Posted by Ian Kemp on
URL: https://www.es-forum.com/Greetings-and-case-history-from-new-members-tp1538000.html

We've just become members of the group and have been invited to say something about ourselves and our experiences, so here goes! (Sorry, this has taken a few days to write and I've already done several other posts or replies)

I'm Ian and I'm not electrosensitive, but I act as scribe for my wife Sue, who is and therefore can't use the PC. We live in Abingdon, near Oxford, UK.

Sue has had ES since October 2004. She was fit and well until 6 years ago when she had to have all her wisdom teeth out and developed ME/CFS (physical exhaustion symptoms) as a result of all the antibiotics. After conventional medicine had no effect, we tried a strict anti-candida diet plus probiotics, and she recovered almost totally after a few months. 3 years ago she had a stress-related illness and had to give up work, and this worsened a year ago. She couldn't take any antidepressants this time because she got bad side reactions, also to most herbs and supplements. (I've lost count of how many she tried - there are 2 cupboards full of them). In August 2004 she had her mercury amalgam fillings removed and this seemed to make things worse. She developed chemical sensitivity immediately after this.

In October we went to an "alternative" clinic and the doctor used a machine called "Oberon" to scan her brain to try to detect body problems. That day a buzzing began in her head and she has had this on and off ever since, getting steadily worse and rather like tinnitus. It doesn't seem to be one of the more common symptoms of ES according to websites, but it seems to be clearly EM related as it is worse in our car, near the TV/computer screen, under fluorescent lights, and in most parts of our house.

We've recently been to a private hospital (Breakspear Hospital, Hemel Hempstead, UK) and they've done lots of tests on Sue for various things, including possible food intolerances. One clear result, which we had suspected, was that her glutathione was extremely low. They have given her intravenous infusions and this has clearly reduced the chemical sensitivity but as yet nothing has helped the buzzing. We turn all the power off in the house at night and this at least gives Sue a reasonable night's sleep. In the last 1-2 months she's also become sensitive to both bright sunlight and strong artificial light (street lights etc) which make the buzzing worse. It gets much better if she goes into the fresh air, particularly countryside and forest, but this does not last after she comes back into the house. Fortunately the "classic" physical-exhaustion ME/CFS has never come back.

Best wishes to everyone, Ian and Sue


[Non-text portions of this message have been removed]