Posted by
calmriver1@juno.com on
URL: https://www.es-forum.com/Re-eSens-book-tp1516580.html
Hi,
When I first developed E.I/E.S, I began writing a book and requested participation to tell our stories. Nearly every day I have been meeting more people who have this illness. It is scary. I have been talking my head off because people are so unaware of the dangers. We can feel it, but it is affecting everyone. People seem to really listen. I am sending out the first couple of paragraphs of my stories. The first one is the overall living with E.I. The second one is my personal journey dealing with requesting accommodation and continually being blasted with cleaning solutions, cologne to losing my job, leaving my house, through the death of someone significant in my life and my journey to find a safe place, the experiences along the way, some of the people I have met, and the spiritual experiences I have had while trying to recreate my life. By the way, I am still in process. So, I am requesting if you agreed or would like to participate to send me your experiences, how you cope, how you became ill, what are you having to go through living with this. You can email me with your experiences or
lf you would like me to do a phone interview with you that would be fine too. My phone number is 760-487-1302
Here are my first two paragraphs. Peace and Health to you all:
Not in my wildest imagination did I envision living with environmental illness, or being a part of a group of people known as the canaries. The illness has challenged my very being. Environmental illness takes the forms of chemical sensitivity/electrical sensitivity and is a debilitating sickness that is often invisible, unheard of and un-believed. It affects people from all walks of life and spans across continents. People have acquired the illness from being in an environment that is toxic to their system; either being exposed to toxins in small amounts over a period of time, or after one large exposure. The way in which people have developed their illness is as varied as the people and the symptoms they have. The challenges and obstacles that people face in order to obtain life’s most basic necessities can be overwhelming. This book is to give the reader an overview of life with environmental illness as well as personal testimonies of peoples experiences who have this illness. People with this illness are known as the canaries, in reference to the canaries that were used by miners because their systems were so sensitive they would be the first ones succumb to toxins in the environment. We the people with environmental illness are the canaries and we are sharing our voices.
Personal story: This has been one of the most difficult periods of my life. During the last six months I have had to use all my internal as well as external resources just to keep myself together. It has been extremely challenging. I am an optimist and have chosen to use this time for personal and spiritual growth and development. When you are faced with life's challenges, that is when you grow, and how you handle yourself is what defines you. But, it has been extremely hard. I always think that life prepares you for things to come, I feel like I am quite developed. I would like to just enjoy life and develop in a less drastic manner. I have never had what one would consider a normal life. Normal what is normal? The older I get the less normal everything seems. What has kept me together in life has been my faith in God, my family and friends. It has been the only thing that I have been able to consistently count on.
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