Posted by Ian Kemp on
URL: https://www.es-forum.com/Sun-Light-tp1541128p1541179.html

Sue gets the problem all over her head if it is exposed, but normally she
wears a hat at all times outdoors (and indoors under fluorescent lights)
which keeps things OK. We got caught out the other day by walking along the
beach and her neck got caught as it was the only exposed area. Sue can get
out and about, as long as she is careful (forests are very popular!), so we
are really lucky compared with the housebound guy.
Ian

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From: [hidden email] [mailto:[hidden email]] On Behalf Of
born2grapple
Sent: 30 March 2006 00:04
To: [hidden email]
Subject: [eSens] Re: Sun Light


Wow, Being housebound sounds horrible. Our Sue's burning sensations
just on her neck?

--- In [hidden email], "Ian Kemp" <ianandsue.kemp@...> wrote:
>
> Sue developed sunlight sensitivity about 3 months after ES. (Also
> sensitivity to other strong lighting). It is not just through her
eyes, she
> gets burning sensations if the back of her neck has been exposed to
sun for
> a time. We speculate that the neurological / myelin sheath problem
may be
> relevant to both. Sue is particularly sensitive in the yellow/red
part of
> the spectrum (from tests) and is being supplied with some special
blue
> glasses to see if those help.
>
> Some ES people have extreme light sensitivity, we know of one guy
who has to
> sit in a darkened house permanently.
>
> Ian
>
> _____
>
> From: [hidden email] [mailto:[hidden email]] On
Behalf Of Last
> summer I jogged in the daytime almost every day without a problem.
I
> also fished for hours at a time in bright sunshine just six months
ago. <http://groups.yahoo.com/group/eSens> " on
> the web.
>
>
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