I met a lady today who has ES, and found she was having great success
reducing symptonms by using Neuronton (a drug normally used for epileptics). I am curious if anyone on this list has tried this drug. Glenn |
Hi Glenn, Do you mean Neurontin? My husband tried this arppoximately two years ago but didn't receive any benefit. Cara --- In [hidden email], "Glenn Coleman" <ghcoleman@w...> wrote: > I met a lady today who has ES, and found she was having great success > reducing symptonms by using Neuronton (a drug normally used for epileptics). > > I am curious if anyone on this list has tried this drug. > > Glenn |
Yes, I believe it is Neurontin. I wasn't given an exact spelling. Thanks for the info about your husband's experience. Glenn --- In [hidden email], "Cara" <cara_evangelista@h...> wrote: > > Hi Glenn, > > Do you mean Neurontin? My husband tried this arppoximately two years > ago but didn't receive any benefit. > > Cara > > --- In [hidden email], "Glenn Coleman" <ghcoleman@w...> wrote: > > I met a lady today who has ES, and found she was having great > success > > reducing symptonms by using Neuronton (a drug normally used for > epileptics). > > > > I am curious if anyone on this list has tried this drug. > > > > Glenn |
Glenn, I'd be very interested to hear more details about your friend's experience with Neurontin. And if you try it yourself I hope you'll post the results here. More information is always good -- and who knows, as my husband's health situation evolves perhaps we'll try the Neurontin again someday, with better results. Best wishes, Cara --- In [hidden email], "glennhcoleman" <ghcoleman@w...> wrote: > > Yes, I believe it is Neurontin. I wasn't given an exact spelling. > > Thanks for the info about your husband's experience. > > Glenn > > --- In [hidden email], "Cara" <cara_evangelista@h...> wrote: > > > > Hi Glenn, > > > > Do you mean Neurontin? My husband tried this arppoximately two > years > > ago but didn't receive any benefit. > > > > Cara > > > > --- In [hidden email], "Glenn Coleman" <ghcoleman@w...> > wrote: > > > I met a lady today who has ES, and found she was having great > > success > > > reducing symptonms by using Neuronton (a drug normally used for > > epileptics). > > > > > > I am curious if anyone on this list has tried this drug. > > > > > > Glenn |
The lady I met has extreme ES and can't go anywhere near the city without her skin burning. She said she takes a low dose 3 times a day, and noticed that it helps her reduce the burning, and when she is under stress, it reduces nerve pain as well. She said she is going to checkout our group, and then we can learn more specifically about her treatment. She is a yoga instructor, and also mentioned that EMF also shuts down her chakras, which she opens up by doing yoga - relieving symptoms. Her physio therapist is also doing some special treatment on her pineal gland, which gives her relief. I was particularly interested in this since this is one gland that is affected heavily by mercury, and is heavily involed with our hormone systems. She doesn't have a computer in her home due to her sensitivity, but is looking at getting her son to become her communicator - to print out ESENS articles, etc.. And respond accordingly. They had a large article in the Vancouver Sun Newspaper about ES, and she responded with a letter to the editor, and that is how I contacted her. I'm still trying to find the article to read myself. I personally am a bit weiry of trying this type of drug (neurontin), since I briefly read of some side effects - it reminded me of the psychotic drugs I had taken before which really messed up my system. I'll stick to meditation to calm my nervous system for now. Glenn --- In [hidden email], "Cara" <cara_evangelista@h...> wrote: > > Glenn, I'd be very interested to hear more details about your > friend's experience with Neurontin. And if you try it yourself I hope > you'll post the results here. More information is always good -- > and who knows, as my husband's health situation evolves > perhaps we'll try the Neurontin again someday, with better > results. > > Best wishes, > Cara > > --- In [hidden email], "glennhcoleman" > <ghcoleman@w...> wrote: > > > > Yes, I believe it is Neurontin. I wasn't given an exact spelling. > > > > Thanks for the info about your husband's experience. > > > > Glenn > > > > --- In [hidden email], "Cara" > <cara_evangelista@h...> wrote: > > > > > > Hi Glenn, > > > > > > Do you mean Neurontin? My husband tried this > arppoximately two > > years > > > ago but didn't receive any benefit. > > > > > > Cara > > > > > > --- In [hidden email], "Glenn Coleman" > <ghcoleman@w...> > > wrote: > > > > I met a lady today who has ES, and found she was having > great > > > success > > > > reducing symptonms by using Neuronton (a drug normally > used for > > > epileptics). > > > > > > > > I am curious if anyone on this list has tried this drug. > > > > > > > > Glenn |
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> The lady I met has extreme ES and can't go anywhere near the city
> without her skin burning. I've always had good luck with skin burning by applying a skin lotion to my face. Both the "Burt's Bees Carrot Day Creme" or the "Shikai Borage Oil Dry Skin Lotion" are quite effective for me. When spending the entire day sitting in front of a CRT monitor, I usually end up reapplying it about 6 hours into the day. Marc |
Marc, I don't think I mentioned this before, but I did pick up some of that Burt's Bees carrot lotion and got the carrot soap too for good measure -- had my husband try them. Didn't seem to give him any relief; in fact he felt one or both of the products was irritating in some way. That was two months ago, though, when my husband was reacting negatively to pretty much everything. Cara --- In [hidden email], "Marc Martin" <marc@u...> wrote: > > The lady I met has extreme ES and can't go anywhere near the city > > without her skin burning. > > I've always had good luck with skin burning by applying > a skin lotion to my face. Both the "Burt's Bees Carrot Day > Creme" or the "Shikai Borage Oil Dry Skin Lotion" are quite > effective for me. When spending the entire day sitting > in front of a CRT monitor, I usually end up reapplying > it about 6 hours into the day. > > Marc |
In reply to this post by glennhcoleman
Hi Glenn, We too have had a history with this class of prescription drugs and while we won't rule out their use completely, our experience is that they cause their own problems - weird/scary reactions, side effects, etc. The days are long gone when we looked to doctors and prescription meds for that "magic bullet" effect. That said, I am open to and interested in any approach that works. If part of the solution turns out to be a prescription drug, great. If it's energy healing ("faith healing), fine. Bring it on! Have I mentioned that the meditation approach you recommended is having a very interesting side benefit for my husband -- besides relieving pain (from ES), it is also aiding sleep! My husband has had terrible problems with sleep for years -- but lately, if he does the specific meditation you suggested, he is out like a light within minutes, without even trying. It's a "good" kind of sleep, too, not the burning-pain kind of sleep from which he wakes up exhausted. So far the meditation-aided sleep has only lasted half an hour or so at a stretch, but it's all good. - Cara --- In [hidden email], "glennhcoleman" <ghcoleman@w...> wrote: >> I personally am a bit weiry of trying this type of drug (neurontin), > since I briefly read of some side effects - it reminded me of the > psychotic drugs I had taken before which really messed up my system. > I'll stick to meditation to calm my nervous system for now. > > Glenn > |
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In reply to this post by carazzz
> Marc, I don't think I mentioned this before, but I did pick up some
> of that Burt's Bees carrot lotion and got the carrot soap too for > good measure -- had my husband try them. Didn't seem to give him any > relief; in fact he felt one or both of the products was irritating in > some way. Okay, thanks, that's good to know. These products have many ingredients, and I suppose any one of them could cause problems. On a similar note, when I was in Hawaii several months ago, I discovered that I could not tolerate my "healthy" tanning lotion. I suspect that one of the ingredients was mobilizing toxins into my bloodstream or something, but I whatever the problem was I was getting increasingly more nauseuous with each application. Fortunately, I was able to find another lotion which didn't cause me problems. At the time, I theorized that it might be the peanut oil was giving me problems, but it really could've been anything... Marc |
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