https://www.es-forum.com/EMF-Sensitivity-Porphyria-tp2442216p2443467.html
Yes, but there are about eight (if not more) different types of porphyria and they all have different symtoms etc.
I don't know which one this professor is referring to, must order the book and wait for it to come to SA..
But wouldn't rife be contraindicated for ESers. I was doing a lof of rife, becks blood electrifier, zapper and I think it contributed to my becoming ES (and I've read of others too).
>
> Porphyria can be treated with Rife frequency technique.
> ***************************
> Porphyria
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> Several rare disorders due to the inability to create heme, a component of hemoglobin. This causes skin and
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> nerve symptoms including abnormal sensitivity to light, skin lesions and scarring, delirium, seizure, coma, and
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> abdominal pain. The neurological aspects of this condition are typically precipitated by drugs such as barbiturates.
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> Since the liver, bone marrow, cellular metabolism, and other basic parts of the body are involved, also try other
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> symptom pictures.
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> 698, 780 frequencies in Hertz.
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> *************************
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> Even on a computer, one can generate these frequencies with f.i. NCH Tone, and burn them to an audio CD.
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> Each frequency for 5 minutes.
>
> Greetings,
> Charles Claessens
> member Verband Baubiologie
> www.milieuziektes.nl
> www.milieuziektes.be
> www.hetbitje.nl
> checked by Norton
>
>
>
>
>
>
> ----- Original Message -----
> From: kikkie2004
> To:
[hidden email]
> Sent: Monday, February 07, 2011 11:22 AM
> Subject: [eSens] EMF Sensitivity - Porphyria?
>
>
> Hi all
>
> I by chance came across an article the other day saying that estrogen is be avoided in porphyria, as it makes it worse. My severe EMF problems started last year not long after I started on estrogen therapy, so I wondered what porphyria was (as it's about the only thing I haven't tested for on the lab's main test page).
> So apparently there are different types of porphyrias and they're mostly genetic. Some of them make your skin extremely sensitive to sunlight because of porphyrincs in the skin, these can also damage your liver, others lead to muscle weakness, etc, and on googling, I found those people are also really sensitive to fluorescent lights.(And I'm guessing EMF generally, even if they don't all know it).
>
> Then I found a book by a professor Steven Rochlitz, who asserts that porphyria is the root cause of CFS, MCS, ES etc, and is very much undiagnozed. According to him, it can also be triggered by infections, heavy metals, etc. He says the routine tests for it are unreliable, you need DNA testing to see if you have one of the mutations causing the different types.
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> This is his book:
>
>
http://www.wellatlast.com/whatsnew.html>
> (I haven't bought it yet, but I'm planning on doing so).
>
> This ia a summary of it:
>
>
http://www.thefreelibrary.com/Porphyria+Link+to+Environmental+Illness.-a0243290447>
> This is an Nexus article re, which I haven't bought either:
>
>
http://www.nexusmagazine.com/index.php?page=shop.product_details&flypage=flypage.tpl&product_id=1992&category_id=214&option=com_virtuemart&Itemid=44>
> Anyway, there's a site
>
>
http://www.cpnhelp.org/>
> where the subscribers are treating chlamydia pneumonia (not the same as the SCD chlamadia T) as the cause of most cases of CFS, MS, etc. They do this with pulsed antibiotics. But apparently Cpn also causes secondary porphyria, which is worsened by killing it with antibiotics. They treat this with glucose, high carb diets, activatged charcoal, increased b vits (especially b12) and Questran:
>
>
http://www.cpnhelp.org/secondaryporphyria>
> (These antibiotics would obviously also be addressing other infections such as Lyme, Rickettsia, mycoplasma, etc), and I guess the porphyria treatment also addressing other causes.
>
> This is a discussion on their forum about EMF sensitivity, some have gotten over their's by this antibiotic and porphyria traetment:
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>
http://www.cpnhelp.org/computers_emfs_cold_feet>
> Another , new treatment for porphyria is Tegamet (Cimetidine ):
>
>
http://www.theannals.com/cgi/content/abstract/31/3/365>
http://www.ncbi.nlm.nih.gov/pubmed/8915698?dopt=Abstract>
> Here's a Facebook chat about people using it for porphyria and some reporting losing much sensitivity to the sun and to fluorescent lights:
>
>
http://www.facebook.com/topic.php?uid=2445760941&topic=11831>
>
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> Yahoo! Groups Links
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