reacted adversely to a lot of normally good and benign supplements which are widely recommended, such as milk thistle - they seem to be good if you are moderately ill but give problems if you have got to the stage where your immune system seems to react to anything. There are a small number of medically qualified nutritionists around in Britain who can do a systematic look at these intractable problems - the snag is that they seem to be pretty overloaded and have quite long waiting lists (what does this tell us?). Best wishes, Ian _____ From: [hidden email] [mailto:[hidden email]] On Behalf Of Stephanie Smith Sent: 19 February 2009 21:03 To: [hidden email] Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements Hello Ian I am glad to hear that Sue is doing better and it is great that someone has been able to get to the bottom of the problem she has been having. Can I ask you did she get these intravenous infusions from her GP or did she go to a private nutritionist or other practicioner? and did that person recognise her ES and advise this nutritional programme to help to treat it? I only ask because I have been trying to sort out my own supplement regimen without any medical input [I don't really know who to turn to in all of this] and don't know whether any of it is doing any good since I could well have problems with absorption.Any advice or information you could give me would be very much appreciated. Best wishes Steph --- On Fri, 30/1/09, Ian Kemp <ianandsue.kemp@ <mailto:ianandsue.kemp%40ukgateway.net> ukgateway.net> wrote: From: Ian Kemp <ianandsue.kemp@ <mailto:ianandsue.kemp%40ukgateway.net> ukgateway.net> Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements To: eSens@yahoogroups. <mailto:eSens%40yahoogroups.com> com Date: Friday, 30 January, 2009, 11:22 AM If one's gut or digestive system is not working properly, oral supplementation of all sorts of vitamins and nutrients even at high levels may be ineffective because they simply do not get out of the gut into the bloodstream. To quote Sue's case (as usual) - her magnesium and glutathione levels, and various other items, were desperately low despite long-term oral supplementation, and she tested positive for leaky gut syndrome. Intravenous infusions were the only way that the levels could be got up. As her liver function has improved, she has been able to take a wider range of medication without side effects. In the last few months she has been taking special digestive enzymes and phosphatidyl choline, which she could not tolerate before. These in turn seem to have improved her digestion capability and gut integrity, such that oral supplementation with reduced glutathione and magnesium sulphate (Epsom salts) now appear to be working and she has not needed infusions for 3 months. She is also beginning to be able to eat dairy products and chocolate again in moderation - first time for 4 years that this has not given noticeable side effects. Ian _____ From: eSens@yahoogroups. com [mailto:eSens@yahoogroups. com] On Behalf Of javamdnss@aol. com Sent: 30 January 2009 05:36 To: eSens@yahoogroups. com Subject: Re: [eSens] Vitamin D levels How can they possibly be in the bottom range of acceptable if you've been taking that much Vit. D for months?? How much did the test cost? I'm assuming insurance didn't cover it? Thanks for getting back to us about it Marc! Amy marc@ufoseries. <mailto:marc% 40ufoseries. com> com writes: Okay, I got my blood tests back -- my Vitamin D levels were in the acceptable range, but they were at the very bottom of the acceptable range. And I had been taking Vitamin D3 tablets for the last several months (400% of the RDA = 1600 IU). Immune testing showed that I am more likely to get sick, and will stay sick longer than a normal person. Heck, I could have told them that and saved money on the test... :-) Marc ************ **From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com? <http://aol.com? ncid=emlcntaolco m00000023> ncid=emlcntaolcom00 000023) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
In reply to this post by Steph Smith
Thanks for this Ian
I had come across the Breakspear Hospital in internet searches before but it didn't occur to me that that was where sue had gone to - it would be quite a long way from me so I'd have to factor in travel costs for regular or periodic attendances there as well as the treatment costs but if it gave me even half of my health back then it would be worth doing. What you are saying here chimes with my own thinking on ES, that whichever part of our system is malfunctioning is rendering us vulnerable to ES in a way which we might not be if we were able to address it. To that extent I'd welcome the battery of tests if only to get to the heart of exactly what it is that is out of kilter in my system. Can I ask did Sue need a letter of referral from her GP or anything or did she just make the contact herself? The reason that I ask is that In my NHS region if you want to access private healthcare the provider will ask for aletter of referral from your GP. Can I also ask you what you thought of the staff and the treatment? Did Sue tell them she was reacting to EMF and did they accept that as a possible component of her illness or were they a bit sceptical. I'm sorry for asking what must seem like 20 questiions, but togo to this clinic would be a huge financial commitment for me and it wouldbe helpful to get your feedback. Hope you won't mind my asking. Best wishes Steph --- On Fri, 20/2/09, Ian Kemp <[hidden email]> wrote: From: Ian Kemp <[hidden email]> Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements To: [hidden email] Date: Friday, 20 February, 2009, 12:54 AM Hi Steph We have to go to a private hospital (Breakspear Hospital in Hemel Hempstead) to get the infusions done - rather costly I'm afraid. The equipment is normally only available in hospitals and clinics, not in normal surgeries (though even some enlightened dentists use Vitamin C infusions!). They did a battery of tests (again very expensive) that identified some particular deficiencies which could be treated. It was really looking at Sue's overall problems including MCS and allergies, but as these have improved the ES has also got better. Before this she had tried trial-and-error on a vast range of supplements which hadn't really solved the problem, especially as she reacted adversely to a lot of normally good and benign supplements which are widely recommended, such as milk thistle - they seem to be good if you are moderately ill but give problems if you have got to the stage where your immune system seems to react to anything. There are a small number of medically qualified nutritionists around in Britain who can do a systematic look at these intractable problems - the snag is that they seem to be pretty overloaded and have quite long waiting lists (what does this tell us?). Best wishes, Ian _____ From: eSens@yahoogroups. com [mailto:eSens@yahoogroups. com] On Behalf Of Stephanie Smith Sent: 19 February 2009 21:03 To: eSens@yahoogroups. com Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements Hello Ian I am glad to hear that Sue is doing better and it is great that someone has been able to get to the bottom of the problem she has been having. Can I ask you did she get these intravenous infusions from her GP or did she go to a private nutritionist or other practicioner? and did that person recognise her ES and advise this nutritional programme to help to treat it? I only ask because I have been trying to sort out my own supplement regimen without any medical input [I don't really know who to turn to in all of this] and don't know whether any of it is doing any good since I could well have problems with absorption.Any advice or information you could give me would be very much appreciated. Best wishes Steph --- On Fri, 30/1/09, Ian Kemp <ianandsue.kemp@ <mailto:ianandsue. kemp%40ukgateway .net> ukgateway.net> wrote: From: Ian Kemp <ianandsue.kemp@ <mailto:ianandsue. kemp%40ukgateway .net> ukgateway.net> Subject: RE: [eSens] Vitamin D levels - and oral absorption of other supplements To: eSens@yahoogroups. <mailto:eSens% 40yahoogroups. com> com Date: Friday, 30 January, 2009, 11:22 AM If one's gut or digestive system is not working properly, oral supplementation of all sorts of vitamins and nutrients even at high levels may be ineffective because they simply do not get out of the gut into the bloodstream. To quote Sue's case (as usual) - her magnesium and glutathione levels, and various other items, were desperately low despite long-term oral supplementation, and she tested positive for leaky gut syndrome. Intravenous infusions were the only way that the levels could be got up. As her liver function has improved, she has been able to take a wider range of medication without side effects. In the last few months she has been taking special digestive enzymes and phosphatidyl choline, which she could not tolerate before. These in turn seem to have improved her digestion capability and gut integrity, such that oral supplementation with reduced glutathione and magnesium sulphate (Epsom salts) now appear to be working and she has not needed infusions for 3 months. She is also beginning to be able to eat dairy products and chocolate again in moderation - first time for 4 years that this has not given noticeable side effects. Ian _____ From: eSens@yahoogroups. com [mailto:eSens@ yahoogroups. com] On Behalf Of javamdnss@aol. com Sent: 30 January 2009 05:36 To: eSens@yahoogroups. com Subject: Re: [eSens] Vitamin D levels How can they possibly be in the bottom range of acceptable if you've been taking that much Vit. D for months?? How much did the test cost? I'm assuming insurance didn't cover it? Thanks for getting back to us about it Marc! Amy marc@ufoseries. <mailto:marc% 40ufoseries. com> com writes: Okay, I got my blood tests back -- my Vitamin D levels were in the acceptable range, but they were at the very bottom of the acceptable range. And I had been taking Vitamin D3 tablets for the last several months (400% of the RDA = 1600 IU). Immune testing showed that I am more likely to get sick, and will stay sick longer than a normal person. Heck, I could have told them that and saved money on the test... :-) Marc ************ **From Wall Street to Main Street and everywhere in between, stay up-to-date with the latest news. (http://aol.com? <http://aol.com? ncid=emlcntaolco m00000023> ncid=emlcntaolcom00 000023) [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] |
Free forum by Nabble | Edit this page |