>
> Thanks Andrew and Glenn for your kind messages of support.
>
> Some extra info based on your questions. Acupuncture was tried on Sue
> (by the same doctor who used the Oberon machine that seemed to start
> the ES off) but it didn't have any effect apart from a possible slight
> negative one. Also, we've just had a faecal metals test done and it
> now shows her recorded level of mercury is so low as to be
> undetectable (either inorganic or organic). Of course we have nothing
> to compare it against - we wish we'd done this test before she had her
> amalgams removed.
>
> The other thing I forgot to mention was that Sue was on SSRI's
> (Seroxat/Paxil) on and off for some years and we do wonder whether
> this led to a buildup of something non-metabolisable in her system.
> One very strange thing that happened a few months ago was that she
> went to a massage practitioner who felt that her lymph glands were
> swollen and congested and gave her a facial massage. Sue felt really
> better for a few hours afterwards, but then a dreadful "black fog"
> descended on her mind which gave her almost uncontrollable despairing
> and suicidal thoughts. Over the following months this returned
> frequently, usually linked with exposure to chemicals/solvents etc.
> It has almost disappeared in the last 2-3 months; several possible
> reasons but the 2 most likely are the glutathione infusions and
> avoidance of potential chemical triggers.
>
> What is a QXCI machine?
>
> Ian
> ----- Original Message -----
> From: Andrew McAfee
> To: [hidden email]
> Sent: Monday, February 07, 2005 1:41 AM
> Subject: Re: [eSens] Greetings and case history from new members
>
>
> Welcome to the list.
> Wow. I am really sorry to hear that your wife Sue is in such a
> condition. Sounds like you've already been down a long road and steep
> learning curve. I look forward to hearing more about what works and
> what doesn't.
> I suggest seeing someone with a QXCI machine to get a better
> diagnosis/treatment of what is going on. Vaccination related issues,
> viruses in addition to the nerve damage from the
> toxins/pesticides/chemicals/metals, etc. are still possibilities.
> It sounds like her body is so depleted she can't get a foot hold. I
> suggest raw organic colostrum to rebuild her digestive/immune system
> (especially since the antibiotics digestive systems). Doing liver
> cleanses and other flushes my just cripple her more at this point
> though eventually getting her organs back is essential.
> Acupuncture and hands on energy work (with Barbara Brennan Healing
> Graduates) will help balance, boost and heal her energetic system.
> We can be dealing with biowarfare issues (mycoplasma, genetically
> modified viruses and chemicals) as well as DNA altering/ activating
> radiation and toxins.
> Essiac may be too strong for her but check it out and amino acids
> that
> boost Glutathione and Human Growth Hormone are contained in Somalife
> gHP.
> http://www.healthsuperstore.com/somalife/index.asp
> I am sure you will get a lot of help from this list. I look forward
> to
> hearing how Sue recovers, hopefully soon.
> Andrew
>
>
> On Feb 6, 2005, at 6:56 PM, Sue and Ian Kemp wrote:
>
>>
>> We've just become members of the group and have been invited to say
>> something about ourselves and our experiences, so here goes! (Sorry,
>> this has taken a few days to write and I've already done several other
>> posts or replies)
>>
>> I'm Ian and I'm not electrosensitive, but I act as scribe for my wife
>> Sue, who is and therefore can't use the PC. We live in Abingdon, near
>> Oxford, UK.
>>
>> Sue has had ES since October 2004. She was fit and well until 6 years
>> ago when she had to have all her wisdom teeth out and developed ME/CFS
>> (physical exhaustion symptoms) as a result of all the antibiotics.
>> After conventional medicine had no effect, we tried a strict
>> anti-candida diet plus probiotics, and she recovered almost totally
>> after a few months. 3 years ago she had a stress-related illness and
>> had to give up work, and this worsened a year ago. She couldn't take
>> any antidepressants this time because she got bad side reactions, also
>> to most herbs and supplements. (I've lost count of how many she tried
>> - there are 2 cupboards full of them). In August 2004 she had her
>> mercury amalgam fillings removed and this seemed to make things worse.
>> She developed chemical sensitivity immediately after this.
>>
>> In October we went to an "alternative" clinic and the doctor used a
>> machine called "Oberon" to scan her brain to try to detect body
>> problems. That day a buzzing began in her head and she has had this
>> on and off ever since, getting steadily worse and rather like
>> tinnitus. It doesn't seem to be one of the more common symptoms of ES
>> according to websites, but it seems to be clearly EM related as it is
>> worse in our car, near the TV/computer screen, under fluorescent
>> lights, and in most parts of our house.
>>
>> We've recently been to a private hospital (Breakspear Hospital, Hemel
>> Hempstead, UK) and they've done lots of tests on Sue for various
>> things, including possible food intolerances. One clear result, which
>> we had suspected, was that her glutathione was extremely low. They
>> have given her intravenous infusions and this has clearly reduced the
>> chemical sensitivity but as yet nothing has helped the buzzing. We
>> turn all the power off in the house at night and this at least gives
>> Sue a reasonable night's sleep. In the last 1-2 months she's also
>> become sensitive to both bright sunlight and strong artificial light
>> (street lights etc) which make the buzzing worse. It gets much better
>> if she goes into the fresh air, particularly countryside and forest,
>> but this does not last after she comes back into the house.
>> Fortunately the "classic" physical-exhaustion ME/CFS has never come
>> back.
>>
>> Best wishes to everyone, Ian and Sue
>>
>>
>> [Non-text portions of this message have been removed]
>>
>>
>>
>>
>>
>> Yahoo! Groups Links
>>
>>
>>
>>
>>
>>
>>
>
>
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