Can anyone offer any advice?

Hi, Im brand new to the group and pleased to have come across it. I am extremely ill with ES
and am only just managing to type this post. I run my own business and am struggling to
keep up on a daily basis. What are the first steps I should take to get better? We have
removed all electrical items from the house that are no longer necessary and I am sleeping
under the bobinette canopy, recieved 2 days ago. So far, no improvement, does it take a
while? I am pretty desperate and have had real times of despair, i cannot go anyone near a
mobile phone and wondered if this does ease off at all over time? There are not many
electrical items i can be near at the moment but maybe this is a bad patch.I dont expect you
to have all the answers but any guidance would be very much appreciated. Thank you.

You should probably have a gauss meter and a microwave meter,
and a portable AM radio or RF meter.
Your bed tent will not protect from low frequency magnetic fields. Even for
microwaves
you might need a shield under the bed too.

If you use a computer, that could be the culprit. Try the gaussmeter and
AM radio on it. Make sure WLAN is off (sometimes they transmit even
when you think it 's not hooked up).

I would expect some improvement within a couple days if you've solved
the main exposure problems (but no promises). Try turning off the breakers
at night?

I would also recommend melatonin for a week or two if you're not sleeping
well. Vitamin D (D-3 might be best) plus calcium/magnesium. Plus
food with antioxidants and fiber.

I'm not a medical doctor, so take this all for what it's worth.
Good luck and report back in a week please!

Bill

On 9/20/07, ajwelectro <[hidden email]> wrote:

[Non-text portions of this message have been removed]

> Hi, Im brand new to the group and pleased to have come across it.

Welcome to the group!

We have a variety of folks here with ES who have dealt with it
in a variety of ways. I have personally tried a lot of things
and have significantly improved, although it tooks years of
trial & error to get to where I am now.

It sounds like from your email that tolerating your computer
is a high priority. For this, you should first make sure
that the computer and monitor are as far away as possible
from you (I keep the monitor about 3+ feet away from my
face, and the computer about 4 feet away). You may need
to get extension cords for your keyboard and monitor to
make this work. Some people here use laptop computers
on batteries, but I find laptops worse than desktop
computers.

If you are using wireless internet (wi-fi), try to get
that replaced with a wired connection. If you have a
cordless phone in your house, replace it with a corded
phone. If you have compact flourescent lights, you may
feel better if you replace them with old-fashioned
incandescent lights.

With computer monitors, some people do better with
LCD monitors, while some people do better do better
with old-fashioned tube monitors. For some people,
the brand/model can make a huge difference. For
example, we have Dell 19" LCD monitors at work which
I find bothersome. However, at home I'm using a
Sony 26" HDTV as a computer monitor which bothers
me less than the 19" Dell!

Another thing to try are EMF protection devices.
If you are using Microsoft Windows, there is a
free trial software download for something called
"Quantum Byte". If this helps you at all, then
you might benefit from other items from this
company:

http://quantumproducts.com/catalog/quantum_byte.html

Also, there are other items which might help, by
placing them on the table by your computer
monitor, or by placing them near you. Item
names include a RADAR card, Earthcalm resonator,
Springlife Polarizer, BioProtect card. There
are actually many items in this category, but
I'm focusing on things which have made an
obvious difference in my own experience.

As for a "cure", that's a longer term solution,
possibly/probably taking years. For many, ES
is a an overaccumulation of toxins in the body,
probably combined with some type of liver
dysfunction. Exposure to EMF seems to stir
up these toxins, causing adverse symptoms.
So reducing the amount of toxins stored
in your body and/or improving liver function
should reduce your symptoms.

Often times people link their problems with
dental work, like "silver fillings" or
crowns which are mostly toxic (especially
if they contain mercury). So, getting
metal dental work replaced with composites
is sometimes helpful.

Marc

What are your symptoms?

I'll tell you what Dr. Rea told me, "Lay off". Lay off the computer,
cell phone, and whatever else is causing your symptoms, and make sure
your sleeping quarters has a low magnetic field (< 0.2 mili gauss).

These are drastic measures for a devastating ailment.

If you can't completely lay off, which I'm sure is the case, then seek
low emission equipment, or devices that some people in this group
testify to as being effective, and keep your distance.

Not sure what a bobinette is, but a fabric will reduce only Radio
Frequencies (RF). It's not going to do anything for mid or low
frequencies.

You condition should ease after several months, or a year (if you
manage your exposure). I'm in the camp that believes ES is a permanent
ailment. Some kind of genetic, or nerve damage is most likely at play.

It sounds like you are one of the millions affected by this
international holocaust.

Chin up.
Eli

wwww.ahappyhabitat.com

> I'll tell you what Dr. Rea told me, "Lay off". Lay off the computer,

That's not very practical advice if you're trying to run a business,
and need to use a computer to do it. At my job, I need to use the
computer all day. I suppose that Dr. Rea would advise me to quit
my job and get a new one? For the cost of one visit to this doctor,
you could probably buy enough EMF protection devices to solve your
problem (assuming you get lucky -- maybe two visits worth will do it)

Marc

--- In [hidden email], "Marc Martin" <marc@...> wrote:
Than you to everyone for all my advice, it means a lot right now as I felt like giving up
yesterday. I will do my best to take all recommendations on board and report back in a week
or so. I cant use the computer every day at the moment and have been advised to 'stay
away!!'. Thanks for making me feel like Im not on my own.

--- In [hidden email], "Marc Martin" <marc@...> wrote:

Than you to everyone for all my advice, it means a lot right now as I felt like giving up
yesterday. I will do my best to take all recommendations on board and report back in a
week or so. I cant use the computer every day at the moment and have been advised to
'stay away!!'. Thanks for making me feel like Im not on my own.
>

--- In [hidden email], "Bill Bruno" <wbruno@...> wrote:

Than you to everyone for all my advice, it means a lot right now as I felt like giving up
yesterday. I will do my best to take all recommendations on board and report back in a
week or so. I cant use the computer every day at the moment and have been advised to
'stay away!!'. Thanks for making me feel like Im not on my own.

Do you have neighbours close by, if so have you any idea what they are using
such as Dect phones, wifi etc this is a big problem for me, it can be a
major contribution to you es.

p






[Non-text portions of this message have been removed]

Hi, You have bought some screening material, and now I would suggest
that you investigate whats going on in your environment with regard
to the levels of microwave radiation (from wireless devices) and
magnetic fields.

Sensory Perspective in London do two pretty cheap meters (one for RF
and one for magnetic/electric fields) that will give you a good and
immediate overview of whats going on in your home.

(There are alot of meters on the market, and some can take very
sophisticated measurements indeed, but they tend to cost more.)  
These are the 2 meters that I have and although they may not be the
best money can buy, they have served me fine for the last 4 years (I
have pretty bad ES), and many people use them, especially the esmog
detector, you may well already have one.

Its a steep learning curve, but there's alot of experienced people
here.  

www.detect-protect.com

PEK-1 -
Personal Electrosmog Kit


This Kit combines our two most popular quick-check devices: our
Electrosmog Detector which detects any strong microwave fields which
may be in your vicinity; and our Digital EMF/ELF meter which detects
and measure electric and magnetic fields from electrical wiring and
appliances.

Here is our data on each of these products:

MW1 - THE ELECTROSMOG DETECTOR
for wireless/microwave electrosmog.

In a world where fast-growing wireless technology is ever-present,
the Electrosmog Detector allows you to hear the digital pulsing of
man-made microwave radiation. These could be from

Digital cordless DECT phones
Mobile phones
Computer wireless networks
Bluetooth UMTS
Mobile phone masts and base stations
Baby alarms
Microwave technology
This new instrument exposes and converts the electromagnetic impulses
it encounters into a collection of sounds (buzzing, screeching,
pulsing) that is far more varied and illuminating than the `click' of
a geiger counter. You can hear the amount, type, amplitude, and
quality of the pulsed electronic pollution created by local
transmitters/emitters operating between 50MHz and 3000 MHz, and enjoy
the silence when the environment is clear. Hearing is believing!

It is not an alarm, nor is it a warning device. It is an educational
tool providing an awareness of your personal environment. Its curved
design fits comfortably in the hand and requires no technical
knowledge to operate. The Electrosmog Detector is the first true
consumer product in this category.

15 years ago, in 1991, the Electrosmog Detector would have just
emitted a quiet hiss in most locations. Now it makes a lot of noise,
especially in many urban locations and in many, many homes.

Anywhere that you spend your time - at home, in offices, schools,
libraries, hotels, restaurants and when travelling, detect the
electrosmog 'hotspots' in your environment and protect your family -
if you hear anything in a bedroom, do something about it.

Technical specifications:
Frequency Range: 50 MHz to 3000 MHz
Sensitivity: 0.01 volts per metre (V/m)
Output: Audio Loudspeaker, Audio jack socket
Controls: On/Off Switch, Volume
Battery: Standard 9V
Credentials: Patented and fully tested to traceable international
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Weight: 170gms (inc. 9V battery - supplied)
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ELF-GSME3030B
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Just turn it on, set it to magnetic or electric field detection, and
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Wide frequency response: very flat (1 dB) from 16 Hz to 2000 Hz;
useful from 5 Hz to 7000 Hz (3 dB)


Tremendous Sensitivity and Range: Magnetic: 1-2000 nT (0.01-20.00
mG); Electric: 1-2000 V/m


Accuracy: ±2% ±20 digits at 50/60 Hz


Audio sounder which sounds like a Geiger counter, increasing in
intensity as the field strength increases


Easy to operate, easy-to-read display


Comes complete with manual, standard 9-Volt battery, and 2-Year
Warranty


Price: £99.00 (excl. VAT)
£116.33 (incl. VAT)
 

--- In [hidden email], paulpjc@... wrote:
>
> Do you have neighbours close by, if so have you any idea what they
are using
> such as Dect phones, wifi etc this is a big problem for me, it can
be a  

I meant to say, diet and lifestyle are also important areas to
address, as it does seem to be those people whose bodies are already
weakened are more vulnerable to electrosensitivity.  

Getting some basic blood tests done, full blood count, vitamin and
mineral levels, for example, might show up something.  

Changes in diet, depending on how self-disciplined you are prepared
to be (!) can result in a dramatic lessening of ES symptoms. But it
takes time to find the right combinations for you! Many people with
ES find they are very sensitive to vitamin and mineral supplements,
so i would suggest going easy on the dosages and work up to check
your tolerance.
best wishes
jane

--- In [hidden email], "Marc Martin" <marc@...> wrote:

Oh, one more thing you can do -- if you've got dimmer switches
in your house, you might consider replacing them with regular
on/off switches. Dimmer switches can be problematic when
the lights are dimmed (although I don't think they cause
much problem when the lights are turned off or on at 100%)

Marc

> Many people with ES find they are very sensitive to vitamin and mineral
> supplements, so i would suggest going easy on the dosages and work up to
> check your tolerance.

Are lots of people here overly sensitive to supplements? I know that
I am, and there are several supplements that I have tried that I
simply cannot take even in small amounts due to the bad reactions
they provoke.

On the other hand, I find that I can get benefits from some supplements
at a dosage which is lower than recommended, so that's good
from a cost standpoint! :-)

Marc

Thank you to everyone who has replied, all this detail is fantastic.  
I cant write much as things are bad at present but as soon as I am  
well, I wil get back to you all.

Thank you so so much.
Alison


On 21 Sep 2007, at 15:06, Marc Martin wrote:

> Oh, one more thing you can do -- if you've got dimmer switches
> in your house, you might consider replacing them with regular
> on/off switches. Dimmer switches can be problematic when
> the lights are dimmed (although I don't think they cause
> much problem when the lights are turned off or on at 100%)
>
> Marc
>
>



[Non-text portions of this message have been removed]

Hi, Marc,

I hate to keep beating that lymphatic drum, but... ;) Anyone who has lymphatic overload is going to have bad symptoms to supplements which detox, restore cells, clean up the body, or in some way affect the immune system. All of these add to lymphatic load, either by adding toxins and wastes to the lymphatic system or by adding immune cells to the lymphatic system. Reacting badly to supplements which are supposed to help you MIGHT be conformation that you are actually on the right track (if you have lymphatic overload). That said, one should lower the dose to one he/she can tolerate (and by tolerate, I don't necessarily mean 0 symptoms). I know you know these things, Marc; but some newer people here might equate reacting to supplements as having a direct relationship to their ES, when it is actually the lymphatic overload which appears to have a direct relationship.

my 2 cents,
Diane


Marc Martin <[hidden email]> wrote:
> Many people with ES find they are very sensitive to vitamin and mineral
> supplements, so i would suggest going easy on the dosages and work up to
> check your tolerance.

Are lots of people here overly sensitive to supplements? I know that
I am, and there are several supplements that I have tried that I
simply cannot take even in small amounts due to the bad reactions
they provoke.

On the other hand, I find that I can get benefits from some supplements
at a dosage which is lower than recommended, so that's good
from a cost standpoint! :-)

Marc





---------------------------------
Shape Yahoo! in your own image. Join our Network Research Panel today!

[Non-text portions of this message have been removed]

Hi, All,

On the note of lymphatic overload, has anyone here ever had testing for cytokine production? I am just embarking on research into this area, so can't share any real info yet. It appears that celiacs and others who have many environmental sensitivities may have a communication problem in their immune systems where the body does not know when to shut off cytokine production. (If I have understood it correctly--I don't speak medical research doctor latin very well and need a medical dictionary to look up every other word in the medical abstracts, at this point. lol )

At any rate, in my first search regarding this, I have found Dr Cheney of CFS fame is treating cytokine OVER production with immersion baths (standing in 80 degree F or so water up to the neck, so that the lymphatic system pushes cytokines and wastes back into the body--the reverse of detox). The reasoning here is, the body doesn't quit producing cytokines when they are in the lymphatic system. The body needs to realize that there are already more than enough cytokines and stop production, and to make it realize that, he is causing a loop wherein the lymphatic fluid with its cytokines comes back into the blood stream.

It occurred to me that cytokines chasing relatively harmless substances can in itself cause lymphatic overload; not just due to the presence of glutens, mold, or pesticides...., but due also to the amount of immune system cells in the system. It is an unending circle--the upgraded immune system, upon losing glutens, then finds gut bugs to chase; then chemicals or molds to chase when the gut bugs are killed.... For a person whose immune system is over-active, it never ends. There is always SOMETHING out there that is foreign which the body can find as "not self" to attack. So.... might an immune system which does not communicate re how many cytokines are in production be a contributor to ES? Just asking in case others out there have already had tests for this or done research into this area. If this is the case, then detoxing an overloaded lymphatic system might possibly add to the risk to get ES! THis is just a thought I have and should not be extrapolated as an
actual medical theory. Just asking questions here.

Seeker of all knowledge yet unknown, ;)
Diane





> Many people with ES find they are very sensitive to vitamin and mineral
> supplements, so i would suggest going easy on the dosages and work up to
> check your tolerance.

Are lots of people here overly sensitive to supplements? I know that
I am, and there are several supplements that I have tried that I
simply cannot take even in small amounts due to the bad reactions
they provoke.

On the other hand, I find that I can get benefits from some supplements
at a dosage which is lower than recommended, so that's good
from a cost standpoint! :-)

Marc





---------------------------------
Moody friends. Drama queens. Your life? Nope! - their life, your story.
Play Sims Stories at Yahoo! Games.

[Non-text portions of this message have been removed]

This explains why vitamin pills make me foot stop working.
Only one brand didn't and it had different excipients.
Claypack temporary improvement. (clay apperently works on
lymph). I'm pretty sure I react to thiamine in bread.
I don't take pills now, I had wondered about lymph.

Rowan.

--- In [hidden email], Evie <evie15422@...> wrote:
>
> Hi, Marc,
>    
> I hate to keep beating that lymphatic drum, but... ;) Anyone
who has lymphatic overload is going to have bad symptoms to
supplements which detox, restore cells, clean up the body, or in some
way affect the immune system. All of these add to lymphatic load,
either by adding toxins and wastes to the lymphatic system or by
adding immune cells to the lymphatic system. Reacting badly to
supplements which are supposed to help you MIGHT be conformation that
you are actually on the right track (if you have lymphatic
overload). That said, one should lower the dose to one he/she can
tolerate (and by tolerate, I don't necessarily mean 0 symptoms). I
know you know these things, Marc; but some newer people here might
equate reacting to supplements as having a direct relationship to
their ES, when it is actually the lymphatic overload which appears to
have a direct relationship.
>    
> my 2 cents,
> Diane
>  
>
> Marc Martin <marc@...> wrote:
> > Many people with ES find they are very sensitive to
vitamin and mineral
> > supplements, so i would suggest going easy on the dosages and
work up to
> > check your tolerance.
>
> Are lots of people here overly sensitive to supplements? I know that
> I am, and there are several supplements that I have tried that I
> simply cannot take even in small amounts due to the bad reactions
> they provoke.
>
> On the other hand, I find that I can get benefits from some
supplements today!
>
> [Non-text portions of this message have been removed]
>

I don't like most multivitamins and B vitamins. The theory behind D
vitamins
(I take rather low dose in liquid form) is that it stimulates part of the
innate immune
system. Hopefully this kills off some of the blood dwelling bacteria, and
when they
are gone the rest of the immune system can rest. Cytokines should then go
down.
Treating any infections and reducing allergens (dairy foods, wheat) might
help too.

For calcium I like the capsules; I break them open and sprinkle on my
breakfast...

Bill

On 9/21/07, Evie <[hidden email]> wrote:

[Non-text portions of this message have been removed]

In a message dated 9/22/2007 4:16:45 AM GMT Daylight Time, [hidden email]
writes:

Hi, All,
>
> On the note of lymphatic overload, has anyone here ever had testing for
> cytokine production? I am just embarking on research into this area, so
> can't share any real info yet. It appears that celiacs and others who have
> many environmental sensitivities may have a communication problem in their
> immune systems where the body does not know when to shut off cytokine
> production. (If I have understood it correctly--I don't speak medical
> research doctor latin very well and need a medical dictionary to look up
> every other word in the medical


PAUL UK REPLIES
American scientific did a good article re cancer and the innate immune
system, based on theory that lingering inflamation can encourage tumor growth,
cytokines etc were obviously implicated here, the article is worth reading. I
think it was august edition.






[Non-text portions of this message have been removed]

I am taking Vit. D liquid also. Don't know if it is helping but my
tests said I was low.
Andrew
On Sep 21, 2007, at 11:16 PM, Bill Bruno wrote: