thyroid meds make my ES worse

This may not be applicable for anyone else on here, but I've discovered that thyroid meds make my ES worse. I've been on Armour type meds for almost 4 years -- at varying levels (and types)-- the more I'm on, the worse my ESgets. I had gotten to the point where being under fluorescent lights would make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I really couldn't go anywhere. The computer would bother me some and talkingon cell phones was very difficult -- I would end up weak, twitchy and exhausted after a 15 minute conversation. Portable phones were not much better.  
In May, I ended up in the hospital with tachycardia & arrythmia. The allopathic docs took one look at my thyroid labs (mainly the fact that my tsh was .01 even though my FT4 & FT3 were in the lower half of the range) and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened dramatically. I'm still not normal (because of muscle weakness problems) but I can handle fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy

I'm on Armour Thryroid but couldn't go off of them to see if I'm less EHS because I need them. How is that you can just drop the meds because you can't live without the hormone & when you have been taking them for awhile you don't produce any hormone on your own.
 
This is puzzling to me. I'd love to give a whirl but don't see how.
 
Loni

at, 9/11/10, Amy <[hidden email]> wrote:


From: Amy <[hidden email]>
Subject: [eSens] thyroid meds make my ES worse
To: [hidden email]
Date: Saturday, September 11, 2010, 7:09 PM


 



This may not be applicable for anyone else on here, but I've discovered that thyroid meds make my ES worse. I've been on Armour type meds for almost 4years -- at varying levels (and types)-- the more I'm on, the worse my ES gets. I had gotten to the point where being under fluorescent lights would make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I really couldn't go anywhere. The computer would bother me some and talking oncell phones was very difficult -- I would end up weak, twitchy and exhausted after a 15 minute conversation. Portable phones were not much better.
In May, I ended up in the hospital with tachycardia & arrythmia. The allopathic docs took one look at my thyroid labs (mainly the fact that my tsh was.01 even though my FT4 & FT3 were in the lower half of the range) and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened dramatically. I'm still not normal (because of muscle weakness problems) but I canhandle fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy









     

[Non-text portions of this message have been removed]

Loni -- Best I can figure is that it's because I have hashi's -- which means
trying to find the right levels for me is like shooting at a moving target. My
doctor said that since my thyroid had been suppressed for several years, the
odds of it ever being able to manage on it's own again was unlikely.
Nevertheless, it is managing. I'm only on 25 mcg of synthroid (which is
equivalent to 1/4 grain of Armour) and my labs are normal. My FT4 is the same
as it was on 2 1/2 grains of Armour. I can't explain that, but it has made my
life easier since I can now comfortably go to restaurants, sit in church etc.

I'm not suggesting anyone else should go off thyroid meds -- it's just how it
worked out for me! Amy



________________________________
From: Loni <[hidden email]>
To: [hidden email]
Sent: Sat, September 11, 2010 9:37:45 PM
Subject: Re: [eSens] thyroid meds make my ES worse

I'm on Armour Thryroid but couldn't go off of them to see if I'm less EHS
because I need them. How is that you can just drop the meds because you can't
live without the hormone & when you have been taking them for awhile you don't
produce any hormone on your own.


This is puzzling to me. I'd love to give a whirl but don't see how.

Loni

at, 9/11/10, Amy <[hidden email]> wrote:


From: Amy <[hidden email]>
Subject: [eSens] thyroid meds make my ES worse
To: [hidden email]
Date: Saturday, September 11, 2010, 7:09 PM






This may not be applicable for anyone else on here, but I've discovered that
thyroid meds make my ES worse. I've been on Armour type meds for almost 4 years
-- at varying levels (and types)-- the more I'm on, the worse my ES gets. I had
gotten to the point where being under fluorescent lights would make me weak,
dizzy and somewhat disoriented in about 10 minutes -- so I really couldn't go
anywhere. The computer would bother me some and talking on cell phones was very
difficult -- I would end up weak, twitchy and exhausted after a 15 minute
conversation. Portable phones were not much better.

In May, I ended up in the hospital with tachycardia & arrythmia. The allopathic
docs took one look at my thyroid labs (mainly the fact that my tsh was .01 even
though my FT4 & FT3 were in the lower half of the range) and yanked me off
thyroid meds. Within a few weeks, my ES symptoms lessened dramatically. I'm
still not normal (because of muscle weakness problems) but I can handle
fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy











[Non-text portions of this message have been removed]



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Yahoo! Groups Links






[Non-text portions of this message have been removed]

Amy- thanks for clarifying that. I am on 60 mgs of armour which is 1 grain I believe & so I am on much more & am dependant on it. Boy I'd love to see if I was less EHS though. That sounds like terrific knews for you!  Loni

--- On Sat, 9/11/10, Amy Green <[hidden email]> wrote:


From: Amy Green <[hidden email]>
Subject: Re: [eSens] thyroid meds make my ES worse
To: [hidden email]
Date: Saturday, September 11, 2010, 7:51 PM


 



Loni -- Best I can figure is that it's because I have hashi's -- which means
trying to find the right levels for me is like shooting at a moving target.My
doctor said that since my thyroid had been suppressed for several years, the
odds of it ever being able to manage on it's own again was unlikely.
Nevertheless, it is managing. I'm only on 25 mcg of synthroid (which is
equivalent to 1/4 grain of Armour) and my labs are normal. My FT4 is the same
as it was on 2 1/2 grains of Armour. I can't explain that, but it has made my
life easier since I can now comfortably go to restaurants, sit in church etc.

I'm not suggesting anyone else should go off thyroid meds -- it's just how it
worked out for me! Amy

________________________________
From: Loni <[hidden email]>
To: [hidden email]
Sent: Sat, September 11, 2010 9:37:45 PM
Subject: Re: [eSens] thyroid meds make my ES worse

I'm on Armour Thryroid but couldn't go off of them to see if I'm less EHS
because I need them. How is that you can just drop the meds because you can't
live without the hormone & when you have been taking them for awhile you don't
produce any hormone on your own.

This is puzzling to me. I'd love to give a whirl but don't see how.

Loni

at, 9/11/10, Amy <[hidden email]> wrote:

From: Amy <[hidden email]>
Subject: [eSens] thyroid meds make my ES worse
To: [hidden email]
Date: Saturday, September 11, 2010, 7:09 PM

This may not be applicable for anyone else on here, but I've discovered that
thyroid meds make my ES worse. I've been on Armour type meds for almost 4 years
-- at varying levels (and types)-- the more I'm on, the worse my ES gets. Ihad
gotten to the point where being under fluorescent lights would make me weak,
dizzy and somewhat disoriented in about 10 minutes -- so I really couldn't go
anywhere. The computer would bother me some and talking on cell phones was very
difficult -- I would end up weak, twitchy and exhausted after a 15 minute
conversation. Portable phones were not much better.

In May, I ended up in the hospital with tachycardia & arrythmia. The allopathic
docs took one look at my thyroid labs (mainly the fact that my tsh was .01 even
though my FT4 & FT3 were in the lower half of the range) and yanked me off
thyroid meds. Within a few weeks, my ES symptoms lessened dramatically. I'm
still not normal (because of muscle weakness problems) but I can handle
fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy

[Non-text portions of this message have been removed]

------------------------------------

Yahoo! Groups Links

[Non-text portions of this message have been removed]









     

[Non-text portions of this message have been removed]

According to Dr Jerry Tennant and Dr Mark Starr regards thyroid:

-Blood tests are worthless (due to "fake" hormones)

-You can only diagnose with checking symptoms and measuring your temperature in the morning (from Tennant's book: "when you wake up, throw the covers off for 4-5 minutes before you take the temperature. If it is below 97.6 you [probably] have Hypothyroidism Type II").

-Hypothyroidism should be attacked with Armour thyroid (or another desiccated thyroid hormone) + Iodine

Amy: Reading your story, it seems like a good think you stopped the Armour thyroid hormones! If you would check your temperature regularly you should (according to Tennant and Starr) have a good idea if hypothyroidism is present.

Some say (not Tennant/Starr) you first have to take care of your adrenals and then your thyroid instead of the other way around...

Stephen.


ps

Mark Starr's book on Hypothyroidism is kind of a bestseller:

http://www.amazon.com/Hypothyroidism-Type-Epidemic-Mark-Starr/dp/0975262408/ref=sr_1_1?ie=UTF8&s=books&qid=1284292011&sr=8-1


Tennant's book "Healing is Voltage":

http://www.amazon.com/Healing-Voltage-NDM-Jerry-Tennant/dp/1453649166/ref=pd_sim_b_1





--- In [hidden email], "Amy" <amygreen53@...> wrote:
>
> This may not be applicable for anyone else on here, but I've discovered that thyroid meds make my ES worse. I've been on Armour type meds for almost 4 years -- at varying levels (and types)-- the more I'm on, the worse my ES gets. I had gotten to the point where being under fluorescent lights would make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I really couldn't go anywhere. The computer would bother me some and talking on cell phones was very difficult -- I would end up weak, twitchy and exhausted after a 15 minute conversation. Portable phones were not much better.  
> In May, I ended up in the hospital with tachycardia & arrythmia. The allopathic docs took one look at my thyroid labs (mainly the fact that my tsh was .01 even though my FT4 & FT3 were in the lower half of the range) and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened dramatically. I'm still not normal (because of muscle weakness problems) but I can handle fluorescent lights, computers and cell phones fairly well.
> Anybody else ever notice that connection? Any ideas why??
>
> Thanks!! Amy
>

Worth noting that Armour changed their formulation about a year ago and it
stopped working effectively for a fair number of people, including Sue. She
tried a Canadian version which is supposedly the same as old Armour but did
not work for her. She then tried Nature-Throid and it works superbly for
her, if anything better than Armour. Other people have had different
experiences, though. As always, different people have different metabolisms
and it's not "one size (or med) fits all". It was only the excipients
(additives) that were changed on Armour rather than the active ingredient
(the pig-based thyroid), but it still affected some people, presumably by
changing the digestion rates.

Thyroid medications can "hype you up" if taken at too high a dose and that
could increase ES symptoms. Sue has benefited hugely from natural thyroid
and the increased energy has helped her body do better against MCS and ES.
However, she has to work on a tiny dose and only once every 4 days or so.

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Amy
Sent: 12 September 2010 03:10
To: [hidden email]
Subject: [eSens] thyroid meds make my ES worse




This may not be applicable for anyone else on here, but I've discovered that
thyroid meds make my ES worse. I've been on Armour type meds for almost 4
years -- at varying levels (and types)-- the more I'm on, the worse my ES
gets. I had gotten to the point where being under fluorescent lights would
make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I
really couldn't go anywhere. The computer would bother me some and talking
on cell phones was very difficult -- I would end up weak, twitchy and
exhausted after a 15 minute conversation. Portable phones were not much
better.
In May, I ended up in the hospital with tachycardia & arrythmia. The
allopathic docs took one look at my thyroid labs (mainly the fact that my
tsh was .01 even though my FT4 & FT3 were in the lower half of the range)
and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened
dramatically. I'm still not normal (because of muscle weakness problems) but
I can handle fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy






[Non-text portions of this message have been removed]

What Ian mentions is confirmed in Tennant's book:

After 100 years Forest Labs quit making Armour Thyroid. However, desiccatedthyroid is available from RLC Labs under the trade names Nature-Throid andWesthroid.

Tennant advises the "natural" desiccated thyroid vs the synthetic thyroid...

Tennant also advises not to take too much thyroid hormone esp. in the beginning as this can be very dangerous. Common symptoms of taking too much:
anxiety, confusion, disorientation, heart palpitations, irregular heart rythm, high blood pressure, rapid heart rate, seizures, strokes, ...




--- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote:

I'm re-reading Amy's post,

arrhythmia = irregular heart rythm
tachycardia = rapid heart rate

So according to Tennant these are indeed symptoms of taking too much thyroid hormone...



--- In [hidden email], "stephen_vandevijvere" <stephen_vandevijvere@...> wrote:

How small a dose is Sue on? I'm only on 25mcg of synthroid (actually
levothyroxine) and I cannot raise it no matter how small the increments I use.
I never thought about skipping days. Hmmmm. Like Sue, old Armour worked for
me. Since then, none of the NDT's have worked at all -- and I've been on every
version as well as 3 different compounded ones. I feel like I could use a
little boost, because of low energy, but any raise at all sets off increased
muscle weakness and ES symptoms. Frustrating!!! Amy



________________________________
From: Ian Kemp <[hidden email]>
To: [hidden email]
Sent: Mon, September 13, 2010 3:23:35 PM
Subject: RE: [eSens] thyroid meds make my ES worse

Worth noting that Armour changed their formulation about a year ago and it
stopped working effectively for a fair number of people, including Sue. She
tried a Canadian version which is supposedly the same as old Armour but did
not work for her. She then tried Nature-Throid and it works superbly for
her, if anything better than Armour. Other people have had different
experiences, though. As always, different people have different metabolisms
and it's not "one size (or med) fits all". It was only the excipients
(additives) that were changed on Armour rather than the active ingredient
(the pig-based thyroid), but it still affected some people, presumably by
changing the digestion rates.

Thyroid medications can "hype you up" if taken at too high a dose and that
could increase ES symptoms. Sue has benefited hugely from natural thyroid
and the increased energy has helped her body do better against MCS and ES.
However, she has to work on a tiny dose and only once every 4 days or so.

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Amy
Sent: 12 September 2010 03:10
To: [hidden email]
Subject: [eSens] thyroid meds make my ES worse




This may not be applicable for anyone else on here, but I've discovered that
thyroid meds make my ES worse. I've been on Armour type meds for almost 4
years -- at varying levels (and types)-- the more I'm on, the worse my ES
gets. I had gotten to the point where being under fluorescent lights would
make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I
really couldn't go anywhere. The computer would bother me some and talking
on cell phones was very difficult -- I would end up weak, twitchy and
exhausted after a 15 minute conversation. Portable phones were not much
better.
In May, I ended up in the hospital with tachycardia & arrythmia. The
allopathic docs took one look at my thyroid labs (mainly the fact that my
tsh was .01 even though my FT4 & FT3 were in the lower half of the range)
and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened
dramatically. I'm still not normal (because of muscle weakness problems) but
I can handle fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy






[Non-text portions of this message have been removed]



------------------------------------

Yahoo! Groups Links






[Non-text portions of this message have been removed]

Hi Amy, I think Sue is on 1/4 grain - she's gone to bed so I can't ask her
at the moment! Synthroid (T4 only) doesn't work for her, it seems that her
T4-T3 conversion isn't working properly so she needs the balanced version.
We could try adding T3, that would have been our next port of call if the
Nature-Throid hadn't worked. She finds one dose keeps her going for 4-5
days on average, and if she starts feeling "low energy" it's a sign that
she's overdue for taking the next one. Her TSH was around 5 when last
tested (considered borderline hypothyroid), so it sounds as if your body is
doing better in this area if yours is below 0.1! She hasn't noiced any ES
symptoms after taking thyroid, though she did get "hyper" initially if she
took to high a dose.

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of Amy
Green
Sent: 14 September 2010 22:54
To: [hidden email]
Subject: Re: [eSens] thyroid meds make my ES worse




How small a dose is Sue on? I'm only on 25mcg of synthroid (actually
levothyroxine) and I cannot raise it no matter how small the increments I
use.
I never thought about skipping days. Hmmmm. Like Sue, old Armour worked for
me. Since then, none of the NDT's have worked at all -- and I've been on
every
version as well as 3 different compounded ones. I feel like I could use a
little boost, because of low energy, but any raise at all sets off increased

muscle weakness and ES symptoms. Frustrating!!! Amy

________________________________
From: Ian Kemp <[hidden email]
<mailto:ianandsue.kemp%40ukgateway.net> >
To: [hidden email] <mailto:eSens%40yahoogroups.com>
Sent: Mon, September 13, 2010 3:23:35 PM
Subject: RE: [eSens] thyroid meds make my ES worse

Worth noting that Armour changed their formulation about a year ago and it
stopped working effectively for a fair number of people, including Sue. She
tried a Canadian version which is supposedly the same as old Armour but did
not work for her. She then tried Nature-Throid and it works superbly for
her, if anything better than Armour. Other people have had different
experiences, though. As always, different people have different metabolisms
and it's not "one size (or med) fits all". It was only the excipients
(additives) that were changed on Armour rather than the active ingredient
(the pig-based thyroid), but it still affected some people, presumably by
changing the digestion rates.

Thyroid medications can "hype you up" if taken at too high a dose and that
could increase ES symptoms. Sue has benefited hugely from natural thyroid
and the increased energy has helped her body do better against MCS and ES.
However, she has to work on a tiny dose and only once every 4 days or so.

Ian

_____

From: [hidden email] <mailto:eSens%40yahoogroups.com>
[mailto:[hidden email] <mailto:eSens%40yahoogroups.com> ] On Behalf
Of Amy
Sent: 12 September 2010 03:10
To: [hidden email] <mailto:eSens%40yahoogroups.com>
Subject: [eSens] thyroid meds make my ES worse

This may not be applicable for anyone else on here, but I've discovered that
thyroid meds make my ES worse. I've been on Armour type meds for almost 4
years -- at varying levels (and types)-- the more I'm on, the worse my ES
gets. I had gotten to the point where being under fluorescent lights would
make me weak, dizzy and somewhat disoriented in about 10 minutes -- so I
really couldn't go anywhere. The computer would bother me some and talking
on cell phones was very difficult -- I would end up weak, twitchy and
exhausted after a 15 minute conversation. Portable phones were not much
better.
In May, I ended up in the hospital with tachycardia & arrythmia. The
allopathic docs took one look at my thyroid labs (mainly the fact that my
tsh was .01 even though my FT4 & FT3 were in the lower half of the range)
and yanked me off thyroid meds. Within a few weeks, my ES symptoms lessened
dramatically. I'm still not normal (because of muscle weakness problems) but
I can handle fluorescent lights, computers and cell phones fairly well.
Anybody else ever notice that connection? Any ideas why??

Thanks!! Amy

[Non-text portions of this message have been removed]

------------------------------------

Yahoo! Groups Links

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]

> Anybody else ever notice that connection? Any ideas why??

They say that boosting your thyroid puts additional stress on your adrenals, so maybe you just have weak adrenals. How do you respond to adrenal support?

Marc

That certainly could be a contributing factor. My adrenals have been all over
the place and adrenal rebuilders (which is all I've ever used to help them) also
make me feel REALLY ramped up (and not in a good way). Right now, per my last
saliva test, my adrenals are fine though and I still can't manage much thyroid.
I really do need more energy than I have right now, but it's such a relief to
get away from most of the ES symptoms. I'm only on 25mcg of synthroid -- my tsh
is 3 and FT4 is in range. I just need relief from weak legs (and muscles in
general) to be "normal" again. Amy



________________________________
From: Marc Martin <[hidden email]>
To: [hidden email]
Sent: Wed, September 15, 2010 9:09:14 PM
Subject: Re: [eSens] thyroid meds make my ES worse

> Anybody else ever notice that connection? Any ideas why??

They say that boosting your thyroid puts additional stress on your adrenals, so
maybe you just have weak adrenals. How do you respond to adrenal support?

Marc


------------------------------------

Yahoo! Groups Links






[Non-text portions of this message have been removed]