Posted by
Katrina on
URL: https://www.es-forum.com/Supplements-update-and-readiness-for-intestinal-cleanse-tp1538363p1538396.html
Hi Cara,
I am sharing alot of opinions for not posting much previously... and certainly have tons to learn on SE and other things shared here.
But I do have over 20 years with CFS/ME other Neurological dx, and a bunch with MCS and contact with hundreds and hundreds with both. Plus, experience( loved ones) with other kinds of brain injuries.
from that perspective, here are some opinions!
The severe reactions of your husband, including to another's stress, or noise, yes, even crunching are quite familiar. The brain injury of CFS/ME, forinstance can definitely cause this. One little girl, for instance had to be in a dark, quiet room upstairs and could not tolerate the sound of the refrigerator downstairs.
Autonomic and other CNS dysfunction can also cause severe over-reaction to stimuli.
I have had total meltdowns from sensory overload...even with nothing wrong,but just interacting with more than one houseguest, for instance, or a long or animated conversation, or sometimes trying to talk, move and think all at once. I might not believe it if I had not lived (and witnessed) it!
Chemical exposures can also cause many "neuro-psychiatric" reactions.
Sometimes, I've been told I resemble an autistic kid, or trauma, PTSD surviver after these events. Very easy to confuse with neurosis, phobias, or exaggeration, but it's definitely something different/physiological. And seen/explained in the long term, true (hard science, not psych) research if investigated.
I also easily sense/absorb another's emotional state. Sometimes eerie to them, as tho I am a mind reader, but it is just a sensitivity thing that I cannot explain and do not even notice as unusual.
You seem to be making so much progress in understanding your husband that frankly, I would not even listen to anyone not in the same boat as he, who suggests that his reports are not accurate, or are just psychological.
I still believe in mind/body connection in healing, but this can be a slippery slope, depending on the source, because the Psychs and armchair psychs are using it alot to dismiss or minimize severe physical injuries from pathogens or toxins, (and ES, I'm sure.) There are billions of dollars at stakefor advancing the psych angle under the guise of eliminating "mind/body dualism", or using "multidisciplinary" "medicine".
About the cleansing thing...I can really understand your scepticism of yourDr. and (father?). But they may actually have valid points here. For a very ill or sensitive person, doing a detox too quickly can be very dangerous,and cause serious set-back. Some reasons are:
The de-toxing (glutathione) pathway itself may be injured and not operatingefficiently. This has to be corrected FIRST before significant de-toxing/cleansing can be safely or effectively done.
For a sensitive, injured, or highly toxic system, the toxins (or pathogens,when present) can be mobilized too quickly, causing injury as they move through the tissues or cross the blood/brain barrier.
In light of these things, if it were me, I would not add advanced cleansingplans until I saw the new dr. and did alot of research on the subject.
This is tempting to me even as I, too am about to see a really good, new doc.
I realize I know nothing of your husband's condition except from your posts. But some who are ill have moved too fast (especially when excited about progress) and had severe setbacks, sometimes not reversed. So, I would feel remiss not mentioning it. Hope you don't mind!
There is alot of research around... and experience to help you as you go along, from others who are highly sensitive. ill, or injured. Plus, of course, I hope you find some great help from the doc!
I have found your posts very interesting and helpful.
Katrina
--- In
[hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> About two months into our supplement program, we seem to have crossed
> some kind of threshold. Although the change is subtle, it seems real,
> i.e. has lasted more than a few days in a row. Whereas previously we
> were averaging one good day a week, we have now had almost a solid
> week of reasonably good days. By "good day" I mean: a notch more
> energy and a notch or two less pain, and lower dosages needed on the
> sleep meds (good sign). ES seems to be under better control also. The
> grounding wrist strap is no longer worn every minute of the day; it's
> now a bedtime-only accessory. My husband is not jumping around in
> radiant health by any means, but he has gone on a few easy walks and
> drives, run a few errands, enjoyed a few simple entertainments. The
> psychological shift is as significant as the physical: his mood is
> better, and he is taking a more active interest in our overall health
> strategy. He wants to know what supplements he has been taking every
> morning and how they work (or are supposed to work) a big shift
> since he had previously, explicitly asked me not to share any of my
> research with him. (His energy and morale have been so low that he
> could not bear the burden of expectation.) Now that he is seeing some
> results for the first time, he's interested and encouraged to do
> more. Two nights ago he actually dusted off some of his old
> physiology textbooks and has been reading them at bedtime and he is
> volunteering to take baby steps toward dietary reform that were too
> much for him to handle a week or so ago. Besides the supplements,
> I've shared some of your thoughts with him on meditation, etc., and I
> think the mind-body connection is sinking in.
>
> The current supplement program is as follows:
> Seasilver
> Intramin
> Cellfood
> Milk Thistle
> Evening Primrose Oil
> Grapefruit Seed Extract
> Garlic (tab)
> Korean ginseng
>
> A few supplements that we tried but quickly retired because they
> didn't seem right, for now anyway:
> Green Magma
> Primal Defense
> Niacin
> Psyllium Husk caps
>
> Next steps: Agrisept-L (for yeast management) and a serious
> intestinal cleanse. By the way, our regular doctor (not ES-savvy)
> pooh-poohed the notion of yeast syndrome (says it's overdiagnosed)
> and then reacted very negatively to the idea of an intestinal
> cleanse. She says my husband's system is too stressed and what he
> needs is to take it easy, which includes continuing to eat the
> comfort foods of his childhood (a classic American Midwestern diet
> that probably got him into this mess in the first place). This
> admonition to be a good (passive) patient and just keep taking the
> prescription meds makes me nuts, but I'm trying to stay focused on
> the recovery plan. My question to the list: Any thoughts on where
> someone needs to be, recovery-wise, before taking on an intestinal
> cleanse? We know this is a key step towards recovery, but we don't
> want to rush it. We'll also be seeing a new, ES-savvy doctor in two
> weeks, and are wondering if we should delay any new experiments until
> after we meet with him.
>
> Thanks,
> Cara