Posted by KathyB on
URL: https://www.es-forum.com/Clinical-Trial-tp4017798p4018396.html

Snoshoe,


Benzodiazepines can only cause an addiction. They addict after 2 mos. I'll look up the research to share. They should not be used, unless there is some emergency, as a death in the family. And then, must be short term.

 I took them in good faith prescribed by doctors for anxiety for too many years. I reacted to every 1
 I tried over time. There are many more natural less toxic ways to help relax. Some you mentioned

GABA. Magnesium is a precurser to GABA, relaxes as well. I had to go through withdrawal from hell last June. I have some nerve damage OR my GABA receptors are having trouble adjusting after 1 year of stopping all benzodiazepines. I have hopes things will keep improving, but there are no guarantees. When I stopped my sensory system reacted as if I had a nerve disease.

This has been an awful life experience, you or no one else, should not have to go through.
There is no antidote to this. They can only try.


Kathy






To: [hidden email]

From: [hidden email]

Date: Sun, 27 May 2012 10:35:24 +0000

Subject: [eSens] Clinical Trial



Hi all,



For some time I have been looking at different things that help damp down the



hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,



similar to benzodiazepines.



I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I



recently had oral surgery where that was used as the anesthesia. It did seem to give huge



relief to those symptoms for a couple days, and quite a lot for a couple weeks



afterwards, though they have gradually increased again.



While those are drugs you cannot take constantly, I think there is a big key here that can lead



to some useful treatments.



What I would like to do is get a trial going with benzodiazepine over the period of about



a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in



heading this up, to collect and correlate data, and then if it seems widely useful, maybe



it can be narrowed down more closely to a specific protocol.



I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,



and I am hoping there will be some of you who would like to participate also, asking your Dr.



to allow you to try this.



It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to



give it a try, whether you were to take it for say a week running with breaks inbetween, or



maybe a couple days a week over a longer period of time, or in one larger occassional dose



as in general anesthesia amounts, maybe a few times over a year.



If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see



what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,



and at least making life more liveable, such as people with CFS may use occasional codeine,



or saline IVs for helping with symptom relief on extra busy days.



So, at this point, you would have much more free reign to try it on varying amounts, what seemed



to work for you, and just need to keep track of how much, how long you used it each time, and



if you noticed any results for it, and how long they lasted.



This may also be helpful in translating into just how much of natural substances we may be



able to use to get similar dramatic results.



Anyone that would be interested in joining in this study, please just note here, and/or email me directly.



~ Snoshoe



                     



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