List of possible causes and solutions for EHS:

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Re: Over the years i found 6 claims of causes and solution for EHS:

Merializer
This post was updated on .
Important:
I highly recommend you do the same as i did.
Meaning:
1) Test with your doctor and test alternatively.
For example: If you suspect you have low cortisol,
test it in your blood at your doctor and do a saliva test.
2) Confront your doctor with conflicting results.
If you don't do this, they will never learn something,
nothing will change, and next time you get sick,
or your friend or your child, they will be faced with the same problem all over again.
It doesn't matter if they listen or not,
even if they don't, you still need to do it.
It can change the world. But if you do nothing and
just go alternatively, heal and go sit on the sofa and watch TV,
nothing will change. Writing a blog is great, but my doctor likely won't find nor read that.
You need to communicate directly.

BTW I did this already with 1 doctor, need to some more still,
 and what came out of this doctors mouth,
was like listening to the news or listening to some child
coming up with all kinds of excuses,
so much excuses and BS for why my problems were not found already.
Either way, it was necessary to explain what went wrong, it's our responsibility.
If they don't listen it's not our fault, but we have to do it, some might change.
What i should have heard where things like:
"hmmm yeah, that's a problem that we missed this, I will look into this".
I didn't hear things like this at all.
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Re: Over the years i found 6 claims of causes and solution for EHS:

Merializer
In reply to this post by casper
Iinteresting information about mold and lyme:
Here is part of a subtitle extraction done with https://downsub.com/ of this video:
https://youtu.be/UvSabAsMWy0?t=259

David Asprey is speaking:

00:05:26,240 --> 00:05:27,590
I don't believe in Lyme disease unless you
also have a concurrent toxic mold
exposure. Lyme disease comes and goes but
if you have a mold exposure Lyme disease
comes and stays and they produced the
same kind of fat-soluble neurotoxins


Andrew W. Campbell, M.D:

A young woman did lyme treatment for 4 years and didn't improve.
She then did 6 months of mycotoxine treatment and she was well.

10:47
source: https://youtu.be/iSB7Pms0rfw?t=647

Merializer:
I think my doctor tested for candida and such, not for mycotoxines.
There is a lot to look into from my tests, and I don't understand everything,
but I think mycotoxines might not been done yet.
He might have thought I meant candida when I asked to test for mold problems.
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Re: Over the years i found 6 claims of causes and solution for EHS:

Merializer
In reply to this post by casper
Dr Klinghardt talking about PCR testing Lyme at 5:20
(2016 post)
https://www.facebook.com/SophiaHealthInstitute/videos/1222846594424690/?t=18

I did PCR tests because it was what a Doctor recommended, I have no idea how they work and how reliable they are. It's not easy to find someone in this country that knows at least something about things like lyme, so I went with what was recommended.
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Re: List of possible causes and solutions for EHS:

Merializer
This post was updated on .
In reply to this post by Merializer
So, second attempt to communicate with a local doctor didn't go well either, worse even.
I presented the test results and asked why some tests are postive but others negative,
and presented what was found that could explain why i'm sick.
The responses were evasive and not friendly.
This doctor said: what is your question? why are you here?
It reminded me to the movie scene in "I, Robot (2004)"
where Will Smith tried to communicate with the hologram of the dead doctor,
where the hologram keeps saying: "I'm sorry, my responses are limited, you must ask the right questions".
https://youtu.be/ZKxr0wyIic4
It almost seemed I was talking to a hologram that can learn nothing new.
Even A.I. should be able to respond better than this person.
I said I was there to show what went wrong in detecting my problems,
so this could be avoided in the future with other chronically ill people. But the response to this was not good at all.
There is a serious communication problem between certain doctors and patients.
Ok, I am very direct in my communication, as those who know me will know, but it's just the way I was born.
But this person did not understand that I was there to help other people and only seemed to want to get rid of me.
Even worse, this person said to be aware of a cortisol blood test not being any good.
But also did not seem to like nor care much about the cortisol saliva test I presented.
The person said I am chronically ill and have to learn live with this, stop whining about it and stop doing tests...
But I said: What are you talking about? I just presented you results with issues that may be causing my problems and this could be fixable!
This person did not seem to understand nor care about that.
Also be aware that doctors might be trained to keep costs down for the insurance, they may hold you back in countries with health insurance, which may result in you unable to find your problems.
At some point I noticed the conversation was not going well and about to end, and I asked:
will you continue to test people like you do now?
The response was: yes. After which the doctor stood up and I had to leave.
I would do this again, and you should as well, to try to change the system and to know what people you are dealing with.
You cannot trust nor rely on certain people, some seem almost worse than robots.
btw, another movie scene I was reminded of was from "Elysium" where Matt Damon tries to communicate with this robot parole officer.
It felt like I was in his shoes:
https://youtu.be/4f8wskEcHsY
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Re: Over the years i found 6 claims of causes and solution for EHS:

Merializer
This post was updated on .
In reply to this post by casper
This doctor says spirochetes can mimic anything...
(making you think you have some other illness)...
Video 3:
https://youtu.be/-nAQJI-CQ4E?list=PL5TGMynMtegeD-dZ-FE4x3gH2lWaUfCpu&t=73

i also noticed that in video 6 (interviewing Joseph) it is mentioned that a "CD57" test
https://youtu.be/FW9UzLiyZM8?list=PL5TGMynMtegeD-dZ-FE4x3gH2lWaUfCpu&t=43
is a clue apparently(?) (which was done on me as well), results were posted here:
https://www.flickr.com/photos/merializer/albums/72157717115306731/with/50779026958/
If it's a clue, it may be much cheaper to do this test alone first, since lyme tests can be expensive.
I wish i knew this. I checked and it's only like 70€ to do a CD57 test.
It may not be enough to detect all lyme problems, I don't know, but it may be a good start.

I just stumbled on this searching for answers.
Dr. David Minkoff says chronic lyme should not be treated with antibiotics,
but with herbs and/or ozone. I'm still learning.
He says Antibiotics often don't work if it's chronic,
but antibiotics are useful if the lyme infection is recent.

Fibromyalgia can be lyme disease in disguise:
https://fmaware.net/think-doctor-ruled-lyme-disease-probably-not/
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Re: Over the years i found 6 claims of causes and solution for EHS:

elihme
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Re: Over the years i found 6 claims of causes and solution for EHS:

kara
In reply to this post by Merializer
The more detail oriented we are, the more we loose sense of the bigger picture.
I can spend a lot of time reading about sickness, pathogens  etc (I have health problems since childhood, and doctors have made me much more sick by NOT being able to diagnose me the right way), but I also realise sometimes the answer is outside of the box.
Look at the one of the biggest problems we have today in science: over specialisation, and not being able to know anything outside ones own field....
Some times it necessary to fly high a look at the BIGGER PICTURE, instead of just obsessing on the tiny tiny things.
During the black death, people never suspected the reason for the plague being rats/pathogens/filth, they blamed all sorts of things like the devil, jews etc...
We should not be so arrogant  and think that todays science has all the answers.
Be informed in the bigger sense.
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Re: Over the years i found 6 claims of causes and solution for EHS:

Merializer
I found out what is wrong with my health by looking into many details and by thinking out of the box I found solutions so I have no idea what you are talking about.

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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
This post was updated on .
In reply to this post by Merializer
Hi Thanks for putting this all together.
As an EHS sufferer myself, I believe Mold, heavy metals, Gut health, and the rest of it are all connected.
I believe Mercury toxicity combined with my Hep B was domino #1 that lead to mold illness, and everything else.  I've had mercury fillings probably since I was 5, and 8 of them on my adult teeth for over 30 years. I am 44 now.  Now I realize all my health issues that I experienced off and on all my life are all symptoms of mercury toxicity and EHS but with that said.. I was able to sort of live with it or through it without any emergency needs.  Doctors never found anything since searching for answers since I was 18 for patulous estauchian tubes(PET) and I've learned over the years of going to doctors, they don't have an answer for my symptoms.

  But when my health really took a turn for the worse was 4 years ago when I did an enema for constipation that probably bursted a hole in my large colon somewhere cause suddenly I felt a rush of cold water rushing or breaking through.  I suspect it was a hole  and not just breaking through the constipation because that same night I got really sick like I was fighting an infection.  And thats when I believe my EMF sensitivity went full blown.   I've learned that mold and bacteria grow faster and releases toxins when exposed.  I was having night sweats, and my muscle twitched for and subsided over a year.  I still get twitches now when i get constipated and likely autotoxicity from mold bacteria and viruses. And I have become more and more sensitive to RF and Magnetic fields over the 4 years that I cannot be out or about anywhere as wireless and magnetic fields from power use is everywhere.  I am sensitive down to 0.005 mW/m2 on my Cornet Plus meter. probably even less.  I sleep in an EMF free converted cargo van.

Hopefully my experience is similar to others.  

What I wanted to ask you is were there anything that youve done that seem to help your symptoms?
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Re: List of possible causes and solutions for EHS:

Merializer
What has helped me the most so far is:
1) not touching any electronic devices (hence why I build separators). <<this helped me personally the most of all.
2) Turning the breakers of at night. <<helped reducing vibrating in bed to practically zero.
3) Using f.lux, not watching TV in the evening (blue light).

If something else helps, I will post it, but so far i'm struggling with my health, still.
One major problem seems "fermenting upper gut", that is what Sarah MyHill calls it.
Sources:
https://www.youtube.com/watch?v=-heFBahhcMQ&list=PLcy0gKHd07NUYlup5f9POdK9GDua8ecSm

https://www.drmyhill.co.uk/wiki/Main_Page

https://naturalhealthworldwide.com/ (list of professional helpers)

Her solution seems to be ketogenic diet, but I tried and I have problems, I need more help with this.
I can't do everything she advices. Be careful if you try. Be very informed. But she may be right about the causes. I read her book. It was worthed. Then I learned a lot from Dr Eric Berg videos about ketogenic diet, problems and tips:
https://www.youtube.com/channel/UC3w193M5tYPJqF0Hi-7U-2g
Still need to retry keto, but i'm recovering from a wisdom tooth extraction,
that had a hidden cyst that the dentist could not see (visually) but he measured a problem (Lecher antenna) and when I got it extracted it was revealed.
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Re: List of possible causes and solutions for EHS:

casper
In reply to this post by RagnarLothBrook
Ragnar did you remove your mercury fillings or do you still have them?

I have read many stories over and over on the net how several chronic health problems only resolved once the mercury fillings were removed. Before that, no amount of hocus pocus would help much. After removal, things started to turn.

Personally I never had these fillings, instead my EM-sensitivity launched after consuming a contaminated mineral supplement. Here I believe various heavy-metals were involved, which triggered my symptoms overnight. So yes, I also believe metals to be involved in this process, however it is probably not the only reason, and in reality you also need some other underlying condition(s), like the ones on your list. But getting contaminated by metals does not help for sure.

If you still have your fillings, I would seriously consider getting them removed by a biological dentist. They know how to do it properly. You need to have kofferdam protection (rubber dam) , high suction around the drill, and separate air supply for breathing.




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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
In reply to this post by Merializer
Yes reducing exposure is the best solution.  It's a goal for me but I'm unable to completely remove myself from being on my laptop and phone to do research and communicate.  Although I've found ways to reduce exposure like using a 15ft usb cable and tethering with my phone. also using smaller laptops for less emf's.  and how Ive stopped the phone and moved to an LTE modem so I won't have to manually turn on and off the phone and get exposed. Cell tower signal is the worse for me. Wifi is less depending on connection.  My goal is to improve enough where I can be out and about and not feel the nerve pain and numbing and the rest of the symptoms.

Ive been dealing with constipation and gut isses the past couple of years.. what really helped was reading "Finer Menace" by Konstantin Monastyrsky. Lots of good info in there that helped me.  All the fiber I was taking like psyllium was making me worse.. I cut out psyllium and reduced my fiber added probiotics and more good fat to increase motility and I was regular for a bit until recently as may be having SIBO from my DMSA use for mercury detox as it can lead to yeast overgrowth. And the sugary shakes I tried out and that likely blew everything up.. my tooth got an infection and the whole body inflammation made life miserable for the past few weeks.  

Started doing more research and reading Healthy Gut Zone by Dr. Colbert. Lots of good info as well and trying some things.. last night seems like I'm heading towards better than last night. So hopefullly the peak is over and I can figure this out.  

Thanks.. will check out those links.
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
In reply to this post by casper
I've got them all removed last summer and have done about 14 rounds of the Andy Cutler Mercury Detox protocol, I believe is the safest method.  I feel like I have improved but my increased EMF sensitivity sort of trumps everything and is the main indicator that would tell me I'm improving.  I believe doing 4 rounds in a month recently with DMSA and alpha lipoic acid flared up my yeast and gut issues as DMSA is known to  cause yeast overgrowth.
One thing I notice is that I have less volume of urine and less of an urge to half way during the night.  I wake up to a full bladder in the middle of night to urinate since I was probably 8 years old.  Just before my current gut issue I slept through the night without the urge to urinate for 4-5 consecutive nights in a row. Unheard of! as it only happens one night maybe 1 or twice a year.   Possibly cutting down sugar and other diet changes has helped that.   I can't do sugar any ways and have cut most of it out many years ago when soda suddenly started to make me feel awful soon after a meal.  I got weak and cheated recently and am paying the price. There's probably other symptoms that have improved that I can't remember right now.

You can do a hair test "Hair Toxic & Essential Elements-Doctor's Data Kit" from Directlabs.com without a doctors note. $112 i think, may have gone up a few bucks.  There's may be two hair test with similar name and price but you want the the one i mentioned.

Interesting enough my sensitivity increased with my silver increase of which I did not know where I was getting exposed from for the past couple of years...   it showed extremely high silver , by last summer it was 10 times the max range from the green zone a couple years ago. I thought it was from my silver fillings but once I got them all removed and tested a few months later it increased even more.   Finally I think I figured it out as my last test has dropped back close to the green, surprisingly.. Silver is the most conductive metal and I believe it's absorbing more of the RF and EMF energy.  I realized the RF blocking beanie and and sweater and blanket i was using are all silver coated particles and fall off and leach in from sweat easily as my beanie stopped blocking signal as I sweated during the summer.  And my sweater that I wore everyday probably flaked and I was breathing it in.  
The hair test is said to only measure the last three months of exposure so although my readings are lower on my hair test.. I still believe I am silver toxic and still more sensitive than anyone I know.  check out this video on how EMF energy is absorbed through these diode antennas.  I theorize the silver and other conductive metals absorb these energy.  Say it lines up in our blood vessels and acts like an antenna absorbing the energy and causing symptoms.  People are sensitive to different frequencies - maybe how long the metals line up in us and the location has something to do with it as the length of the antenna picks up certain frequencies better.
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
In reply to this post by Merializer
I just installed the f.lux for my laptop, thanks! I have been using the nighshift mode on my iphone 24/7 for over a year now. Never occur to me to use it on my laptop.

Is there another post on how you build your "separators", what materials are used, dimensions and installation?  Thanks.
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Re: List of possible causes and solutions for EHS:

Merializer
Yeah I like to try more heavy metal detox myself, but over here most practitioners seem against it,
they say the gut needs to be fixed first, but it doesn't get fixed. But maybe the heavy metals are the cause of the gut not getting fixed, or it's lyme in biofilm or something (or both) who knows, I don't know.

I have videos from the stuff I build,
with all the info you need in pdf files and comments below the videos
and pictures on flickr.
https://www.youtube.com/c/Merializer/videos
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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
On March 26, Merializer [via ES] <[hidden email]> wrote:
> Yeah I like to try more heavy metal detox myself, but over here most
> practitioners seem against it,

Well, there really seems to be no truly "safe" way to go about heavy metal detox.  I think I've tried over a dozen ways, and they all have problems.  Even the supposedly "safe" Cutler protocol made me worse in the long run.  Some have better luck with Boyd Haley's OSR/Emeramide, but I found that caused me big enough problems to discontinue it as well.  I have had better luck with things not generally recommended or actively advised against (e.g. NDF from BioRay, Clean Chlorella).

Marc
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Re: List of possible causes and solutions for EHS:

Merializer
Yeah... since you said it took you years,
maybe I should start a long detox with what I can tolerate.
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Re: List of possible causes and solutions for EHS:

Marc Martin
Administrator
Yes, it took me 3 years to go from completely out of work to working full-time in an office.  Then at that point things became less critical, and not really all that focused on it, although I can tell that I still have a metals problem, as I still can't tolerate any of the recommended protocols.
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
This post was updated on .
In reply to this post by Merializer
From my personal experience and research, I now believe mercury is the root cause of most , if not all of my issues.   Mercury/heavy metals weakens immune system in many ways and from there mold/bacteria flourishes and basically opens the flood gates to everything else.   Any Cutler says remove the mercury and treat your symptoms along the way. The removing mercury will allow your body to be able to heal itself again and that otherwise the health issues will persist.
One thing I know for sure is that I am an EHS sufferer.  The cause is I am not 100% sure but I've boiled it down to Mercury/heavy metals, Bacteria/virus overgrowth releasing toxin in EMF exposure, Myelin shealth deterioration or all of the above.

 What causes me to think its bacteria/virus is that my sensitivity fluctuates... about 2 years ago I reduced my exposure, went on the Grant Gennereux no vitamin A diet, exercised and did saunas, and I got well enough to go back to my old life for the summer and then stopped the diet and sauna with more exposure , I got really sensitive again and still dealing with it as the gym/sauna has been closed for a year now until recently but still no sauna. Ajnother indicator is that even a tiny bit of sugar, causes my gums to bleed and get infected and my whole body seems to go haywire indicating a bacteria issue as they feed on sugar. Indicating a weak immune system of which mercury/vaccines/tetna shots containing mercury,  is the cause.

If you do decide to heavy metal detox, please follow the Andy Cutler Protocol first, because most of the others are dangerous and causes heavy metals to redistribute to other sensitive organs.  Slow low dose chelation timed on half life of chelator is the safest...Note that there are many things we eat that moves mercury/metals around , foods that are high in thiols. Like cilantro, garlic, onions and much more.
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Re: List of possible causes and solutions for EHS:

RagnarLothBrook
In reply to this post by Marc Martin
Can you describe your experience with the Andy Cutler Protocol as I have done around a dozens rounds so far.  
How many rounds did you finish? And which chelator and amount did you start and end with?
What were your symptoms that got worse on the protocol?

There are some things in the protocol that are questionable. There is a FB group that addresses the issues with the protocol and tries to warn people about them and tweak it better.  
1. Is the high amount of vitamin C recommended daily.  Synthetic ascorbic acid alone is bad for the body according to Dr. Berg youtube videos.  Second is that vitamin C increases iron absorption and iron overload damages organs and leads to death. The mercury chelator alpha lipoic acid is some studies says it reduces iron as well from brains of mice... so the protocol could be causing and curing at the same time.   There is a likely hood the protocol has been hijacked by the main ACC FB group admin over the years, and now that Andy has passed.
2. The other recommended vitamin in high doses is vitamin A, which in Grant Gennereux's research and free e-books suspect it as the source of most all diseases, of which most are all diseases of epithelial tissues that are found not only in skin, gut/lung lining but in organ skin of which he argues are vitamin A toxicity damages and causes apoptosis appearing as rashes/acne on the skin, and inflammation in organs and eventually  organ failure or cancer.   Vitamin A toxicity causes epithelial cells lining veins and blood vessel leads to stiff arteries , build up of calcium/calcification and cholesteral and heart disease.
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