> I just have to vent.  I am sick and tired of people saying that a  
> health condition doesn't exist because there's no diagnostic proof.  I  
> became ill in 1989 with Chronic Fatigue Syndrome and spent all of the  
> 1990's and into the 2000's being told it doesn't exist because there  
> isn't any proof.  (There are still many doctors who have no idea what  
> CFS is.)  The same with Multiple Chemical Sensitivities, which which I  
> acquired at the same time.  I had a doctor tell me he couldn't concur  
> with a MCS diagnosis because the body doesn't make anti-bodies to  
> chemicals as occurs in allergies, and therefore there was no "proof".  
> Duh.  Chemicals aren't allergens; they are substances that interfere  
> with normal chemistry/hormonal balance of the body.  No, the immune  
> system does not make antibodies to them (as far as I know).  It's bad  
> enough to suffer from these conditions, but to be completely  
> invalidated at the same time is hurtful and destructive to a person  
> trying to cope and heal.
>
> Now it's electrosensitivity.  I have been suicidally depressed at  
> different times from all of these conditions.  When I become  
> depressed, I'm aware that it is caused by the conditions, i.e. that my  
> brain chemicals and hormones are being disrupted and thrown out of  
> balance, but knowing that doesn't keep me from experiencing the  
> depression.  I've gone to bed more than once over the past 23 years,  
> praying I won't wake up because I'm so worn down from the struggles  
> and the daily losses. I suffer every day, as does everyone else who  
> has these illnesses.  It's a testament to everyone's courage to have  
> ES and these other "invisible" conditions, and still keep going.
>
> I understand that Multiple Sclerosis was thought to be an hysterical  
> condition when it first appeared (after dentists started placing  
> mercury amalgams), and it was many years before it became  
> "legitimized".  The problem with Western medicine is that if they  
> don't know what causes something, then they deny it exists.  It  
> appears they think there are a few of us engaged in a group hypnosis,  
> i.e. somehow a few people from all over the world magically decide to  
> have the same specific symptoms, but we're all making it up.
>
> My heart goes out to that young man and to his family, and to everyone  
> who is suffering.  Thank God for the internet, this group and others,  
> that allow us to connect with each other for support, encouragement,  
> and the sharing of information that helps us find help and healing.
>
> Esther
>
> On Nov 8, 2012, at 9:44 AM, Stephanie Smith wrote:
>
>> This is desperately desperately sad - I hope that his death is not  
>> dismissed by officialdom as due to some "fault" on his part that he  
>> was somehow lacking in being unable to cope with electrosensitivity  
>> and being electrosensitive, although sadly I fear that this will  
>> likely be the case. Things must have been unbearable for him for him  
>> to do this even though he had family support and help and  
>> understanding. There are many of us i would imagine who don't have  
>> that.
>>
>> I would also take issue with the lazy journalism in the article  
>> about the absence of a biomarker - I could be wrong but I read  
>> something online recently about some doctor in Italy maybe? who was  
>> able to ascertain changes in the body which did correspond to  
>> electrosensitivity.
>>
>> May Michael maybe now find the peace that he was denied during his  
>> life and my sympathies are with his parents and family.
>>
>> Steph
>>
>>
>
>
>
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