Let me begin with my story which ocurred to me this monday.
It just happened that I arranged an appointment with a neurologist to explain my symptoms to him with the hopes that he could prescribe some tests and medications which could be performed on my body to help me. All of this was done with good faith so that he could he interested in my condition.
It turns out that everything turned out contrary to my initial expectations. Rather than presuming good faith. The neurologist was very skeptical of everything I was telling him. Nevertheless, he listened to me (you know the typical behavior or some physicians).
He began the "interview" or the "neurological evaluation" but this led to me feel very uncomfortable and also I noticed he felt the same way everytime I explained to him my symptoms. As a result he continuously changed the topic and instead asked me about personal details such as if I was married, and my age, and my job and so on, event went as personal as asking my sexual orientation, he even asked me mathematical operations such as the sum of the digits in a sequence. I still feel dumbfounded on why did he had to ask such nonsense?.
Well the thing is, when I finally had the chance to get through the initial interview he did to me. I attempted to make my case defend myself.
Therefore I told him that there are studies of well documented cases that are similar to my condition, but instead of paying a minimal attention to those claims he reluctantly dismissed all of them and referred that "those" studies are carried out in people with psychotic disorders, because "supposedly those are the only people to his knowledge who do feel those peculiar discomforts". In other words unexplained pains, tingling sensation, needles in the skin, pain in the eyes, feeling of low fever, etc.
Due to this reason, he concluded that my problem, was a psychotic disorder and he prescribed me risperidone.
For such reasons, I ended up very disappointed and very depressed, because I felt very helpless that he did not believe me at all. There is nothing worse than someone who has supposedly studied medicine, do not believe you at all and also call you a psychotic.
I should mention that the aforementioned doctor also has a degree in psychiatry and to me there has been a bias in his diagnosis and also the spirit of destroying confidence and belittling the intellectual capacity of the patient.
Because of this reason I am in despair coming to this forum. Can someone help me?. Is there any conclusive study that can convince even the most skeptical that electrosensitivity is real?
Until now the only form of therapy I have found is thanks to you guys because I am encouraged to know that I have met people who also share my symptoms. However as I told you before. It is a very hard blow that there are those who do not believe you, and instead falsely accuse you that you suffer from a psychotic or schizophrenic condition.
Of course I am not going to listen to the physician who examined my case, but I cannot omit feeling very sad and depressed.
You see friends, I live in Peru. And as you know, medicine in this part of the world is old-fashioned and archaic in many ways. The so-called experts are very reluctant to recognize something new, if they do not consider it as "real" from having it learned in college, textbooks or having it seen before.
I believe that psychiatry and psychology are very wrong in not presuming good faith and accusing a person with disorders, only with the intention of making them feel bad. Don't you think that?
Regarding this, I found a case very similar to mine, which it can be read in this document in this link. I hope you can read it
it is also here
Of course, the aforementioned doctor did not give it any value and regarded it as meaningless.
What do you recommend me to do? What can I do when "experts or doctors" don't believe me? How can you convince a skeptic? Is electromagnetic electrosensitivity a psychological or psychiatric disorder? Is this a somatic symptom disorder?
What arguments can I use to defend myself and avoid being made fun of? What arguments can I use to answer the accusations that electrosensitivity is not somatization?
I look forward to your help and good advice and a much needed reassurance of confidence because as of now I really feel very lonely.
Did you print the list I made as evidence and provide him with the information what needs to be tested? If you just talked and brought nothing with you, they will think you are crazy. That is normal.
"Doctors thinking you are crazy" has always been a problem with this condition. Some people have even been locked up against their will.
I would just avoid mentioning it to any health care practitioner, unless you think they may be sympathetic. You could probably test the waters and ease into the subject, and back off if it appears to be headed in the wrong direction.
In reply to this post by Chemist116
Sorry you're going through this.
It's not only in Peru. It's the whole world.
doctors are NOT scientists, and they know MUCH LESS than an average person in this forum, just because an average person read a dozen of studies and know something, while these doctors never read anything, they just take in what the conferences sponsored by the Big Pharma pay them to.
It's normal to feel rage.
We have ALL been called crazy.
I'm born in Brazil, I find there I can find more open minded doctors than here in Europe.
I lived in Japan, I'm afraid of doctors there.
I lived in South Korea, the doctors looked a bit better there, more friendly.
I lived in Belgium, only alternative doctors such as homeopaths look normal to me.
I live now in Switzerland, no way, here is crap. Only alternative practitioners look like humans to me.
I tried to see German doctors: same problem as everywhere.
the last doctor I visited told me to stop all herbs, that are extremely dangerous.
And to stop self treating myself with herbs, another extreme wrong way to deal with health.
He told me if I continue to treat myself with herbs, not a SINGLE doctor will accept seeing me in Belgium.
And he also recommended a psychiatrist, as I was perfectly healthy physically.
In Switzerland, I had seen a cardiologist: his view, I was among the healthiest patient he had, in my age.
I've seen a neurologist: nothing wrong with me.
Gynecologist: my hormone imbalance was not due to disease, she said, we don't know why people get these problems, just take this anticonceptional pill, she said. She never heard that I never had the problem before my health condition degraded. No interest.
The general practitioner, when I asked, why then I start to be EXTREMELY anemic so suddenly? His answer: it happens to anyone.
Well, after dozens of visits, in different countries, I shut the door to them: if they don't want to help, I will do all my treatments by myself. Fine.
I cried a lot when my last hope was as cold, close minded, and 100% USELESS doctor. Like your neurologist.
I entered the car, shut the door, and cried in the parking lot.
that was the last time I visited a doctor for my problems.
I mean, a normal doctor.
I found other types of practitioners who helped me MUCH more.
don't let them hit you like that.
They eventually will make you THINK that you are crazy, if you go on visiting them.
Find a NATUROPATHIC doctor, homeopathic doctor, herbalist, energy healer, anything BUT a normal doctor.
Unless someone you trust recommends one doctor.
There are exceptions, I am sure.
But I wasn't lucky to find the good doctors.
ES is not recognized by mainstream.
Welcome to side-stream!!!
It's a bit lonely to live in the parallel world to mainstream, but it's fine.
We're all in limbo universe, and surviving!!
My ES got so much better that I even got a smart phone in the last weeks!!
It's not very smart of me, but my 10 year old phone with buttons finally broke, so I got this one from my husband, who bought a new one...
Anyway, I'm not feeling sick with it, and I keep it in airplane mode.
But years ago, I wouldn't DREAM of using a smart phone as it made me very sick.
I hope you'll find some help.
if not, the best, is to treat yourself, while waiting to find help.
It's hard to find a doctor that does everything right.
Therefore I try to combine them. I used one doctor that is very willing to do many tests and good at testing, but less good at prescribing something non-toxic. Then I use the test results to go to another doctor that seemed less willing to do lot's of testing but is prescribing healthier stuff.
It's complicated, and you have to be on top of it. It's your life and your body. You pay them to serve you.
Doctors have egos and flaws just like everybody else.
In reply to this post by Chemist116
Doctor Tresidder in England has written a letter saying ehs is a very real condition and describing it and the symptoms.I think you can download the letter from the internet.
Doctor Grigoriev from Russia was I believe in charge of de-commissioning chernobyl, after the accident. I believe he is on record saying he believes that the threat posed to the world by microwave radiation is now greater than that posed by ionising radiation. maybe you ask your doctor if you think these two gentlemen are psychotic. And maybe you tell him you will be happy to receive his diagnosis of being pyschotic AFTER he has contacted these two to inform them of their psychoses, best wishes to you!
On Thu, Dec 3, 2020 at 4:24 AM Chemist116 [via ES] <[hidden email]> wrote:
Let me begin with my story which ocurred to me this monday.
In reply to this post by Merializer
The thing is such physician was reluctant to believe that any of those studies (referring in general) lack of validity as they are performed in psychotic patients. In other words didn't believed in them. At the time when I posted my first message I was not aware that you did in fact posted a collection of studies regarding ES.
It would had come in handy, but as I noted above. There is still skepticism on such matter and most of the medical community still has not acknowledge it as a real problem and a real disease. Its sad, but that how it is.
Marc, mentioned there are some people who had been locked up against their will. This is really scary. What sort of world are we living into? Even if we have evidence in our hands its still difficult to convince people. By the way, I did read your list afterwards and it's very lengthy. It even included a study which I found not long ago linking calcium ions and ES. I wonder where did you found all your material?. What I did was a search on pubmed.
Although the whole experience has left me sad, I'm still glad that there are people out there who also share my condition and believe me. Since there are some remedies and things which I can try, this is better than nothing when it comes to finding a treatment for your condition.
In reply to this post by robert
'Thanks for your encouragement words and advice. By the way, when you mentioned Doctor Tresidder and his letter, did you meant this letter?
Regarding doctor Grigoriev, Did you meant Yuri Grigoriev?. I've found this page where it mentions EMF as pollution. The article is avaiable here
Although the document doesn't specifically mentions ES. It makes me to believe that there might be an interview or something where doctor Yuri might have said that.
There's also a document where it is mentioned about a panel on EMF risks on researchgate the article is available here
Gee I wish I had these documents at hand when I was on that appointment. But as mentioned, such person made me felt very uncomfortable and since dismissed all my claims and so on, I realized that even if I had all those as evidence it would had been of little help. Some people just act as jerks and made fun of patients when they don't understand something. Sorry to say it this way, but that's how it is.
By the way, I didn't knew doctor Grigoriev was in charge of decommisioning Chernobyl. Regarding that final advice you mentioned me about the kind of response which I could had given to that awful guy, it would had been great. But since I have no plans to contact him again I'll save your advice a a response for anyone whom I may contact next time for medical consultation. But sure, we're not psychotics.
In reply to this post by Jinna
Thank you very much Jinna, your advice has helped me a lot. In fact these days I was feeling very depressed because I had pinned my hopes on a more orthodox treatment. My mother happens to be a nurse and she was able to get an appointment with the aforementioned doctor, since medical professionals are scarce in Peru due to the coronavirus pandemic.
I am sorry that you also had a horrible experience. But on the bright side I understand that medicine seems to be a little bit better in Taiwan. I have not experienced it on my own, but given its rapid action with COVID and its successes in other areas, including those you have mentioned as homeopathy, it gives me a lot of hope.
Of course, it is difficult to live on the side of the road and be unfairly branded as a psychotic. But like you said. I am not going to be affected by the advice of an ignorant and also rude doctor.
Because our condition is not yet recognized, the best we can do is look for people and scientists who believe us and are willing to help us. Thanks that there are forums like this one and one can read articles that do not even appear in other information channels. By the way, not long ago I found an interesting study on how calcium has something to do with ES.
I didn't know that your smartphone was damaged. Would you recommend a particular model to replace mine? What smartphone guarantees low exposure to electromagnetic radiation? I would like you to be able to answer these questions.
Again I appreciate your words, they have motivated me and I will definitely consider them, any time I feel sad. I hope you have a great time.
In reply to this post by Merializer
I do agree that you hit the nail on the head when you mentioned that doctors have egos, and other are just ignorant fools. Who knows?. But your method of combining your own findings and the recommendation of one doctor with that of the other would probably be the method which I should also follow. In the end we have control of our bodies and its up to us to decide.
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