[esens] "Neuronton" to relieve ES symptoms

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[esens] "Neuronton" to relieve ES symptoms

glennhcoleman
I met a lady today who has ES, and found she was having great success
reducing symptonms by using Neuronton (a drug normally used for epileptics).

I am curious if anyone on this list has tried this drug.

Glenn

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Re: "Neuronton" to relieve ES symptoms

carazzz

Hi Glenn,

Do you mean Neurontin? My husband tried this arppoximately two years
ago but didn't receive any benefit.

Cara

--- In [hidden email], "Glenn Coleman" <ghcoleman@w...> wrote:
> I met a lady today who has ES, and found she was having great
success
> reducing symptonms by using Neuronton (a drug normally used for
epileptics).
>
> I am curious if anyone on this list has tried this drug.
>
> Glenn

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Re: "Neuronton" to relieve ES symptoms

glennhcoleman

Yes, I believe it is Neurontin. I wasn't given an exact spelling.

Thanks for the info about your husband's experience.

Glenn

--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> Hi Glenn,
>
> Do you mean Neurontin? My husband tried this arppoximately two
years
> ago but didn't receive any benefit.
>
> Cara
>
> --- In [hidden email], "Glenn Coleman" <ghcoleman@w...>
wrote:
> > I met a lady today who has ES, and found she was having great
> success
> > reducing symptonms by using Neuronton (a drug normally used for
> epileptics).
> >
> > I am curious if anyone on this list has tried this drug.
> >
> > Glenn

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Re: "Neuronton" to relieve ES symptoms

carazzz

Glenn, I'd be very interested to hear more details about your
friend's experience with Neurontin. And if you try it yourself I hope
you'll post the results here. More information is always good --
and who knows, as my husband's health situation evolves
perhaps we'll try the Neurontin again someday, with better
results.

Best wishes,
Cara

--- In [hidden email], "glennhcoleman"
<ghcoleman@w...> wrote:
>
> Yes, I believe it is Neurontin. I wasn't given an exact spelling.
>
> Thanks for the info about your husband's experience.
>
> Glenn
>
> --- In [hidden email], "Cara"
<cara_evangelista@h...> wrote:
> >
> > Hi Glenn,
> >
> > Do you mean Neurontin? My husband tried this
arppoximately two
> years
> > ago but didn't receive any benefit.
> >
> > Cara
> >
> > --- In [hidden email], "Glenn Coleman"
<ghcoleman@w...>
> wrote:
> > > I met a lady today who has ES, and found she was having
great
> > success
> > > reducing symptonms by using Neuronton (a drug normally
used for
> > epileptics).
> > >
> > > I am curious if anyone on this list has tried this drug.
> > >
> > > Glenn

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Re: "Neuronton" to relieve ES symptoms

glennhcoleman

The lady I met has extreme ES and can't go anywhere near the city
without her skin burning.

She said she takes a low dose 3 times a day, and noticed that it
helps her reduce the burning, and when she is under stress, it
reduces nerve pain as well.

She said she is going to checkout our group, and then we can learn
more specifically about her treatment.

She is a yoga instructor, and also mentioned that EMF also shuts down
her chakras, which she opens up by doing yoga - relieving symptoms.

Her physio therapist is also doing some special treatment on her
pineal gland, which gives her relief. I was particularly interested
in this since this is one gland that is affected heavily by mercury,
and is heavily involed with our hormone systems.

She doesn't have a computer in her home due to her sensitivity, but
is looking at getting her son to become her communicator - to print
out ESENS articles, etc.. And respond accordingly.

They had a large article in the Vancouver Sun Newspaper about ES, and
she responded with a letter to the editor, and that is how I
contacted her. I'm still trying to find the article to read myself.

I personally am a bit weiry of trying this type of drug (neurontin),
since I briefly read of some side effects - it reminded me of the
psychotic drugs I had taken before which really messed up my system.
I'll stick to meditation to calm my nervous system for now.

Glenn

--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:
>
> Glenn, I'd be very interested to hear more details about your
> friend's experience with Neurontin. And if you try it yourself I
hope

> you'll post the results here. More information is always good --
> and who knows, as my husband's health situation evolves
> perhaps we'll try the Neurontin again someday, with better
> results.
>
> Best wishes,
> Cara
>
> --- In [hidden email], "glennhcoleman"
> <ghcoleman@w...> wrote:
> >
> > Yes, I believe it is Neurontin. I wasn't given an exact spelling.
> >
> > Thanks for the info about your husband's experience.
> >
> > Glenn
> >
> > --- In [hidden email], "Cara"
> <cara_evangelista@h...> wrote:
> > >
> > > Hi Glenn,
> > >
> > > Do you mean Neurontin? My husband tried this
> arppoximately two
> > years
> > > ago but didn't receive any benefit.
> > >
> > > Cara
> > >
> > > --- In [hidden email], "Glenn Coleman"
> <ghcoleman@w...>
> > wrote:
> > > > I met a lady today who has ES, and found she was having
> great
> > > success
> > > > reducing symptonms by using Neuronton (a drug normally
> used for
> > > epileptics).
> > > >
> > > > I am curious if anyone on this list has tried this drug.
> > > >
> > > > Glenn

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Re: "Neuronton" to relieve ES symptoms

Marc Martin
Administrator
> The lady I met has extreme ES and can't go anywhere near the city
> without her skin burning.

I've always had good luck with skin burning by applying
a skin lotion to my face. Both the "Burt's Bees Carrot Day
Creme" or the "Shikai Borage Oil Dry Skin Lotion" are quite
effective for me. When spending the entire day sitting
in front of a CRT monitor, I usually end up reapplying
it about 6 hours into the day.

Marc

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Re: "Neuronton" to relieve ES symptoms

carazzz

Marc, I don't think I mentioned this before, but I did pick up some
of that Burt's Bees carrot lotion and got the carrot soap too for
good measure -- had my husband try them. Didn't seem to give him any
relief; in fact he felt one or both of the products was irritating in
some way. That was two months ago, though, when my husband was
reacting negatively to pretty much everything.

Cara

--- In [hidden email], "Marc Martin" <marc@u...> wrote:

> > The lady I met has extreme ES and can't go anywhere near the city
> > without her skin burning.
>
> I've always had good luck with skin burning by applying
> a skin lotion to my face. Both the "Burt's Bees Carrot Day
> Creme" or the "Shikai Borage Oil Dry Skin Lotion" are quite
> effective for me. When spending the entire day sitting
> in front of a CRT monitor, I usually end up reapplying
> it about 6 hours into the day.
>
> Marc

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Re: "Neuronton" to relieve ES symptoms

carazzz
In reply to this post by glennhcoleman

Hi Glenn,

We too have had a history with this class of prescription drugs and
while we won't rule out their use completely, our experience is that
they cause their own problems - weird/scary reactions, side effects,
etc. The days are long gone when we looked to doctors and
prescription meds for that "magic bullet" effect. That said, I am
open to and interested in any approach that works. If part of the
solution turns out to be a prescription drug, great. If it's energy
healing ("faith healing), fine. Bring it on!

Have I mentioned that the meditation approach you recommended is
having a very interesting side benefit for my husband -- besides
relieving pain (from ES), it is also aiding sleep! My husband has had
terrible problems with sleep for years -- but lately, if he does the
specific meditation you suggested, he is out like a light within
minutes, without even trying. It's a "good" kind of sleep, too, not
the burning-pain kind of sleep from which he wakes up exhausted. So
far the meditation-aided sleep has only lasted half an hour or so at
a stretch, but it's all good.

- Cara

--- In [hidden email], "glennhcoleman" <ghcoleman@w...> wrote:
>> I personally am a bit weiry of trying this type of drug
(neurontin),
> since I briefly read of some side effects - it reminded me of the
> psychotic drugs I had taken before which really messed up my
system.
> I'll stick to meditation to calm my nervous system for now.
>
> Glenn
>

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Re: skin lotions

Marc Martin
Administrator
In reply to this post by carazzz
> Marc, I don't think I mentioned this before, but I did pick up some
> of that Burt's Bees carrot lotion and got the carrot soap too for
> good measure -- had my husband try them. Didn't seem to give him any
> relief; in fact he felt one or both of the products was irritating in
> some way.

Okay, thanks, that's good to know. These products have many
ingredients,
and I suppose any one of them could cause problems.

On a similar note, when I was in Hawaii several months ago, I discovered
that I could not tolerate my "healthy" tanning lotion. I suspect that
one of the ingredients was mobilizing toxins into my bloodstream or
something, but I whatever the problem was I was getting increasingly
more nauseuous with each application. Fortunately, I was able to
find another lotion which didn't cause me problems. At the time,
I theorized that it might be the peanut oil was giving me problems,
but it really could've been anything...

Marc