Re: what to say to a doctor?

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Re: what to say to a doctor?

carazzz

Hi Raphael,

I have been interviewing doctors (and alternative practitioners) this
past week so I have recent experience with your question. I'll
describe my approach for what it's worth. Please note that ES was
only one of several issues in my case so I was looking for someone
who would understand the big picture and the relationships between
different health problems.

My first step was to weed out the doctors who have no clue about ES
and related conditions by using the website that Deborah provided. (I
searched by zip code and specialty - fortunately specialists in
chronic fatigue, chelation therapy, environmental medicine, and yeast
syndrome actually exist more or less in my area -- I just hadn't been
able to find them on my own before.)

Next, I started making phone calls and was very direct. I stated a
simple list of the issues we're dealing with -- both established
symptoms and suspected but unconfirmed theories (chronic fatigue,
chronic pain, multiple chemical sensitivities etc. etc.). As I
recited the symptoms I included *electrical sensitivity* in a matter-
of-fact way. Next I said I was interested in testing for thyroid
issues, yeast syndrome, mercury poisoning, and Lyme's disease. Then I
waited for a reaction. (You can tell a lot by the way the doctor
reacts to a straightforward recitation of symptoms.) I also asked the
doctor to tell me about his/her experience with cases like this and
what methods he/she would use to treat them. Resist the urge to
define or explain your terms for the doctor's benefit or apologize
for your condition. Simply state your case and wait patiently for a
response --if the doctor is familiar with ES and related issues,
you'll find out quickly enough. If he/she acts defensive,
patronizing, skeptical or confused, get off the phone fast and call
the next person on your list.

I'm not yet sure I've found the right MD with this approach but I
know I'm saving myself a lot of time and expense by ruling out the
WRONG doctors before I actually make an in-person appointment! Plus,
a knowledgeable doctor who isn't necessarily "right" for my case may
be able to refer me to the right person.

Cara

--- In [hidden email], raphael kopel <kopel78@y...> wrote:
> Bonjour,
>
> I have a genuine & practical question:
> How are we supposed to present the EHS symptoms when we pay a visit
to such doctors?
>

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Re: what to say to a doctor?

bbin37

A very insightful approach, Cara. Excellent advice!
Beau
--- In [hidden email], "Cara" <cara_evangelista@h...> wrote:

>
> Hi Raphael,
>
> I have been interviewing doctors (and alternative practitioners) this
> past week so I have recent experience with your question. I'll
> describe my approach for what it's worth. Please note that ES was
> only one of several issues in my case so I was looking for someone
> who would understand the big picture and the relationships between
> different health problems.
>
> My first step was to weed out the doctors who have no clue about ES
> and related conditions by using the website that Deborah provided. (I
> searched by zip code and specialty - fortunately specialists in
> chronic fatigue, chelation therapy, environmental medicine, and yeast
> syndrome actually exist more or less in my area -- I just hadn't been
> able to find them on my own before.)
>
> Next, I started making phone calls and was very direct. I stated a
> simple list of the issues we're dealing with -- both established
> symptoms and suspected but unconfirmed theories (chronic fatigue,
> chronic pain, multiple chemical sensitivities etc. etc.). As I
> recited the symptoms I included *electrical sensitivity* in a matter-
> of-fact way. Next I said I was interested in testing for thyroid
> issues, yeast syndrome, mercury poisoning, and Lyme's disease. Then I
> waited for a reaction. (You can tell a lot by the way the doctor
> reacts to a straightforward recitation of symptoms.) I also asked the
> doctor to tell me about his/her experience with cases like this and
> what methods he/she would use to treat them. Resist the urge to
> define or explain your terms for the doctor's benefit or apologize
> for your condition. Simply state your case and wait patiently for a
> response --if the doctor is familiar with ES and related issues,
> you'll find out quickly enough. If he/she acts defensive,
> patronizing, skeptical or confused, get off the phone fast and call
> the next person on your list.
>
> I'm not yet sure I've found the right MD with this approach but I
> know I'm saving myself a lot of time and expense by ruling out the
> WRONG doctors before I actually make an in-person appointment! Plus,
> a knowledgeable doctor who isn't necessarily "right" for my case may
> be able to refer me to the right person.
>
> Cara
>
> --- In [hidden email], raphael kopel <kopel78@y...> wrote:
> > Bonjour,
> >
> > I have a genuine & practical question:
> > How are we supposed to present the EHS symptoms when we pay a visit
> to such doctors?
> >

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Re: what to say to a doctor?

sylvie_ru
In reply to this post by carazzz



on the web site of the who, EHS was discribed for the conference of october 2004 but no
French version for the moment.


--- In [hidden email], raphael kopel <kopel78@y...> wrote:
> Bonjour,
>
> I have a genuine & practical question:
> How are we supposed to present the EHS symptoms when we pay a visit to such
doctors?
> Well, could you please tell me what to say to a homeopath or an acupuncter as I m
gonna see one soon for the first time? I've heard something abt the thyroid...no? Shall I say
that I'm stressed? that I am tired? that I am sensitive to my computer screen? or simply
that I can't write a SMS without burning my brains...!?

>
> Thanks for the help.
>
> raphael
> (the french guy still looking for sufferers in France!)
>
>
>
>
> Marc Martin <marc@u...> wrote:
> > If you have any type of natural doctors like Naturopath, or Homeopath, they
> > can provide allot of the support required to help know whats going on with
> > your organs and other systems.
>
> I would think that also a doctor in Chinese or Indian medicine might
> be able to help as well... I think the philosphies behind these types
> of medicine are more applicable to ES than western medicine.
>
> Marc
>
>
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> [Non-text portions of this message have been removed]

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Re: what to say to a doctor?

carazzz
In reply to this post by carazzz

Sorry, it is a U.S. site: The American College for Advancement in
Medicine. Deborah posted it here about a week ago:

http://www.acam.org/dr_search/index.php

They do have a "Hotline Referral Phone Number" -- 1-888-439-6891.
Maybe if you call they can give you the name of a similar
organization in Paris that can refer you to a local doctor there?

Cara

--- In [hidden email], raphael kopel <kopel78@y...> wrote:

> Thanks a lot Cara for ur answer,
>
> About Deborah's website...what is the link?
> Is it a US-only database? I am based in Paris...
> Anybody knows a doc there!?
>
> Cheers.
> raphael
>
>