Posted by
ESther on
Nov 15, 2012; 8:58am
URL: https://www.es-forum.com/Electrosensitive-commits-suicide-tp4023824p4023912.html
I just have to vent. I am sick and tired of people saying that a
health condition doesn't exist because there's no diagnostic proof. I
became ill in 1989 with Chronic Fatigue Syndrome and spent all of the
1990's and into the 2000's being told it doesn't exist because there
isn't any proof. (There are still many doctors who have no idea what
CFS is.) The same with Multiple Chemical Sensitivities, which which I
acquired at the same time. I had a doctor tell me he couldn't concur
with a MCS diagnosis because the body doesn't make anti-bodies to
chemicals as occurs in allergies, and therefore there was no "proof".
Duh. Chemicals aren't allergens; they are substances that interfere
with normal chemistry/hormonal balance of the body. No, the immune
system does not make antibodies to them (as far as I know). It's bad
enough to suffer from these conditions, but to be completely
invalidated at the same time is hurtful and destructive to a person
trying to cope and heal.
Now it's electrosensitivity. I have been suicidally depressed at
different times from all of these conditions. When I become
depressed, I'm aware that it is caused by the conditions, i.e. that my
brain chemicals and hormones are being disrupted and thrown out of
balance, but knowing that doesn't keep me from experiencing the
depression. I've gone to bed more than once over the past 23 years,
praying I won't wake up because I'm so worn down from the struggles
and the daily losses. I suffer every day, as does everyone else who
has these illnesses. It's a testament to everyone's courage to have
ES and these other "invisible" conditions, and still keep going.
I understand that Multiple Sclerosis was thought to be an hysterical
condition when it first appeared (after dentists started placing
mercury amalgams), and it was many years before it became
"legitimized". The problem with Western medicine is that if they
don't know what causes something, then they deny it exists. It
appears they think there are a few of us engaged in a group hypnosis,
i.e. somehow a few people from all over the world magically decide to
have the same specific symptoms, but we're all making it up.
My heart goes out to that young man and to his family, and to everyone
who is suffering. Thank God for the internet, this group and others,
that allow us to connect with each other for support, encouragement,
and the sharing of information that helps us find help and healing.
Esther
On Nov 8, 2012, at 9:44 AM, Stephanie Smith wrote:
> This is desperately desperately sad - I hope that his death is not
> dismissed by officialdom as due to some "fault" on his part that he
> was somehow lacking in being unable to cope with electrosensitivity
> and being electrosensitive, although sadly I fear that this will
> likely be the case. Things must have been unbearable for him for him
> to do this even though he had family support and help and
> understanding. There are many of us i would imagine who don't have
> that.
>
> I would also take issue with the lazy journalism in the article
> about the absence of a biomarker - I could be wrong but I read
> something online recently about some doctor in Italy maybe? who was
> able to ascertain changes in the body which did correspond to
> electrosensitivity.
>
> May Michael maybe now find the peace that he was denied during his
> life and my sympathies are with his parents and family.
>
> Steph
>
>
[Non-text portions of this message have been removed]
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