Hi everyone - Electrosensitivity

Hi, Paul,
   
Does this doctor have a treatment for the polarity/body voltage change? Interesting. Snoshoe posted a site a few months ago on polarity and I havebeen following the steps there. It is a type of EFT. Seems to help some.
   
Thanks for the info,
Diane

[hidden email] wrote:
I read tonight that a Dr Sattori who has been studying Near death  
experiences has found that people who claim to have undergone a NDE are often become
electrically sensitive as if their body voltage/polarity has undergone some
change. It made the hairs on the back of my neck stand up as I had last rights
when I was a kid ! and just how co-incedences go as I type this a man on the
radio said Near death experience !!! spooky !!!!
I can get the Drs email details if you wish.


Paul


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tayloka_40 wrote:
> Sorry.,..didn't mean to sound sarcastic, I just wish someone would come along...like me
> you know...LOLOL...making me first, but not special. It would be nice to have someone to
> joke with...

You might want to see if there are "Near Death Experience" discussion
groups, and see if anyone there can relate to your symptoms.

Also, you mentioned that you've done energy work (Qi Gong, etc.). I believe that
I've read on the net that some energy workers became more electrically
sensitive once they started practicing energy work.

Marc

Yeah we are changing, Photon belt (zeropoint, God energy coming in, afraid we are all allergic to Love/God)// Long announced, the time has come, back to paradise baby and you are a pillar in te new city//(oh starsign??) a cell in the Heart of God.

Love

In order to live n a star you have to be a star

tayloka_40 <[hidden email]> wrote:
Don't I feel special...where could I read a little about what the theorist here are saying?

Thanks,

Karen
--- In [hidden email], Marc Martin <marc@...> wrote:
>
> > My blood work is extremely peculiar. I don't show any heavy metal, there is no toxicity
of
> > any kind (that is now at my last test 5 weeks ago), but it also shows that I have no
signs of
> > aging. (????????) All the measures for blood profile, sed, and panels come back with
results
> > that show a teenage girl in puberty?
>
> That is all very odd. You know, in the new age community, you hear
> rumblings that the human race is undergoing some sort of transformation,
> with added DNA strands coming online or some such thing. Perhaps you're
> ahead of us all in this transformation?
>
> Marc
>







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Hi,

Nice site Marc.

T. you can also look for shift from indigo to crystal..or adult indigo, crystal// like search there is some good sites (if i come across them on the compu i will mail you personal)

The change in pole or something that you were talking about earlier is also called the flip (i was saying what the flip quite a bit when it happened//and that is just what is was)

Try not to spend too much time at the compu though....


Love
---------------------------------------------------------------------------------------------------
and there will be no more sun and two moons (you go from plus minus to minus minus then attract your Twin Flame that has gotta be the other side of that battery and you are stuck like glue, nothing you can do cause i am stuck like glue to my guy////It is universal Law, opposites attract///It aint fiction, just a natural fact)


Marc Martin <[hidden email]> wrote:
tayloka_40 wrote:
> Don't I feel special...where could I read a little about what the theorist here are saying?

Well, I don't know if it's relevant to your case or not...
I'm pretty much grasping at straws, as your case seems
so unusual.

I guess I was thinking of what is known as "indigos",
although I might have also been referring to something
known as "22 strand DNA activation". For example:

http://www.thetadnaactivation.com/medical6.html

But again, this is just a wild guess... it could
also simply be a case of toxicity that is not
showing up on the tests, either because they
are testing for the wrong toxins, or your body
is not releasing them into the bloodstream.

Marc


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>T. you can also look for shift from indigo to crystal..or adult indigo, crystal

I've never heard of crystal, but then again, this is not a subject that I
have spent much time on. Karen, here is a site I found -- see if you
can relate to the symptoms described on this page:

http://www.starchild.co.za/crisis.html

Especially "Feeling strange electrical energy waves through the body"

Marc

She offers free healing, aurasonics.. at least some years ago..

Marc Martin <[hidden email]> wrote: >T. you can also look for shift from indigo to crystal..or adult indigo, crystal

I've never heard of crystal, but then again, this is not a subject that I
have spent much time on. Karen, here is a site I found -- see if you
can relate to the symptoms described on this page:

http://www.starchild.co.za/crisis.html

Especially "Feeling strange electrical energy waves through the body"

Marc


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Hi Diane,

Just wondering, sorry if I've mentioned this before, but has your
nutritionist suggested intravenous infusions to help with the liver detox
pathways problem? Sue tried oral supplements for 4-5 years and went
gradually downhill. A leaky gut test showed positive and it seemed that she
wasn't absorbing the nutrients and supplements. Other tests showed low
glutathione and very low sulphate, as well as various other mineral and
vitamin deficiencies (despite the supplements). She has been having
glutathione and magnesium sulphate by IV infusion periodically now for about
a year. Her general health has improved, MCS has gone down and latest tests
show the glute/sulphate levels are much better.

Unfortunately this has not helped the ES symptoms much, but as her "brain
fog" and chemical sensitivities are so much better, she is better able to
cope with the ES. We both feel a lot happier to see some tangible
improvement at last!

Our next steps will be to try to heal the leaky gut (still puzzled as to why
it is not repairing itself, candida tests show negative but the specialist
suggests other bacteria/fungi are involved and suggests an antifungal), and
to try to improve magnesium levels which are implicated in many
light/noise/electrical sensitivity cases.

She also found that any chelating of heavy metals, deliberate or accidental,
gave her a bad reaction - this was reckoned to be due to the released
"nasties" in the bile going back into the gut and being reabsorbed, as you
mention. Again, it seems that the liver detox chemicals and leaky gut need
to be sorted out before Sue can try further heavy metal removal. Like you,
she found that for many supplements or tablets she had to take a tiny
fraction of a capsule to avoid a major over-reaction.

Other things that have helped her include coriolis (mushroom extract) and
Armour thyroid (natural thyroid with both T4 and T3; Sue tested as
borderline hypothyroid and conventional T4 thyroxine treatment didn't work).
Of course, everyone varies, so what works for her doesn't work for everyone.
Where possible, we tried to back up ideas with actual tests, to support or
eliminate the multitudinous different hypotheses being put forward. These
were generally helpful, though often expensive (but they may have saved us
money in the long run by eliminating unnecessary supplements or treatments).

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 12 May 2006 18:26
To: [hidden email]
Subject: Re: [eSens] Re: Hi everyone - Electrosensitivity


Since I am having liver detox pathway problems, my nutritionist has
suggested new supplements. I have just received these today and have not
tried them yet. These are sold by him but you can probably find like
products elsewhere:

Sulphur Plus--for the sulphonization pathway--MSM sulphur +
Trimethylglycine
Daily Balancer--for the glutathione pathway--it is a mix of amino acids
and root extracts

The liver detox pathway problems, we have decided, are probably why I am
having problems with many toxins to begin with. I realized this problem
while researching detoxing and brought it to his attention.

He also has suggested high fiber which gives the toxins something to hold
onto during elimination (6 grams of psyllium or other fiber). But my
digestive tract is not able to handle more than half a gram, so we are
working on healing my digestive tract further with glutamine, etc. He has
made me aware, tho, that this is where I am having a breakdown of moving the
toxins out. He was very concerned about this (I wasn't, but he has made me
aware that this can be a very dangerous condition, as I am reconcentrating
toxins into less fat and more organs if they are not coming out thru bowel,
etc, once I mobilize them. He was so concerned that he wants me to stop
losing weight and gain weight until I have the fiber problem worked out.)

These are what have helped me (off the top of my head lol),
Diane

Troy Knight <[hidden email]> wrote:
I'll keep reading the archived posts here, but it would be great to
hear about any treatments which people have found effective, so I
can post them on the site.

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[Non-text portions of this message have been removed]

Thanks, Marc. I find topic like this very interesting. Social archeology, sort of, for the
development of conscious thought.

I am, actually, a little uncomfortable with "estoteric" phenomena. I am a scientist and really
do see logic and linear, cause / effect, in everything. It takes the "magic" out of things but
replaces it with a differnt type of interpretation, by my experiences, of the course of
Natural Law and the AWE of the orderly conduction of life.

I approach estoterism as I would fruedism or Jungism. A different method to explain the
events around us. I think the indgo concept is very beautiful. Based on my experience, any
life changing event such as a death of loved one, accident, or change (evenbirth) can
bring about life altering perceptions about the "living" of us.

For me, this aspect of personal and emotional growth from my exposure has been vast
and far reaching in its affect of my perceptions.

Regards,

Karen


--- In [hidden email], Marc Martin <marc@...> wrote:

Troy, I would like to get the sauna, but do not know how to access personal
email. Thanks PegPare9


[Non-text portions of this message have been removed]

Plus the way them spiritual types say we are making a shift from carbon-based to silica based HAS GOTTA bring some relief.. you would not wanna be allergic to your blueprint//
   
Love

... calling from the underworld, come oput of the cupboards all you boys and girls A nuclear error, but I have no fear//
   
In case of nuclear (NOW Clear) attack: Duck and cover
 






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Hi, Ian,
   
Thanks so much for sharing Sue's health problems and solutions with me! I really appreciate the info, even if sometimes I already know it.
   
My nutritionist is aware of the intravenous infusions, yes. It is complicated... Here in Pennsylvania, it is very hard to get treatment for some things. You have to be referred by a general practice doctor to any specialty doctors. It took me years to finally get referred to a gastroenterologist to be dxed with celiac disease, because the GP didn't think I knew as much as he did about what was wrong with me. He sent me everywhere but to the gastro! I had expensive MRIs and what-not. All sorts of neurology and endocrine testing.  
   
I just don't want to run the medical marathon any more if I don't have to. For me, it is better to take my chances on a supplement that might not work than spend the time and money trying to find a doctor who would refer me to someone for this intravenous treatment. This is also why I experimentwithout always having adequate testing. (Oh, this was another reason I sent the Enterolabs site re celiac disease--I think you can get testing therewithout a doctor's referal. While the test results may be less than satisfactory, at least you can get a test of SOME sort to give you a clue as to what is going on without going thru a medical doctor.)  
   
Due to the doctor referal problem and due to the complete incompetence ofmy doctors in the past in the area of celiac disease and toxin issues, I avoid all medical doctors like the plague. I side-track them as much as possible and work on alternative treatments I can do myself or with the help of my nutritionist.
   
I'm sorry to hear that Sue's ES symptoms are still bad, but glad to hear she is doing better otherwise! That has been my experience, also, tho I cannot complain too much. Many here have much worse problems than I do with ES. I can use my computer without too much problem most of the time. If Iam on too long, I get eye pain, blurry vision, and soreness, headache, andsometimes face or arm/hand rash. But the cell phone is the biggie for me.I cannot use that at all. Sometimes I get migraine type headaches and nausea when I am out driving in my car. But they usually pass as I move out of range of towers, etc.
   
I have the same experience with the "leaky gut" as Sue, too, tho Sue has the more generic leaky gut and not celiac disease. Celiac disease can sometimes be irreversible, but this is very rare. My celiac doc wrote me off as one of these cases years ago, but I have improved so very much since then. He just was not up on the research. I found eliminating other foods, working on bacterial and fungal issues, and eliminating other toxins helped enormously. Even tho I still have some gut damage that needs healing, I am so much better than I was even a year ago.  
   
I, like Sue, also was hypothyroid. Avoidance of soy seemed to cure the problem, but I get yearly multi-phasic blood testing thru a local ambulance service (another way to side-track medical doctors), and this year I noticed that I am borderline hypothyroid again. I had been fine for 2 years by just avoiding soy! I think it might be a result of adding alkaline water tomy regimen.

Anytime you have leaky gut issues (no matter from what), bacterial and fungal, even viral and parasitic problems, become more prevalent. This is partly because these invaders have more access to the blood stream than in a person whose gut is not damaged. Often candida tests and other bacterial tests, etc, are not accurate. Many of the tests are bowel tests and they may or may not show on those.
   
Epsom salts soaking can provide some added magnesium, but I imagine Sue already does this. I also take epsom salts in water internally, often. Also, I imagine you and Sue know this, but glutamine is good for healing the gut. There are other things celiacs use for gut healing--milk thistle and veratrum alba, I think that is what it is called.  
   
Thanks again for sharing,
Diane
 
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Just wondering, sorry if I've mentioned this before, but has your
nutritionist suggested intravenous infusions to help with the liver detox
pathways problem? Sue tried oral supplements for 4-5 years and went
gradually downhill. A leaky gut test showed positive and it seemed that she
wasn't absorbing the nutrients and supplements. Other tests showed low
glutathione and very low sulphate, as well as various other mineral and
vitamin deficiencies (despite the supplements). She has been having
glutathione and magnesium sulphate by IV infusion periodically now for about
a year. Her general health has improved, MCS has gone down and latest tests
show the glute/sulphate levels are much better.

Unfortunately this has not helped the ES symptoms much, but as her "brain
fog" and chemical sensitivities are so much better, she is better able to
cope with the ES. We both feel a lot happier to see some tangible
improvement at last!

Our next steps will be to try to heal the leaky gut (still puzzled as to why
it is not repairing itself, candida tests show negative but the specialist
suggests other bacteria/fungi are involved and suggests an antifungal), and
to try to improve magnesium levels which are implicated in many
light/noise/electrical sensitivity cases.

She also found that any chelating of heavy metals, deliberate or accidental,
gave her a bad reaction - this was reckoned to be due to the released
"nasties" in the bile going back into the gut and being reabsorbed, as you
mention. Again, it seems that the liver detox chemicals and leaky gut need
to be sorted out before Sue can try further heavy metal removal. Like you,
she found that for many supplements or tablets she had to take a tiny
fraction of a capsule to avoid a major over-reaction.

Other things that have helped her include coriolis (mushroom extract) and
Armour thyroid (natural thyroid with both T4 and T3; Sue tested as
borderline hypothyroid and conventional T4 thyroxine treatment didn't work).
Of course, everyone varies, so what works for her doesn't work for everyone.
Where possible, we tried to back up ideas with actual tests, to support or
eliminate the multitudinous different hypotheses being put forward. These
were generally helpful, though often expensive (but they may have saved us
money in the long run by eliminating unnecessary supplements or treatments).

Ian

 
               
---------------------------------
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[Non-text portions of this message have been removed]

Hi Diane,
 
Thanks for all this. We have Sue's intravenous infusions done at a private
hospital. It costs, but for us it's the best route (would be equally
difficult over here to get a referral on the NHS). We are lucky that we
live within reasonable driving distance, though we know 2 or 3 other places
within 100 miles that would do it.
 
Your experiences are similar to Sue's but with detail differences. Sue had
problems with milk thistle and even Epsom salt baths when she first tried
them because her system was unable to cope with the toxins released. She
can now take Epsom salts by mouth. We are finding she can take a number of
extra things now that the glutathione and sulphate levels have increased.
She has tried glutamine, but is wary of it in case it converts to glutamate,
which is implicated in nerve damage (and hence, potentially, in ES). This
is dubious, but it's her body and we don't want to take any risks,
especially now that we are making some positive progress.
 
Ian

_____  

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 16 May 2006 09:23
To: [hidden email]
Subject: Re: [eSens] IV Infusions and liver detox pathways


Hi, Ian,
   
Thanks so much for sharing Sue's health problems and solutions with me! I
really appreciate the info, even if sometimes I already know it.
   
My nutritionist is aware of the intravenous infusions, yes. It is
complicated... Here in Pennsylvania, it is very hard to get treatment for
some things. You have to be referred by a general practice doctor to any
specialty doctors. It took me years to finally get referred to a
gastroenterologist to be dxed with celiac disease, because the GP didn't
think I knew as much as he did about what was wrong with me. He sent me
everywhere but to the gastro! I had expensive MRIs and what-not. All sorts
of neurology and endocrine testing.  
   
I just don't want to run the medical marathon any more if I don't have to.
For me, it is better to take my chances on a supplement that might not work
than spend the time and money trying to find a doctor who would refer me to
someone for this intravenous treatment. This is also why I experiment
without always having adequate testing. (Oh, this was another reason I sent
the Enterolabs site re celiac disease--I think you can get testing there
without a doctor's referal. While the test results may be less than
satisfactory, at least you can get a test of SOME sort to give you a clue as
to what is going on without going thru a medical doctor.)  
   
Due to the doctor referal problem and due to the complete incompetence of
my doctors in the past in the area of celiac disease and toxin issues, I
avoid all medical doctors like the plague. I side-track them as much as
possible and work on alternative treatments I can do myself or with the help
of my nutritionist.
   
I'm sorry to hear that Sue's ES symptoms are still bad, but glad to hear
she is doing better otherwise! That has been my experience, also, tho I
cannot complain too much. Many here have much worse problems than I do with
ES. I can use my computer without too much problem most of the time. If I
am on too long, I get eye pain, blurry vision, and soreness, headache, and
sometimes face or arm/hand rash. But the cell phone is the biggie for me.
I cannot use that at all. Sometimes I get migraine type headaches and
nausea when I am out driving in my car. But they usually pass as I move out
of range of towers, etc.
   
I have the same experience with the "leaky gut" as Sue, too, tho Sue has
the more generic leaky gut and not celiac disease. Celiac disease can
sometimes be irreversible, but this is very rare. My celiac doc wrote me
off as one of these cases years ago, but I have improved so very much since
then. He just was not up on the research. I found eliminating other foods,
working on bacterial and fungal issues, and eliminating other toxins helped
enormously. Even tho I still have some gut damage that needs healing, I am
so much better than I was even a year ago.  
   
I, like Sue, also was hypothyroid. Avoidance of soy seemed to cure the
problem, but I get yearly multi-phasic blood testing thru a local ambulance
service (another way to side-track medical doctors), and this year I noticed
that I am borderline hypothyroid again. I had been fine for 2 years by just
avoiding soy! I think it might be a result of adding alkaline water to my
regimen.

Anytime you have leaky gut issues (no matter from what), bacterial and
fungal, even viral and parasitic problems, become more prevalent. This is
partly because these invaders have more access to the blood stream than in a
person whose gut is not damaged. Often candida tests and other bacterial
tests, etc, are not accurate. Many of the tests are bowel tests and they
may or may not show on those.
   
Epsom salts soaking can provide some added magnesium, but I imagine Sue
already does this. I also take epsom salts in water internally, often.
Also, I imagine you and Sue know this, but glutamine is good for healing the
gut. There are other things celiacs use for gut healing--milk thistle and
veratrum alba, I think that is what it is called.  
   
Thanks again for sharing,
Diane
 
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Just wondering, sorry if I've mentioned this before, but has your
nutritionist suggested intravenous infusions to help with the liver detox
pathways problem? Sue tried oral supplements for 4-5 years and went
gradually downhill. A leaky gut test showed positive and it seemed that she
wasn't absorbing the nutrients and supplements. Other tests showed low
glutathione and very low sulphate, as well as various other mineral and
vitamin deficiencies (despite the supplements). She has been having
glutathione and magnesium sulphate by IV infusion periodically now for about
a year. Her general health has improved, MCS has gone down and latest tests
show the glute/sulphate levels are much better.

Unfortunately this has not helped the ES symptoms much, but as her "brain
fog" and chemical sensitivities are so much better, she is better able to
cope with the ES. We both feel a lot happier to see some tangible
improvement at last!

Our next steps will be to try to heal the leaky gut (still puzzled as to why
it is not repairing itself, candida tests show negative but the specialist
suggests other bacteria/fungi are involved and suggests an antifungal), and
to try to improve magnesium levels which are implicated in many
light/noise/electrical sensitivity cases.

She also found that any chelating of heavy metals, deliberate or accidental,
gave her a bad reaction - this was reckoned to be due to the released
"nasties" in the bile going back into the gut and being reabsorbed, as you
mention. Again, it seems that the liver detox chemicals and leaky gut need
to be sorted out before Sue can try further heavy metal removal. Like you,
she found that for many supplements or tablets she had to take a tiny
fraction of a capsule to avoid a major over-reaction.

Other things that have helped her include coriolis (mushroom extract) and
Armour thyroid (natural thyroid with both T4 and T3; Sue tested as
borderline hypothyroid and conventional T4 thyroxine treatment didn't work).
Of course, everyone varies, so what works for her doesn't work for everyone.
Where possible, we tried to back up ideas with actual tests, to support or
eliminate the multitudinous different hypotheses being put forward. These
were generally helpful, though often expensive (but they may have saved us
money in the long run by eliminating unnecessary supplements or treatments).

Ian


           
---------------------------------
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2¢/min with Yahoo! Messenger with Voice.

[Non-text portions of this message have been removed]



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_____  




[Non-text portions of this message have been removed]

Hi again, Ian,
   
Yes, I had trouble with epsom salts and milk thistle, too, I just didn't mention it. Sort of like having to take mini doses of the supplements before being able tolerate them. With the epsom salts, I think the alkalinity affected me at first, as well as mobilizing too much too quickly. My skin felt like it was on fire the first 3 soaks. Unfortunately, any detoxing isdifficult and usually involves some pain and bad symptoms. :( The trick is to find the level of pain that works for you. lol
   
When Sue starts on the gut flora balancing, she will probably find she gets very ill from that (at least I did). There were times in the first 4 months that I thought I would not be able to continue it, but my nutritionisthad warned me it would be hard up front and that helped me to keep on keeping on.  
   
Maybe I am just too far out in the country, but I know of no private hospitals anywhere near here that do intravenous infusions without doctor referals. When I was in my 30s there was an alternative care doctor who did various treatments in a private clinic, but he has long since died. But thanks for the idea--I will enter a search and see what it brings up.  
   
Thanks. My best to Sue,
Diane

Ian Kemp <[hidden email]> wrote:
Hi Diane,

Thanks for all this. We have Sue's intravenous infusions done at a private
hospital. It costs, but for us it's the best route (would be equally
difficult over here to get a referral on the NHS). We are lucky that we
live within reasonable driving distance, though we know 2 or 3 other places
within 100 miles that would do it.

Your experiences are similar to Sue's but with detail differences. Sue had
problems with milk thistle and even Epsom salt baths when she first tried
them because her system was unable to cope with the toxins released. She
can now take Epsom salts by mouth. We are finding she can take a number of
extra things now that the glutathione and sulphate levels have increased.
She has tried glutamine, but is wary of it in case it converts to glutamate,
which is implicated in nerve damage (and hence, potentially, in ES). This
is dubious, but it's her body and we don't want to take any risks,
especially now that we are making some positive progress.

Ian

_____  

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 16 May 2006 09:23
To: [hidden email]
Subject: Re: [eSens] IV Infusions and liver detox pathways


Hi, Ian,
   
Thanks so much for sharing Sue's health problems and solutions with me! I
really appreciate the info, even if sometimes I already know it.
   
My nutritionist is aware of the intravenous infusions, yes. It is
complicated... Here in Pennsylvania, it is very hard to get treatment for
some things. You have to be referred by a general practice doctor to any
specialty doctors. It took me years to finally get referred to a
gastroenterologist to be dxed with celiac disease, because the GP didn't
think I knew as much as he did about what was wrong with me. He sent me
everywhere but to the gastro! I had expensive MRIs and what-not. All sorts
of neurology and endocrine testing.  
   
I just don't want to run the medical marathon any more if I don't have to.
For me, it is better to take my chances on a supplement that might not work
than spend the time and money trying to find a doctor who would refer me to
someone for this intravenous treatment. This is also why I experiment
without always having adequate testing. (Oh, this was another reason I sent
the Enterolabs site re celiac disease--I think you can get testing there
without a doctor's referal. While the test results may be less than
satisfactory, at least you can get a test of SOME sort to give you a clue as
to what is going on without going thru a medical doctor.)  
   
Due to the doctor referal problem and due to the complete incompetence of
my doctors in the past in the area of celiac disease and toxin issues, I
avoid all medical doctors like the plague. I side-track them as much as
possible and work on alternative treatments I can do myself or with the help
of my nutritionist.
   
I'm sorry to hear that Sue's ES symptoms are still bad, but glad to hear
she is doing better otherwise! That has been my experience, also, tho I
cannot complain too much. Many here have much worse problems than I do with
ES. I can use my computer without too much problem most of the time. If I
am on too long, I get eye pain, blurry vision, and soreness, headache, and
sometimes face or arm/hand rash. But the cell phone is the biggie for me.
I cannot use that at all. Sometimes I get migraine type headaches and
nausea when I am out driving in my car. But they usually pass as I move out
of range of towers, etc.
   
I have the same experience with the "leaky gut" as Sue, too, tho Sue has
the more generic leaky gut and not celiac disease. Celiac disease can
sometimes be irreversible, but this is very rare. My celiac doc wrote me
off as one of these cases years ago, but I have improved so very much since
then. He just was not up on the research. I found eliminating other foods,
working on bacterial and fungal issues, and eliminating other toxins helped
enormously. Even tho I still have some gut damage that needs healing, I am
so much better than I was even a year ago.  
   
I, like Sue, also was hypothyroid. Avoidance of soy seemed to cure the
problem, but I get yearly multi-phasic blood testing thru a local ambulance
service (another way to side-track medical doctors), and this year I noticed
that I am borderline hypothyroid again. I had been fine for 2 years by just
avoiding soy! I think it might be a result of adding alkaline water to my
regimen.

Anytime you have leaky gut issues (no matter from what), bacterial and
fungal, even viral and parasitic problems, become more prevalent. This is
partly because these invaders have more access to the blood stream than in a
person whose gut is not damaged. Often candida tests and other bacterial
tests, etc, are not accurate. Many of the tests are bowel tests and they
may or may not show on those.
   
Epsom salts soaking can provide some added magnesium, but I imagine Sue
already does this. I also take epsom salts in water internally, often.
Also, I imagine you and Sue know this, but glutamine is good for healing the
gut. There are other things celiacs use for gut healing--milk thistle and
veratrum alba, I think that is what it is called.  
   
Thanks again for sharing,
Diane
 
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Just wondering, sorry if I've mentioned this before, but has your
nutritionist suggested intravenous infusions to help with the liver detox
pathways problem? Sue tried oral supplements for 4-5 years and went
gradually downhill. A leaky gut test showed positive and it seemed that she
wasn't absorbing the nutrients and supplements. Other tests showed low
glutathione and very low sulphate, as well as various other mineral and
vitamin deficiencies (despite the supplements). She has been having
glutathione and magnesium sulphate by IV infusion periodically now for about
a year. Her general health has improved, MCS has gone down and latest tests
show the glute/sulphate levels are much better.

Unfortunately this has not helped the ES symptoms much, but as her "brain
fog" and chemical sensitivities are so much better, she is better able to
cope with the ES. We both feel a lot happier to see some tangible
improvement at last!

Our next steps will be to try to heal the leaky gut (still puzzled as to why
it is not repairing itself, candida tests show negative but the specialist
suggests other bacteria/fungi are involved and suggests an antifungal), and
to try to improve magnesium levels which are implicated in many
light/noise/electrical sensitivity cases.

She also found that any chelating of heavy metals, deliberate or accidental,
gave her a bad reaction - this was reckoned to be due to the released
"nasties" in the bile going back into the gut and being reabsorbed, as you
mention. Again, it seems that the liver detox chemicals and leaky gut need
to be sorted out before Sue can try further heavy metal removal. Like you,
she found that for many supplements or tablets she had to take a tiny
fraction of a capsule to avoid a major over-reaction.

Other things that have helped her include coriolis (mushroom extract) and
Armour thyroid (natural thyroid with both T4 and T3; Sue tested as
borderline hypothyroid and conventional T4 thyroxine treatment didn't work).
Of course, everyone varies, so what works for her doesn't work for everyone.
Where possible, we tried to back up ideas with actual tests, to support or
eliminate the multitudinous different hypotheses being put forward. These
were generally helpful, though often expensive (but they may have saved us
money in the long run by eliminating unnecessary supplements or treatments).

Ian


           
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Hi Diane,
 
Ah, interesting, it's fascinating how similar your symptoms are to Sue's.
It's been one of the great things about this group and the hospital - we've
heard of, or met, other people with similar experiences and, although it's
very sad, it makes us feel less "out on a limb". Sometimes it all seems so
far from normal experiences that you start doubting what's happening to
you...
 
Sorry you can't find any hospitals near you, it just goes to show that the
USA is a big spread-out place compared to little old England! I remember
travelling by train from Pittsburgh to Philly once and it taking a whole day
...
 
Best wishes, Ian

_____  

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 17 May 2006 03:32
To: [hidden email]
Subject: RE: [eSens] IV Infusions and liver detox pathways


Hi again, Ian,
   
Yes, I had trouble with epsom salts and milk thistle, too, I just didn't
mention it. Sort of like having to take mini doses of the supplements
before being able tolerate them. With the epsom salts, I think the
alkalinity affected me at first, as well as mobilizing too much too quickly.
My skin felt like it was on fire the first 3 soaks. Unfortunately, any
detoxing is difficult and usually involves some pain and bad symptoms. :(
The trick is to find the level of pain that works for you. lol
   
When Sue starts on the gut flora balancing, she will probably find she
gets very ill from that (at least I did). There were times in the first 4
months that I thought I would not be able to continue it, but my
nutritionist had warned me it would be hard up front and that helped me to
keep on keeping on.  
   
Maybe I am just too far out in the country, but I know of no private
hospitals anywhere near here that do intravenous infusions without doctor
referals. When I was in my 30s there was an alternative care doctor who did
various treatments in a private clinic, but he has long since died. But
thanks for the idea--I will enter a search and see what it brings up.  
   
Thanks. My best to Sue,
Diane

Ian Kemp <[hidden email]> wrote:
Hi Diane,

Thanks for all this. We have Sue's intravenous infusions done at a private
hospital. It costs, but for us it's the best route (would be equally
difficult over here to get a referral on the NHS). We are lucky that we
live within reasonable driving distance, though we know 2 or 3 other places
within 100 miles that would do it.

Your experiences are similar to Sue's but with detail differences. Sue had
problems with milk thistle and even Epsom salt baths when she first tried
them because her system was unable to cope with the toxins released. She
can now take Epsom salts by mouth. We are finding she can take a number of
extra things now that the glutathione and sulphate levels have increased.
She has tried glutamine, but is wary of it in case it converts to glutamate,
which is implicated in nerve damage (and hence, potentially, in ES). This
is dubious, but it's her body and we don't want to take any risks,
especially now that we are making some positive progress.

Ian

_____  

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 16 May 2006 09:23
To: [hidden email]
Subject: Re: [eSens] IV Infusions and liver detox pathways


Hi, Ian,
   
Thanks so much for sharing Sue's health problems and solutions with me! I
really appreciate the info, even if sometimes I already know it.
   
My nutritionist is aware of the intravenous infusions, yes. It is
complicated... Here in Pennsylvania, it is very hard to get treatment for
some things. You have to be referred by a general practice doctor to any
specialty doctors. It took me years to finally get referred to a
gastroenterologist to be dxed with celiac disease, because the GP didn't
think I knew as much as he did about what was wrong with me. He sent me
everywhere but to the gastro! I had expensive MRIs and what-not. All sorts
of neurology and endocrine testing.  
   
I just don't want to run the medical marathon any more if I don't have to.
For me, it is better to take my chances on a supplement that might not work
than spend the time and money trying to find a doctor who would refer me to
someone for this intravenous treatment. This is also why I experiment
without always having adequate testing. (Oh, this was another reason I sent
the Enterolabs site re celiac disease--I think you can get testing there
without a doctor's referal. While the test results may be less than
satisfactory, at least you can get a test of SOME sort to give you a clue as
to what is going on without going thru a medical doctor.)  
   
Due to the doctor referal problem and due to the complete incompetence of
my doctors in the past in the area of celiac disease and toxin issues, I
avoid all medical doctors like the plague. I side-track them as much as
possible and work on alternative treatments I can do myself or with the help
of my nutritionist.
   
I'm sorry to hear that Sue's ES symptoms are still bad, but glad to hear
she is doing better otherwise! That has been my experience, also, tho I
cannot complain too much. Many here have much worse problems than I do with
ES. I can use my computer without too much problem most of the time. If I
am on too long, I get eye pain, blurry vision, and soreness, headache, and
sometimes face or arm/hand rash. But the cell phone is the biggie for me.
I cannot use that at all. Sometimes I get migraine type headaches and
nausea when I am out driving in my car. But they usually pass as I move out
of range of towers, etc.
   
I have the same experience with the "leaky gut" as Sue, too, tho Sue has
the more generic leaky gut and not celiac disease. Celiac disease can
sometimes be irreversible, but this is very rare. My celiac doc wrote me
off as one of these cases years ago, but I have improved so very much since
then. He just was not up on the research. I found eliminating other foods,
working on bacterial and fungal issues, and eliminating other toxins helped
enormously. Even tho I still have some gut damage that needs healing, I am
so much better than I was even a year ago.  
   
I, like Sue, also was hypothyroid. Avoidance of soy seemed to cure the
problem, but I get yearly multi-phasic blood testing thru a local ambulance
service (another way to side-track medical doctors), and this year I noticed
that I am borderline hypothyroid again. I had been fine for 2 years by just
avoiding soy! I think it might be a result of adding alkaline water to my
regimen.

Anytime you have leaky gut issues (no matter from what), bacterial and
fungal, even viral and parasitic problems, become more prevalent. This is
partly because these invaders have more access to the blood stream than in a
person whose gut is not damaged. Often candida tests and other bacterial
tests, etc, are not accurate. Many of the tests are bowel tests and they
may or may not show on those.
   
Epsom salts soaking can provide some added magnesium, but I imagine Sue
already does this. I also take epsom salts in water internally, often.
Also, I imagine you and Sue know this, but glutamine is good for healing the
gut. There are other things celiacs use for gut healing--milk thistle and
veratrum alba, I think that is what it is called.  
   
Thanks again for sharing,
Diane
 
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Just wondering, sorry if I've mentioned this before, but has your
nutritionist suggested intravenous infusions to help with the liver detox
pathways problem? Sue tried oral supplements for 4-5 years and went
gradually downhill. A leaky gut test showed positive and it seemed that she
wasn't absorbing the nutrients and supplements. Other tests showed low
glutathione and very low sulphate, as well as various other mineral and
vitamin deficiencies (despite the supplements). She has been having
glutathione and magnesium sulphate by IV infusion periodically now for about
a year. Her general health has improved, MCS has gone down and latest tests
show the glute/sulphate levels are much better.

Unfortunately this has not helped the ES symptoms much, but as her "brain
fog" and chemical sensitivities are so much better, she is better able to
cope with the ES. We both feel a lot happier to see some tangible
improvement at last!

Our next steps will be to try to heal the leaky gut (still puzzled as to why
it is not repairing itself, candida tests show negative but the specialist
suggests other bacteria/fungi are involved and suggests an antifungal), and
to try to improve magnesium levels which are implicated in many
light/noise/electrical sensitivity cases.

She also found that any chelating of heavy metals, deliberate or accidental,
gave her a bad reaction - this was reckoned to be due to the released
"nasties" in the bile going back into the gut and being reabsorbed, as you
mention. Again, it seems that the liver detox chemicals and leaky gut need
to be sorted out before Sue can try further heavy metal removal. Like you,
she found that for many supplements or tablets she had to take a tiny
fraction of a capsule to avoid a major over-reaction.

Other things that have helped her include coriolis (mushroom extract) and
Armour thyroid (natural thyroid with both T4 and T3; Sue tested as
borderline hypothyroid and conventional T4 thyroxine treatment didn't work).
Of course, everyone varies, so what works for her doesn't work for everyone.
Where possible, we tried to back up ideas with actual tests, to support or
eliminate the multitudinous different hypotheses being put forward. These
were generally helpful, though often expensive (but they may have saved us
money in the long run by eliminating unnecessary supplements or treatments).

Ian


           
---------------------------------
Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just
2¢/min with Yahoo! Messenger with Voice.

[Non-text portions of this message have been removed]



_____  

YAHOO! GROUPS LINKS


     
* Visit your group "eSens <http://groups.yahoo.com/group/eSens> " on
the web.
 

* To unsubscribe from this group, send an email to:
[hidden email]
<mailto:[hidden email]?subject=Unsubscribe>
 

* Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service
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_____  




[Non-text portions of this message have been removed]


   
---------------------------------
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Visit your group "eSens" on the web.
   
To unsubscribe from this group, send an email to:
[hidden email]
   
Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

   
---------------------------------
 



           
---------------------------------
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[Non-text portions of this message have been removed]

Thanks, Ian,
   
Yes, I agree with everything you wrote! It is good to know that you are not in this totally alone. For decades, we thought I was. My husband says, "we are all fearfully and wonderfully made, but you, Diane, are more fearfully and wonderfully made than most!" Not that I am a beauty; my body hasjust defied all the odds. lol
   
And so true about the US vs Europe! It is very hard for us here the the States to get perspective on being able to travel from coast to coast in one day. That must be kind of nice! I used to visit my son in NYC occasionally when he had room for me to stay and took the very same train you took! Pittsburgh to Philly to NYC.

Best wishes to Sue,
Diane
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Ah, interesting, it's fascinating how similar your symptoms are to Sue's.
It's been one of the great things about this group and the hospital - we've
heard of, or met, other people with similar experiences and, although it's
very sad, it makes us feel less "out on a limb". Sometimes it all seems so
far from normal experiences that you start doubting what's happening to
you...

Sorry you can't find any hospitals near you, it just goes to show that the
USA is a big spread-out place compared to little old England! I remember
travelling by train from Pittsburgh to Philly once and it taking a whole day
...

Best wishes, Ian
               
---------------------------------
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[Non-text portions of this message have been removed]

Thanks, Diane. It's certainly true about being "fearfully and wonderfully
made", with all that Sue and I have learnt in the last few years about how
complicated the human body is and all its different beautifully balanced
functions, which we took for granted before! One doctor we saw said that it
is remarkable that the liver detox functions are - normally - able to cope
with the multitude of different hydrocarbon-type chemicals that we are now
exposed to, because the necessary detox pathways are in place even though
they would virtually never have been used previously in the history of
mankind!
 
Ian

_____  

From: [hidden email] [mailto:[hidden email]] On Behalf Of Evie
Sent: 18 May 2006 23:16
To: [hidden email]
Subject: RE: [eSens] IV Infusions and liver detox pathways


Thanks, Ian,
   
Yes, I agree with everything you wrote! It is good to know that you are
not in this totally alone. For decades, we thought I was. My husband says,
"we are all fearfully and wonderfully made, but you, Diane, are more
fearfully and wonderfully made than most!" Not that I am a beauty; my body
has just defied all the odds. lol
   
And so true about the US vs Europe! It is very hard for us here the the
States to get perspective on being able to travel from coast to coast in one
day. That must be kind of nice! I used to visit my son in NYC occasionally
when he had room for me to stay and took the very same train you took!
Pittsburgh to Philly to NYC.

Best wishes to Sue,
Diane
Ian Kemp <[hidden email]> wrote:
Hi Diane,

Ah, interesting, it's fascinating how similar your symptoms are to Sue's.
It's been one of the great things about this group and the hospital - we've
heard of, or met, other people with similar experiences and, although it's
very sad, it makes us feel less "out on a limb". Sometimes it all seems so
far from normal experiences that you start doubting what's happening to
you...

Sorry you can't find any hospitals near you, it just goes to show that the
USA is a big spread-out place compared to little old England! I remember
travelling by train from Pittsburgh to Philly once and it taking a whole day
...

Best wishes, Ian
           
---------------------------------
Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!
Messenger with Voice.

[Non-text portions of this message have been removed]




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