Cannot tolerate minerals of any kind? What to DO?

Ada--you are so right about the canary thing being a salvation or blessing in disguise. My wife's great aunt could not stand electricity and would run wildly out of the house when it was too much. She often lived in remote areas and never had a tv. So she avoided this electric smog because she could detect them. By the way, she lived to be 95! Those of us who live without symptoms are bombarded anyway. We probably expire at 65, since we took no measures of avoidance. Just some anecdotal knowledge to chew on.

On another note, we received the radar3 card yesterday. My wife can not feel voltage spikes on her head if she wears it, usually on her head. I wore it for a while (I am not ES or MCS), but I noticed by arthritis subsided in the interim. What a wonderful side effect. I do not think it is the placebo effect going on here. Any thoughts?

Mike and Maria(in absentia) in Phoenix

ada iye <[hidden email]> wrote:
The depopulation/elites/NWO agenda that you mention is what I mean by warfare. I see this condition as a challenge to stay present , grounded, positive , alive and life focused no matter- essentially to not give up or check out , but hold the line and not give up . Much of these vibrations are anti nature and against life which is why we all feel it so acutely. Canaries in the mines.


Thanks for your feedback.

Ada


"Although my Soul shall set in Darkness, I will raise in Perfect Light, I have Loved the Stars to Fondly to be Fearful of the Night."

unknown

--- On Wed, 31/12/08, Andrew McAfee <[hidden email]> wrote:

From: Andrew McAfee <[hidden email]>
Subject: Re: [eSens] sensitized to energy
To: [hidden email]
Date: Wednesday, 31 December, 2008, 8:42 AM

I was doing deep emotional and spiritual work (Barbara Brennan School,
emotional therapy, men's work, Mystery School material, etc.) when I
got sick. I was labeled by a few spiritualists that I was becoming
enlightened, blah blah blah, through my work.
I poo pooed it for a while. I now do think there is a place where the
physical meets the spiritual and in that crossroads there is potential
for awareness of many kinds.
I currently choose to interpret that my ES is a gift that has enabled
me to be aware of the unhealthy radiation present in our world, the
depopulation agenda, the new world order push by the elites, and a host
of other things brought about by people with less than admirable
qualities.
My health challenge helped me look deeper and further than I would have
originally.

AND, I believe that I am infected with a disease (of origin I do not
know) Lyme, Herpes, EBV, etc...? and that is not something that I or
people in general eagerly seek out on their spiritual quest.

So I will take the lumps with the new awarenesses and choose to use it
for good (helping others avoid my condition).

May others take it positively regardless of my vehicle of expression.
All my best to others in similar predicaments. ..
Andrew

On Dec 30, 2008, at 3:21 PM, ada iye wrote:

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

> On another note, we received the radar3 card yesterday. My wife can
> not feel voltage spikes on her head if she wears it, usually on her
> head. I wore it for a while (I am not ES or MCS), but I noticed by
> arthritis subsided in the interim. What a wonderful side effect. I do
> not think it is the placebo effect going on here. Any thoughts?

Interesting... the makers of the radar card claim an improvement in the
immune system, but I never noticed anything. All I ever noticed was
improvement in tolerating LCD monitors when placing the card on the
monitor, and a side effect of anxiety if I wore it on my person when
there was not much EMF around to counter.

Marc

Andrew
 
Thanks for this post, it helped me see more clearly something that I have been struggling with for quite some time now. I'd give anything to be "normal", to be able to freely use all of the technology what we have available to us at our disposal and become frightened when I see the pace and rate at which I soon won't be able to participate in what is considered "normal" life because it is so bound up in technology which I can't use [or even bear to be near] because I am ES. I'm sick of being regarded as abnormal - My close family regard me as "slightly wacko - I mean she doesn't have a mobile phone and she thinks it makes her sick - come on!!!" I daren't tell my [less close] friends about being ES fo fear of a similar reaction and only my closest friends know how things really are for me - but if they can't experience this for themselves and actually feel it then how could they begin to imagine what it is like? I feel like I am being sacrificed on the
altar of a huge darwinian experiment for corporate profit based on technologies which the human body was never designed to withstand and the safety of which has never been fully or properly tested - and if it has been testedit has probably been done in isolation, without taking account iof the fact that there is a soup or smog effect. SO it never occurred to me to be glad about being ES, but if it acts as an early warning system for me andhelps me detect good and bad environments for me then it is useful. But I'd still like to find a way to live..... just a nice, ordinary, simple life,not much to ask.
 
Steph
 
 
 


--- On Tue, 30/12/08, Andrew McAfee <[hidden email]> wrote:

From: Andrew McAfee <[hidden email]>
Subject: Re: [eSens] sensitized to energy
To: [hidden email]
Date: Tuesday, 30 December, 2008, 9:42 PM






I was doing deep emotional and spiritual work (Barbara Brennan School,
emotional therapy, men's work, Mystery School material, etc.) when I
got sick. I was labeled by a few spiritualists that I was becoming
enlightened, blah blah blah, through my work.
I poo pooed it for a while. I now do think there is a place where the
physical meets the spiritual and in that crossroads there is potential
for awareness of many kinds.
I currently choose to interpret that my ES is a gift that has enabled
me to be aware of the unhealthy radiation present in our world, the
depopulation agenda, the new world order push by the elites, and a host
of other things brought about by people with less than admirable
qualities.
My health challenge helped me look deeper and further than I would have
originally.

AND, I believe that I am infected with a disease (of origin I do not
know) Lyme, Herpes, EBV, etc...? and that is not something that I or
people in general eagerly seek out on their spiritual quest.

So I will take the lumps with the new awarenesses and choose to use it
for good (helping others avoid my condition).

May others take it positively regardless of my vehicle of expression.
All my best to others in similar predicaments. ..
Andrew

On Dec 30, 2008, at 3:21 PM, ada iye wrote:

 














     

[Non-text portions of this message have been removed]

Hi, Laurel,
 
Yes, I know of Dr. Fine.  He is quite controversial among celiac docs, but he has a good rep with celiac patients, from what I have heard.  I understand re your not being able to travel.  I cannot use public transportation of any kind, nor can I stay in hotels, motels, or most B&Bs--and the B&Bs I can stay in are very sparce and difficult to locate.  I cannot travel to Texas to see Dr. Fine or Dr. Rae, but I can go to Baltimore because I am close enough to go by car with my hubby driving and we will return home the same day--not saying it won't be painful getting there and I will not have problems due to ES, but....) 
 
Dr. Fasano found approx. 1% of the population to have celiac disease by blood testing of the blood bank supplies, but the 1 in 6 you speak of is at the very least true of gluten intolerance (which is now thought to be just as serious as celiac disease in most cases.)  And I do notice that all the various health forums I have been apart of have a rather huge component of gluten intolerant people in them (which probably means some of them areceliacs but not aware of that).
 
Sorry that you cannot make the trip to Baltimore.  I noticed that Dr. Fasano's staff had a doc referral service.  Perhaps they will know another way for you to try the pill.  But I have no idea yet whether the pill willwork or not for ES.  (I will let you know how that goes!  :)   )
 
Diane aka Evie

--- On Tue, 12/30/08, laurel canyon <[hidden email]> wrote:

From: laurel canyon <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Date: Tuesday, December 30, 2008, 2:26 PM






Hi Evie,
 
Thanks for the information. I will google it.
 
That is great you can go to see Dr. Fasano in Baltimore. Unfortunately for me, I could not make that kind of trip for so many reasons.
 
Have you heard of Dr. Fine in Texas. His website is finerhealth. com. He has a test that people can get that is suppose to be much more accurate than what anyone would normally get from their local doc. He has said that ONE IN EVERY 6 PEOPLE HAVE CELIAC SPRUE. That is amazing. The thing is one can have it and not realize it because the symptoms can be what the AMA labels as diseases in themselves. Unfortunately, when a symptom is labeled as a disease, it tends to be treated as a separately entity and the underlying cause is not further sought. Hence, when someone ends up with colon cancer, lymphoma, osteoporosis, arthritis and the list goes on, they would not contribute that possible cause to be gluten enteropathy( celiac).
 
 
It is good that you do mention it often.
 
Laurel
 

--- On Tue, 30/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Tuesday, 30 December, 2008, 12:54 PM

Hi again, Laurel,
 
I have been trying to send this email for the last hour and yahoo keeps eating it.  lol  For some reason, it is not allowing me to send the websites about the pill.  So, if you want more info, you will have to search itonline.  The pill is "Larazotide Acetate" and is a synthetic peptide which is a tight junction regulator.  I had a bunch of sites which gave alotof info, but I guess you will have to look them up yourself.  They aren't hard to find, tho, just put in the name in quotations that I wrote here.

Not surprised at all that you have celiac disease.  It makes perfect sense that celiacs and gluten intolerants would come down with MCS and ES! (Which is why I have mentioned that at this forum repeatedly; but not everyone wants to hear it.  lol)  Dr. Alesio Fasano is the doc who is behind the pill.  If you can afford it (and are interested), make your appt now to see Dr. Alesio Fasano (I believe he is still in Baltimore, Md).  I am making my appt too.  The pill is supposed to be approved by June 2009, from what I have read.  It is in Phase 3 trials and has been fast-trackedby the FDA. 
 
Hope 2009 is our Happy New Year!  :) 
Diane

--- On Mon, 12/29/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 29, 2008, 6:49 PM

Hi Diane,
 
Thank you for your response.
 
WOW! Perhaps you have an incredible intution. I also have celiac sprue and MCS and I too, will complicate what may seem simple to others..lol.
 
I know ES is an outgrowth of MCS. I should mention that I have a theory, ormoreover, a belief and that is MOST everything is a symptom and not a disease. One complicates the next and the proverbial onion can be peeled backfurther and further.
 
In the book, "Vibrational Medicine", it is mentioned that scientists now believe that all disease has its origin in an allergy. I would say that is one of the deeper onion layers that could be traced, given the practitioner who is capable of doing so. I could at one time and that is the problem for me, EHSwise. About a year ago I could no longer treat my MCS, allergies, etc type of reactions. I used to be able to successfully treat just about each and every reaction so that I would not react ever again to that particular treated item. Little did I know I would lose that ability to treat them ever again. The method is similar to NAET and if there is anyone who can O-ring muscle check, I will teach you personally how to do the technique, but you must be able to O-ring muscle check and be able to do it accurately. Itis not easy for just anyone to catch onto. It would take some time to teach the method once someone can O check, but they would have to be
able to already do this. I could tell one how to maybe begin to O check, and then they either get it or do not. All(lol) I would ask in return is for that person to treat me when I am having a reaction.
 
I had heard that they were coming out with a pill for celiac years ago. I have not kept up with the celiac info at all for past 5 years or so. I was living a decent life with a nice home and I was able to control my environment. Now, I have lost everything and live like a refugee and I am in a housewhere there is so much gluten and other triggers. Yes, life is hell right now and has been for the past year. I am at a loss about what to do. Some say the stress will kill me, but I find most people give out opinions so easily without any ability to put themselves into another persons shoes, or even try.. and even then if they tried, I don't think they could ever relate to this nightmare. I guess that is why I am on several groups, even though being on this computer may be creating a worsening of symptoms.
 
It is humiliating to even have these emotions and more so to express them to strangers. My memory is not so good at times, so maybe I am repeating myself.
 
You mentioned peptides that may be missing in celiacs. What is the name of that peptide?
 
You mentioned that you reacted when entering certain stores. You are fortunate you react so quickly. I find some reactions I have take a bit to notice, while at other times, it is immediate.
 
I don't remember what TILT is. What is that?
 
As far as carbon monoxide goes. Something else happened last year in December, besides perhaps getting an electric shock from the furnace. I had someone come to check the furnace out because there was a gas leak.. it was not a "big" gas leak, but if it was there since I had bought the house, then I was breathing it for 5 yrs. I always noticed I felt better when the windowswere opened. Even in the winter, the last year I was there, I noticed I had to have the damper opened to the fireplace for fresh air flow or I would feel much sicker.
 
 
Laurel
 
 

--- On Sun, 28/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Sunday, 28 December, 2008, 1:31 PM

Hi again, Laurel,
 
I am not sure I have time to address all that I could here.  I have had the same experiences as you write of.  (And the same life altering effects.  HUGS, I know where you are and I am sure you know this, too--not many understand where we are.  Whenever you need a friend who can relate, I am here.) 
 
This is a deep and complicated subject.  (And any subject that isn't, I can somehow make deep and complicated.  lol)  I, too, have the stinging and burning (sometimes more than other times, which is also key here--thereare things that help this or make it worse).  I might add that I am a walking medical nightmare and when I say I am ill or have been, that does notnecessarily mean I am ill from ES.  I recently wrote that I was not online for 2 months due to illness, but that was not mostly due to ES.  I also have MCS, diabetes, celiac disease, COPD, and the list goes on.  I tellyou this, because it is possible that most of us who have particular ES problems, have those problems not totally because of ES (not that these problems have nothing to do with ES), but because of our underlying physicalconditions.  Now you are really confused, aren't you!  ;)  Bare with me....
 
There are people who tend to particular immune responses, for instance.  You and I seem to be similar in our reactions.  We might not fit a profile for every ES person, but we fit a particular profile for ES people with this immune response.  Due to having celiac disease (which you probably should also rule out for yourself, since celiac d. can lead to these particular immune responses), I know I am missing a particular peptide in my body.  The new celiac pill which is in trials right now addresses this.  It is a synthetic peptide.  This is long and complicated and if I were to address this totally here right now in detail, I'd probably get it amiss, because it is so long and complicated.  However, giving you the synopticuncomplicated version, missing this peptide means, ultimately, that our immune systems (I mean celiacs, not necessarily ES people), to one degree or another, can keep sending out immune components which end up attacking us
or trivial substances coming into contact with our bodies.  I say one degree or another, because not all celiacs are created equal.  Some celiacs have some of this natural peptide  left and some, like me, have none.  So, this in essence, means my immune system has no shut-off.  There are no feedback loops which say to my body, "hey, stop sending out cytokines, we have enough, thankyou!" 
 
These immune response cells then, in over abundance, are looking in every little corner for something amiss, something to attack.  So they endup attacking things which they feel are foreign, but are not necessarily foreign to us.  This sometimes leads to the condition called mastocytosis,where our bodies make too many mast cells.  (It has been suspected for a number of years that I might have this, but I have resisted going there because, basically, from a medical point of view, there is no cure for this and it is usually a cancer sentence, which I am not willing to embrace.  I also suspect that it can be treated by the new celiac pill which iswhy I might go for the tests when I see the doc to prescribe me the pill.) 
 
So.....  I am saying here that you probably have some underlying problem,like me, which is not allowing your immune system to shut off.  Now thatsaid, I am NOT saying you have the same underlying problem I have, only that you might have it.  I am sure there are various problems which can lead to similar immune dysfunction.  I only have one of these.  You MIGHT have one of these, but not necessarily the same one I have. 
 
I, too, have mineral problems, but not with all minerals.  For instance, iron bothers me.  I react even to iron deposits in the ground (tho I suspect this is because of greater concentration of magnetic frequencies there).  I had life threatening anaphylaxis to IV iron when I was severely anemic.  And I couldn't take regular iron supplements at all.  The only supplementation I could take was iron as a component in Buffalo Liver supplements.  (Not an effective iron supply, but enough to get by on.  Basically, docs  decided to give me blood transfusions every 3 months untilI was dxed for celiac disease.  That dx addressed all my myriad nutrientdeficiencies. )
 
I do get burning and stinging next to aluminum siding, but only when aluminum siding is exposed to emfs.  I don't react to using aluminum foil, for instance.  Tho I suspose I could react to it if I were in a high emf atmosphere, because I can get bounce-back from alum foil which I use to shield on my car visor, if a cell tower is behind me.  On one aluminum sided house we wanted to buy, I reacted to bounce-back of emfs, outside, only inparticular places which were exposed to emfs (I could see a cell tower in the distance, a mile or so away).  The other parts of the house were shielded from emfs by large pine trees and I did not react there.  But I cannot say whether or not I would have been ok in this house, ultimately.  One building biologist thought it could be grounded but I ended up not going there.  When looking at houses for us, I reacted to refrigerators,  ceiling fans, satellite dishes, particular appliances and computer hook-ups,
one house had scads of unused wiring all over the basement, and I found that intolerable (???)....  I also reacted to molds, pesticides, particular plants, and on and on.   I have intolerance to glutens and asparagus, and have slight lactose intolerance,  pertaining foods.  I was previously extremely food intolerant-- could eat only 5 foods then.  I went ona supplement program addressing that (quercitin and Bs, molybdenum, and various other supplements that address liver detox pathway function) and overgrowth of bad gut flora.  After about 6-8 months on these programs I was able to reintroduce most foods back.  Then there are the "modern day" reactors I react to--out-gassing, chemicals of all sorts, diesel and petroleum fumes, all the new antifungals and antibacterials which are added increasingly to everything, etc....  I never know from shopping trip to shopping trip what might be out there that I will react to.  Penney's store recently
added something of an electronic nature to their catalog department which made it intolerable for me to enter.  BonTon and the local video place putoff pesticides and I had anaphylaxis within feet of their doors, necessitating  leaving as fast as I could.  I now react to most towels in department stores, making it difficult for me to find towels now which I do not react to (no idea why).  Socks are getting hard to find for my hubby--mostwork socks now have antimicrobials.  And the list goes on.
 
I have recently heard that some MCSers who are ES might have been poisoned by carbon monoxide unknowingly.  You might research that.  I believe they called the condition "MUSES".  I think I mentioned "TILT" to you earlier.  Dr. Rae indicated that I had this (without calling it that at the time).  The TILT term is recently adopted but I know that certainpublic service segments are pushing recognition for this term because they feel this might get people as a whole behind addressing particular toxins, such as public transportation diesel fumes (did you all know there arefilters for this which govt doesn't mandate using???)  I am banking my problems on the peptide, personally.  Of course, we will know when the pill comes out whether that works for me or not.  When I read about what the pill addressed, tho, it did give me some hope.
 
I hope this helps some in understanding what you might be facing and validates to some degree what you have been experiencing. 
 
Diane

--- On Mon, 12/22/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 22, 2008, 2:36 PM

I have been unable to tolerate minerals of any kind since the EMF sensitivity began about one year ago. If I take a mineral, it seems to draw the EMF right into my body. I burn and sting terribly.. and depending upon where I am, it can be quite torturous. I recently bought a magnesium chloride liquid. The directions call for approx. 10 drops. All I can do is one drop andstill, I can feel increased stinging and burning.
 
This increased stinging and burning, after taking a mineral, also happens even from certain people's energies. Someone told me they read an article that stated how people's brains and hearts give off more EMF than devices(I am not sure about that, but I do know that some people's energy/thoughts/ emotions have caused me the same type of symptoms at times as that of some electronic devices).
 
I feel at a loss because I have become so sensitive.. in a chemical sensitive type of manner that I also am not tolerating vitamins and foods, etc. However, the issue with minerals is different than a chemical sensitivity reaction. I have never had anything like this before. I also seem to be unableto tolerate being in a house with aluminum siding. I went to look at a small house for sale. At the time, there were very little electrical appliances running(no furnace, but perhaps a refrigerator) . While I stood and listened to the man explain a few things about the house, I stung incredibly..which was the first time a long time since last being in a house with aluminum siding. I do have to say, that the reaction to this house and another house with aluminum siding varied. I am sure there are many variables I am unaware. That particular house was very close to another house. Perhaps there was WIFI next door or some other aspect undetectable to m.. I have
no idea.
 
I have noticed that if I am reacting to something else(ie food, chemical, etc), the stinging also increases. I had spoken to a doctor one day over thephone who told me she had quite a few clients who had the same issues, whowere incredibly sensitive to energy, EMF, chemicals, etc. She believed that those people were riddled with holes in their auras.. causing them to be more susceptible to EMF. I have a friend who has a device that video tapes the aura in real time and shows the changes to the aura when exposed to certain items. I do not live near him so I am unable to check this out for myself.
 
The issue of not being able to tolerate minerals of any kind has me a bit baffled as to what to do. I am also not absorbing nutrients from my food. I had my tongue read(taught in Chinese medicine) by an acupuncturist and an iridologist, which showed a deep crack down the center of my tongue in whichI was told was indicative of poor assimilation and digestion of food. I used to be able to tolerate enzymes. All I tolerate for now is papaya which helps with the protein digestion. I have watched my health deteriorate this past year due to the lack of nutrition. I know the minerals are important. I have even tried Clark's colloidal minerals, yet  just one drop was more than my body could tolerate.
 
Does anyone else have any of these issues?? Perhaps some are intolerant of minerals also, but have not noticed the correlation, especially if they have been taking the minerals all along. I do tolerate flax seed oil, Vit. D3 and CoQ10. I have been trying MMS(Miracle Mineral Supplement, but I have not noticed any benefit yet from that. MMS is suppose to oxidize heavy metals from the body, as well as kill many pathogens).
 
Thanks for "listening". It is distressing to say the least. Life has becomea nightmare of such proportions that it does not even sink in. It has beenmuch too much to assimilate.. loss of home and property and no where safe to live nor able to afford.
 
My, how life can suddenly change.
 
 
Laurel

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[Non-text portions of this message have been removed]

Stay connected to the people that matter most with a smarter inbox. Take a look http://au.docs. yahoo.com/ mail/smarterinbo x

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[Non-text portions of this message have been removed]

 
Sounds interesting!  Thanks Marc.  Tell me about spilling--I have hand tremors.  ;)  I have gone to flip a burger, and it ended up on the other side of the room!  I am not sure I am a candidate for the Cell food forthat reason.  lol  Thanks for the heads up!
 
Diane

--- On Tue, 12/30/08, Marc Martin <[hidden email]> wrote:

From: Marc Martin <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Date: Tuesday, December 30, 2008, 2:52 PM






> While we are discussing this subject, does Cellfood address bad gut
> flora?  Just wondered.  I know you have said for a long time you like
> this product, but I assumed it was for its nutrient content, not
> necessarily for anything like bug killing. 

It creates extra oxygen in the body, so in that sense it will oxidize bugs.
Also, it is quite acidic when you take it, so this will help digestion
and also help good bacteria, which require an acidic environment.

And yet, even though it is acidic, it immediately raises my saliva
pH from 6 to 7 (neutral), which is where it should be.

But it does not have an probiotic content to it. Just an oxygen
catalyst, minerals, amino acids, and enzymes. And the enzymes are
so strong that if you spill some on cotton clothing, it will eat
a hole in the clothing! (I unfortunately have plenty of experience
with that aspect of the product)

Marc

 














     

[Non-text portions of this message have been removed]

It made my skin burn and turn bright red, in places it didn't seriously burn me.  My neck was the only place it scarred permanently, but it was ouchy all over.  Only used it once.  Interesting that you use it ok and youthought it helped! 
 


--- On Tue, 12/30/08, Marc Martin <[hidden email]> wrote:

From: Marc Martin <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Date: Tuesday, December 30, 2008, 2:55 PM






> I am having a bad day and confused as hell, but I think Marc has
> convinced me that what I was using was not MMS but Miracle II soap or
> neutralizer.  But, nevertheless, it was not a good idea to use it as a
> soak either, obviously, since it scarred my neck. 

Actually, I have used the Miracle II soap in a bath, and if anything
it does make me feel better afterwards. I just don't have enough
baths for it to have had any definite effect!

Marc
 














     

[Non-text portions of this message have been removed]

Hi again, Laurel,
 
I am sensitive to people, too, and I always have a bad night after being even with extended family and friends.  I have sometimes wondered whether it depletes my B12 when I am around crowds (even small gatherings of people). 
 
Diane

--- On Tue, 12/30/08, laurel canyon <[hidden email]> wrote:

From: laurel canyon <[hidden email]>
Subject: Re: [eSens] sensitized to energy
To: [hidden email]
Date: Tuesday, December 30, 2008, 3:00 PM






That makes a lot of sense. Some people I do not tolerate. One person I knowwho is so very negative and angry much of the time, also is around computers all day long. I could not tolerate his energy well at all. It is interesting that he is compelled to ski or hike or paddle after work or he says that he cannot tolerate living. He works at a university and eveyrone has a cell phone there, besides his work with computers. The campus this year was wired for WIFI also.

--- On Tue, 30/12/08, Andrew McAfee <amcafeerr@nc. rr.com> wrote:

From: Andrew McAfee <amcafeerr@nc. rr.com>
Subject: [eSens] sensitized to energy
To: eSens@yahoogroups. com
Received: Tuesday, 30 December, 2008, 2:43 PM

Yes, it does make sense to be sensitized. I feel people's energy
levels, auras, etc. especially when they have been immersed in cell
phones, wifi radiation etc. and it has filled up their energetic
system.
Actually I asked one person to double check if their cell phone was on
(because they were radiating so much crap off of them) and the cell
phone was left out in the car. Their body was still holding it.
andrew
On Dec 30, 2008, at 2:38 PM, laurel canyon wrote:

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Hi Amy,
 
That is what I mean re being around people.  I am anxious and feel like Imight jump out of my skin after being around even people I like, unless itis in a very quiet atmosphere, one on one.  Nice to "see" you, btw. 
 
Diane

--- On Tue, 12/30/08, [hidden email] <[hidden email]> wrote:

From: [hidden email] <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Date: Tuesday, December 30, 2008, 6:02 PM






, laurelarc@yahoo. com writes:

Somehow, I felt more sensitized to energy.. even from other people, if that
makes sense to anyone.

Do you mean being around other people for too long (which is not long at all
for me!) causes overstimulation in a bad way?
Amy

************ **One site keeps you connected to all your email: AOL Mail,
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Hi Diane,
 
I had always thought celiac sprue and gluten intolerance to be one and the same.
 
I have been told that a doc in my area has found that 1 in every 3 people he is finding has celiac.
 
My concern about a drug would be.. 1) would I be able to tolerate it  2) Will it make me more toxic and therefore exacerbate the chemical sensitivities  3) Will there be side effects that would further undermine my health
 
laurel
 
 


--- On Thu, 1/1/09, Evie <[hidden email]> wrote:


From: Evie <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Received: Thursday, 1 January, 2009, 3:51 PM






Hi, Laurel,
 
Yes, I know of Dr. Fine.  He is quite controversial among celiac docs,but he has a good rep with celiac patients, from what I have heard.  I understand re your not being able to travel.  I cannot use public transportation of any kind, nor can I stay in hotels, motels, or most B&Bs--and the B&Bs I can stay in are very sparce and difficult to locate.  I cannot travel to Texas to see Dr. Fine or Dr. Rae, but I can go to Baltimore because I am close enough to go by car with my hubby driving and wewill return home the same day--not saying it won't be painful getting there and I will not have problems due to ES, but....) 
 
Dr. Fasano found approx. 1% of the population to have celiac disease by blood testing of the blood bank supplies, but the 1 in 6 you speak of is at the very least true of gluten intolerance (which is now thought to be just as serious as celiac disease in most cases.)  And I do notice that all the various health forums I have been apart of have a rather huge component of gluten intolerant people in them (which probably means some ofthem are celiacs but not aware of that).
 
Sorry that you cannot make the trip to Baltimore.  I noticed that Dr. Fasano's staff had a doc referral service.  Perhaps they will know another way for you to try the pill.  But I have no idea yet whether the pill will work or not for ES.  (I will let you know how that goes!  :)   )
 
Diane aka Evie

--- On Tue, 12/30/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Tuesday, December 30, 2008, 2:26 PM

Hi Evie,
 
Thanks for the information. I will google it.
 
That is great you can go to see Dr. Fasano in Baltimore. Unfortunately for me, I could not make that kind of trip for so many reasons.
 
Have you heard of Dr. Fine in Texas. His website is finerhealth. com. He has a test that people can get that is suppose to be much more accurate than what anyone would normally get from their local doc. He has said that ONE IN EVERY 6 PEOPLE HAVE CELIAC SPRUE. That is amazing. The thing is one can have it and not realize it because the symptoms can be what the AMA labels as diseases in themselves. Unfortunately, when a symptom is labeled as a disease, it tends to be treated as a separately entity and the underlying cause is not further sought. Hence, when someone ends up with colon cancer, lymphoma, osteoporosis, arthritis and the list goes on, they would not contribute that possible cause to be gluten enteropathy( celiac).
 
 
It is good that you do mention it often.
 
Laurel
 

--- On Tue, 30/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Tuesday, 30 December, 2008, 12:54 PM

Hi again, Laurel,
 
I have been trying to send this email for the last hour and yahoo keeps eating it.  lol  For some reason, it is not allowing me to send the websites about the pill.  So, if you want more info, you will have to search it online.  The pill is "Larazotide Acetate" and is a syntheticpeptide which is a tight junction regulator.  I had a bunch of sites which gave alot of info, but I guess you will have to look them up yourself.  They aren't hard to find, tho, just put in the name in quotations that I wrote here.

Not surprised at all that you have celiac disease.  It makes perfect sense that celiacs and gluten intolerants would come down with MCS and ES!  (Which is why I have mentioned that at this forum repeatedly; butnot everyone wants to hear it.  lol)  Dr. Alesio Fasano is the doc who is behind the pill.  If you can afford it (and are interested),make your appt now to see Dr. Alesio Fasano (I believe he is still in Baltimore, Md).  I am making my appt too.  The pill is supposed to beapproved by June 2009, from what I have read.  It is in Phase 3 trials and has been fast-tracked by the FDA. 
 
Hope 2009 is our Happy New Year!  :) 
Diane

--- On Mon, 12/29/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 29, 2008, 6:49 PM

Hi Diane,
 
Thank you for your response.
 
WOW! Perhaps you have an incredible intution. I also have celiac sprue and MCS and I too, will complicate what may seem simple to others..lol.
 
I know ES is an outgrowth of MCS. I should mention that I have a theory, ormoreover, a belief and that is MOST everything is a symptom and not adisease. One complicates the next and the proverbial onion can be peeled back further and further.
 
In the book, "Vibrational Medicine", it is mentioned that scientists now believe that all disease has its origin in an allergy. I would say that is one of the deeper onion layers that could be traced, given the practitioner who is capable of doing so. I could at one time and that is the problem for me, EHSwise. About a year ago I could no longer treat my MCS, allergies, etc type of reactions. I used to be able to successfully treat just about each and every reaction so that I would not react ever again to that particular treated item. Little did I know I would lose that ability to treat them ever again. The method is similar to NAET and if there is anyone who can O-ring muscle check, I will teach you personally how to do the technique, but you must be able to O-ring muscle check and be able to do it accurately. Itis not easy for just anyone to catch onto. It would take some time to teach the method once someone can O check, but they would have to be
able to already do this. I could tell one how to maybe begin to O check, and then they either get it or do not. All(lol) I would ask in return is for that person to treat me when I am having a reaction.
 
I had heard that they were coming out with a pill for celiac years ago. I have not kept up with the celiac info at all for past 5 years or so. I was living a decent life with a nice home and I was able to control my environment. Now, I have lost everything and live like a refugee and I am in a housewhere there is so much gluten and other triggers. Yes, life is hell right now and has been for the past year. I am at a loss about what to do. Some say the stress will kill me, but I find most people give out opinions so easily without any ability to put themselves into another persons shoes, or even try.. and even then if they tried, I don't think they could ever relate to this nightmare. I guess that is why I am on several groups, even though being on this computer may be creating a worsening of symptoms.
 
It is humiliating to even have these emotions and more so to express them to strangers. My memory is not so good at times, so maybe I am repeating myself.
 
You mentioned peptides that may be missing in celiacs. What is the name of that peptide?
 
You mentioned that you reacted when entering certain stores. You are fortunate you react so quickly. I find some reactions I have take a bit to notice, while at other times, it is immediate.
 
I don't remember what TILT is. What is that?
 
As far as carbon monoxide goes. Something else happened last year in December, besides perhaps getting an electric shock from the furnace. I had someone come to check the furnace out because there was a gas leak.. it was not a "big" gas leak, but if it was there since I had bought the house, then I was breathing it for 5 yrs. I always noticed I felt better when the windowswere opened. Even in the winter, the last year I was there, I noticed I had to have the damper opened to the fireplace for fresh air flow or I would feel much sicker.
 
 
Laurel
 
 

--- On Sun, 28/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Sunday, 28 December, 2008, 1:31 PM

Hi again, Laurel,
 
I am not sure I have time to address all that I could here.  I have had the same experiences as you write of.  (And the same life altering effects.  HUGS, I know where you are and I am sure you know this, too--not many understand where we are.  Whenever you need a friend who can relate, I am here.) 
 
This is a deep and complicated subject.  (And any subject that isn't, I can somehow make deep and complicated.  lol)  I, too, have the stinging and burning (sometimes more than other times, which is also key here--there are things that help this or make it worse).  I might add that I am a walking medical nightmare and when I say I am ill or have been, that does not necessarily mean I am ill from ES.  I recently wrote thatI was not online for 2 months due to illness, but that was not mostly due to ES.  I also have MCS, diabetes, celiac disease, COPD, and the list goes on.  I tell you this, because it is possible that most of uswho have particular ES problems, have those problems not totally because of ES (not that these problems have nothing to do with ES), but because of our underlying physical conditions.  Now you are really confused, aren't you!  ;)  Bare with me....
 
There are people who tend to particular immune responses, for instance.  You and I seem to be similar in our reactions.  We might not fit aprofile for every ES person, but we fit a particular profile for ES peoplewith this immune response.  Due to having celiac disease (which you probably should also rule out for yourself, since celiac d. can lead to these particular immune responses), I know I am missing a particular peptide inmy body.  The new celiac pill which is in trials right now addresses this.  It is a synthetic peptide.  This is long and complicated and if I were to address this totally here right now in detail, I'd probably get it amiss, because it is so long and complicated.  However, giving you the synoptic uncomplicated version, missing this peptide means, ultimately, that our immune systems (I mean celiacs, not necessarily ESpeople), to one degree or another, can keep sending out immune components which end up attacking us
or trivial substances coming into contact with our bodies.  I say one degree or another, because not all celiacs are created equal.  Some celiacs have some of this natural peptide  left and some,like me, have none.  So, this in essence, means my immune systemhas no shut-off.  There are no feedback loops which say to my body, "hey, stop sending out cytokines, we have enough, thankyou!" 
 
These immune response cells then, in over abundance, are looking in every little corner for something amiss, something to attack. So they end up attacking things which they feel are foreign, but are not necessarily foreign to us.  This sometimes leads to the condition called mastocytosis, where our bodies make too many mast cells.  (It has been suspected for a number of years that I might have this, but I have resisted going there because, basically, from a medical point of view,there is no cure for this and it is usually a cancer sentence, which I am not willing to embrace.  I also suspect that it can be treated bythe new celiac pill which is why I might go for the tests when Isee the doc to prescribe me the pill.) 
 
So.....  I am saying here that you probably have some underlying problem, like me, which is not allowing your immune system to shut off.  Now that said, I am NOT saying you have the same underlying problem I have, only that you might have it.  I am sure there are various problems which can lead to similar immune dysfunction.  I only have one of these.  You MIGHT have one of these, but not necessarily the same one Ihave. 
 
I, too, have mineral problems, but not with all minerals.  For instance, iron bothers me.  I react even to iron deposits in the ground (tho I suspect this is because of greater concentration of magnetic frequencies there).  I had life threatening anaphylaxis to IV iron when I wasseverely anemic.  And I couldn't take regular iron supplements at all.  The only supplementation I could take was iron as a component in Buffalo Liver supplements.  (Not an effective iron supply, but enough toget by on.  Basically, docs  decided to give me blood transfusions every 3 months until I was dxed for celiac disease.  Thatdx addressed all my myriad nutrient deficiencies. )
 
I do get burning and stinging next to aluminum siding, but only when aluminum siding is exposed to emfs.  I don't react to using aluminum foil, for instance.  Tho I suspose I could react to it if I were in a high emf atmosphere, because I can get bounce-back from alum foil which I use to shield on my car visor, if a cell tower is behind me.  On one aluminum sided house we wanted to buy, I reacted to bounce-back of emfs, outside, only in particular places which were exposed to emfs (I could see acell tower in the distance, a mile or so away).  The other partsof the house were shielded from emfs by large pine trees and I did not react there.  But I cannot say whether or not I would have been ok in this house, ultimately.  One building biologist thought it could be grounded but I ended up not going there.  When looking at houses for us, I reacted to refrigerators,  ceiling fans, satellite dishes, particular appliances and computer hook-ups,
one house had scads of unused wiring all over the basement, and I found that intolerable (???)....  I also reacted to molds, pesticides, particular plants, and on and on.   I have intolerance to glutens and asparagus, and have slight lactose intolerance,  pertaining foods.  I was previously extremely food intolerant-- could eat only 5 foods then.  I went on a supplement program addressing that (quercitin and Bs, molybdenum, and various other supplements that address liver detox pathway function) and overgrowth of bad gut flora.  After about 6-8 months on these programs I was able to reintroduce most foods back.  Then there are the "modern day" reactors I react to--out-gassing,chemicals of all sorts, diesel and petroleum fumes, all the new antifungals and antibacterials which are added increasingly to everything, etc....  I never know from shopping trip to shopping trip what might be out there that I will react to.  Penney's store recently
added something of an electronic nature to their catalog department which made it intolerable for me to enter.  BonTon and the local video place put off pesticides and I had anaphylaxis within feet of their doors, necessitating  leaving as fast as I could.  I now react to most towels in department stores, making it difficult for me to find towels now which Ido not react to (no idea why).  Socks are getting hard to find for myhubby--most work socks now have antimicrobials.  And the list goes on.
 
I have recently heard that some MCSers who are ES might have been poisoned by carbon monoxide unknowingly.  You might research that.  I believe they called the condition "MUSES".  I think I mentioned "TILT" to you earlier.  Dr. Rae indicated that I had this (without calling it that at the time).  The TILT term is recently adopted but I know that certain public service segments are pushing recognition for this term because they feel this might get people as a whole behind addressing particular toxins, such as public transportation diesel fumes (did you all know there are filters for this which govt doesn't mandate using???)  I am banking my problems on the peptide, personally.  Of course, we will know when the pill comes out whether that works for me or not.  When I read about what the pill addressed, tho, it did give me some hope.
 
I hope this helps some in understanding what you might be facing and validates to some degree what you have been experiencing. 
 
Diane

--- On Mon, 12/22/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 22, 2008, 2:36 PM

I have been unable to tolerate minerals of any kind since the EMF sensitivity began about one year ago. If I take a mineral, it seems to draw theEMF right into my body. I burn and sting terribly.. and depending upon where I am, it can be quite torturous. I recently bought a magnesium chloride liquid. The directions call for approx. 10 drops. All I can do is one drop and still, I can feel increased stinging and burning.
 
This increased stinging and burning, after taking a mineral, also happens even from certain people's energies. Someone told me they read an article that stated how people's brains and hearts give off more EMF than devices(I am not sure about that, but I do know that some people's energy/thoughts/ emotions have caused me the same type of symptoms at times as that of some electronic devices).
 
I feel at a loss because I have become so sensitive.. in a chemical sensitive type of manner that I also am not tolerating vitamins and foods, etc. However, the issue with minerals is different than a chemical sensitivity reaction. I have never had anything like this before. I also seem to be unableto tolerate being in a house with aluminum siding. I went to look at a small house for sale. At the time, there were very little electrical appliances running(no furnace, but perhaps a refrigerator) . While I stood and listened to the man explain a few things about the house, I stung incredibly.. which was the first time a long time since last being in a house with aluminum siding. I do have to say, that the reaction to this house and another house with aluminum siding varied. I am sure there are many variables I am unaware. That particular house was very close to another house. Perhaps there was WIFI next door or some other aspect undetectable to m.. I have
no idea.
 
I have noticed that if I am reacting to something else(ie food, chemical, etc), the stinging also increases. I had spoken to a doctor one day over thephone who told me she had quite a few clients who had the same issues, whowere incredibly sensitive to energy, EMF, chemicals, etc. She believed that those people were riddled with holes in their auras.. causing them to be more susceptible to EMF. I have a friend who has a device that video tapes the aura in real time and shows the changes to the aura when exposed to certain items. I do not live near him so I am unable to check this out for myself.
 
The issue of not being able to tolerate minerals of any kind has me a bit baffled as to what to do. I am also not absorbing nutrients from my food. I had my tongue read(taught in Chinese medicine) by an acupuncturist and an iridologist, which showed a deep crack down the center of my tongue in whichI was told was indicative of poor assimilation and digestion of food. I used to be able to tolerate enzymes. All I tolerate for now is papaya which helps with the protein digestion. I have watched my health deteriorate this past year due to the lack of nutrition. I know the minerals are important. I have even tried Clark's colloidal minerals, yet  just one drop was more than my body could tolerate.
 
Does anyone else have any of these issues?? Perhaps some are intolerant of minerals also, but have not noticed the correlation, especially if they have been taking the minerals all along. I do tolerate flax seed oil, Vit. D3 and CoQ10. I have been trying MMS(Miracle Mineral Supplement, but I have not noticed any benefit yet from that. MMS is suppose to oxidize heavy metals from the body, as well as kill many pathogens).
 
Thanks for "listening". It is distressing to say the least. Life has becomea nightmare of such proportions that it does not even sink in. It has beenmuch too much to assimilate.. loss of home and property and no where safe to live nor able to afford.
 
My, how life can suddenly change.
 
 
Laurel

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[Non-text portions of this message have been removed]

Hi, Mike,
 
I get arthritic stiffness and pain when subjected to ongoing emfs.  So, yes, I think that might be what is affecting you for the better.
 
Diane

--- On Wed, 12/31/08, angela england <[hidden email]> wrote:

From: angela england <[hidden email]>
Subject: Re: [eSens] sensitized to energy
To: [hidden email]
Date: Wednesday, December 31, 2008, 12:37 PM






Ada--you are so right about the canary thing being a salvation or blessing in disguise. My wife's great aunt could not stand electricity and would runwildly out of the house when it was too much. She often lived in remote areas and never had a tv. So she avoided this electric smog because she coulddetect them. By the way, she lived to be 95! Those of us who live without symptoms are bombarded anyway. We probably expire at 65, since we took no measures of avoidance. Just some anecdotal knowledge to chew on.

On another note, we received the radar3 card yesterday. My wife can not feel voltage spikes on her head if she wears it, usually on her head. I wore it for a while (I am not ES or MCS), but I noticed by arthritis subsided in the interim. What a wonderful side effect. I do not think it is the placeboeffect going on here. Any thoughts?

Mike and Maria(in absentia) in Phoenix

ada iye <betty_starbuckle@ yahoo.co. uk> wrote:
The depopulation/ elites/NWO agenda that you mention is what I mean by warfare. I see this condition as a challenge to stay present , grounded, positive , alive and life focused no matter- essentially to not give up or check out , but hold the line and not give up . Much of these vibrations are antinature and against life which is why we all feel it so acutely. Canaries in the mines.


Thanks for your feedback.

Ada


"Although my Soul shall set in Darkness, I will raise in Perfect Light, I have Loved the Stars to Fondly to be Fearful of the Night."

unknown

--- On Wed, 31/12/08, Andrew McAfee <amcafeerr@nc. rr.com> wrote:

From: Andrew McAfee <amcafeerr@nc. rr.com>
Subject: Re: [eSens] sensitized to energy
To: eSens@yahoogroups. com
Date: Wednesday, 31 December, 2008, 8:42 AM

I was doing deep emotional and spiritual work (Barbara Brennan School,
emotional therapy, men's work, Mystery School material, etc.) when I
got sick. I was labeled by a few spiritualists that I was becoming
enlightened, blah blah blah, through my work.
I poo pooed it for a while. I now do think there is a place where the
physical meets the spiritual and in that crossroads there is potential
for awareness of many kinds.
I currently choose to interpret that my ES is a gift that has enabled
me to be aware of the unhealthy radiation present in our world, the
depopulation agenda, the new world order push by the elites, and a host
of other things brought about by people with less than admirable
qualities.
My health challenge helped me look deeper and further than I would have
originally.

AND, I believe that I am infected with a disease (of origin I do not
know) Lyme, Herpes, EBV, etc...? and that is not something that I or
people in general eagerly seek out on their spiritual quest.

So I will take the lumps with the new awarenesses and choose to use it
for good (helping others avoid my condition).

May others take it positively regardless of my vehicle of expression.
All my best to others in similar predicaments. ..
Andrew

On Dec 30, 2008, at 3:21 PM, ada iye wrote:

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Hi, Laurel,
 
Well, I am concerned also about the points you bring up about the drug--it is, afterall, synthetic, and I am highly suspicious about anything man-made anymore.  But, from the researching I have done, the tight junction problem appears to be a huge key to the entire MCS/ES scenario. I know people who are taking parasites to stop the immune dysfunction!  (I wouldnever go there!)  And others are at their wits end trying anything whichthey think will help.  I don't want to go there, but Laurel, I feel I must--I am truly at that "where do I go?" place.  I have 2 houses I cannot live in, all my belongings have had to be scrapped and replaced (the pesticides do not disipate so I still react to everything in my one house 3 yearslater).  Every other day I am reacting to something new.  That is the problem with my newer house--someone in the community bought something I react to now that I didn't react to when I bought it.  It is likely wireless
something or other, because I react mainly nights and weekends--esp weekend nights.  I have noticed that since this Christmas, I react to increasingly even more places--like the road my parents live on.  Apparently someone there got a wifi type Christmas present!  If I could physically get to Brazil, I think there is a jungle there which would work for me, but other than that, what do you do?  I personally see few choices here.
 
Celiac disease is a type of gluten intolerance, but there are other types of gluten intolerance.  (Sorry, I apparently didn't word what I wrote correctly--I should have said, "other gluten intolerance".)  If you want to read some really interesting things re celiac and gluten intolerance, do some searches for "Dr. Hadjivassiliou and gluten intolerance".  I fit his profile for broad spectrum gluten intolerance even better than for celiac disease (even tho I was biopsy dxed for celiac; but according to him, that means nothing--broad spectrum does also cause gut damage). 
 
Here is a podcast from Neurology Today that I like to send around to peoplewho don't know much about gluten intolerance and think it is a silly, nothing allergy.  (I posted it here 6 months or more ago for those who have been here that long).  Scroll down to podcast #51: Neurology Believe It or Not.  It is about Dr. Had's talk at the Neurology Convention in NYC last year.  It takes 25 or more mins, so listen when you are not in a hurry....
 
http://www.medicalnewspodcast.com/stat.html
 
My best to you,
Diane
 


--- On Fri, 1/2/09, laurel canyon <[hidden email]> wrote:

From: laurel canyon <[hidden email]>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: [hidden email]
Date: Friday, January 2, 2009, 1:53 AM






Hi Diane,
 
I had always thought celiac sprue and gluten intolerance to be one and the same.
 
I have been told that a doc in my area has found that 1 in every 3 people he is finding has celiac.
 
My concern about a drug would be.. 1) would I be able to tolerate it  2) Will it make me more toxic and therefore exacerbate the chemical sensitivities  3) Will there be side effects that would further undermine my health
 
laurel
 
 

--- On Thu, 1/1/09, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Thursday, 1 January, 2009, 3:51 PM

Hi, Laurel,
 
Yes, I know of Dr. Fine.  He is quite controversial among celiac docs, but he has a good rep with celiac patients, from what I have heard.  I understand re your not being able to travel.  I cannot use public transportation of any kind, nor can I stay in hotels, motels, or most B&Bs--and the B&Bs I can stay in are very sparce and difficult to locate.  I cannot travel to Texas to see Dr. Fine or Dr. Rae, but I can go to Baltimore because I am close enough to go by car with my hubby driving and we will return home the same day--not saying it won't be painful getting there and I will not have problems due to ES, but....) 
 
Dr. Fasano found approx. 1% of the population to have celiac disease by blood testing of the blood bank supplies, but the 1 in 6 you speak of is at the very least true of gluten intolerance (which is now thought to be just as serious as celiac disease in most cases.)  And I do notice that all the various health forums I have been apart of have a rather huge component of gluten intolerant people in them (which probably means some of them areceliacs but not aware of that).
 
Sorry that you cannot make the trip to Baltimore.  I noticed that Dr. Fasano's staff had a doc referral service.  Perhaps they will know another way for you to try the pill.  But I have no idea yet whether the pill willwork or not for ES.  (I will let you know how that goes!  :)   )
 
Diane aka Evie

--- On Tue, 12/30/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Tuesday, December 30, 2008, 2:26 PM

Hi Evie,
 
Thanks for the information. I will google it.
 
That is great you can go to see Dr. Fasano in Baltimore. Unfortunately for me, I could not make that kind of trip for so many reasons.
 
Have you heard of Dr. Fine in Texas. His website is finerhealth. com. He has a test that people can get that is suppose to be much more accurate than what anyone would normally get from their local doc. He has said that ONE IN EVERY 6 PEOPLE HAVE CELIAC SPRUE. That is amazing. The thing is one can have it and not realize it because the symptoms can be what the AMA labels as diseases in themselves. Unfortunately, when a symptom is labeled as a disease, it tends to be treated as a separately entity and the underlying cause is not further sought. Hence, when someone ends up with colon cancer, lymphoma, osteoporosis, arthritis and the list goes on, they would not contribute that possible cause to be gluten enteropathy( celiac).
 
 
It is good that you do mention it often.
 
Laurel
 

--- On Tue, 30/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Tuesday, 30 December, 2008, 12:54 PM

Hi again, Laurel,
 
I have been trying to send this email for the last hour and yahoo keeps eating it.  lol  For some reason, it is not allowing me to send the websites about the pill.  So, if you want more info, you will have to search itonline.  The pill is "Larazotide Acetate" and is a synthetic peptide which is a tight junction regulator.  I had a bunch of sites which gave alotof info, but I guess you will have to look them up yourself.  They aren't hard to find, tho, just put in the name in quotations that I wrote here.

Not surprised at all that you have celiac disease.  It makes perfect sense that celiacs and gluten intolerants would come down with MCS and ES! (Which is why I have mentioned that at this forum repeatedly; but not everyone wants to hear it.  lol)  Dr. Alesio Fasano is the doc who is behind the pill.  If you can afford it (and are interested), make your appt now to see Dr. Alesio Fasano (I believe he is still in Baltimore, Md).  I am making my appt too.  The pill is supposed to be approved by June 2009, from what I have read.  It is in Phase 3 trials and has been fast-trackedby the FDA. 
 
Hope 2009 is our Happy New Year!  :) 
Diane

--- On Mon, 12/29/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 29, 2008, 6:49 PM

Hi Diane,
 
Thank you for your response.
 
WOW! Perhaps you have an incredible intution. I also have celiac sprue and MCS and I too, will complicate what may seem simple to others..lol.
 
I know ES is an outgrowth of MCS. I should mention that I have a theory, ormoreover, a belief and that is MOST everything is a symptom and not a disease. One complicates the next and the proverbial onion can be peeled backfurther and further.
 
In the book, "Vibrational Medicine", it is mentioned that scientists now believe that all disease has its origin in an allergy. I would say that is one of the deeper onion layers that could be traced, given the practitioner who is capable of doing so. I could at one time and that is the problem for me, EHSwise. About a year ago I could no longer treat my MCS, allergies, etc type of reactions. I used to be able to successfully treat just about each and every reaction so that I would not react ever again to that particular treated item. Little did I know I would lose that ability to treat them ever again. The method is similar to NAET and if there is anyone who can O-ring muscle check, I will teach you personally how to do the technique, but you must be able to O-ring muscle check and be able to do it accurately. Itis not easy for just anyone to catch onto. It would take some time to teach the method once someone can O check, but they would have to be
able to already do this. I could tell one how to maybe begin to O check, and then they either get it or do not. All(lol) I would ask in return is for that person to treat me when I am having a reaction.
 
I had heard that they were coming out with a pill for celiac years ago. I have not kept up with the celiac info at all for past 5 years or so. I was living a decent life with a nice home and I was able to control my environment. Now, I have lost everything and live like a refugee and I am in a housewhere there is so much gluten and other triggers. Yes, life is hell right now and has been for the past year. I am at a loss about what to do. Some say the stress will kill me, but I find most people give out opinions so easily without any ability to put themselves into another persons shoes, or even try.. and even then if they tried, I don't think they could ever relate to this nightmare. I guess that is why I am on several groups, even though being on this computer may be creating a worsening of symptoms.
 
It is humiliating to even have these emotions and more so to express them to strangers. My memory is not so good at times, so maybe I am repeating myself.
 
You mentioned peptides that may be missing in celiacs. What is the name of that peptide?
 
You mentioned that you reacted when entering certain stores. You are fortunate you react so quickly. I find some reactions I have take a bit to notice, while at other times, it is immediate.
 
I don't remember what TILT is. What is that?
 
As far as carbon monoxide goes. Something else happened last year in December, besides perhaps getting an electric shock from the furnace. I had someone come to check the furnace out because there was a gas leak.. it was not a "big" gas leak, but if it was there since I had bought the house, then I was breathing it for 5 yrs. I always noticed I felt better when the windowswere opened. Even in the winter, the last year I was there, I noticed I had to have the damper opened to the fireplace for fresh air flow or I would feel much sicker.
 
 
Laurel
 
 

--- On Sun, 28/12/08, Evie <evie15422@yahoo. com> wrote:

From: Evie <evie15422@yahoo. com>
Subject: Re: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Received: Sunday, 28 December, 2008, 1:31 PM

Hi again, Laurel,
 
I am not sure I have time to address all that I could here.  I have had the same experiences as you write of.  (And the same life altering effects.  HUGS, I know where you are and I am sure you know this, too--not many understand where we are.  Whenever you need a friend who can relate, I am here.) 
 
This is a deep and complicated subject.  (And any subject that isn't, I can somehow make deep and complicated.  lol)  I, too, have the stinging and burning (sometimes more than other times, which is also key here--thereare things that help this or make it worse).  I might add that I am a walking medical nightmare and when I say I am ill or have been, that does notnecessarily mean I am ill from ES.  I recently wrote that I was not online for 2 months due to illness, but that was not mostly due to ES.  I also have MCS, diabetes, celiac disease, COPD, and the list goes on.  I tellyou this, because it is possible that most of us who have particular ES problems, have those problems not totally because of ES (not that these problems have nothing to do with ES), but because of our underlying physicalconditions.  Now you are really confused, aren't you!  ;)  Bare with me....
 
There are people who tend to particular immune responses, for instance.  You and I seem to be similar in our reactions.  We might not fit a profile for every ES person, but we fit a particular profile for ES people with this immune response.  Due to having celiac disease (which you probably should also rule out for yourself, since celiac d. can lead to these particular immune responses), I know I am missing a particular peptide in my body.  The new celiac pill which is in trials right now addresses this.  It is a synthetic peptide.  This is long and complicated and if I were to address this totally here right now in detail, I'd probably get it amiss, because it is so long and complicated.  However, giving you the synopticuncomplicated version, missing this peptide means, ultimately, that our immune systems (I mean celiacs, not necessarily ES people), to one degree or another, can keep sending out immune components which end up attacking us
or trivial substances coming into contact with our bodies.  I say one degree or another, because not all celiacs are created equal.  Some celiacs have some of this natural peptide  left and some, like me, have none.  So, this in essence, means my immune system has no shut-off.  There are no feedback loops which say to my body, "hey, stop sending out cytokines, we have enough, thankyou!" 
 
These immune response cells then, in over abundance, are looking in every little corner for something amiss, something to attack.  So they endup attacking things which they feel are foreign, but are not necessarily foreign to us.  This sometimes leads to the condition called mastocytosis,where our bodies make too many mast cells.  (It has been suspected for a number of years that I might have this, but I have resisted going there because, basically, from a medical point of view, there is no cure for this and it is usually a cancer sentence, which I am not willing to embrace.  I also suspect that it can be treated by the new celiac pill which iswhy I might go for the tests when I see the doc to prescribe me the pill.) 
 
So.....  I am saying here that you probably have some underlying problem,like me, which is not allowing your immune system to shut off.  Now thatsaid, I am NOT saying you have the same underlying problem I have, only that you might have it.  I am sure there are various problems which can lead to similar immune dysfunction.  I only have one of these.  You MIGHT have one of these, but not necessarily the same one I have. 
 
I, too, have mineral problems, but not with all minerals.  For instance, iron bothers me.  I react even to iron deposits in the ground (tho I suspect this is because of greater concentration of magnetic frequencies there).  I had life threatening anaphylaxis to IV iron when I was severely anemic.  And I couldn't take regular iron supplements at all.  The only supplementation I could take was iron as a component in Buffalo Liver supplements.  (Not an effective iron supply, but enough to get by on.  Basically, docs  decided to give me blood transfusions every 3 months untilI was dxed for celiac disease.  That dx addressed all my myriad nutrientdeficiencies. )
 
I do get burning and stinging next to aluminum siding, but only when aluminum siding is exposed to emfs.  I don't react to using aluminum foil, for instance.  Tho I suspose I could react to it if I were in a high emf atmosphere, because I can get bounce-back from alum foil which I use to shield on my car visor, if a cell tower is behind me.  On one aluminum sided house we wanted to buy, I reacted to bounce-back of emfs, outside, only inparticular places which were exposed to emfs (I could see a cell tower in the distance, a mile or so away).  The other parts of the house were shielded from emfs by large pine trees and I did not react there.  But I cannot say whether or not I would have been ok in this house, ultimately.  One building biologist thought it could be grounded but I ended up not going there.  When looking at houses for us, I reacted to refrigerators,  ceiling fans, satellite dishes, particular appliances and computer hook-ups,
one house had scads of unused wiring all over the basement, and I found that intolerable (???)....  I also reacted to molds, pesticides, particular plants, and on and on.   I have intolerance to glutens and asparagus, and have slight lactose intolerance,  pertaining foods.  I was previously extremely food intolerant-- could eat only 5 foods then.  I went ona supplement program addressing that (quercitin and Bs, molybdenum, and various other supplements that address liver detox pathway function) and overgrowth of bad gut flora.  After about 6-8 months on these programs I was able to reintroduce most foods back.  Then there are the "modern day" reactors I react to--out-gassing, chemicals of all sorts, diesel and petroleum fumes, all the new antifungals and antibacterials which are added increasingly to everything, etc....  I never know from shopping trip to shopping trip what might be out there that I will react to.  Penney's store recently
added something of an electronic nature to their catalog department which made it intolerable for me to enter.  BonTon and the local video place putoff pesticides and I had anaphylaxis within feet of their doors, necessitating  leaving as fast as I could.  I now react to most towels in department stores, making it difficult for me to find towels now which I do not react to (no idea why).  Socks are getting hard to find for my hubby--mostwork socks now have antimicrobials.  And the list goes on.
 
I have recently heard that some MCSers who are ES might have been poisoned by carbon monoxide unknowingly.  You might research that.  I believe they called the condition "MUSES".  I think I mentioned "TILT" to you earlier.  Dr. Rae indicated that I had this (without calling it that at the time).  The TILT term is recently adopted but I know that certainpublic service segments are pushing recognition for this term because they feel this might get people as a whole behind addressing particular toxins, such as public transportation diesel fumes (did you all know there arefilters for this which govt doesn't mandate using???)  I am banking my problems on the peptide, personally.  Of course, we will know when the pill comes out whether that works for me or not.  When I read about what the pill addressed, tho, it did give me some hope.
 
I hope this helps some in understanding what you might be facing and validates to some degree what you have been experiencing. 
 
Diane

--- On Mon, 12/22/08, laurel canyon <laurelarc@yahoo. com> wrote:

From: laurel canyon <laurelarc@yahoo. com>
Subject: [eSens] Cannot tolerate minerals of any kind? What to DO?
To: eSens@yahoogroups. com
Date: Monday, December 22, 2008, 2:36 PM

I have been unable to tolerate minerals of any kind since the EMF sensitivity began about one year ago. If I take a mineral, it seems to draw the EMF right into my body. I burn and sting terribly.. and depending upon where I am, it can be quite torturous. I recently bought a magnesium chloride liquid. The directions call for approx. 10 drops. All I can do is one drop andstill, I can feel increased stinging and burning.
 
This increased stinging and burning, after taking a mineral, also happens even from certain people's energies. Someone told me they read an article that stated how people's brains and hearts give off more EMF than devices(I am not sure about that, but I do know that some people's energy/thoughts/ emotions have caused me the same type of symptoms at times as that of some electronic devices).
 
I feel at a loss because I have become so sensitive.. in a chemical sensitive type of manner that I also am not tolerating vitamins and foods, etc. However, the issue with minerals is different than a chemical sensitivity reaction. I have never had anything like this before. I also seem to be unableto tolerate being in a house with aluminum siding. I went to look at a small house for sale. At the time, there were very little electrical appliances running(no furnace, but perhaps a refrigerator) . While I stood and listened to the man explain a few things about the house, I stung incredibly..which was the first time a long time since last being in a house with aluminum siding. I do have to say, that the reaction to this house and another house with aluminum siding varied. I am sure there are many variables I am unaware. That particular house was very close to another house. Perhaps there was WIFI next door or some other aspect undetectable to m.. I have
no idea.
 
I have noticed that if I am reacting to something else(ie food, chemical, etc), the stinging also increases. I had spoken to a doctor one day over thephone who told me she had quite a few clients who had the same issues, whowere incredibly sensitive to energy, EMF, chemicals, etc. She believed that those people were riddled with holes in their auras.. causing them to be more susceptible to EMF. I have a friend who has a device that video tapes the aura in real time and shows the changes to the aura when exposed to certain items. I do not live near him so I am unable to check this out for myself.
 
The issue of not being able to tolerate minerals of any kind has me a bit baffled as to what to do. I am also not absorbing nutrients from my food. I had my tongue read(taught in Chinese medicine) by an acupuncturist and an iridologist, which showed a deep crack down the center of my tongue in whichI was told was indicative of poor assimilation and digestion of food. I used to be able to tolerate enzymes. All I tolerate for now is papaya which helps with the protein digestion. I have watched my health deteriorate this past year due to the lack of nutrition. I know the minerals are important. I have even tried Clark's colloidal minerals, yet  just one drop was more than my body could tolerate.
 
Does anyone else have any of these issues?? Perhaps some are intolerant of minerals also, but have not noticed the correlation, especially if they have been taking the minerals all along. I do tolerate flax seed oil, Vit. D3 and CoQ10. I have been trying MMS(Miracle Mineral Supplement, but I have not noticed any benefit yet from that. MMS is suppose to oxidize heavy metals from the body, as well as kill many pathogens).
 
Thanks for "listening". It is distressing to say the least. Life has becomea nightmare of such proportions that it does not even sink in. It has beenmuch too much to assimilate.. loss of home and property and no where safe to live nor able to afford.
 
My, how life can suddenly change.
 
 
Laurel

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