List of possible causes and solutions for EHS:

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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
On March 26, RagnarLothBrook [via ES] <[hidden email]> wrote:
> Can you describe your experience with the Andy Cutler Protocol as I
> have done around a dozens rounds so far.  
> How many rounds did you finish? And which chelator and amount did you
> start and end with?
> What were your symptoms that got worse on the protocol?

I used alpha lipoic acid mainly over a period of two years.  I tried DMPS and DMSA as well, but had horrific reactions to them.  I think I probably did 50 - 100 rounds over a period of 2 years (can't remember, this was a long time ago).  No improvement in any symptoms during that time, and all I ended up with was increasing ringing in the ears, until it became such an issue that I had to stop.  And even now, over a decade later, I still have permanent ringing in my ears that I didn't have prior to the doing the Cutler protocol.

I'm on other groups where many people have tried the Cutler protocol and it didn't help them or made them worse.  So my experience is not unique.

Marc

 
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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
In reply to this post by RagnarLothBrook
Oh, and I never did high doses of Vitamin C and Vitamin A.  There were some recommended other things to do, like taking magnesium and zinc which I did, and I did find to be helpful.  

Marc
 
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
In reply to this post by Marc Martin
Yikes, sorry to hear that.
Ive always had ringing my ears probably since I was 8 or 9 before I knew
what it was, thought it was just the sound of the night.
Although recently with my gut issues flaring, my ringing was as loud as
ever. It always fluctuates with how well I am feeling related to my
digestion. But interestingly enough, it was right after I've done four
rounds in one month with DMSA and ALA, the most Ive done. I usually only do
2 rounds a month.  DMSA is known to cause yeast issues, which I believe led
to my gut issues and louder ringing.  But now with what you said... maybe
its also the ALA as well. I will keep an eye on this as I plan to do more
rounds with just ALA only. Thanks for sharing.

On Fri, Mar 26, 2021 at 10:54 AM Marc Martin [via ES] <
ml+s966376n4036205h23@n3.nabble.com> wrote:

> On March 26, RagnarLothBrook [via ES] <[hidden email]
> I used alpha lipoic acid mainly over a period of two years.  I tried DMPS
> and DMSA as well, but had horrific reactions to them.  I think I probably
> did 50 - 100 rounds over a period of 2 years (can't remember, this was a
> long time ago).  No improvement in any symptoms during that time, and all I
> ended up with was increasing ringing in the ears, until it became such an
> issue that I had to stop.  And even now, over a decade later, I still have
> permanent ringing in my ears that I didn't have prior to the doing the
> Cutler protocol.
>
> I'm on other groups where many people have tried the Cutler protocol and
> it didn't help them or made them worse.  So my experience is not unique.
>
> Marc

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Re: List of possible causes and solutions for EHS:

casper
In reply to this post by Marc Martin
I also tried Cutler's protocol. I quickly had to abandon ALA, as I found it very acidic and troublesome, but I had great help from DMSA, without ALA.

During my first dose of DMSA I had a tremendous relief from brain fog. I continued to use DMSA more or less half-regularly for the next 5 years, until I simply stopped using it because of diminishing returns.

I never did the actual Cutler protocol, taking DMSA every four hours. I never found the protocol to do anything, that taking DMSA freely just a couple times per day could not do.

It seems the experience with DMSA can vary a lot from person to person. For me it happened to be positive. Another chelator which has also helped is EDTA. I also find Cilantro tinctures to help, even though Cutler warns against it, but I never had any problems from that.

As for tinnitus (ringing in the ears), I am _extremely_ sensitive to it, and I also think it may be caused by mold getting out of hand inside the body. I know supplements which will give it to me instantly, and then I know the supplement is either contaminated, or the effect from the supplement allows mold to grow inside me. Either way, if I abandon the supplement then, the tinnitus will be gone in a few days.

Never take a supplement or food which causes tinnitus is my tip. It can quickly get out of hand, and be very difficult to get rid of the ringing later.




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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
Very interesting...it now leans towards ALA to be more suspect.
Do you recall which supplements caused your tinnitus?
Thanks for sharing.
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Re: List of possible causes and solutions for EHS:

casper
Yes, one which I recall very well, because I just tried it yesterday :/, is L-Lysine from Carlson Labs. The thing is, many years earlier I found Lysine to actually reduce my tinnitus. I wanted to try it again, but I forgot which brand it was, so I ordered one at random. Well..Carlson Lysine is on my banned list now.

I have started writing TINNITUS with big letters on supplements which causes me this, so I don't accidentally try them again from my ginormous supplement cabinet.

Another one I saw with a quick look in the cabinet is Now Foods Maca, which also increased my EHS. Apparently contaminated in more ways than one, as other Maca brands did not cause these problems before.

Another one I remember well was a liquid B12 supplement made with Glycerine. Gave me horrible ringing. However other B12, even liquid ones, no problem. Again, my conclusion is these reactions must therefore (often) be because of contamination, and not necessarily the nutrient itself.

Sorry I can't provide a more detailed list. Now I almost wish I had it all on an Excel sheet or something.
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
Thanks, I will make a note of that and start taking my own notes as well.
Another idea is that those supplements could be causing die-off symptoms as they kill off mold or bad bacteria causing a release of toxins leading to the tinnitus. But it could just be bad bad. Thought I'd throw it out there - food for thought.  Dr. Shoemaker talks is said to be the father of mold-illness and talks alot about die-off symptoms.
The other thing that I always check for is the "Other ingredients:" as many of them are said to be toxic.  I'm steering clear from silicon dioxide now, also magnesium stearate and I cant remember, some others.  I look for the least "other ingredients" as I can and avoid the one's that seems to be bad.  So that could be the difference between different brands causing issues. OR it is just contaminated or manufactured poorly.
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Re: List of possible causes and solutions for EHS:

davidrsnell
I wanted to reply to Ragnar sooner but I can't spend too much time on the computer.  I printed out this thread Monday and now I'm able to get online with some thoughts.

Starting with this thread titled: 10 Ways To "Dis" Your Electronic Devices

  https://www.es-forum.com/10-Ways-To-quot-Dis-quot-Your-Electronic-Devices-td4036213.html

My previous post on holistic health should also be useful:

And in a week or two I'll make reports on new supplements I'm trying.
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