Gluten, Demyelination, Nerves, and ES?

Hey everybody, I just saw a post on here that mentioned something
about gluten sensitivity/Celiac disease, and the resulting
demyelination, that is, the damage to the protective sheath of the
nerves that can result.

I am gluten sensitive, but unknowing of this, consumed it for perhaps
23 of my 25 years of life so far, and wouldn't be surprised if it did
a number on my immune system, and perhaps, my nervous system, too!

(I found out through a genetic and stool test that I had a gluten, and
dairy, problem).

What I'm wondering is, that since some ES symptoms seem as though they
are scarily similar to Multiple Sclerosis, especially tingling,
numbness, clumsiness, depression, etc., and Mult. Scl. happens when
the myelin sheath of the nerves is destroyed by the bodies own immune
system, in the manner of an autoimmune disease, could it be that some
people with ES also have somehow acquired demyelination (damge to the
myelin of their nerves), and are running on an exposed nervous system
that's hyper-reactive to electromagnetic radiation?

What are your thoughts on immune-modulating herbs such as astragalus
and other adaptogens, in conjunction with formulas created
specifically to suppress autoimmune attacks and to aid in regenerating
the myelin sheath?

Cheers!

R.

Hi, R-

I believe same thing going thru Wheat intolerent for past 10 yrs to rid diet & my "temple" pain due to "signal" mainly cellphone that causes throbing has me to believe also

exposure nerve & mylin sheath had prev read about & wonderin what to do? besides puting metal-esplly gold to block out in front of my temple area-does work &

has been unbelievable to be able to go out or do anything-EVERYONE has cellphone & have been in this situation past 4-5 yrs first related Left temple headaches to same & looking frwd to replies re: repair or you to keep in touch
Thanks
Sheila

[hidden email]



rticleone <[hidden email]> wrote:
Hey everybody, I just saw a post on here that mentioned something
about gluten sensitivity/Celiac disease, and the resulting
demyelination, that is, the damage to the protective sheath of the
nerves that can result.

I am gluten sensitive, but unknowing of this, consumed it for perhaps
23 of my 25 years of life so far, and wouldn't be surprised if it did
a number on my immune system, and perhaps, my nervous system, too!

(I found out through a genetic and stool test that I had a gluten, and
dairy, problem).

What I'm wondering is, that since some ES symptoms seem as though they
are scarily similar to Multiple Sclerosis, especially tingling,
numbness, clumsiness, depression, etc., and Mult. Scl. happens when
the myelin sheath of the nerves is destroyed by the bodies own immune
system, in the manner of an autoimmune disease, could it be that some
people with ES also have somehow acquired demyelination (damge to the
myelin of their nerves), and are running on an exposed nervous system
that's hyper-reactive to electromagnetic radiation?

What are your thoughts on immune-modulating herbs such as astragalus
and other adaptogens, in conjunction with formulas created
specifically to suppress autoimmune attacks and to aid in regenerating
the myelin sheath?

Cheers!

R.







---------------------------------
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[Non-text portions of this message have been removed]

Arthur Firstenberg believes there's some evidence for de-myelination in
ES, and yes the symptoms do strike me as MS like too. Plus, there
are some extreme ES sufferers who also are diagnosed with MS.

No idea if the MS treatments will help though. But avoiding inflamation
certainly seems like a good idea. Hence vitamin D, and treating any
known infections.

Bill

On Dec 8, 2007 6:10 PM, rticleone <[hidden email]> wrote:


[Non-text portions of this message have been removed]

Hi again, Rticle,

I am a dxed celiac. Yes, celiac disease has been found to cause myelin sheath demyelination, which in some cases can be misdxed as MS (this happened with me, actually). Celiac demyelination can be healed if a gf diet is introduced soon enough. I am not 100% healed, tho (gf 8 years). Some symptoms healed, some improved. I still have various ataxia symptoms and my tremors are sometimes very bad. When I get fatigued I cannot walk a straight line, etc. I have tried various nutritional supplements, etc, for the symptoms and have not yet found anything which helps 100%. The gf diet does the most to help (and dairyfree for at least 1 year is necessary too. Also, imbalance of gut flora is a secondary problem for alot of celiacs and must be addressed).

On the gf subject, I must add that when a person goes gf, this is a different concept than one going on a diet for diabetes, etc. The person with celiac disease/gluten intolerance should attempt the diet from a 0% glutens point of view. I have met so many who think a piece of gluten cake or pie for special occasions is ok, or it is ok to remove gluten croutons from a salad, or eating gf fries fried in yesterdays oil which was filtered to remove yesterdays glutens is ok, etc, etc, etc.... THIS IS NOT GLUTENFREE for the purposes of healing your body. Recent research points out that even airborne glutens will hinder healing. Many celiacs also have dermatitis herpetiformis which is gluten intolerance to topical glutens (as well as ingested glutens). So it is also important to get rid of topical glutens (tho this is not the view of most celiacs). If you know you have a problem with glutens do not fool yourself into thinking you can throw out 99% of the glutens and not
worry about the rest. Some celiacs and gluten intolerants can do this and think they get away with it (who knows, maybe they do or maybe their stomach cancer they get 5 years in the future is from their neglect). But if you have blood brain deterioration, demyelination, multiple organ damage, etc, it is not likely you are one of these. Also, much is not known yet about gluten intolerance and celiac disease. Newest research is suggesting it is not just a digestive illness, but a body-wide illness that affects all the organs of the body, due to gluten's proclivity for seeking out transglutaminase.

This is an interesting podcast that was passed around my celiac forum last January. It is long, btw. Go to the page and scroll down to episode #51: "Believe it or not":

http://www.medicalnewspodcast.com/stat.html

Recent research also seems to indicate that serotonin cannot be recycled correctly with celiac disease gut damage. I mention this because this was what started me at this forum. There was at one time ES research which implicated serotonin as a possible problem in people with ES. That was how I began treating myself with alkaline water and hydrogen booster. These both helped my autonomic nervous system dysfunction (along with lymphatic helps of all types and calcium AEP and pantethine supplementation). Also there are possible similarities in tight junction blood brain barrier dysfunction (opening) between celiacs and ES people.

You can email me privately if you want to discuss this topic further. I can send some gf food lists, recipe and info forums if you do not already have them.

Sorry this post is so long,
Diane aka Evie

rticleone <[hidden email]> wrote:
Hey everybody, I just saw a post on here that mentioned something
about gluten sensitivity/Celiac disease, and the resulting
demyelination, that is, the damage to the protective sheath of the
nerves that can result.

I am gluten sensitive, but unknowing of this, consumed it for perhaps
23 of my 25 years of life so far, and wouldn't be surprised if it did
a number on my immune system, and perhaps, my nervous system, too!

(I found out through a genetic and stool test that I had a gluten, and
dairy, problem).

What I'm wondering is, that since some ES symptoms seem as though they
are scarily similar to Multiple Sclerosis, especially tingling,
numbness, clumsiness, depression, etc., and Mult. Scl. happens when
the myelin sheath of the nerves is destroyed by the bodies own immune
system, in the manner of an autoimmune disease, could it be that some
people with ES also have somehow acquired demyelination (damge to the
myelin of their nerves), and are running on an exposed nervous system
that's hyper-reactive to electromagnetic radiation?

What are your thoughts on immune-modulating herbs such as astragalus
and other adaptogens, in conjunction with formulas created
specifically to suppress autoimmune attacks and to aid in regenerating
the myelin sheath?

Cheers!

R.







---------------------------------
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[Non-text portions of this message have been removed]

Hi Rticle and Bill,

Yes, vitamin D is one of the things which helps me. Calcium AEP also helps. I usually take this with pantethine.

Diane

Bill Bruno <[hidden email]> wrote:
Arthur Firstenberg believes there's some evidence for de-myelination in
ES, and yes the symptoms do strike me as MS like too. Plus, there
are some extreme ES sufferers who also are diagnosed with MS.

No idea if the MS treatments will help though. But avoiding inflamation
certainly seems like a good idea. Hence vitamin D, and treating any
known infections.

Bill

On Dec 8, 2007 6:10 PM, rticleone <[hidden email]> wrote:

[Non-text portions of this message have been removed]






---------------------------------
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[Non-text portions of this message have been removed]

Hi everyone,

Just to let you know, I should be getting/trying some Myelin Sheath
extract (bovine based) real sooon. I'll let you all know how that
works out.

Regards,

R.