> Hi Nick,
> I agree that it is important to recognize
> contributors to the
> brochure, but only if they wish to be credited. All
> contributors who
> supplied me with current contact info have been
> asked if they would
> like to be credited in the brochure. Many prefer to
> remain anonymous.
> I will reissue the brochure if anyone desires to be
> named publicly but
> so far noone has said so. Many of those with severe
> electrical
> sensitivity who filled out the survey live in an
> MCS/ES community
> already and have connected with many other families
> in the same situation.
>
> I get the feeling from your emails to me that you
> think I am someone
> from outside the ES community who has taken
> information from an
> ostracized community for my own use with no regard
> for those who
> participated. I myself suffer from severe MCS and
> now ES in the last
> six months. This project was a labor of love through
> many months of
> sickness, relocations, and stress/trauma. I also
> created a website
> during this time offering 'virtual' community to
> those with
> environmental illness and we have over 750 members
> now. All this
> without any income. My intentions have always been
> first and foremost
> to help others like me who are suffering alone to
> connect with each
> other and have access to important information that
> could help
> alleviate their suffering.
>
> This brochure is just a guide and is not the last
> word on MCS/ES
> construction. I did not research 'prevailing
> wisdom'; I surveyed those
> who built homes for themselves and asked for them to
> share what worked
> and what didn't. That is the purpose of this
> brochure. Hopefully, you
> and others will be able to glean some helpful
> information from it. It
> won't help everyone and not everything in it will
> apply to every
> situation. Please keep that in mind.
>
> Thanks for your comments.
> Julie
> www.PlanetThrive.com
>
> --- In [hidden email], Nick Lynch
> <nickllynch@...> wrote:
> >
> >
> > Hi Julie,
> >
> > I think it is important to recognize the
> contributions
> > of individuals with Electrical Sensitivity who
> conduct
> > empirical research. Many of these individuals
> will be
> > extremely ostracized by society by their illness
> > (including the ES/Bioelectromagnetics research
> > community itself) and need some positive
> affirmation
> > of their illness. Many will not be online. Have
> you
> > encouraged them to network with each other? I
> would
> > be surprised if they are not looking to connect
> with
> > other individuals who share their illness. I hope
> > that you have at least asked them if they would
> like
> > their name printed in your study as Contributors.
>
>
>