Posted by Ian Kemp on
URL: https://www.es-forum.com/root-cause-of-ES-experts-tp1540039p1540041.html

The other thing that concerns me about many of these ideas is the FEAR
factor. Lots of websites and books give details of possible
diseases/deficiencies with a big list of generalized possible symptoms.
It's all too easy to think you've got something, or start taking supplements
for it "just in case". And the STRESS and worry which this causes can be a
big factor in depressing the immune system and gut function further! I feel
it's no coincidence that ME and related illnesses have had their biggest
impact on people in modern high-stress jobs.



I'm lucky - I don't have ME or ES, and so I can eat a "normal" balanced
diet. But to read many of the websites, from the things I am eating or,
conversely, not taking, I ought to be practically at death's door!



This is NOT, of course, to deny that special diets, supplements or
treatments are useful and necessary for people with ES and other chronic
illnesses. The trouble is, finding which one works for you. Sue has 3
boxes of stuff which she has accumulated over the years! Most of them have
been ineffective, or worse, caused adverse reactions. Sometimes I feel very
angry at the plausible websites which have led her in the past to think "I
must have X, it's the magic bullet" or scaremongering "all these symptoms
could be caused by Y, so you've probably got it". I'm equally angry at the
NHS which seems to have neglected these areas almost completely, so that one
can't get useful diagnostic tests, or impartial advice on which things might
really work. Instead, one has to pay privately, or resort to guesswork when
faced with a mass of conflicting claims.



Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
canaryyuk
Sent: 24 November 2005 15:05
To: [hidden email]
Subject: [eSens] root cause of ES/experts



I see what you mean, ian, about ES being so difficult to tackle
because no one really knows the root cause, including the 'experts'.

I know that i got very ill after taking this chinese herb for 18
months - the change in my physical health over that time was
dramatic - but i don't know exactly WHAT the herb did to me, but it
is as if something got (irreprerably?) broken.

I do not have enough money to spend on 'experts', and i'm afraid i do
not trust them, precisely because there is so much in it for them
financially to keep telling me that their way will work. I think
they can become narrow minded and convinced that THEIR way is the
only way, i don't think they're trying to con me, i believe that they
believe it themselves, but that doesn't mean its correct.

They are the ones who should pay US! Because we in effect are the
means by which they do their research. Go halves at least!

Whats more these theories seem to come and go, a treatment that is
hailed as a cure for this that and the other one decade is discovered
to be harmful the next. "Pagano" now seems to be a dirty word, for
example.

Who's to say that the obsessiveness and unhappinness and self-
flagellation that these incredibly strict diets induce don't
perpetuate ES? In some instances they just seem to be displacing the
illness, ie all that happens is that the focus changes. Instead of
spending ones whole life battling against the MW RF you spend your
whole life trying to eliminate the metals or parasites or whatever in
your gut.

Why do our bodies cease to be able to look after themselves?

One thing that is for sure, this illness is BUMMER.

J

PS. When in a previous post i described MW RF as the root cause,
what i meant was that of the EMFs that a person might be feeling they
have become suscepbible to, the MW RF is likely to be a major factor.



--- In [hidden email], "Ian Kemp" <ianandsue.kemp@u...> wrote:
>
> I think what this shows, again, is that we are all individuals and
that we
> can all have individual reactions. I know that whey protein has
helped a
> good number of people. On the other hand, others don't get on with
it at
> all (I think Sue had an adverse reaction).
>
>
>
> "Experts" are OK as long as they, and we, recognize that general
principles
> may be overruled for a particular person's metabolism. In the case
of
> deep-seated chronic illness, it seems to me that too many doctors
and
> nutritionists have been happy to peddle the drugs, supplements or
herbs that
> help 90-95% of people, without doing tests to see whether the
patient's
> problems have a more deep-rooted underlying cause. It always seemed
> illogical to me to blame Sue's health problems on diet and to say
she should
> take lots of extra supplements, when she had always eaten very
healthily -
> more so than most people, including me!
>
>
>
> I guess the parallel I would suggest is - if a fuse in your car
keeps
> blowing, you don't just keep replacing it by thicker and thicker
fuses (like
> high-dose supplements) - you try to find out the short-circuit that
makes it
> blow in the first place. Unfortunately we are even more complex
than cars Behalf Of Cara
> Sent: 23 November 2005 15:34
> To: [hidden email]
> Subject: [eSens] colostrum update (bad reaction to whey protein)
>
>
>
> My husband has been having a flu-like reaction, apparently to raw
milk and
> colostrum for
> several days now, but following his intuition he has continued to
drink the
> stuff and very little
> else. Then, last night he drank some whey protein at our
naturopath's
> recommendation, to
> prepare for a root canal extraction next week. His reaction to the
whey
> protein was a striking
> contrast to his reaction to the colostrum. He describes the
difference as
> good sick vs bad
> sick, good pain vs. bad pain. Before he was feeling "regular pain"
like
> someone might who
> had the flu, and incidentally has slept better in the last few
nights than
> he had in a very long
> time, perhaps years. But when he drank the whey protein, he
actually felt
> the chemical
> reaction that the colostrum was promoting in his body stopped cold.
His
> blood once again
> feels "burning/stinging" (my word is "poisoned") the way it has
throughout
> most of his long
> illness. He was too ill and miserable to sleep at all last night.
>
> We don't think our doctors ever mean any harm, but this is why we
have
> learned to be
> skeptical of dietary and other expert medical advice. My husband
says he
> sensed his body
> rejecting the whey protein before he even took it, but his concern
about
> next week's dental
> procedure overruled his intuition in this case. So, the moral of
the story,
> I guess, is to trust
> our own bodies over the so-called experts. We'll be going back to a
mostly
> raw milk and
> colostrum fast (which was began inadvertently, by the way) and see
how that
> goes. We do feel
> that some important ground was lost last night, which is
frustrating. t=ms&k=Health+and+wellness&w1=Health+and+welln
>
ess&w2=Health+wellness+product&w3=Health+and+wellness+program&w4=Healt
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t=ms&k=Health+wellness+product&w1=Health+and+w
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ellness&w2=Health+wellness+product&w3=Health+and+wellness+program&w4=H
ealth+
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promotion+and+wellness&w5=Health+and+wellness+promotion&w6=Business+he
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lth+promotion+and+wellness&w5=Health+and+wellness+promotion&w6=Busines
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