Posted by evie15422 on
URL: https://www.es-forum.com/testing-question-tp3123685p3132286.html

Hi, Stephen,
 
I was mis-dxed with MS for 2 years (in 1980s).  After I had MRIs (early 1990s), the specialist concluded I did not have actual MS.  I did show abnormalties on brain scans, but he concluded, from the preponderance of symptoms I was having (MS-like symptoms in all quadrants of my body), that it was not MS.  I also have the problem with the V. Jugularis veins, but mine comes and goes.  (When I have it, however, it could sometimes be causing stroke/ seizures; I recognise a tightened feeling in my neck after many years of it coming and going, and I do notice this is when I am at higher risk for having strokes/ seizures and especially migraine-type episodes.)
 
I mention all of this because it appears *to me* (I have not read this anywhere) that the clogging of the V. Jugularis is caused directly by calcium efflux.  And I assume this is why it "comes and goes" for me.  If this is true, it could mean we have commonalities with MS, but not necessarily that we all have MS.  It is already known, I believe, that MS is an ion channel disease.  (I may be wrong about this being a proven conclusion, however, I know it has been suspected for many years by Dr. Alessio Fasano, and others, and studies were at least undertaken to check for that.)  If MS is, however, a channelopathy (as is celiac disease), it would mean people with MS, celiac disease, and, likely, ES all have commonalities, but not necessarily the same exact disease. 
 
The reason this is important is, people with MS can have a steady down-hill road to debilitation and incapacitation.  One who believes they have MS can easily become trapped into thinking there is no hope and this is their fate.  However, consider me: I was nearly completely bed-bound for 13 years, barely able to live a normal life for most of my life before that, and here I am; I now hike and bike and work nearly as well as a normal person.  True, my health is not 100%, but I am nothing like I used to be.  If you keep looking into MS, be sure that you do not fall into a fatalistic attitude on the way.  Your attitude is all you have; docs don't have the answers, science doesn't have all the answers.  YOU have the possibility to find what works for you.  Believe that, and never let go of that.
 
Good luck, Stephen,
Diane

--- On Fri, 7/1/11, stephen_vandevijvere <[hidden email]> wrote:


From: stephen_vandevijvere <[hidden email]>
Subject: [eSens] Re: testing question
To: [hidden email]
Date: Friday, July 1, 2011, 8:05 PM


 



Hi,

One therapist told me:

Some Italian internist Dr. found out by accident (by looking into the scans of his wife and later comparing these with MS-patients) and many MS-patients seem to have a problem with the blood flow between head and rest of body, so the veins in the neck (V. Jugularis) should be at least opened for 0.8 centimeter,

They can check that with a Doppler/sound test...

The test is supposed to be harmless, although that may not be completely true, it's probably like 100 times safer than MRI,

I'm not saying that this test is proof for MS, one Doctor I spoke on this he confirmed it may be useful to have a test done like this if you have MS-symptoms, but he said so far they're still investigating link MS and problems at the V. Jugularis...

gr,
Stephen.

--- In [hidden email], KathyB <calicocat477@...> wrote:







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