new EHS/MCS member

Hi everyone, I have been sent postings recently and find many of these useful and insightful and have asked to join the group.

I am EHS with MCS and live in rural England because I am unable to live in urban environments.

In retrospect my symptoms developed over many years with migraines shortly after buying a very large original format mobile phone followed shortly by digestive problems and gluten intolerance.? The headaches got much worse rendering me light sensitive for 2-3 days.? Over the years I became dizzy suffered vertigo, menstrual problems and insomnia.? In 2005 with erratic blood pressure, cardiac arythmia, forgetfulness, mood swings, right eye sight problems, nausea, balance problems, hypothyroid, screaming night terrors, I experienced a near heart attack.?

At no stage could any doctor find anything wrong with me.? I was fit, following a very good diet, and enjoying activities and a wide range of hobbies. I had a great family life and a great professional career.

there was no reason to imagine any of these disabling problems.

After the virtual heart attack, I experienced the onset of chronic fatigue syndrome.? having turned from a high achiever visiting the gym several times a week and 'going for the burn' none of this made any sense to me or to my family. instead of making lists to make sure my day was fully organised and productive I needed lists to remind myself what clothes I had and what food I needed to cook for supper that night.? I needed a reminder to look in my diary to send cards to friends. Again, none of this had happened before; the onset was sudden and the sensations just go t worse. The doctors found no reasons. When it was suggested that at 47 years old that memory loss happens, I decided to look elsewhere. I lost a lot of weight which took me down to skeletal levels, I could barely eat, the basic necessities of life exhausted me totally. I made a new will and advised my family that i felt time was running out.

It was like walking into a sci fi movie.? How could all these gadgets be dangerous and harm health?? I hired an electro smog detector and established that my home was full of electro magnetic radiation:? two DECT phone lines, mobile phone on charge next to my bed, wireless burglar alarm, low energy light bulbs, WiFi enabled desk top computer.? I switched my house off and expected an immediate improvement but I wasn't this lucky.

Four years later having consulted with many practitioners and spent thousands on diagnosis and treatments, travel escaping to low EMR environments, shielding my home with wallpapers, paints and fabrics. Recently, a new medical consultant recommended a total break from electricity at night so now we switch off the main fuse box at night.? The fridge/freezer is fine and we now avoid any danger of dirty electricity and any magnetic surges which used to affect me badly.

I have had to pack my professional life away in a large storage container. I am unable to spend any time at all in the company of more than one person with a connected mobile phone. Visitors to my home leave their switched off phone in the car. We have bought the neighbour a corded home answer machine and persuaded the other neighbour to keep his mobile switched off at night. The first neighbour has kindly stashed his new flat screen TV in his basement and all seems much better.?

We are now rebuilding the house with the latest 10 layer insulation, new windows , earthing of all wiring and cabling.? We are at a loss to know what else to do. If I do have to attend meetings, dentists and doctors, it takes time to recover.? A recent family wedding took me 10 days to return to physical balance again.

What about the people though who don't know what is wrong with them?? I fear for a nation of children holding mobiles and speaking to friends long into the night.? With WiFi is schools there is simply no place for their bodies to heal, no respite, no space without thumping and pulsing EMR.

Unfortunately I am unable to use a computer very often so will not be able to write often but I will download and read the postings offline.

Sarah



[Non-text portions of this message have been removed]

Hi Sarah, welcome to the group! It's good to have you with us, especially
because of the efforts you've made to publicise ES is the media in the UK.

There's been a lot of discussion in the group about root causes and possible
treatments as well as shielding methods. At least three-quarters of people
with ES also seem to have MCS, and this surely can't be a coincidence.
There's also common ground with ME/CFS and "brain fog" symptoms. The
underlying causes for all of these seem to be linked to liver, gut and
immune system problems.

I'm not ES myself but my wife Sue has both ES and MCS. Her symptoms and
effects have been markedly reduced over the last 4 years by identifying and
treating the underlying problems.

Personally I believe that shielding, avoidance etc can only keep ES under
control, keeping the symptoms bearable but not curing them, and that the
only ultimate solution can come from finding and treating the underlying
illness. And of course we all recognise that this is much easier said than
done, though progress has been made. The exact root causes, and hence the
best treatments, seem to vary for different people, but belong to a broad
"family".

Ian

_____

From: [hidden email] [mailto:[hidden email]] On Behalf Of
[hidden email]
Sent: 13 September 2009 11:39
To: [hidden email]
Subject: [eSens] new EHS/MCS member




Hi everyone, I have been sent postings recently and find many of these
useful and insightful and have asked to join the group.

I am EHS with MCS and live in rural England because I am unable to live in
urban environments.

In retrospect my symptoms developed over many years with migraines shortly
after buying a very large original format mobile phone followed shortly by
digestive problems and gluten intolerance.? The headaches got much worse
rendering me light sensitive for 2-3 days.? Over the years I became dizzy
suffered vertigo, menstrual problems and insomnia.? In 2005 with erratic
blood pressure, cardiac arythmia, forgetfulness, mood swings, right eye
sight problems, nausea, balance problems, hypothyroid, screaming night
terrors, I experienced a near heart attack.?

At no stage could any doctor find anything wrong with me.? I was fit,
following a very good diet, and enjoying activities and a wide range of
hobbies. I had a great family life and a great professional career.

there was no reason to imagine any of these disabling problems.

After the virtual heart attack, I experienced the onset of chronic fatigue
syndrome.? having turned from a high achiever visiting the gym several times
a week and 'going for the burn' none of this made any sense to me or to my
family. instead of making lists to make sure my day was fully organised and
productive I needed lists to remind myself what clothes I had and what food
I needed to cook for supper that night.? I needed a reminder to look in my
diary to send cards to friends. Again, none of this had happened before; the
onset was sudden and the sensations just go t worse. The doctors found no
reasons. When it was suggested that at 47 years old that memory loss
happens, I decided to look elsewhere. I lost a lot of weight which took me
down to skeletal levels, I could barely eat, the basic necessities of life
exhausted me totally. I made a new will and advised my family that i felt
time was running out.

It was like walking into a sci fi movie.? How could all these gadgets be
dangerous and harm health?? I hired an electro smog detector and established
that my home was full of electro magnetic radiation:? two DECT phone lines,
mobile phone on charge next to my bed, wireless burglar alarm, low energy
light bulbs, WiFi enabled desk top computer.? I switched my house off and
expected an immediate improvement but I wasn't this lucky.

Four years later having consulted with many practitioners and spent
thousands on diagnosis and treatments, travel escaping to low EMR
environments, shielding my home with wallpapers, paints and fabrics.
Recently, a new medical consultant recommended a total break from
electricity at night so now we switch off the main fuse box at night.? The
fridge/freezer is fine and we now avoid any danger of dirty electricity and
any magnetic surges which used to affect me badly.

I have had to pack my professional life away in a large storage container. I
am unable to spend any time at all in the company of more than one person
with a connected mobile phone. Visitors to my home leave their switched off
phone in the car. We have bought the neighbour a corded home answer machine
and persuaded the other neighbour to keep his mobile switched off at night.
The first neighbour has kindly stashed his new flat screen TV in his
basement and all seems much better.?

We are now rebuilding the house with the latest 10 layer insulation, new
windows , earthing of all wiring and cabling.? We are at a loss to know what
else to do. If I do have to attend meetings, dentists and doctors, it takes
time to recover.? A recent family wedding took me 10 days to return to
physical balance again.

What about the people though who don't know what is wrong with them?? I fear
for a nation of children holding mobiles and speaking to friends long into
the night.? With WiFi is schools there is simply no place for their bodies
to heal, no respite, no space without thumping and pulsing EMR.

Unfortunately I am unable to use a computer very often so will not be able
to write often but I will download and read the postings offline.

Sarah

[Non-text portions of this message have been removed]






[Non-text portions of this message have been removed]