To Julie, Have you set up a fund or otherwise acknowledged or given credit to the 18 individuals that you surveyed? ES is a devastating disease and it looks like these individuals did a lot of hands on research for you. You cite a number of ideas that are new or at least run contrary to the prevailing wisdom in the ES field. For example, you state: Avoid hard wired smoke alarms (but you may need to install them initially to meet the local building code). I agree with this statement. However a large number of people would disagree. Most ES books dont even cover the topic of or refer to fire alarms. Do you have proof or done any testing to show that fire alarms are a source of Electrical Sensitivity? Kind regards, Nick Llynch ------------------- Safer Construction Tips for the Environmentally Sensitive Posted by: "lunagirl32002" [hidden email] lunagirl32002 Thu Oct 4, 2007 2:44 am (PST) Hello all, I am excited to announce that our Safer Construction Tips for the Environmentally Sensitive brochure is now online. This is a FREE 38-page, read-only, full color brochure based on the results of a survey of 18 people who completed a safer construction project for someone with moderate-severe chemical and/or electrical sensitivities themselves. I began this project as a coordinator for MCS-Global in 2005. Melinda Honn and Greg Conrad were instrumental in creating this brochure, as well. There is a whole section on lowering EMFs. http://planetthrive.com/cgi-bin/members/pub9990237067534.cgi Would love your feedback! Julie Julie Genser founder and director Planet Thrive, Inc. www.PlanetThrive.com Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (1) Copyright 2007, All rights reserved ____________________________________________________________________________________ Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! http://tv.yahoo.com/collections/3658 |
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> I agree with this statement. However a large number
> of people would disagree. Most ES books don’t even > cover the topic of or refer to fire alarms. Do you > have proof or done any testing to show that fire > alarms are a source of Electrical Sensitivity? I would think that fire alarms are way down on the priority list, and possibly not even worth worrying about. I did not in my local environmental home store, they sell "non-radioactive" fire alarms, which indicates to me that most fire alarms out there ARE radioactive... Marc |
In reply to this post by Nick Lynch
i don't want to get in the way of a bit of constructive criticism ,
but just to say it seems to me Julie's heart is in the right place.. j --- In [hidden email], Nick Lynch <nickllynch@...> wrote: > > > To Julie, > > Have you set up a fund or otherwise acknowledged or > given credit to the 18 individuals that you > "surveyed"? > > ES is a devastating disease and it looks like these > individuals did a lot of hands on research for you. > > You cite a number of ideas that are new or at least > run contrary to the prevailing wisdom in the ES field. > For example, you state: > > "Avoid hard wired smoke alarms (but you may need to > install them initially to meet the local building > code)." > > I agree with this statement. However a large number > of people would disagree. Most ES books don't even > cover the topic of or refer to fire alarms. Do you > have proof or done any testing to show that fire > alarms are a source of Electrical Sensitivity? > > > Kind regards, > Nick Llynch > > > > > ------------------- > > Safer Construction Tips for the Environmentally > Sensitive > > > Posted by: "lunagirl32002" j_genser@... > lunagirl32002 > > > Thu Oct 4, 2007 2:44 am (PST) > > Hello all, > I am excited to announce that our Safer Construction > Tips for the > Environmentally Sensitive brochure is now online. This > is a FREE > 38-page, read-only, full color brochure based on the > results of a > survey of 18 people who completed a safer construction > project for > someone with moderate-severe chemical and/or > electrical sensitivities > themselves. I began this project as a coordinator for > MCS-Global in > 2005. Melinda Honn and Greg Conrad were instrumental > in creating this > brochure, as well. There is a whole section on > lowering EMFs. > > http://planetthrive.com/cgi-bin/members/pub9990237067534.cgi > > Would love your feedback! > Julie > > Julie Genser > founder and director > Planet Thrive, Inc. > www.PlanetThrive.com > > > > > Back to top > Reply to sender | Reply to group | Reply via web > post > Messages in this topic (1) > > Copyright 2007, All rights reserved > > > > > ______________ > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! > http://tv.yahoo.com/collections/3658 > |
In reply to this post by Nick Lynch
Hi Nick,
Thank you for your comments. The 18 individuals were kept anonymous in order to protect their privacy. But you make a good point and I will re-address the issue to make sure noone feels they are not credited adequately. Please see the disclaimer on the brochure. I am no expert in non-toxic construction and I have not built my own safe house yet. This brochure is in no way comprehensive or complete. It is based on the completed surveys of those that have already built their own housing for someone with moderate to severe chemical and/or electrical sensitivities. All but one of the construction projects were completed way before my survey began; no one was actively doing hands-on research for this project. The participants filled out a survey in 2005 when I started the project, and I have been working on it ever since. The tips in the brochure are from people who built their own house and reflect what worked for them. As stated multiple times in the brochure, due to the highly individual nature of environmental illnesses, the only way to know if something will work for you is to test each item yourself. I have no scientific proof or testing of anything in the brochure; this brochure is mostly anecdotal in that regard although I am not discounting that scientific proof may indeed exist. In my personal experience, 'science' has not done a good job of 'proving' what ails me at all and I trust my body more than any report or test. The smoke alarm example you refer to was a tip from one of the surveys. I'mnot sure why this would be counter to prevailing wisdom in the ES community. Wouldn't any electrical appliance be a potential source of unwanted EMF radiation? There is a wide range of sensitivity levels and types within the ES community. A smoke alarm might not bother a high percentage of those with ES, but we thought it was worth mentioning for the percentage that it does affect. Again, these are merely 'tips' or suggestions and each person needs to individually test materials/appliances/methods to customize to their own situation. I hope that adequately addresses your concerns. Best, Julie --- In [hidden email], Nick Lynch <nickllynch@...> wrote: > > > To Julie, > > Have you set up a fund or otherwise acknowledged or > given credit to the 18 individuals that you > "surveyed"? > > ES is a devastating disease and it looks like these > individuals did a lot of hands on research for you. > > You cite a number of ideas that are new or at least > run contrary to the prevailing wisdom in the ES field. > For example, you state: > > "Avoid hard wired smoke alarms (but you may need to > install them initially to meet the local building > code)." > > I agree with this statement. However a large number > of people would disagree. Most ES books don't even > cover the topic of or refer to fire alarms. Do you > have proof or done any testing to show that fire > alarms are a source of Electrical Sensitivity? > > > Kind regards, > Nick Llynch > > > > > ------------------- > > Safer Construction Tips for the Environmentally > Sensitive > > > Posted by: "lunagirl32002" j_genser@... > lunagirl32002 > > > Thu Oct 4, 2007 2:44 am (PST) > > Hello all, > I am excited to announce that our Safer Construction > Tips for the > Environmentally Sensitive brochure is now online. This > is a FREE > 38-page, read-only, full color brochure based on the > results of a > survey of 18 people who completed a safer construction > project for > someone with moderate-severe chemical and/or > electrical sensitivities > themselves. I began this project as a coordinator for > MCS-Global in > 2005. Melinda Honn and Greg Conrad were instrumental > in creating this > brochure, as well. There is a whole section on > lowering EMFs. > > http://planetthrive.com/cgi-bin/members/pub9990237067534.cgi > > Would love your feedback! > Julie > > Julie Genser > founder and director > Planet Thrive, Inc. > www.PlanetThrive.com > > > > > Back to top > Reply to sender | Reply to group | Reply via web > post > Messages in this topic (1) > > Copyright 2007, All rights reserved > > > > > > Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! > http://tv.yahoo.com/collections/3658 > |
In reply to this post by asurisuk
Thank you for acknowledging that Aurisuk!
Cheers, Julie --- In [hidden email], "asurisuk" <asurisuk@...> wrote: > > i don't want to get in the way of a bit of constructive criticism , > but just to say it seems to me Julie's heart is in the right place.. > j |
In reply to this post by lunagirl32002
Hi Julie, I think it is important to recognize the contributions of individuals with Electrical Sensitivity who conduct empirical research. Many of these individuals will be extremely ostracized by society by their illness (including the ES/Bioelectromagnetics research community itself) and need some positive affirmation of their illness. Many will not be online. Have you encouraged them to network with each other? I would be surprised if they are not looking to connect with other individuals who share their illness. I hope that you have at least asked them if they would like their name printed in your study as Contributors. Fire alarms do have a radioactive component and a dirty electricity component. This runs counter to prevailing wisdom as can be evidenced by the fact that most Electrical Sensitivity research studies are performed without controlling for fire alarms or fire systems which are mandated in all university, corporate, and research settings. Kind regards, Nick Llynch --- lunagirl32002 <[hidden email]> wrote: > Hi Nick, > Thank you for your comments. The 18 individuals were > kept anonymous in order to > protect their privacy. But you make a good point and > I will re-address the issue to make > sure noone feels they are not credited adequately. > > Please see the disclaimer on the brochure. I am no > expert in non-toxic construction and I > have not built my own safe house yet. This brochure > is in no way comprehensive or > complete. It is based on the completed surveys of > those that have already built their own > housing for someone with moderate to severe chemical > and/or electrical sensitivities. All > but one of the construction projects were completed > way before my survey began; no one > was actively doing hands-on research for this > project. The participants filled out a survey > in 2005 when I started the project, and I have been > working on it ever since. > > The tips in the brochure are from people who built > their own house and reflect what > worked for them. As stated multiple times in the > brochure, due to the highly individual > nature of environmental illnesses, the only way to > know if something will work for you is > to test each item yourself. > > I have no scientific proof or testing of anything in > the brochure; this brochure is mostly > anecdotal in that regard although I am not > discounting that scientific proof may indeed > exist. In my personal experience, 'science' has not > done a good job of 'proving' what ails > me at all and I trust my body more than any report > or test. > > The smoke alarm example you refer to was a tip from > one of the surveys. I'm not sure why > this would be counter to prevailing wisdom in the ES > community. Wouldn't any electrical > appliance be a potential source of unwanted EMF > radiation? There is a wide range of > sensitivity levels and types within the ES > community. A smoke alarm might not bother a > high percentage of those with ES, but we thought it > was worth mentioning for the > percentage that it does affect. > > Again, these are merely 'tips' or suggestions and > each person needs to individually test > materials/appliances/methods to customize to their > own situation. > > I hope that adequately addresses your concerns. > Best, Julie > > --- In [hidden email], Nick Lynch > <nickllynch@...> wrote: > > > > > > To Julie, > > > > Have you set up a fund or otherwise acknowledged > or > > given credit to the 18 individuals that you > > "surveyed"? > > > > ES is a devastating disease and it looks like > these > > individuals did a lot of hands on research for > you. > > > > You cite a number of ideas that are new or at > least > > run contrary to the prevailing wisdom in the ES > field. > > For example, you state: > > > > "Avoid hard wired smoke alarms (but you may need > to > > install them initially to meet the local building > > code)." > > > > I agree with this statement. However a large > number > > of people would disagree. Most ES books don't > even > > cover the topic of or refer to fire alarms. Do > you > > have proof or done any testing to show that fire > > alarms are a source of Electrical Sensitivity? > > > > > > Kind regards, > > Nick Llynch > > > > > > > > > > ------------------- > > > > Safer Construction Tips for the Environmentally > > Sensitive > > > > > > Posted by: "lunagirl32002" j_genser@... > > lunagirl32002 > > > > > > Thu Oct 4, 2007 2:44 am (PST) > > > > Hello all, > > I am excited to announce that our Safer > Construction > > Tips for the > > Environmentally Sensitive brochure is now online. > This > > is a FREE > > 38-page, read-only, full color brochure based on > the > > results of a > > survey of 18 people who completed a safer > construction > > project for > > someone with moderate-severe chemical and/or > > electrical sensitivities > > themselves. I began this project as a coordinator > for > > MCS-Global in > > 2005. Melinda Honn and Greg Conrad were > instrumental > > in creating this > > brochure, as well. There is a whole section on > > lowering EMFs. > > > > > > > > > Would love your feedback! > > Julie > > > > Julie Genser > > founder and director > > Planet Thrive, Inc. > > www.PlanetThrive.com > > > > > > > > > > Back to top > > Reply to sender | Reply to group | Reply via > web > > post > > Messages in this topic (1) > > > > Copyright 2007, All rights reserved, Planit Thrive > > > > > > > > > > > > > Catch up on fall's hot new shows on Yahoo! TV. > Watch previews, get listings, and more! > > http://tv.yahoo.com/collections/3658 > > > > > ____________________________________________________________________________________ Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos. http://autos.yahoo.com/index.html |
Hi Nick,
I agree that it is important to recognize contributors to the brochure, but only if they wish to be credited. All contributors who supplied me with current contact info have been asked if they would like to be credited in the brochure. Many prefer to remain anonymous. I will reissue the brochure if anyone desires to be named publicly but so far noone has said so. Many of those with severe electrical sensitivity who filled out the survey live in an MCS/ES community already and have connected with many other families in the same situation. I get the feeling from your emails to me that you think I am someone from outside the ES community who has taken information from an ostracized community for my own use with no regard for those who participated. I myself suffer from severe MCS and now ES in the last six months. This project was a labor of love through many months of sickness, relocations, and stress/trauma. I also created a website during this time offering 'virtual' community to those with environmental illness and we have over 750 members now. All this without any income. My intentions have always been first and foremost to help others like me who are suffering alone to connect with each other and have access to important information that could help alleviate their suffering. This brochure is just a guide and is not the last word on MCS/ES construction. I did not research 'prevailing wisdom'; I surveyed those who built homes for themselves and asked for them to share what worked and what didn't. That is the purpose of this brochure. Hopefully, you and others will be able to glean some helpful information from it. It won't help everyone and not everything in it will apply to every situation. Please keep that in mind. Thanks for your comments. Julie www.PlanetThrive.com --- In [hidden email], Nick Lynch <nickllynch@...> wrote: > > > Hi Julie, > > I think it is important to recognize the contributions > of individuals with Electrical Sensitivity who conduct > empirical research. Many of these individuals will be > extremely ostracized by society by their illness > (including the ES/Bioelectromagnetics research > community itself) and need some positive affirmation > of their illness. Many will not be online. Have you > encouraged them to network with each other? I would > be surprised if they are not looking to connect with > other individuals who share their illness. I hope > that you have at least asked them if they would like > their name printed in your study as Contributors. |
Hi Julie, I am surprised that not one of the 18 individuals wished to be named. I am glad that you asked them. I am curious to hear about the MCS/ES communities to which you refer. Do you have the addresses and names of these communities? Congratulations on your virtual community and brochure. The brochure was well done and informative. Kind regards, Nick Llynch --- lunagirl32002 <[hidden email]> wrote: > Hi Nick, > I agree that it is important to recognize > contributors to the > brochure, but only if they wish to be credited. All > contributors who > supplied me with current contact info have been > asked if they would > like to be credited in the brochure. Many prefer to > remain anonymous. > I will reissue the brochure if anyone desires to be > named publicly but > so far noone has said so. Many of those with severe > electrical > sensitivity who filled out the survey live in an > MCS/ES community > already and have connected with many other families > in the same situation. > > I get the feeling from your emails to me that you > think I am someone > from outside the ES community who has taken > information from an > ostracized community for my own use with no regard > for those who > participated. I myself suffer from severe MCS and > now ES in the last > six months. This project was a labor of love through > many months of > sickness, relocations, and stress/trauma. I also > created a website > during this time offering 'virtual' community to > those with > environmental illness and we have over 750 members > now. All this > without any income. My intentions have always been > first and foremost > to help others like me who are suffering alone to > connect with each > other and have access to important information that > could help > alleviate their suffering. > > This brochure is just a guide and is not the last > word on MCS/ES > construction. I did not research 'prevailing > wisdom'; I surveyed those > who built homes for themselves and asked for them to > share what worked > and what didn't. That is the purpose of this > brochure. Hopefully, you > and others will be able to glean some helpful > information from it. It > won't help everyone and not everything in it will > apply to every > situation. Please keep that in mind. > > Thanks for your comments. > Julie > www.PlanetThrive.com > > --- In [hidden email], Nick Lynch > <nickllynch@...> wrote: > > > > > > Hi Julie, > > > > I think it is important to recognize the > contributions > > of individuals with Electrical Sensitivity who > conduct > > empirical research. Many of these individuals > will be > > extremely ostracized by society by their illness > > (including the ES/Bioelectromagnetics research > > community itself) and need some positive > affirmation > > of their illness. Many will not be online. Have > you > > encouraged them to network with each other? I > would > > be surprised if they are not looking to connect > with > > other individuals who share their illness. I hope > > that you have at least asked them if they would > like > > their name printed in your study as Contributors. > > > ____________________________________________________________________________________ Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games. http://sims.yahoo.com/ |
Hi Nick,
FYI, unfortunately, not all of the 18 individuals responded to my question...and some said that they don't care either way. The ones that have said they do not want public credit are concerned about privacy issues and not wanting to get contacted about their house. Many people with severe MCS/ES need to focus on avoiding exposures and don't want more complications in their life...others may be too sick to respond. If anyone ever writes back to me to let me know that they want credit in the source notes, I will be happy to reissue the brochure with their name. I have no reason not to. Leaving names off was purely a privacy issue and was not about not wanting to give credit where credit is due. There is no "MCS/ES" community per se, so I don't have an address for you. There is a neighborhood of about 30 severe MCS/ES families that live in Snowflake, AZ. They live on adjacent plots of land. You can read more about it here: http://www.nytimes.com/2005/07/10/realestate/10nation.html?pagewanted=1&adxnnl=1&adxnnlx=1192204827-x2s2mDsDARPanzaCbsFRDQ Hope that answers your questions. Julie --- In [hidden email], Nick Lynch <nickllynch@...> wrote: > > > Hi Julie, > > I am surprised that not one of the 18 individuals > wished to be named. I am glad that you asked them. > > I am curious to hear about the MCS/ES communities to > which you refer. Do you have the addresses and names > of these communities? > > Congratulations on your virtual community and > brochure. The brochure was well done and informative. > > Kind regards, > Nick Llynch |
In reply to this post by lunagirl32002
Hi Nick,
I want to thank you for addressing this issue with me. Because of your inquiry, I followed up my original email with individual requests to the people involved and many of them did eventually respond. Just under half agreed to have their names listed on the brochure. The rest preferred to remain anonymous. I have reissued the brochure to reflect this. You can download the FREE read-only PDF here: http://tinyurl.com/2ly6h2 For additional information ad related links, you can visit the website itself: http://tinyurl.com/3259rj Thanks for pressing this issue with me. Julie --- In [hidden email], "lunagirl32002" <j_genser@...> wrote: > > Hi Nick, > Thank you for your comments. The 18 individuals were kept anonymous in order to protect their privacy. But you make a good point and I will re-address the issue to make sure noone feels they are not credited adequately. |
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