Posted by Steph Smith on
URL: https://www.es-forum.com/cardiac-tests-tp1548391p1548492.html

Hi Daisy
 
I don't know of anyone in Ontario but there is an amazing guy called Dr Byron Hyde who does have a clinic somewhere in Canada - he will run a whole battery of tests [tests that other docs wouldn't even think of running because they might be outside the box - not in a harmful way but he thinks very imaginatively if you know what I mean] He has a website called the Nightingale Foundation [based in California I think] which you can look up on google.. I know of him through CFS, and have read some of his stuff and seen a few of his presentations on video. Check him out - he's costly but he is one of the good guys.
 
Best wishes
 
Steph

--- On Fri, 20/2/09, mcsdaisy <[hidden email]> wrote:

From: mcsdaisy <[hidden email]>
Subject: [eSens] Re: cardiac tests
To: [hidden email]
Date: Friday, 20 February, 2009, 11:59 PM






Hi Diane,

The symptoms and weakness have been so bad (palp, skipping, irreg
beat with SOB, crushing adn burning chest pain with SOB, anxiety,
sweats, runs... all the symptoms of a heart attack or angina but when
I've gone to emerg blood tests showed no evidence of having had a
heart attack.
Yet after such episodes I am ssoooo weak, tired, sore and it takes
ages to build up my activity levels again.

I think it is ANS related as you suggest but more than that - also
CFS related my doc thinks - more to do with diastolic
functioning ... ? (which doesn't show on the echo either?)
I don't really expect that they'll find much on the Echo b/c they've
never found anything before (except mitral valve prolapse years ago -
which didn't show up on the most recent test 4 years ago) - except
that I've been more disabled by the symptoms lately.

I'd rather not do the echo if it will make things worse (doc does
leave it up to me thankfully)
and if there were better tests that show the functioning
problems...I' d do that.

I wish I could find a specialist who knows about this (like
Dr.Cheney).. .

If anyone has any good CFS/heart specialist in Ont, please let me
know.

Thanks!

--- In eSens@yahoogroups. com, Evie <evie15422@. ..> wrote:
>
> Hi, Daisy,
>  
> What kind of cardiac problems do you have, Daisy?  There are
cardiac symptoms which go along with ES which are not really cardiac,
as much they are autonomic nervous system/ adrenal related.  These
include rapid heart beat, skipped beats, losing your breath due to
fast heart beat....  When I began having problems (decades ago), I
had EKGs, etc, and nothing organic was found because it ended up
being autonomic nervous system related.  Of course, you should have
tests if you haven't yet, because, for you, it could be heart
related!  But don't be surprised or alarmed if nothing major is found. the
> computer but did a quick search - couldn't find anything re
testing...
>
> Does anyone have any thots on Echocardiograms - any use doing it?
> Will it cause lasting negative effects...?
>
> What about Cardiac Impedance testing? or something like that that
will
> measure diastolic function -which is more likely to be a problem in
CFS.
>
> Does anyone in Southern Ontario have any good experience with
cardiac
> or other specialists who really know and understand our problems?
>
> Dr.Cheney is good but he's too far away - there must be others
around
















     

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