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> Hi R
>  
> Can you just clarify something for me - you mention that you had a lab test showing antibodies to gluten and that when you cut it out you got "treated" - do you mean that it "treated" your ES??? or that it treated your gut?
> Best wishes
>  
> Steph
>
> --- On Tue, 5/5/09, rticleone <rticleone@...> wrote:
>
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> From: rticleone <rticleone@...>
> Subject: [eSens] Re: Calcium ion channels (formerly Electrified anyone?
> To: [hidden email]
> Date: Tuesday, 5 May, 2009, 10:49 PM
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> Hullo G.H.C.,
>
> Hmm - well, can we assume that due to general toxicity in the environment, EMR, etc., it's not a bad idea to do whatever may heal the BBB? Can you "over-tighten" the blood brain barrier, if that question makes sense?
>
> Also as a gluten-sensitive, I'm makes me curious. I don't have dx-ed Celiac, but a lab test showed high antibodies to gluten, and I know that cutting it out got rid of a lot of problems - though it may have caused some damage over the years. I suppose I'm "treated" in that way (simply by total avoidance of gluten).
>
> Yes, I've always shied away from straight manganese supplementation myself. I just don't know if it's the right thing.
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> If you come across a calcium ion channel test, please let us know!
>
> I've been experimenting with Calcium AEP - I haven't drawn any conclusions yet.
>
> All the best!
>
> R.
>
> --- In eSens@yahoogroups. com, Evie <evie15422@ ..> wrote:
> >
> > Hi, R,
> >  
> > Well, too soon to tell and highly unlikely.  ;)  I am probably one of the very few people at this forum who actually has been dxed with this by a doctor--tho by association, not by actual testing.  To my knowledge, there is no actual test for blood-brain barrier damage or tight-junction permeability of the bbb.  There may be calcium ion channel testing now, but my actual association is thru tight-junction permeability.  Untreated celiacs are known to have this (due to autopsy studies and animal and other studies.)  Also, it is highly suspected that about a third of treated celiacs have ongoing problems with either gut tjs +/or bbb tjs (this may now be known not just suspected, as there were tests to determine this going on at least a year ago).  I am considered to be one of those, due to symptomology. 
> >  
> > The manganese (which I am experimenting with) is one substance I was able to find which can close channels which have been left "hanging open"--I found that from a medical research study performed on rabbits.  I have mentioned in a previous post today why I consider this risky and why others should not go there yet, tho.  I would not have gone there myself had it not been the clear association I have with this medically and the numberof signs of possible manganese deficiencies I have.  And still I am verycareful to not over take the manganese. 
> >  
> > What I have found is, the manganese SOMETIMES helps for a period of about 2 1/2 days.  When it does help, the es symptoms are all gone or extremely better for that amount of time.  However, it doesn't always help--sometimes I get nothing.  Also it doesn't last.  So I would always have to use the manganese, which might mean that it would become toxic.  Understand, the underlying problem is not a lack of manganese, the underlying problem is tjs or calcium ion channels leaking calcium and being left hangingopen, due to too much calcium inside the cells as opposed to outside the cells.  Yes, manganese can then close them, but the original problem is not being addressed and within 2 1/2 days, the dysfunctional tjs +/or calciumion channels again need closed (if this is what is indeed what is being addressed, and I think it probably is.)
> >  
> > Diane (or GHC to you, R  ;)  )
> >
> > --- On Tue, 5/5/09, rticleone <rticleone@ ..> wrote:
> >
> > From: rticleone <rticleone@ ..>
> > Subject: [eSens] Re: Electrified anyone?
> > To: eSens@yahoogroups. com
> > Date: Tuesday, May 5, 2009, 4:34 PM
> >
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> > Diane - have you reached conclusions on how to address calcium ion channel defects and tight junction permeability? (Let alone diagnose them?)
> >
> > R.
> >
> > --- In eSens@yahoogroups. com, Evie <evie15422@ ..> wrote:
> > >
> > > Hi again, Kooky,
> > >  
> > > I believe very much that calcium ion channel defects and tight junction permeability contribute to es and cfs/me.  (And celiac d. also has known association with tj permeability. )  I have been researching this online for the past year. 
> > >  
> > > Diane
> > >
> > > --- On Tue, 5/5/09, furstc0404 <furstc@> wrote:
> > >
> > > From: furstc0404 <furstc@>
> > > Subject: [eSens] Re: Electrified anyone?
> > > To: eSens@yahoogroups. com
> > > Date: Tuesday, May 5, 2009, 4:40 AM
> > >
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> > > Hi Marc:
> > >
> > > I forgot to ask, did you continue with raising your glut? or with vits and supps?
> > >
> > > Could it worsen these symptoms permanently?
> > >
> > > Surely, there must be a way of dealing with this?
> > >
> > > It is such a difficult decision as if to continue with vits and supps, and herbal remedy I am taking, because, I have noticed remarkable improvement. Unless of course, I am going through a good cycle...
> > >
> > > Thanks,
> > >
> > > Kooky
> > >
> > > PS. I was reading about calcium channels, action potential and various neuronal dysfunction. Any thoughts on this.
> > >
> > > --- In eSens@yahoogroups. com, "Marc Martin" <marc@> wrote:
> > > >
> > > > > Recently, I started developing, tingling and burning skin. On theface,
> > > > > eyelids, arms and hands. Anyone else suffers from this?
> > > >
> > > > I have certainly had burning skin on my face.
> > > >
> > > > > The secondary issue, is that I started getting electric shocks from
> > > > > water, clothes, cutlery, and other things I touch. This is happening
> > > > > despite wearing thick rubber flip flops.
> > > >
> > > > "Despite"? I would think that thick rubber flip flops would actually
> > > > contribute to shocks. Do you get shocks with bare feet or cotton
> > > > socks?
> > > >
> > > > > Is it possible if taking vits and supps, and other alternative remedies
> > > > > such as herbs, and powders, to exacerbate those symptoms too?
> > > >
> > > > Yes, my burning face gets worse with anything that raises glutathione
> > > > levels, including Vitamin D. Also toxin mobilizers and chelators
> > > > can make these symptoms worse (e.g. chlorella)
> > > >
> > > > Marc
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