Posted by
evie15422 on
URL: https://www.es-forum.com/Anybody-here-been-diagnosed-with-ES-by-a-medical-doctor-tp1546201p1546219.html
Hi, Jon,
Dr. Rae's patient consultant (Dr Rae of the Environmental Health Clinic of Dallas) told me I "was probably ES" by phone. (Something I had already strongly suspected.) When I asked--2 years ago--whether Dr. Rae had a protocol for ES, she said he was trying to eliminate toxins and felt they were responsible and that lymphatic overload was somehow responsible. Again, this was something I already knew. I asked whether he has had success in helping people recover from ES symptoms, and she said only within the first 2 years; after that he sees little improvement. I asked alot of other questions also, about pesticides and liver detox pathway dysfunction. She mentioned to me (again, remember this is 2 years ago) that he was working on the liver detox pathway dysfunctions and had, at that time, not felt he had that worked out. (At least this was my take on what she said.) So, it is possible that we could get a dx of ES from Dr. Rae. Whether that dx would hold up in the
medical profession as a whole is debatable. I still had problems getting a medical doc to accept celiac disease as a valid dx in 2003! But, if I were to be treated or get a dx, that would be where I would start. Dr. Rae gets some flack because his clinic's patient rooms are not set up for ES. To his credit, tho, he set his rooms up so his MCS patients would not react to woods, etc. (That is why so much metal furniture.) He was working with MCS patients way before he was aware of ES and so his rooms reflect that. I was told that many of his ES patients travel there and live in their own RVs at a nearby campground. This was all within the discussion I had with the patient consultant 2 years ago. Things may have changed since then. This is his site:
http://www.ehcd.com/Diane
prentice_jon <
[hidden email]> wrote:
hmm, that is an interesting question, for people in the US at least,
I would like to know if that is possible, best I could do was find a
doctor who was glad that I figured out what was causing my problem.
I hope that being diagnosed ES here doesn't require that the doctor
and the ES person are one and the same.
Jon
--- In
[hidden email], sheila wade <sheila_texas@...> wrote:
>
> it is hard to find a dr & very Expensive! suffer myself & since
p/t & hmo ins no diagnosis yet hoping someone will step fwd
> thanks!
> God Bless
> Sheila
>
> Carol <YoRed24@...> wrote:
> The reason I ask is because a casting producer for a
show on Discover
> Health/Mystery Diagnosis is looking for people with unusual
illnesses.
> Prerequisites are that the patient needs to live in the US, a
medical
> doctor must have given you the diagnosis (no self-diagnosed
> electrosensitives), and the doctor must practice in your area and
be
> willing to get involved.
>
> Here is the info:
>
> Please contact MYSTERY DIAGNOSIS at:
>
> eanniello@... or (212) 645-0904 and leave a message
> on their hotline. Be sure to include your full name, phone number,
> email address, and disease.
>
> I have severe electrosensitivities myself, but unfortunately I
have not
> been diagnosed "officially" by a medical doctor. If you are
interested,
> please write to the producer.
>
> Carol
>
>
>
>
>
>
> ---------------------------------
> Never miss a thing. Make Yahoo your homepage.
>
> [Non-text portions of this message have been removed]
>
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