List of possible causes and solutions for EHS:

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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
On March 26, RagnarLothBrook [via ES] <[hidden email]> wrote:
> Can you describe your experience with the Andy Cutler Protocol as I
> have done around a dozens rounds so far.  
> How many rounds did you finish? And which chelator and amount did you
> start and end with?
> What were your symptoms that got worse on the protocol?

I used alpha lipoic acid mainly over a period of two years.  I tried DMPS and DMSA as well, but had horrific reactions to them.  I think I probably did 50 - 100 rounds over a period of 2 years (can't remember, this was a long time ago).  No improvement in any symptoms during that time, and all I ended up with was increasing ringing in the ears, until it became such an issue that I had to stop.  And even now, over a decade later, I still have permanent ringing in my ears that I didn't have prior to the doing the Cutler protocol.

I'm on other groups where many people have tried the Cutler protocol and it didn't help them or made them worse.  So my experience is not unique.

Marc

 
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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
In reply to this post by Neo
Oh, and I never did high doses of Vitamin C and Vitamin A.  There were some recommended other things to do, like taking magnesium and zinc which I did, and I did find to be helpful.  

Marc
 
Neo
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Re: List of possible causes and solutions for EHS:

Neo
In reply to this post by Marc Martin
Yikes, sorry to hear that.
Ive always had ringing my ears probably since I was 8 or 9 before I knew
what it was, thought it was just the sound of the night.
Although recently with my gut issues flaring, my ringing was as loud as
ever. It always fluctuates with how well I am feeling related to my
digestion. But interestingly enough, it was right after I've done four
rounds in one month with DMSA and ALA, the most Ive done. I usually only do
2 rounds a month.  DMSA is known to cause yeast issues, which I believe led
to my gut issues and louder ringing.  But now with what you said... maybe
its also the ALA as well. I will keep an eye on this as I plan to do more
rounds with just ALA only. Thanks for sharing.

On Fri, Mar 26, 2021 at 10:54 AM Marc Martin [via ES] <
ml+s966376n4036205h23@n3.nabble.com> wrote:

> On March 26, RagnarLothBrook [via ES] <[hidden email]
> I used alpha lipoic acid mainly over a period of two years.  I tried DMPS
> and DMSA as well, but had horrific reactions to them.  I think I probably
> did 50 - 100 rounds over a period of 2 years (can't remember, this was a
> long time ago).  No improvement in any symptoms during that time, and all I
> ended up with was increasing ringing in the ears, until it became such an
> issue that I had to stop.  And even now, over a decade later, I still have
> permanent ringing in my ears that I didn't have prior to the doing the
> Cutler protocol.
>
> I'm on other groups where many people have tried the Cutler protocol and
> it didn't help them or made them worse.  So my experience is not unique.
>
> Marc

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Re: List of possible causes and solutions for EHS:

casper
In reply to this post by Marc Martin
I also tried Cutler's protocol. I quickly had to abandon ALA, as I found it very acidic and troublesome, but I had great help from DMSA, without ALA.

During my first dose of DMSA I had a tremendous relief from brain fog. I continued to use DMSA more or less half-regularly for the next 5 years, until I simply stopped using it because of diminishing returns.

I never did the actual Cutler protocol, taking DMSA every four hours. I never found the protocol to do anything, that taking DMSA freely just a couple times per day could not do.

It seems the experience with DMSA can vary a lot from person to person. For me it happened to be positive. Another chelator which has also helped is EDTA. I also find Cilantro tinctures to help, even though Cutler warns against it, but I never had any problems from that.

As for tinnitus (ringing in the ears), I am _extremely_ sensitive to it, and I also think it may be caused by mold getting out of hand inside the body. I know supplements which will give it to me instantly, and then I know the supplement is either contaminated, or the effect from the supplement allows mold to grow inside me. Either way, if I abandon the supplement then, the tinnitus will be gone in a few days.

Never take a supplement or food which causes tinnitus is my tip. It can quickly get out of hand, and be very difficult to get rid of the ringing later.




Neo
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Re: List of possible causes and solutions for EHS:

Neo
Very interesting...it now leans towards ALA to be more suspect.
Do you recall which supplements caused your tinnitus?
Thanks for sharing.
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Re: List of possible causes and solutions for EHS:

casper
Yes, one which I recall very well, because I just tried it yesterday :/, is L-Lysine from Carlson Labs. The thing is, many years earlier I found Lysine to actually reduce my tinnitus. I wanted to try it again, but I forgot which brand it was, so I ordered one at random. Well..Carlson Lysine is on my banned list now.

I have started writing TINNITUS with big letters on supplements which causes me this, so I don't accidentally try them again from my ginormous supplement cabinet.

Another one I saw with a quick look in the cabinet is Now Foods Maca, which also increased my EHS. Apparently contaminated in more ways than one, as other Maca brands did not cause these problems before.

Another one I remember well was a liquid B12 supplement made with Glycerine. Gave me horrible ringing. However other B12, even liquid ones, no problem. Again, my conclusion is these reactions must therefore (often) be because of contamination, and not necessarily the nutrient itself.

Sorry I can't provide a more detailed list. Now I almost wish I had it all on an Excel sheet or something.
Neo
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Re: List of possible causes and solutions for EHS:

Neo
Thanks, I will make a note of that and start taking my own notes as well.
Another idea is that those supplements could be causing die-off symptoms as they kill off mold or bad bacteria causing a release of toxins leading to the tinnitus. But it could just be bad bad. Thought I'd throw it out there - food for thought.  Dr. Shoemaker talks is said to be the father of mold-illness and talks alot about die-off symptoms.
The other thing that I always check for is the "Other ingredients:" as many of them are said to be toxic.  I'm steering clear from silicon dioxide now, also magnesium stearate and I cant remember, some others.  I look for the least "other ingredients" as I can and avoid the one's that seems to be bad.  So that could be the difference between different brands causing issues. OR it is just contaminated or manufactured poorly.
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Re: List of possible causes and solutions for EHS:

davidrsnell
I wanted to reply to Ragnar sooner but I can't spend too much time on the computer.  I printed out this thread Monday and now I'm able to get online with some thoughts.

Starting with this thread titled: 10 Ways To "Dis" Your Electronic Devices

  https://www.es-forum.com/10-Ways-To-quot-Dis-quot-Your-Electronic-Devices-td4036213.html

My previous post on holistic health should also be useful:

And in a week or two I'll make reports on new supplements I'm trying.
"Health, Safety & Financial Freedom for All"
David R. Snell, President
FreeKindPosters.org and GoodLifeMission.com
(You're Invited! Collect 7 free Good Life Bonuses using Special Codeword "esforum")
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Re: List of possible causes and solutions for EHS:

Merializer
This post was updated on .
In reply to this post by casper
So these are what I tried:

Bioray - NDF calm
Bioray - Belly Mend

I tried these because Marc Martin said he took something similar,
but for me it seems to affect me negatively in a strong way.
Likely 1 or more ingredients is not right for me.

Ki Science - Chlorella
Ki Science - Ki Zeolite

Dr. Dietrich Klinghardt stuff I guess. The Chlorella seems fine, I don't seem to react negatively to it, so I will deplete this bottle. Zeolite seems to be some kind of green clay. I tried small amounts: tip of a teaspoon, and I seem to react allergically to it somewhat, but I will try some more (not sure if it's the right thing to do though).

Immun'age (fermented papaya preperation)
Ginkgo Biloba

Recommended by Prof. Dominique Belpomme. The fermented papaya tastes very nice, but it seems very sugary. Because of this I have problems with it, because I react negatively to small amounts of sugary stuff at this moment in time, even fruit. So I can't try it more at this time, until I have my other problems under control.
The Ginkgo Biloba is also affecting me negatively it seems, at this time.

I'm not saying the products I react negatively to are bad products, or that I don't need them. it's just not working for me at this time (probably because of Mast cell activation (MCAS) and things like that). So maybe later they could help, but I will have to try other things first. I'm just very sensitive to almost anything at this time. What doesn't work for me may work for you though.



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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
Sometimes negative reactions are merely down to dosage.  Especially when you do things to move toxins, as some of these things do.  I've never tried NDF Calm or Belly Mend, although I went through a lot of NDF, and also have some Belly Balance.  Although possibly Belly Balance and Belly Mend are the same thing?

Marc
 
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Re: List of possible causes and solutions for EHS:

Merializer
I forgot but looked at the ingredients in their different vials at the time of purchase,
and a lot of ingredients come back in other vials. Tried the kid products because I thought
it may be a bit lighter for an adult, still a strong reaction. I took the lowest dosage (0.25ml).
Could reduce it even more but it does not feel right to me, reacting allergically and getting very tired.
I'm reacting allergically to anything these days though. Tried many NAET sessions last months,
supposedly against allergy, but nothing seems improved. Keto diet is also not working out,
i'm just too weak and organs are very sensitive. Gonna try other things then.
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Re: List of possible causes and solutions for EHS:

casper
Don't forget Lauricidin. I have been on the same road as you, I'm just maybe 15 years ahead of you. It is very rare to find something that helps in my experience. Must have put tens of thousands of euros into different supplements at this point. Lauricidin is on my list of the ones that actually did something.

I have one new supplement I am testing next. Sounds very positive on paper. It's called Allimed. Available from the UK. I ordered it on monday. Waiting for arrival, and if it helps, will report back here.

I think one reason for hypersensitivity, could be mold, fungus or yeast infections. Lauricidin helps with those, Allimed should also. A combo of both, could be an absolute super idea to try. You cannot dilly dally with fungal infections, better hit them with maximum force from all side at once. If you tiptoe, they may develop resistance as happened with me.

My recommendation to try for you personally, since you did not try these before: order both Lauricidin and Allimed. Try both separately first, to test for tolerance. If you tolerate, take the maxium tolerable dose of both at the same time. This is what I would do. This is what I will do with Allimed now, but Lauricidin is of no use to me, since I already tiptoed with it too much, and it stopped working. No more. Always hit with full force, no games. If you are infected with something, then the full front surprise attack is the best way to deal with it.

If you take a supplement that feeds the fungus, or only irritates it, it will release toxins, and then you will feel terrible. This is what happens when you take normal supplements, or supplements which does not directly target the infection. It either feeds on the supplements, or gets irritated by them, and then you feel terrible. Just my theory..but something to think about perhaps.
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Re: List of possible causes and solutions for EHS:

davidrsnell
I've been trying to supplement my way out of EHS but without much sucess.  I would surmise thta the best supplement to combat EHS is whatever supplement heals the part of your body that is most weakened.  The line of supplements that has impressed me the most is Premium Nutrition, which is available at askhealthyway.com and abundantlivingnutrition.com.  

They have come out with "Stress Defense" which is designed to combat electromagnetic stresses.  But when I tried it I had minimal results.  Their other supplements keep me healthy which helps me cope with EHS.  

Figuring out which supplements you need is a journey.  Askhealthyway.com has a page with the 7 or so most popular supplements, which is a starting point if you're interested.
"Health, Safety & Financial Freedom for All"
David R. Snell, President
FreeKindPosters.org and GoodLifeMission.com
(You're Invited! Collect 7 free Good Life Bonuses using Special Codeword "esforum")
Neo
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Re: List of possible causes and solutions for EHS:

Neo
In reply to this post by Merializer
Imun’age was terrible for me, the sugar swelled up my gums and almost pulled out my tooth it was hurting and so bad, but my gut was bothering me so much too that I couldn’t handle the stress of an extraction, now it’s calmed and better.

Not sure if the ginkgo by Drs Best was a part of my reactions but I just ordered another brand without mag stearate to try.  It’s getting tough on me as far as exposure as more people with phones are out and about around me. It increase the levels dramatically. 

On May 20, 2021, at 1:57 AM, Merializer [via ES] <[hidden email]> wrote:

 So these are what I tried lately:

Bioray - NDF calm
Bioray - Belly Mend

I tried these because Marc Martin said he took something similar,
but for me it seems to affect me negatively in a strong way.
Likely 1 or more ingredients is not right for me.

Ki Science - Chlorella
Ki Science - Ki Zeolite

Dr. Dietrich Klinghardt stuff I guess. The Chlorella seems fine, I don't seem to react negatively to it, so I will deplete this bottle. Zeolite seems to be some kind of green clay. I tried small amounts: tip of a teaspoon, and I seem to react allergically to it somewhat, but I will try some more (not sure if it's the right thing to do though).

Immun'age (fermented papaya preperation)
Ginkgo Biloba

Recommended by Prof. Dominique Belpomme. The fermented papaya tastes very nice, but it seems very sugary. Because of this I have problems with it, because I react negatively to small amounts of sugary stuff at this moment in time, even fruit. So I can't try it more at this time, until I have my other problems under control.
The Ginkgo Biloba is also affecting me negatively it seems, at this time.

I'm not saying the products I react negatively to are bad products, or that I don't need them. it's just not working for me at this time. So maybe later they would help (?), I don't know though, but I will have to try other things first. I'm just very sensitive to almost anything at this time.






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Neo
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Re: List of possible causes and solutions for EHS:

Neo
In reply to this post by Merializer
I 100% agree with the mold/fungus idea. I deal with this a lot. Sugar feeds them as well as iron, so it’s best to check your iron status as it is fairly easy to address and measure. Also mold/bacteria releases toxins from Emf exposure and I think is a big part of why we are sensitive. My sensitivity fluctuates with how well I control my constipation and gut health. Exercise and Saunas has helped me some with symptoms.

On May 20, 2021, at 6:33 PM, John Chhu <[hidden email]> wrote:


Imun’age was terrible for me, the sugar swelled up my gums and almost pulled out my tooth it was hurting and so bad, but my gut was bothering me so much too that I couldn’t handle the stress of an extraction, now it’s calmed and better.

Not sure if the ginkgo by Drs Best was a part of my reactions but I just ordered another brand without mag stearate to try.  It’s getting tough on me as far as exposure as more people with phones are out and about around me. It increase the levels dramatically. 

On May 20, 2021, at 1:57 AM, Merializer [via ES] <[hidden email]> wrote:

 So these are what I tried lately:

Bioray - NDF calm
Bioray - Belly Mend

I tried these because Marc Martin said he took something similar,
but for me it seems to affect me negatively in a strong way.
Likely 1 or more ingredients is not right for me.

Ki Science - Chlorella
Ki Science - Ki Zeolite

Dr. Dietrich Klinghardt stuff I guess. The Chlorella seems fine, I don't seem to react negatively to it, so I will deplete this bottle. Zeolite seems to be some kind of green clay. I tried small amounts: tip of a teaspoon, and I seem to react allergically to it somewhat, but I will try some more (not sure if it's the right thing to do though).

Immun'age (fermented papaya preperation)
Ginkgo Biloba

Recommended by Prof. Dominique Belpomme. The fermented papaya tastes very nice, but it seems very sugary. Because of this I have problems with it, because I react negatively to small amounts of sugary stuff at this moment in time, even fruit. So I can't try it more at this time, until I have my other problems under control.
The Ginkgo Biloba is also affecting me negatively it seems, at this time.

I'm not saying the products I react negatively to are bad products, or that I don't need them. it's just not working for me at this time. So maybe later they would help (?), I don't know though, but I will have to try other things first. I'm just very sensitive to almost anything at this time.






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Re: List of possible causes and solutions for EHS:

steve
In reply to this post by Merializer
I just ordered BioRay Microbe Slayer. Going to see if parasites could be a cause of something, perhaps my teeth grinding
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Re: List of possible causes and solutions for EHS:

Salt Water Cure
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Re: List of possible causes and solutions for EHS:

Merializer
I react in a bad way to too much salt. Can hardly add any to foods.
I tried Himalayan salt in the past, but I stopped using it because it seemed to make things worse
(some kind of electric seizure shocks in my head when laying down in bed.)
Some salt is not going to fix lyme, mold, mercury and other hidden problems some EHS people have.
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Re: List of possible causes and solutions for EHS:

kara
I agree, too much salt is toxic to the body. I have bad kidneys since childhood, and no one really told me about the problem with salt, and when I stopped adding extra salt I experienced a big improvement, including other positive side effects. I remember when my sweat wasn't really salty anymore... Think about it, the body is trying to get rid of excess salt. In any case, kidneys and too much salt is a bad combo.
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Re: List of possible causes and solutions for EHS:

kara
And many es/ehs people have an adrenal problem, even if they are not aware of it. The adrenals are often the "forgotten" organs, and they are sometimes/often connected to the kidneys.
In TCM, the kidneys are the source of life (force), vitality etc. In western medicine it's the heart (or lack or heartbeat etc) that is seen as the physical organ central to life. But in China, they even talk about inheriting a strong/weak kidney energy from our parents.
I think that our health in general has been going down, the last generations. Even if we are taller, live longer, in many cases we have a weaker life energy. Of course, difficult to generalise, still, in my case I can feel a connection between my weak kidneys/stressed and exhausted adrenals and my EHS.
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