Re: Construction Tips for the Environmentally Sensitive

Posted by lunagirl32002 on
URL: https://www.es-forum.com/Construction-Tips-for-the-Environmentally-Sensitive-tp1545306p1545343.html

Hi Nick,
I agree that it is important to recognize contributors to the
brochure, but only if they wish to be credited. All contributors who
supplied me with current contact info have been asked if they would
like to be credited in the brochure. Many prefer to remain anonymous.
I will reissue the brochure if anyone desires to be named publicly but
so far noone has said so. Many of those with severe electrical
sensitivity who filled out the survey live in an MCS/ES community
already and have connected with many other families in the same situation.

I get the feeling from your emails to me that you think I am someone
from outside the ES community who has taken information from an
ostracized community for my own use with no regard for those who
participated. I myself suffer from severe MCS and now ES in the last
six months. This project was a labor of love through many months of
sickness, relocations, and stress/trauma. I also created a website
during this time offering 'virtual' community to those with
environmental illness and we have over 750 members now. All this
without any income. My intentions have always been first and foremost
to help others like me who are suffering alone to connect with each
other and have access to important information that could help
alleviate their suffering.

This brochure is just a guide and is not the last word on MCS/ES
construction. I did not research 'prevailing wisdom'; I surveyed those
who built homes for themselves and asked for them to share what worked
and what didn't. That is the purpose of this brochure. Hopefully, you
and others will be able to glean some helpful information from it. It
won't help everyone and not everything in it will apply to every
situation. Please keep that in mind.

Thanks for your comments.
Julie
www.PlanetThrive.com

--- In [hidden email], Nick Lynch <nickllynch@...> wrote:

>
>
> Hi Julie,
>
> I think it is important to recognize the contributions
> of individuals with Electrical Sensitivity who conduct
> empirical research. Many of these individuals will be
> extremely ostracized by society by their illness
> (including the ES/Bioelectromagnetics research
> community itself) and need some positive affirmation
> of their illness. Many will not be online. Have you
> encouraged them to network with each other? I would
> be surprised if they are not looking to connect with
> other individuals who share their illness. I hope
> that you have at least asked them if they would like
> their name printed in your study as Contributors.