EMF Sensitivity - Porphyria?
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Hi all
I by chance came across an article the other day saying that estrogen is be avoided in porphyria, as it makes it worse. My severe EMF problems started last year not long after I started on estrogen therapy, so I wondered what porphyria was (as it's about the only thing I haven't tested for on the lab's main test page). So apparently there are different types of porphyrias and they're mostly genetic. Some of them make your skin extremely sensitive to sunlight because of porphyrincs in the skin, these can also damage your liver, others lead to muscle weakness, etc, and on googling, I found those people are also really sensitive to fluorescent lights.(And I'm guessing EMF generally, even if they don't all know it). Then I found a book by a professor Steven Rochlitz, who asserts that porphyria is the root cause of CFS, MCS, ES etc, and is very much undiagnozed. According to him, it can also be triggered by infections, heavy metals, etc. He says the routine tests for it are unreliable, you need DNA testing to see if you have one of the mutations causing the different types. This is his book: http://www.wellatlast.com/whatsnew.html (I haven't bought it yet, but I'm planning on doing so). This ia a summary of it: http://www.thefreelibrary.com/Porphyria+Link+to+Environmental+Illness.-a0243290447 This is an Nexus article re, which I haven't bought either: http://www.nexusmagazine.com/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=1992&category_id=214&option=com_virtuemart&Itemid=44 Anyway, there's a site http://www.cpnhelp.org/ where the subscribers are treating chlamydia pneumonia (not the same as the SCD chlamadia T) as the cause of most cases of CFS, MS, etc. They do this with pulsed antibiotics. But apparently Cpn also causes secondary porphyria, which is worsened by killing it with antibiotics. They treat this with glucose, high carb diets, activatged charcoal, increased b vits (especially b12) and Questran: http://www.cpnhelp.org/secondaryporphyria (These antibiotics would obviously also be addressing other infections such as Lyme, Rickettsia, mycoplasma, etc), and I guess the porphyria treatment also addressing other causes. This is a discussion on their forum about EMF sensitivity, some have gotten over their's by this antibiotic and porphyria traetment: http://www.cpnhelp.org/computers_emfs_cold_feet Another , new treatment for porphyria is Tegamet (Cimetidine ): http://www.theannals.com/cgi/content/abstract/31/3/365 http://www.ncbi.nlm.nih.gov/pubmed/8915698?dopt=Abstract Here's a Facebook chat about people using it for porphyria and some reporting losing much sensitivity to the sun and to fluorescent lights: http://www.facebook.com/topic.php?uid=2445760941&topic=11831 |
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Porphyria can be treated with Rife frequency technique.
*************************** Porphyria Several rare disorders due to the inability to create heme, a component of hemoglobin. This causes skin and nerve symptoms including abnormal sensitivity to light, skin lesions and scarring, delirium, seizure, coma, and abdominal pain. The neurological aspects of this condition are typically precipitated by drugs such as barbiturates. Since the liver, bone marrow, cellular metabolism, and other basic parts of the body are involved, also try other symptom pictures. 698, 780 frequencies in Hertz. ************************* Even on a computer, one can generate these frequencies with f.i. NCH Tone, and burn them to an audio CD. Each frequency for 5 minutes. Greetings, Charles Claessens member Verband Baubiologie www.milieuziektes.nl www.milieuziektes.be www.hetbitje.nl checked by Norton ----- Original Message ----- From: kikkie2004 To: [hidden email] Sent: Monday, February 07, 2011 11:22 AM Subject: [eSens] EMF Sensitivity - Porphyria? Hi all I by chance came across an article the other day saying that estrogen is be avoided in porphyria, as it makes it worse. My severe EMF problems started last year not long after I started on estrogen therapy, so I wondered what porphyria was (as it's about the only thing I haven't tested for on the lab's main test page). So apparently there are different types of porphyrias and they're mostly genetic. Some of them make your skin extremely sensitive to sunlight because of porphyrincs in the skin, these can also damage your liver, others lead to muscle weakness, etc, and on googling, I found those people are also really sensitive to fluorescent lights.(And I'm guessing EMF generally, even if they don't all know it). Then I found a book by a professor Steven Rochlitz, who asserts that porphyria is the root cause of CFS, MCS, ES etc, and is very much undiagnozed. According to him, it can also be triggered by infections, heavy metals, etc. He says the routine tests for it are unreliable, you need DNA testing to see if you have one of the mutations causing the different types. This is his book: http://www.wellatlast.com/whatsnew.html (I haven't bought it yet, but I'm planning on doing so). This ia a summary of it: http://www.thefreelibrary.com/Porphyria+Link+to+Environmental+Illness.-a0243290447 This is an Nexus article re, which I haven't bought either: http://www.nexusmagazine.com/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=1992&category_id=214&option=com_virtuemart&Itemid=44 Anyway, there's a site http://www.cpnhelp.org/ where the subscribers are treating chlamydia pneumonia (not the same as the SCD chlamadia T) as the cause of most cases of CFS, MS, etc. They do this with pulsed antibiotics. But apparently Cpn also causes secondary porphyria, which is worsened by killing it with antibiotics. They treat this with glucose, high carb diets, activatged charcoal, increased b vits (especially b12) and Questran: http://www.cpnhelp.org/secondaryporphyria (These antibiotics would obviously also be addressing other infections such as Lyme, Rickettsia, mycoplasma, etc), and I guess the porphyria treatment also addressing other causes. This is a discussion on their forum about EMF sensitivity, some have gotten over their's by this antibiotic and porphyria traetment: http://www.cpnhelp.org/computers_emfs_cold_feet Another , new treatment for porphyria is Tegamet (Cimetidine ): http://www.theannals.com/cgi/content/abstract/31/3/365 http://www.ncbi.nlm.nih.gov/pubmed/8915698?dopt=Abstract Here's a Facebook chat about people using it for porphyria and some reporting losing much sensitivity to the sun and to fluorescent lights: http://www.facebook.com/topic.php?uid=2445760941&topic=11831 ------------------------------------ Yahoo! Groups Links [Non-text portions of this message have been removed] |
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Hi Charles Yes, but there are about eight (if not more) different types of porphyria and they all have different symtoms etc. I don't know which one this professor is referring to, must order the book and wait for it to come to SA.. But wouldn't rife be contraindicated for ESers. I was doing a lof of rife, becks blood electrifier, zapper and I think it contributed to my becoming ES (and I've read of others too). --- In [hidden email], "charles" <charles@...> wrote: > > Porphyria can be treated with Rife frequency technique. > *************************** > Porphyria > > Several rare disorders due to the inability to create heme, a component of hemoglobin. This causes skin and > > nerve symptoms including abnormal sensitivity to light, skin lesions and scarring, delirium, seizure, coma, and > > abdominal pain. The neurological aspects of this condition are typically precipitated by drugs such as barbiturates. > > Since the liver, bone marrow, cellular metabolism, and other basic parts of the body are involved, also try other > > symptom pictures. > > 698, 780 frequencies in Hertz. > > ************************* > > Even on a computer, one can generate these frequencies with f.i. NCH Tone, and burn them to an audio CD. > > Each frequency for 5 minutes. > > Greetings, > Charles Claessens > member Verband Baubiologie > www.milieuziektes.nl > www.milieuziektes.be > www.hetbitje.nl > checked by Norton > > > > > > > ----- Original Message ----- > From: kikkie2004 > To: [hidden email] > Sent: Monday, February 07, 2011 11:22 AM > Subject: [eSens] EMF Sensitivity - Porphyria? > > > Hi all > > I by chance came across an article the other day saying that estrogen is be avoided in porphyria, as it makes it worse. My severe EMF problems started last year not long after I started on estrogen therapy, so I wondered what porphyria was (as it's about the only thing I haven't tested for on the lab's main test page). > So apparently there are different types of porphyrias and they're mostly genetic. Some of them make your skin extremely sensitive to sunlight because of porphyrincs in the skin, these can also damage your liver, others lead to muscle weakness, etc, and on googling, I found those people are also really sensitive to fluorescent lights.(And I'm guessing EMF generally, even if they don't all know it). > > Then I found a book by a professor Steven Rochlitz, who asserts that porphyria is the root cause of CFS, MCS, ES etc, and is very much undiagnozed. According to him, it can also be triggered by infections, heavy metals, etc. He says the routine tests for it are unreliable, you need DNA testing to see if you have one of the mutations causing the different types. > > This is his book: > > http://www.wellatlast.com/whatsnew.html > > (I haven't bought it yet, but I'm planning on doing so). > > This ia a summary of it: > > http://www.thefreelibrary.com/Porphyria+Link+to+Environmental+Illness.-a0243290447 > > This is an Nexus article re, which I haven't bought either: > > http://www.nexusmagazine.com/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=1992&category_id=214&option=com_virtuemart&Itemid=44 > > Anyway, there's a site > > http://www.cpnhelp.org/ > > where the subscribers are treating chlamydia pneumonia (not the same as the SCD chlamadia T) as the cause of most cases of CFS, MS, etc. They do this with pulsed antibiotics. But apparently Cpn also causes secondary porphyria, which is worsened by killing it with antibiotics. They treat this with glucose, high carb diets, activatged charcoal, increased b vits (especially b12) and Questran: > > http://www.cpnhelp.org/secondaryporphyria > > (These antibiotics would obviously also be addressing other infections such as Lyme, Rickettsia, mycoplasma, etc), and I guess the porphyria treatment also addressing other causes. > > This is a discussion on their forum about EMF sensitivity, some have gotten over their's by this antibiotic and porphyria traetment: > > http://www.cpnhelp.org/computers_emfs_cold_feet > > Another , new treatment for porphyria is Tegamet (Cimetidine ): > > http://www.theannals.com/cgi/content/abstract/31/3/365 > http://www.ncbi.nlm.nih.gov/pubmed/8915698?dopt=Abstract > > Here's a Facebook chat about people using it for porphyria and some reporting losing much sensitivity to the sun and to fluorescent lights: > > http://www.facebook.com/topic.php?uid=2445760941&topic=11831 > > > > ------------------------------------ > > Yahoo! Groups Links > > > > > > [Non-text portions of this message have been removed] > |
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In reply to this post by kikkie2004
> Then I found a book by a professor Steven Rochlitz, who asserts that
> porphyria is the root cause of CFS, MCS, ES etc I thought porphyria was merely a symptom of heavy metal poisoning, just like can be... (?) Marc |
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Hi Marc
Normally it's genetic, and the symptoms are rather obvious (except for the skin one, where exposure to the sun can make the skin swell and ache, but without blistering and thus the diagnosis is often mised). But infections, etc, can cause secondary porphyria. And the lab tests araare inaccurate and only test for some of them (there is about 8). And according to that professor these porphyrins are the root cause of the symptoms of CFS , MS, MCS, ES, etc. And two of those links I posted have people getting better from ES - one treating Cpn with antibiotics and the secondary porphyria with gluose, activated charcoal, carbs, etc, and the other group were treating conventionally diagnozed porphyria with Tegamet. --- In [hidden email], "Marc Martin" <marc@...> wrote: > > > Then I found a book by a professor Steven Rochlitz, who asserts that > > porphyria is the root cause of CFS, MCS, ES etc > > I thought porphyria was merely a symptom of heavy metal poisoning, > just like can be... (?) > > Marc > |
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> Normally it's genetic, and the symptoms are rather obvious
> > But infections, etc, can cause secondary porphyria. Ahh, thanks! As for your concerns about zapping, I've tried a few zappers, and never found them to increase my ES symptoms at all. Marc |
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Porphyria is what may have created the legend of vampires!
But I do know someone who's had EHS a long time and was also diagnosed with porphyria. Porphyrins are an important class of molecules, they bind metals, so it can all make sense. I would stay away from zappers myself... I think the theory (Prof. Sam Milham) that ALS is usually caused by diathermy/TENS treatment (even Lou Gehrig himself probably had diathermy for his back; his trainer is known to have used it on others) looks very plausible. These symptoms usually start many years later. BIll On Tue, Feb 8, 2011 at 12:50 PM, Marc Martin <[hidden email]> wrote: > > > > Normally it's genetic, and the symptoms are rather obvious > > > > But infections, etc, can cause secondary porphyria. > > Ahh, thanks! > > As for your concerns about zapping, I've tried a few zappers, > and never found them to increase my ES symptoms at all. > > Marc > > [Non-text portions of this message have been removed] ------------------------------------ Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/eSens/ <*> Your email settings: Individual Email | Traditional <*> To change settings online go to: http://groups.yahoo.com/group/eSens/join (Yahoo! ID required) <*> To change settings via email: [hidden email] [hidden email] <*> To unsubscribe from this group, send an email to: [hidden email] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/ |
Re: EMF Sensitivity - Porphyria?
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Re Bill's post:
> I would stay away from zappers myself... I think the theory > (Prof. Sam Milham) that ALS is usually caused by diathermy/TENS > treatment (even Lou Gehrig himself probably had diathermy for > his back; his trainer is known to have used it on others) looks > very plausible. These symptoms usually start many years later. TENS treatment is probably pretty much the same as Tennant's Biomodulator treatment that's directly aimed at raising voltage/pH... I believe treatments like that can worsen inflammation... Tennant also mentions not to use his Biomodulator on inflamed body parts.. That makes sense because inflammation is simply too much pH/voltage... These things like TENS and Biomodulator emit a lot of different natural frequencies to raise body voltage. They work probably the same as the sun for instance... The sun also raises your voltage/pH but don't sit in the sun all day or... Especially if you have (brain) inflammation... Qi Gong masters also give Chi/energy, which is imo the same as raising voltage... Qi Gong therapies are considered to be not good for inflammation... So also not good for CFS patients, CFS patients have got inflammation (brain, gut,...). Stephen. --- In [hidden email], Bill Bruno <wbruno@...> wrote: > > Porphyria is what may have created the legend of vampires! > > But I do know someone who's had EHS a long time and was > also diagnosed with porphyria. Porphyrins are an important class > of molecules, they bind metals, so it can all make sense. > > I would stay away from zappers myself... I think the theory > (Prof. Sam Milham) that ALS is usually caused by diathermy/TENS > treatment (even Lou Gehrig himself probably had diathermy for > his back; his trainer is known to have used it on others) looks > very plausible. These symptoms usually start many years later. > > BIll > > On Tue, Feb 8, 2011 at 12:50 PM, Marc Martin <marc@...> wrote: > > > > > > > > Normally it's genetic, and the symptoms are rather obvious > > > > > > But infections, etc, can cause secondary porphyria. > > > > Ahh, thanks! > > > > As for your concerns about zapping, I've tried a few zappers, > > and never found them to increase my ES symptoms at all. > > > > Marc > > > > > > > [Non-text portions of this message have been removed] > |
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