Informal poll: How debilitating is your ES?

We now seem to have over 200 members in this group, a decent size sample. I'm curious if
we might be able to spot geographical/demographical patterns in relation toseverity of
ES. At any rate a "snapshot" in time of the group may be interesting. Anyone care to
respond briefly to the following informal poll?

1. What is your geographical location? (city/country)
2. How severe are your ES symptoms? I.e. do you consider your ES merely irritating, or has
it seriously impacted your productivity and quality of life?

Optional:
3. What factors do you identify as contributing to your ES? (e.g. heavy metal toxicity,
proximity to cell phone towers, heavy metal toxicity)
4. What other serious health issues are you experiencing besides ES? (direct relationship to
ES need not be established)

--

Since I wrote the questions I may as well go first. Here are my answers.
1. Geographical location: San Francisco, USA
2. Severity of symptoms: My own are mild to moderate, variable. But my husband's ES is
very severe, so our for both of us this illness has had a devastating impact.
3. Contributing factors: Heavy metal toxicity, heavy computer use, and a high EMF living
environment. For my husband, a root canal plus heavy computer use and a high EMF living
environment.
4. Other health issues: Breast tumors, digestive problems. For my husband, extreme
digestive issues, CFS, MCS.

~ Cara

Here's mine:

1. Geographical location: Seattle Washington USA
2. Severity of symptoms: Severe 5 years ago. Not too bad these days
3. Contributing factors: Mercury poisoning (dental fillings, fish),
excessive computer use.
4. Other health issues: chronic fatigue, chemical sensitivities
(again, severe 5 years ago, not too bad these days)

Marc

Hi, Cara,

When Chris asked about the prevalence of ESens ppl in Britain, I got to wondering the same thing and thought it would be helpful to identify spots that aren't "hot" in a country by just looking at the reverse--where all the ESens ppl are. I know that some of you have moved to accommodate your condition, but still there is probably a correlation to some extent.

I, btw, do not consider myself ES. I have alot of health problems in common with all of you and I fry my computer and watches regularly, but that doesn't seem to be the same thing that you all are experiencing. I am here basically because I got interested in the discussion and you all discuss things I am researching myself fairly regularly.

I am in western Pennsylvania, USA, btw--I was the first in my town to get internet access and am still only 1 of 3 in town with it. DSL just came thru town and that wouldn't have happened if we didn't happen to be in line with two larger metro areas. We live in a valley where mobile phones do not work at all and I still can not get radio without getting it thru the TV cable (except for a couple lame local stations--do I really want to know the agricultural forecast? ;) )

Diane aka Evie

Cara <[hidden email]> wrote:
We now seem to have over 200 members in this group, a decent size sample. I'm curious if
we might be able to spot geographical/demographical patterns in relation to severity of
ES. At any rate a "snapshot" in time of the group may be interesting. Anyone care to
respond briefly to the following informal poll?

1. What is your geographical location? (city/country)
2. How severe are your ES symptoms? I.e. do you consider your ES merely irritating, or has
it seriously impacted your productivity and quality of life?

Optional:
3. What factors do you identify as contributing to your ES? (e.g. heavy metal toxicity,
proximity to cell phone towers, heavy metal toxicity)
4. What other serious health issues are you experiencing besides ES? (direct relationship to
ES need not be established)

--

Since I wrote the questions I may as well go first. Here are my answers.
1. Geographical location: San Francisco, USA
2. Severity of symptoms: My own are mild to moderate, variable. But my husband's ES is
very severe, so our for both of us this illness has had a devastating impact.
3. Contributing factors: Heavy metal toxicity, heavy computer use, and a high EMF living
environment. For my husband, a root canal plus heavy computer use and a high EMF living
environment.
4. Other health issues: Breast tumors, digestive problems. For my husband, extreme
digestive issues, CFS, MCS.

~ Cara






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[Non-text portions of this message have been removed]

Ellen: 1.
Costa Rica, (holland until ten years ago)
2. How severe are your ES symptoms? I.e. do you consider your ES merely irritating, or has
it seriously impacted your productivity and quality of life?
Started off very severe 2 1/2 years ago, and seemingly instantaneous (one month of mayhem), quickly reduced to almost no symptoms. EEhh productivity in what sense?? have kinda been hiding in the jungle, where it hit me and i went back to recover for the last years, but was doing that anyway)
Optional:
3. What factors do you identify as contributing to your ES? (e.g. heavy metal toxicity,
proximity to cell phone towers, heavy metal toxicity)
heavy metal toxicity (mercury), symptoms started severe about the day the cell-tower was turned on after an extended stay in the city

4. What other serious health issues are you experiencing besides ES? (direct relationship to
ES need not be established)

never ill (never missed a day in school univ work because of health). still maybe chronic fatigue untill i moved to CR and maybe the onset of ES with fluorescent lights, tired at compu. Once when young earaches and pricked.. always felt better in the summer, higher energy..

There is more stuff that i feel contributed outside of this..

Wonder why so many Swedes have Es has that been established?? There are so little of them.

(oh is there a way someone can put this in the poll section??)
Love
--



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[Non-text portions of this message have been removed]

Here are my replies on behalf of Sue!




1. What is your geographical location? (city/country)

Abingdon, Oxfordshire, UK. Have also tried Wales, South coast of England.
2. How severe are your ES symptoms? I.e. do you consider your ES merely
irritating, or has
it seriously impacted your productivity and quality of life?

Greatly impacts Sue's (and my) quality of life - she cannot work, cannot use
computers, has to avoid strong sunlight or low (autumn) sun, can't enter
shops/houses/offices/pubs with bright lights, can't travel by public
transport or modern cars, has to avoid mobile/cordless phone users and
masts.

Optional:
3. What factors do you identify as contributing to your ES? (e.g. heavy
metal toxicity,
proximity to cell phone towers, heavy metal toxicity)

Weakened immune system due (we think) to: stress/fear, leaky gut (from
antibiotic-induced candida?), non-functioning liver detoxification pathways,
SSRI antidepressants, amalgam removal without proper protocol and possibly
cavitations. Actual trigger for ES was testing with Oberon diagnostic
machine at 4 GHz. Reacts badly in our home (but no detection of unusually
high EMF levels by electric/magnetic field meters or microwave acousticom
meter).
4. What other serious health issues are you experiencing besides ES? (direct
relationship to ES need not be established)
Had ME/chronic fatigue 6 years ago but was cured. Stress-induced depression
for last 4 years. Multiple chemical sensitivity for just over 1 year -
worsened by amalgam removal, began 2 months before ES was triggered.
--
Cheers, Ian





[Non-text portions of this message have been removed]

One other point. In Sue's case it seems to be local effects, not regional,
which are most important. She is OK in woodland or by lakes within a mile
of town/industry, and is currently OK in a detached bungalow on the edge of
a city. But direct line-of-sight to mobile phone masts give her problems,
as do the fields from modern street lights (high-pressure sodium, whiteish
light). Older yellow low-pressure sodium lights are OK.



Ian





[Non-text portions of this message have been removed]

1. geographical location: Brighton, England

2. Severity of ES. Cannot be close to mobile phones (in use) for
longer than a few minutes, DECT phones - about 20 mins, Masts,
depends on proximity, usually no longer than an hour in town centre.
Have to plan my routes in advance/only sit outside in certain
places. If i don't i get SEVERE migraines. BUT can watch TV all
evening, use computer for an hour or two each day, use phone, even
occasionally listen to MP3 player through headphones. Increasing
light sensitivity. Switch electricity off at night. Sleep under a
net. If neighbour installs Dect, wld have to move out within HOURS.  
Work 8 hours a week, 4 of those in an office...lots of fluros, not
much wireless rays. Often feel better inside shops (even with all
the lights) than out on the street.

3. Contributing factors to ES...
i) inherent weakness. Mum smoked through her pregnancy with me, hence
born underweight and had problems feeding, psoriasis sufferer since
age of 3 triggered by eating deadly nightshade(Psoriasis is
associated with possible gut/liver weakness - had a coated tongue as
long as i can remember).
ii) taking toxic chinese herb for 18 months-->dramatic deterioration
in health.
iii) RADIO FREQUENCY MICROWAVE RADIATION. If this was not around I
would be living a relatively normal life now, and would have made a
much fuller recovery from the chinese stuff (though possibly wld
never have returned to FT work). I do not believe other sources of
EMFs would have impacted upon me to the same extent. Likewise, even
if i hadn't taken the herb, i would definitely have become ill from
RF, but a few years further down the line.

4. Other illnesses: previous to taking the chinese herb...psoriasis,
though like i said, this does suggest a weakened system generally.

Possibly certain psychological 'weaknesses', self esteem problems,
career & relationship frustrations, glass being half empty rather
than half full outlook, reliance on alcohol/nicotine/ecstatic
experience (dance/relationships) to get out of myself. But certainly
not OVERLY excessive, compared to todays standards. It is the
psychological factors that make the strict diet option so
challenging: greater need for psychological crutch of comfort food
over the experience of plain, raw life experience.

--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> We now seem to have over 200 members in this group, a decent size
sample. I'm curious if
> we might be able to spot geographical/demographical patterns in
relation to severity of
> ES. At any rate a "snapshot" in time of the group may be
interesting. Anyone care to
> respond briefly to the following informal poll?
>
> 1. What is your geographical location? (city/country)
> 2. How severe are your ES symptoms? I.e. do you consider your ES
merely irritating, or has
> it seriously impacted your productivity and quality of life?
>
> Optional:
> 3. What factors do you identify as contributing to your ES? (e.g.
heavy metal toxicity,
> proximity to cell phone towers, heavy metal toxicity)
> 4. What other serious health issues are you experiencing besides
ES? (direct relationship to
> ES need not be established)
>
> --
>
> Since I wrote the questions I may as well go first. Here are my
answers.
> 1. Geographical location: San Francisco, USA
> 2. Severity of symptoms: My own are mild to moderate, variable. But
my husband's ES is
> very severe, so our for both of us this illness has had a
devastating impact.
> 3. Contributing factors: Heavy metal toxicity, heavy computer use,
and a high EMF living
> environment. For my husband, a root canal plus heavy computer use
and a high EMF living
> environment.
> 4. Other health issues: Breast tumors, digestive problems. For my
husband, extreme
> digestive issues, CFS, MCS.
>
> ~ Cara
>
--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> We now seem to have over 200 members in this group, a decent size
sample. I'm curious if
> we might be able to spot geographical/demographical patterns in
relation to severity of
> ES. At any rate a "snapshot" in time of the group may be
interesting. Anyone care to
> respond briefly to the following informal poll?
>
> 1. What is your geographical location? (city/country)
> 2. How severe are your ES symptoms? I.e. do you consider your ES
merely irritating, or has
> it seriously impacted your productivity and quality of life?
>
> Optional:
> 3. What factors do you identify as contributing to your ES? (e.g.
heavy metal toxicity,
> proximity to cell phone towers, heavy metal toxicity)
> 4. What other serious health issues are you experiencing besides
ES? (direct relationship to
> ES need not be established)
>
> --
>
> Since I wrote the questions I may as well go first. Here are my
answers.
> 1. Geographical location: San Francisco, USA
> 2. Severity of symptoms: My own are mild to moderate, variable. But
my husband's ES is
> very severe, so our for both of us this illness has had a
devastating impact.
> 3. Contributing factors: Heavy metal toxicity, heavy computer use,
and a high EMF living
> environment. For my husband, a root canal plus heavy computer use
and a high EMF living
> environment.
> 4. Other health issues: Breast tumors, digestive problems. For my
husband, extreme
> digestive issues, CFS, MCS.
>
> ~ Cara
>

I would like to make a point.

There are several sources of electrosmog.

One, that is common overlooked is the bed.
The bed should be completely of wood.
No metal parts.
No mattresses with metal springs inside.
No metal latches to hold the wood together.
No metal angular profiles to support the wooden mattress carrier.

I find very often values of 4.500 nT static magnetic fields there.
Those can make you also electrosensible !!!!
Add to that the high frequency fields of the mobile phones, and you are
becoming a wreck.

Greetings,
Charles Claessens
member Verband Baubiologie
www.milieuziektes.nl
www.milieuziektes.be
www.hetbitje.nl
checked by Norton Antivirus



----- Original Message -----
From: "canaryyuk" <[hidden email]>
To: <[hidden email]>
Sent: Thursday, December 01, 2005 20:31
Subject: [eSens] Re: Informal poll: How debilitating is your ES?

Just want to make clear that apart from brief experimentation in
early 20s i did NOT take drugs. But i have always had an acute
sensitivity to and love of music. Music itself was literally a drug
and would easily induce mind alteration/ecstacy. I was also
generally a very sensuous person which is why i loved dancing, it was
my creative outlet.

Also, possibly of interest. I practiced transcendental meditation
from the age of 10. I beleive this might have been the reason i was
so acutely sensitive and cld flip into a meditative/ecstatic state so
easily. I had not meditated for a few years when i became ill.



--- In [hidden email], "canaryyuk" <canary65@t...> wrote:
>
> 1. geographical location: Brighton, England
>
> 2. Severity of ES. Cannot be close to mobile phones (in use) for
> longer than a few minutes, DECT phones - about 20 mins, Masts,
> depends on proximity, usually no longer than an hour in town
centre.
> Have to plan my routes in advance/only sit outside in certain
> places. If i don't i get SEVERE migraines. BUT can watch TV all
> evening, use computer for an hour or two each day, use phone, even
> occasionally listen to MP3 player through headphones. Increasing
> light sensitivity. Switch electricity off at night. Sleep under a
> net. If neighbour installs Dect, wld have to move out within
HOURS.  
> Work 8 hours a week, 4 of those in an office...lots of fluros, not
> much wireless rays. Often feel better inside shops (even with all
> the lights) than out on the street.
>
> 3. Contributing factors to ES...
> i) inherent weakness. Mum smoked through her pregnancy with me,
hence
> born underweight and had problems feeding, psoriasis sufferer since
> age of 3 triggered by eating deadly nightshade(Psoriasis is
> associated with possible gut/liver weakness - had a coated tongue
as
> long as i can remember).
> ii) taking toxic chinese herb for 18 months-->dramatic
deterioration herb...psoriasis,
> though like i said, this does suggest a weakened system generally.
>
> Possibly certain psychological 'weaknesses', self esteem problems,
> career & relationship frustrations, glass being half empty rather
> than half full outlook, reliance on alcohol/nicotine/ecstatic
> experience (dance/relationships) to get out of myself. But
certainly But
> my husband's ES is
> > very severe, so our for both of us this illness has had a
> devastating impact.
> > 3. Contributing factors: Heavy metal toxicity, heavy computer
use, But
> my husband's ES is
> > very severe, so our for both of us this illness has had a
> devastating impact.
> > 3. Contributing factors: Heavy metal toxicity, heavy computer
use,

> 1. What is your geographical location? (city/country)
> south central Pennsylvania, small town

> 2. How severe are your ES symptoms? I.e. do you consider your ES
> merely irritating, or has
> it seriously impacted your productivity and quality of life?
It is fairly new for me and I'm sorting out which tactics to protect
myself and keep it from progressing. My life has been seriously
altered by MCS for the last 3 and a half years. However during that
time, I could use the computer, wireless items, etc. until about 6
weeks ago when I started having sensations in my brain and a scrambling
of thoughts plus extreme irritability around portable phones and
computer.
>
> Optional:
> 3. What factors do you identify as contributing to your ES? (e.g.
> heavy metal toxicity,
> proximity to cell phone towers, heavy metal toxicity)
I bought a cell phone. Very bad idea. I also live very near a cell
phone tower.

> 4. What other serious health issues are you experiencing besides ES?
> (direct relationship to
> ES need not be established)
Multiple Chemical Sensitivity due to prolonged toxic mold exposure.
>
> --
>


[Non-text portions of this message have been removed]

Hi,

I know this is probably the best. Have always had wood beds for the past ten years.

However: during my recovery in Holland I did sleep on a bed that was metal framed plus had all metal under the mattress (coils where it rested on)/ Did intuit towards putting this roofing tape that has a metallic side and a rubbery side under some of the legs with the metal down/ So i did go from superbad to all right on a metal bed. Not saying it is better, i use wood here in CR, just that it is possible to recover on one. Was in a neighborhood where only the kids had cellphones (the number one thing that gave me pain, other people cellphones in very extreme way, up to 100 meters i could feel them) and only the holiday week i worsened.

Going by what made me sensitive back then, it seemed the bedding was important, especially pillows, had a feather one that i could support, the other ones i used to shield but within a matter of about an hour (or less) the energy (that seemed to attack me) seemed to "come out of it again" making me worse./

What i have not mentioned before, i used a filled rubber waterbottle that brought relief. Anywhere where the attack (for lack of a better word) seemed to be at that moment. Ending up by putting it under/on my head mainly.

Prayer, with hands over ears (slightly bending them), cottonballs in ears.

Cotton still seems to enhance prayer, as well as feather pillow and salt (can be cristals or a bag of seasalt.. Basically any material that tachyonizes well, also seems to work well for me untachyonized/ Of course i do use tach.materials with them, probably enhancing the properties of these materials.

Love and Light

charles <[hidden email]> wrote:
I would like to make a point.

There are several sources of electrosmog.

One, that is common overlooked is the bed.
The bed should be completely of wood.
No metal parts.
No mattresses with metal springs inside.
No metal latches to hold the wood together.
No metal angular profiles to support the wooden mattress carrier.

I find very often values of 4.500 nT static magnetic fields there.
Those can make you also electrosensible !!!!
Add to that the high frequency fields of the mobile phones, and you are
becoming a wreck.

Greetings,
Charles Claessens
member Verband Baubiologie
www.milieuziektes.nl
www.milieuziektes.be
www.hetbitje.nl
checked by Norton Antivirus



----- Original Message -----
From: "canaryyuk" <[hidden email]>
To: <[hidden email]>
Sent: Thursday, December 01, 2005 20:31
Subject: [eSens] Re: Informal poll: How debilitating is your ES?





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[Non-text portions of this message have been removed]

A quick aside on psoriasis. For some reason, UK and some other national
organizations on psoriasis seem very reluctant to accept a possible link
with diet or gut function. However, our experience has been that Sue's
psoriasis flared up noticeably when she ate sugar and some other foods, and
improved sharply after she took slippery elm to try to heal the gut lining.
Psoriasis is often noted to vary considerably day-to-day or week-to-week;
stress is often implicated, but it seems to me that food reactions would
also be a likely explanation for this in some cases.



Ian







[Non-text portions of this message have been removed]

Hi, Ian,

Forgive me if you have already mentioned Sue's being checked for celiac disease at one time or other, but so many of her symptoms are symptoms I had (I am celiac). Also, some celiacs have a skin condition called dermatitis herpetiformis (DH). It is not unusual for doctors here in the States to misdx DH for psoriasis. (It is not unusual for docs here in the States to misdx celiac disease entirely. I was unable to function normally all my life due to celiac disease and was not dxed till the age of 49.) DH is caused by gluten intolerance and is often found in those with celiac (gluten induced) gut damage. DH also does not respond to many medications. It responds to Dapsone. Celiac disease is genetic. I believe you can have DH also without the gut damage, if you have the celiac genes. Being from England you most likely know about celiac disease, however, here in the States, celiac disease is just beginning to get press coverage.

Diane aka Evie



Ian Kemp <[hidden email]> wrote:
A quick aside on psoriasis. For some reason, UK and some other national
organizations on psoriasis seem very reluctant to accept a possible link
with diet or gut function. However, our experience has been that Sue's
psoriasis flared up noticeably when she ate sugar and some other foods, and
improved sharply after she took slippery elm to try to heal the gut lining.
Psoriasis is often noted to vary considerably day-to-day or week-to-week;
stress is often implicated, but it seems to me that food reactions would
also be a likely explanation for this in some cases.



Ian







[Non-text portions of this message have been removed]



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[Non-text portions of this message have been removed]

Thanks Evie. I'm pretty sure celiac disease has been checked for, directly
or indirectly, in the battery of tests we've had done over the years
(including gluten intolerance, which came up negative). Also Sue had no
problems at all till the last 6 years, so would that rule out some
long-standing conditions due to genetics? (Although certain liver detox
pathways weaknesses do appear to be genetic but hadn't manifested themselves
until now).

Ian



_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 03 December 2005 07:22
To: [hidden email]
Subject: RE: [eSens] Re: Informal poll / Psoriasis



Hi, Ian,

Forgive me if you have already mentioned Sue's being checked for celiac
disease at one time or other, but so many of her symptoms are symptoms I had
(I am celiac). Also, some celiacs have a skin condition called dermatitis
herpetiformis (DH). It is not unusual for doctors here in the States to
misdx DH for psoriasis. (It is not unusual for docs here in the States to
misdx celiac disease entirely. I was unable to function normally all my
life due to celiac disease and was not dxed till the age of 49.) DH is
caused by gluten intolerance and is often found in those with celiac (gluten
induced) gut damage. DH also does not respond to many medications. It
responds to Dapsone. Celiac disease is genetic. I believe you can have DH
also without the gut damage, if you have the celiac genes. Being from
England you most likely know about celiac disease, however, here in the
States, celiac disease is just beginning to get pr ess coverage.

Diane aka Evie



Ian Kemp <[hidden email]> wrote:
A quick aside on psoriasis. For some reason, UK and some other national
organizations on psoriasis seem very reluctant to accept a possible link
with diet or gut function. However, our experience has been that Sue's
psoriasis flared up noticeably when she ate sugar and some other foods, and
improved sharply after she took slippery elm to try to heal the gut lining.
Psoriasis is often noted to vary considerably day-to-day or week-to-week;
stress is often implicated, but it seems to me that food reactions would
also be a likely explanation for this in some cases.



Ian







[Non-text portions of this message have been removed]



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[Non-text portions of this message have been removed]




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Hi, Ian,

Celiac disease, tho genetic, can manifest at any age. There are a couple of theories on this. Most feel that celiac d. needs a trigger. Often the trigger is an infection or other illness, btw. Others feel that celiac d. remits. In other words, many have celiac d. in childhood, then it remits and reappears at a later age. (This group thinks children get celiac at birth and remit at puberty or around the age of 11). I had celiac d. from infancy, btw, but it did improve substantially around the age of 11 and came back with a vengence at the age of 18. Many celiacs, tho, report getting it after their 40s and do not remember having problems as children.

About a third of celiacs do not have any discernable symptoms at all (save for gut damage on biopsy). Another third have classic celiac symptoms (digestive, diarrhea...). Still another third have symptoms which, until the last decade or so, were not known to be associated with celiac disease. I fell into that category and so it took 48 years for doctors to dx me. I had the digestive symptoms, plus gluten ataxia, neuralgias, joint and muscle pains, brain fog and concentration difficulties, extreme fatigue (was bedbound for over a decade and for 20+ years before that could barely function normally), liver dysfunction (was dxed with cirrhosis at one point), multiple hormonal/glandular irregularities +/or dysfunctions, pre-diabetic hypoglycemia caused by pancreatitis as a result of a eating too much gluten at a pajama party at a friend's house.....

As a child I had the digestive symptoms and that, over time, evolved into MCS, TMJ, CFS (ME), FMS, IBS, RLS, and multiple food intolerances, etc. I was like the rolling stone gathering moss, except I gathered syndromes. I was tossed into the wastebin of uncurable syndromes by my doctors and left to rot. I nearly died 3 times of various anemias and was finally dxed with a rare cancer and told I had up to 5 years to live. It was this misdx which finally led me to a gastroenterologist who actually recognised what was wrong with me--celiac disease.

Celiac disease is one of those diseases that requires a doctor with an open mind to dx. In the States, up until the past few years, doctors were taught in med school that the likelihood that they would ever meet a case of celiac d. was next to nil. When a celiac researcher did random genetic testing of blood samples from a US blood bank about 5 years ago, he found that the celiac genes present in about 1 in every 150 ppl here in the States. That should translate to a disease which is more prevalent than MS (even with needing a trigger to initiate the disease). Doctors have slowly began to take notice. They are still bummer than stumps, tho. Many do not take enough biopsy samples to get a positive dx. Others rely on blood tests to dx, but those are not 100% accurate. Others still have no clue that if a person is not eating gluten when they are biopsied, the biopsy will come back negative even tho the person is celiac. And many will not do the biopsies to begin with because
they have a bias against ppl with multiple syndromes.

Hope this has given you an overview that will help you evaluate Sue's likelihood of having fallen thru the celiac cracks or not,
Mia

Ian Kemp <[hidden email]> wrote:
Thanks Evie. I'm pretty sure celiac disease has been checked for, directly
or indirectly, in the battery of tests we've had done over the years
(including gluten intolerance, which came up negative). Also Sue had no
problems at all till the last 6 years, so would that rule out some
long-standing conditions due to genetics? (Although certain liver detox
pathways weaknesses do appear to be genetic but hadn't manifested themselves
until now).

Ian



_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 03 December 2005 07:22
To: [hidden email]
Subject: RE: [eSens] Re: Informal poll / Psoriasis



Hi, Ian,

Forgive me if you have already mentioned Sue's being checked for celiac
disease at one time or other, but so many of her symptoms are symptoms I had
(I am celiac). Also, some celiacs have a skin condition called dermatitis
herpetiformis (DH). It is not unusual for doctors here in the States to
misdx DH for psoriasis. (It is not unusual for docs here in the States to
misdx celiac disease entirely. I was unable to function normally all my
life due to celiac disease and was not dxed till the age of 49.) DH is
caused by gluten intolerance and is often found in those with celiac (gluten
induced) gut damage. DH also does not respond to many medications. It
responds to Dapsone. Celiac disease is genetic. I believe you can have DH
also without the gut damage, if you have the celiac genes. Being from
England you most likely know about celiac disease, however, here in the
States, celiac disease is just beginning to get pr ess coverage.

Diane aka Evie



Ian Kemp <[hidden email]> wrote:
A quick aside on psoriasis. For some reason, UK and some other national
organizations on psoriasis seem very reluctant to accept a possible link
with diet or gut function. However, our experience has been that Sue's
psoriasis flared up noticeably when she ate sugar and some other foods, and
improved sharply after she took slippery elm to try to heal the gut lining.
Psoriasis is often noted to vary considerably day-to-day or week-to-week;
stress is often implicated, but it seems to me that food reactions would
also be a likely explanation for this in some cases.



Ian







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[Non-text portions of this message have been removed]

1. I live in the north Rocky Mountains, US.

2. That's hard for me to say. If I took away all my other problems,
it would still be a significant problem I think, but I don't know to
what degree. It is debilitating, to where when I'm extra sensitive,
even going through those scanners they have at the doorway of all
stores bother me. Or even the eye that opens the doors, before they
had the scanners. Other times it's not so bad. Productivity and
quality especially, are affected.

I think I'm fortunate in where I live. If I was in city, or certain
towns, I'm sure I'd be significantly worse, like some of you are.

3. The two things I know contributed to this becoming a problem, is
exposure to insecticides as a child, and then when we moved into a
place that was bug and flea infested. Even the tiniest amount
affects me now.

The second was a massive overdose of x-ray radiation in emergency
after a car accident.

4. Where should I start, there's so many? Asthma, minor emphysema,
CFIDS, multiple food and chemical allergies, low thyroid, migraines,
hormone imbalances, cancer. Guess that's the biggest of it. Being
that many overlap, and some bring on the symptoms of other
conditions, i.e., allergies= arthritis flaring up, etc., it's hard to
say. Yes, I'm sure metal fillings are also a contributor. Just having
one large one removed, resulted in a "noticeable feel better."

~ Snoshoe



--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> We now seem to have over 200 members in this group, a decent size
sample. I'm curious if
> we might be able to spot geographical/demographical patterns in
relation to severity of
> ES. At any rate a "snapshot" in time of the group may be
interesting. Anyone care to
> respond briefly to the following informal poll?
>
> 1. What is your geographical location? (city/country)
> 2. How severe are your ES symptoms? I.e. do you consider your ES
merely irritating, or has
> it seriously impacted your productivity and quality of life?
>
> Optional:
> 3. What factors do you identify as contributing to your ES? (e.g.
heavy metal toxicity,
> proximity to cell phone towers, heavy metal toxicity)
> 4. What other serious health issues are you experiencing besides
ES? (direct relationship to
> ES need not be established)
>
> --

Very interesting to hear about insecticides as an initial cause. One UK
case study was of a woman who worked with organophosphates (pesticide /
sheep dip) for some years and then developed ES. Yet again, it was
accompanied by multiple chemical sensitivities and appeared to show immune
system breakdown. This seems to be a common theme.

These case histories are fascinating, thanks for the original suggestion and
to all those who have contributed. Please keep them coming!

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
snoshoe_2
Sent: 10 December 2005 00:58
To: [hidden email]
Subject: [eSens] Re: Informal poll: How debilitating is your ES?



1. I live in the north Rocky Mountains, US.

2. That's hard for me to say. If I took away all my other problems,
it would still be a significant problem I think, but I don't know to
what degree. It is debilitating, to where when I'm extra sensitive,
even going through those scanners they have at the doorway of all
stores bother me. Or even the eye that opens the doors, before they
had the scanners. Other times it's not so bad. Productivity and
quality especially, are affected.

I think I'm fortunate in where I live. If I was in city, or certain
towns, I'm sure I'd be significantly worse, like some of you are.

3. The two things I know contributed to this becoming a problem, is
exposure to insecticides as a child, and then when we moved into a
place that was bug and flea infested. Even the tiniest amount
affects me now.

The second was a massive overdose of x-ray radiation in emergency
after a car accident.

4. Where should I start, there's so many? Asthma, minor emphysema,
CFIDS, multiple food and chemical allergies, low thyroid, migraines,
hormone imbalances, cancer. Guess that's the biggest of it. Being
that many overlap, and some bring on the symptoms of other
conditions, i.e., allergies= arthritis flaring up, etc., it's hard to
say. Yes, I'm sure metal fillings are also a contributor. Just having
one large one removed, resulted in a "noticeable feel better."

~ Snoshoe



--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> We now seem to have over 200 members in this group, a decent size
sample. I'm curious if
> we might be able to spot geographical/demographical patterns in
relation to severity of
> ES. At any rate a "snapshot" in time of the group may be
interesting. Anyone care to
> respond briefly to the following informal poll?
>
> 1. What is your geographical location? (city/country)
> 2. How severe are your ES symptoms? I.e. do you consider your ES
merely irritating, or has
> it seriously impacted your productivity and quality of life?
>
> Optional:
> 3. What factors do you identify as contributing to your ES? (e.g.
heavy metal toxicity,
> proximity to cell phone towers, heavy metal toxicity)
> 4. What other serious health issues are you experiencing besides
ES? (direct relationship to
> ES need not be established)
>
> --







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