Re: Clinical Trial

Posted by chucka2651 on
URL: https://www.es-forum.com/Clinical-Trial-tp4017798p4018395.html

Hi Snoshoe:

From my perspective, I would urge you to be extremely cautious in taking benzos.  They are known to have pernicious side effects both when taken and during very long periods of withdrawal. I am sorry that I can't spend enough time on the computer to find and cite sources. But I would suggest researching this, as the side effects are often minimized BY professionals, partly because this class of drugs can be
 so effective in treating symptoms.  . Also, benzos can be quickly addicting and very hard to withdraw from. By the way, I am in the field and not one who is against all psychotropic medication. I think Benzos are clearly a special case that call for particular caution.  

--- In [hidden email], "snoshoe_2" <snoshoe_2@...> wrote:

>
> Hi all,
> For some time I have been looking at different things that help damp down the
> hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,
> similar to benzodiazepines.
>
> I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I
> recently had oral surgery where that was used as the anesthesia. It did seem to give huge
> relief to those symptoms for a couple days, and quite a lot for a couple weeks
> afterwards, though they have gradually increased again.
>
> While those are drugs you cannot take constantly, I think there is a big key here that can lead
> to some useful treatments.
>
> What I would like to do is get a trial going with benzodiazepine over the period of about
> a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in
> heading this up, to collect and correlate data, and then if it seems widely useful, maybe
> it can be narrowed down more closely to a specific protocol.
>
> I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,
> and I am hoping there will be some of you who would like to participate also, asking your Dr.
> to allow you to try this.
>
> It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to
> give it a try, whether you were to take it for say a week running with breaks inbetween, or
> maybe a couple days a week over a longer period of time, or in one larger occassional dose
> as in general anesthesia amounts, maybe a few times over a year.
>
> If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see
> what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,
> and at least making life more liveable, such as people with CFS may use occasional codeine,
> or saline IVs for helping with symptom relief on extra busy days.
>
> So, at this point, you would have much more free reign to try it on varying amounts, what seemed
> to work for you, and just need to keep track of how much, how long you used it each time, and
> if you noticed any results for it, and how long they lasted.
>
> This may also be helpful in translating into just how much of natural substances we may be
> able to use to get similar dramatic results.
>
> Anyone that would be interested in joining in this study, please just note here, and/or email me directly.
>
> ~ Snoshoe
>