Clinical Trial

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Clinical Trial

Snoshoe
Hi all,
For some time I have been looking at different things that help damp down the
hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,
similar to benzodiazepines.

I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I
recently had oral surgery where that was used as the anesthesia. It did seem to give huge
relief to those symptoms for a couple days, and quite a lot for a couple weeks
afterwards, though they have gradually increased again.

While those are drugs you cannot take constantly, I think there is a big key here that can lead
to some useful treatments.

What I would like to do is get a trial going with benzodiazepine over the period of about
a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in
heading this up, to collect and correlate data, and then if it seems widely useful, maybe
it can be narrowed down more closely to a specific protocol.

I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,
and I am hoping there will be some of you who would like to participate also, asking your Dr.
to allow you to try this.

It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to
give it a try, whether you were to take it for say a week running with breaks inbetween, or
maybe a couple days a week over a longer period of time, or in one larger occassional dose
as in general anesthesia amounts, maybe a few times over a year.

If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see
what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,
and at least making life more liveable, such as people with CFS may use occasional codeine,
or saline IVs for helping with symptom relief on extra busy days.

So, at this point, you would have much more free reign to try it on varying amounts, what seemed
to work for you, and just need to keep track of how much, how long you used it each time, and
if you noticed any results for it, and how long they lasted.

This may also be helpful in translating into just how much of natural substances we may be
able to use to get similar dramatic results.

Anyone that would be interested in joining in this study, please just note here, and/or email me directly.

~ Snoshoe



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RE: Clinical Trial

Elizabeth thode

Snoshoe,

While I deeply empathize with ES people, being one of them, I cannot in good conscious
recommend the use of this prescription depressant drug. They are: toxic to the Liver,
highly addictive, cause impaired functioning, belong in the class of date rape drugs,
also belong to the class of Halcion drugs, and in my opinion, any drug belonging to this particular
family of narcotics is extremely DANGEROUS, for its side effects.

I can see the use of this for very SHORT term uses, such as oral surgery. But NEVER as something
people should take daily. For me, the side effects of this class of drugs far outweighs any
potentiial benefits.

Alternatives: potent anti inflammataries: Ginger Root in tea, Tumeric  (I like the www.organicindia.com capsules), Peppermint essential oil,(must be
as pure as possible to retain potency  ( I like www. youngliving.com)  
Astaxanathin (mercola's), just a few natural anti inflammatories/ anti oxidants.
Even oxygen in a can, (www.truo2.com).

I can never see the benefit of adding toxic substances to a body, that is already being stressed out, by other toxins,
including environmental ones such as micro wave radiation. To me, it makes no good sense to add to the body's
already overly toxic load.

Blessings of Many,
Lizzie

To: [hidden email]
From: [hidden email]
Date: Sun, 27 May 2012 10:35:24 +0000
Subject: [eSens] Clinical Trial
















 



 


   
     
     
      Hi all,

For some time I have been looking at different things that help damp down the

hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,

similar to benzodiazepines.



I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I

recently had oral surgery where that was used as the anesthesia. It did seem to give huge

relief to those symptoms for a couple days, and quite a lot for a couple weeks

afterwards, though they have gradually increased again.



While those are drugs you cannot take constantly, I think there is a big key here that can lead

to some useful treatments.



What I would like to do is get a trial going with benzodiazepine over the period of about

a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in

heading this up, to collect and correlate data, and then if it seems widely useful, maybe

it can be narrowed down more closely to a specific protocol.



I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,

and I am hoping there will be some of you who would like to participate also, asking your Dr.

to allow you to try this.



It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to

give it a try, whether you were to take it for say a week running with breaks inbetween, or

maybe a couple days a week over a longer period of time, or in one larger occassional dose

as in general anesthesia amounts, maybe a few times over a year.



If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see

what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,

and at least making life more liveable, such as people with CFS may use occasional codeine,

or saline IVs for helping with symptom relief on extra busy days.



So, at this point, you would have much more free reign to try it on varying amounts, what seemed

to work for you, and just need to keep track of how much, how long you used it each time, and

if you noticed any results for it, and how long they lasted.



This may also be helpful in translating into just how much of natural substances we may be

able to use to get similar dramatic results.



Anyone that would be interested in joining in this study, please just note here, and/or email me directly.



~ Snoshoe





   
     

   
   






       

[Non-text portions of this message have been removed]

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re: clinical trial

Amanda Kolter
In reply to this post by Snoshoe
I wouldn't want to drug myself (I hate how anesthesia feels) but I have
noticed that despite much naturopathic advice to the contrary, alcohol
seems able to help with ES symptoms.  My partner and I have a theory that
it's due to the fact that it lessens brain activity.

Good luck with your research!

-Amanda


[Non-text portions of this message have been removed]

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Re: Clinical Trial

chucka2651
In reply to this post by Snoshoe
Hi Snoshoe:

From my perspective, I would urge you to be extremely cautious in taking benzos.  They are known to have pernicious side effects both when taken and during very long periods of withdrawal. I am sorry that I can't spend enough time on the computer to find and cite sources. But I would suggest researching this, as the side effects are often minimized BY professionals, partly because this class of drugs can be
 so effective in treating symptoms.  . Also, benzos can be quickly addicting and very hard to withdraw from. By the way, I am in the field and not one who is against all psychotropic medication. I think Benzos are clearly a special case that call for particular caution.  

--- In [hidden email], "snoshoe_2" <snoshoe_2@...> wrote:

>
> Hi all,
> For some time I have been looking at different things that help damp down the
> hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,
> similar to benzodiazepines.
>
> I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I
> recently had oral surgery where that was used as the anesthesia. It did seem to give huge
> relief to those symptoms for a couple days, and quite a lot for a couple weeks
> afterwards, though they have gradually increased again.
>
> While those are drugs you cannot take constantly, I think there is a big key here that can lead
> to some useful treatments.
>
> What I would like to do is get a trial going with benzodiazepine over the period of about
> a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in
> heading this up, to collect and correlate data, and then if it seems widely useful, maybe
> it can be narrowed down more closely to a specific protocol.
>
> I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,
> and I am hoping there will be some of you who would like to participate also, asking your Dr.
> to allow you to try this.
>
> It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to
> give it a try, whether you were to take it for say a week running with breaks inbetween, or
> maybe a couple days a week over a longer period of time, or in one larger occassional dose
> as in general anesthesia amounts, maybe a few times over a year.
>
> If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see
> what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,
> and at least making life more liveable, such as people with CFS may use occasional codeine,
> or saline IVs for helping with symptom relief on extra busy days.
>
> So, at this point, you would have much more free reign to try it on varying amounts, what seemed
> to work for you, and just need to keep track of how much, how long you used it each time, and
> if you noticed any results for it, and how long they lasted.
>
> This may also be helpful in translating into just how much of natural substances we may be
> able to use to get similar dramatic results.
>
> Anyone that would be interested in joining in this study, please just note here, and/or email me directly.
>
> ~ Snoshoe
>


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RE: Clinical Trial

KathyB
In reply to this post by Elizabeth thode
Snoshoe,


Benzodiazepines can only cause an addiction. They addict after 2 mos. I'll look up the research to share. They should not be used, unless there is some emergency, as a death in the family. And then, must be short term.

 I took them in good faith prescribed by doctors for anxiety for too many years. I reacted to every 1
 I tried over time. There are many more natural less toxic ways to help relax. Some you mentioned

GABA. Magnesium is a precurser to GABA, relaxes as well. I had to go through withdrawal from hell last June. I have some nerve damage OR my GABA receptors are having trouble adjusting after 1 year of stopping all benzodiazepines. I have hopes things will keep improving, but there are no guarantees. When I stopped my sensory system reacted as if I had a nerve disease.

This has been an awful life experience, you or no one else, should not have to go through.
There is no antidote to this. They can only try.


Kathy






To: [hidden email]

From: [hidden email]

Date: Sun, 27 May 2012 10:35:24 +0000

Subject: [eSens] Clinical Trial



Hi all,



For some time I have been looking at different things that help damp down the



hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,



similar to benzodiazepines.



I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I



recently had oral surgery where that was used as the anesthesia. It did seem to give huge



relief to those symptoms for a couple days, and quite a lot for a couple weeks



afterwards, though they have gradually increased again.



While those are drugs you cannot take constantly, I think there is a big key here that can lead



to some useful treatments.



What I would like to do is get a trial going with benzodiazepine over the period of about



a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in



heading this up, to collect and correlate data, and then if it seems widely useful, maybe



it can be narrowed down more closely to a specific protocol.



I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,



and I am hoping there will be some of you who would like to participate also, asking your Dr.



to allow you to try this.



It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to



give it a try, whether you were to take it for say a week running with breaks inbetween, or



maybe a couple days a week over a longer period of time, or in one larger occassional dose



as in general anesthesia amounts, maybe a few times over a year.



If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see



what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,



and at least making life more liveable, such as people with CFS may use occasional codeine,



or saline IVs for helping with symptom relief on extra busy days.



So, at this point, you would have much more free reign to try it on varying amounts, what seemed



to work for you, and just need to keep track of how much, how long you used it each time, and



if you noticed any results for it, and how long they lasted.



This may also be helpful in translating into just how much of natural substances we may be



able to use to get similar dramatic results.



Anyone that would be interested in joining in this study, please just note here, and/or email me directly.



~ Snoshoe



                     



[Non-text portions of this message have been removed]





   
     

   
   






 










[Non-text portions of this message have been removed]

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RE: Clinical Trial

KathyB
In reply to this post by Snoshoe


http://www.benzo.org.uk/manual/


Kathy


[Non-text portions of this message have been removed]

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RE: Clinical Trial

Elizabeth thode
In reply to this post by Snoshoe

One solution might be astaxanthin,
 the world's most powerful neuroprotective supplement. It's called "the
King of the carotenoids," and protects fat tissues throughout your
body (your brain is mostly fat and water). Today I've published an
update on astaxanthin and linked to our recommended sources:
http://www.naturalnews.com/035989_astaxanthin_brain_protection.html

To: [hidden email]
From: [hidden email]
Date: Sun, 27 May 2012 10:35:24 +0000
Subject: [eSens] Clinical Trial
















 



 


   
     
     
      Hi all,

For some time I have been looking at different things that help damp down the

hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,

similar to benzodiazepines.



I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I

recently had oral surgery where that was used as the anesthesia. It did seem to give huge

relief to those symptoms for a couple days, and quite a lot for a couple weeks

afterwards, though they have gradually increased again.



While those are drugs you cannot take constantly, I think there is a big key here that can lead

to some useful treatments.



What I would like to do is get a trial going with benzodiazepine over the period of about

a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in

heading this up, to collect and correlate data, and then if it seems widely useful, maybe

it can be narrowed down more closely to a specific protocol.



I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,

and I am hoping there will be some of you who would like to participate also, asking your Dr.

to allow you to try this.



It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to

give it a try, whether you were to take it for say a week running with breaks inbetween, or

maybe a couple days a week over a longer period of time, or in one larger occassional dose

as in general anesthesia amounts, maybe a few times over a year.



If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see

what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,

and at least making life more liveable, such as people with CFS may use occasional codeine,

or saline IVs for helping with symptom relief on extra busy days.



So, at this point, you would have much more free reign to try it on varying amounts, what seemed

to work for you, and just need to keep track of how much, how long you used it each time, and

if you noticed any results for it, and how long they lasted.



This may also be helpful in translating into just how much of natural substances we may be

able to use to get similar dramatic results.



Anyone that would be interested in joining in this study, please just note here, and/or email me directly.



~ Snoshoe





   
     

   
   






       

[Non-text portions of this message have been removed]

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RE: Clinical Trial

Elizabeth thode
In reply to this post by KathyB

Good one Kathy!
the side effects are worse then the benefits.
Ugh!
Lizzzie

To: [hidden email]
From: [hidden email]
Date: Sun, 27 May 2012 13:07:59 -0700
Subject: [eSens] RE: Clinical Trial
















 



 


   
     
     
     



http://www.benzo.org.uk/manual/



Kathy



[Non-text portions of this message have been removed]





   
     

   
   






       

[Non-text portions of this message have been removed]

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RE: Clinical Trial

KathyB
In reply to this post by Elizabeth thode


I'm sorry to post on this subject again, but this needs to be taken serious. As a patient who took therapeutic doses, will enter the 2nd year still in some kind of  withdrawal syndrome.

I pray I will find a way to repair my damaged GABA receptors. I did this at home with slow tapering, The tapering has to go extremely slow.

Kathy

http://www.benzo.org.uk/lader2.htm




 in 1999 Professor Lader said: "It is more difficult to withdraw people
from benzodiazepines than it is from heroin. It just seems that the
dependency is so ingrained and the withdrawal symptoms you get are so
intolerable that people have a great deal of problem coming off. The
other aspect is that with heroin, usually the withdrawal is over within a
 week or so. With benzodiazepines, a proportion of patients go on to
long term withdrawal and they have very unpleasant symptoms for month
after month, and I get letters from people saying you can go on for two
years or more. Some of the tranquilliser groups can document people who
still have symptoms ten years after stopping."

"We knew from the start that patients taking markedly
 increased doses could get dependent, but thought only addictive
personalities could become dependent and that true addiction was
unusual. We got that wrong. What we didn't know, but know now, is that
even people taking therapeutic doses can become dependent."

--- On Sun, 5/27/12, Elizabeth thode <[hidden email]> wrote:

From: Elizabeth thode <[hidden email]>
Subject: RE: [eSens] Clinical Trial
To: [hidden email]
Date: Sunday, May 27, 2012, 4:13 PM
















 



 


   
     
     
     

One solution might be astaxanthin,

 the world's most powerful neuroprotective supplement. It's called "the

King of the carotenoids," and protects fat tissues throughout your

body (your brain is mostly fat and water). Today I've published an

update on astaxanthin and linked to our recommended sources:

http://www.naturalnews.com/035989_astaxanthin_brain_protection.html



To: [hidden email]

From: [hidden email]

Date: Sun, 27 May 2012 10:35:24 +0000

Subject: [eSens] Clinical Trial



Hi all,



For some time I have been looking at different things that help damp down the



hyperelectrical/ inflammatory responses in the brain, like GABA and L-theanine,



similar to benzodiazepines.



I've thought for some time that benzodiazepine would be helpful in relieving symptoms. I



recently had oral surgery where that was used as the anesthesia. It did seem to give huge



relief to those symptoms for a couple days, and quite a lot for a couple weeks



afterwards, though they have gradually increased again.



While those are drugs you cannot take constantly, I think there is a big key here that can lead



to some useful treatments.



What I would like to do is get a trial going with benzodiazepine over the period of about



a year.  I'm planning to write Dr. Magda Havas and see if she would be interested in



heading this up, to collect and correlate data, and then if it seems widely useful, maybe



it can be narrowed down more closely to a specific protocol.



I'm hoping to make a local Dr. app't. soon to discuss doing a trial with this for myself again,



and I am hoping there will be some of you who would like to participate also, asking your Dr.



to allow you to try this.



It wouldn't have to be real specific in use as yet, but tailored between you and your Dr. to



give it a try, whether you were to take it for say a week running with breaks inbetween, or



maybe a couple days a week over a longer period of time, or in one larger occassional dose



as in general anesthesia amounts, maybe a few times over a year.



If Dr. Havas is not interested, I will still collect the data, and work with my Dr., so we can see



what happens.  I believe this, while likely not a cure, will be a big help in ameliorating symptoms,



and at least making life more liveable, such as people with CFS may use occasional codeine,



or saline IVs for helping with symptom relief on extra busy days.



So, at this point, you would have much more free reign to try it on varying amounts, what seemed



to work for you, and just need to keep track of how much, how long you used it each time, and



if you noticed any results for it, and how long they lasted.



This may also be helpful in translating into just how much of natural substances we may be



able to use to get similar dramatic results.



Anyone that would be interested in joining in this study, please just note here, and/or email me directly.



~ Snoshoe



                     



[Non-text portions of this message have been removed]





   
     

   
   






 










[Non-text portions of this message have been removed]

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Re: Clinical Trial

Snoshoe
In reply to this post by Elizabeth thode
Hello again,

You all seem to totally miss the point. As I mentioned it can't be taken long term.

~ Snoshoe

--- In [hidden email], Elizabeth thode <lizt777@...> wrote:

>
>
> Good one Kathy!
> the side effects are worse then the benefits.
> Ugh!
> Lizzzie
>
> To: [hidden email]
> From: calicocat477@...
> Date: Sun, 27 May 2012 13:07:59 -0700
> Subject: [eSens] RE: Clinical Trial
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Re: Clinical Trial

Elizabeth thode

Snoshoe,

I think all of us share the same goal, to want to find something that really helps.
And God knows, when we're right in the middle of this snowstorm of hell, some of
us might be desperate enough to try just about anything.
So let me ask you a question: Would be desperate enough to try Heroin?
How about Crack?
Benzo's fall in the same class of these drugs. Highly addictive, even for short term.
Why take the chance, even the tiniest chance, Snoshoe, of making the problem
even WORSE? Is it really worth it? Ask yourself this.
I mean, sure, on the one hand, the ES symptoms go away. But on the other hand,
now you've got a "habit" to feed.
Snoshoe, years ago, I was a Private Investigator. I knew professional people, who got
hooked on these kinds of drugs. They were family people, and good people. And when
they got hooked, thinking they'd only take the drug just this few days.....they changed
their whole lives. The drugs became so powerful, that everything else in their LIFE,
took a back seat. The only thing that mattered, was the DRUG.
I knew a guy who took the same exact type of prescription drug as you are talking about. He
had some kind of oral surgery. After a week or so on the pills, he couldn't function
without them. Unfortunately, this is very common. Lives are destroyed, families suffer,
these professional people turn into liars, thieves, and sometimes, worse.

I'm not missing the point. I lived it, and watched it. Its a slow moving path of destruction...
and anyone/ everyone in the path of this destruction gets hurt........and it only takes very tiny doses
on a short term basis- to do this.
And if you think this can't happen to you....then you're not listening.
I know ES is bad. But benzo's are NOT the answer, not even for short term. It's not worth it.
The one thing that I think is precious, is a person's trust. And when that trust is destroyed,
its very hard to get it back.
Google and find a addict support group in your area....go sit in on one. The one thing those recovering addicts
talk about, is losing the trust of the people they love.

Blessings,
Lizzie

To: [hidden email]
From: [hidden email]
Date: Mon, 28 May 2012 15:08:59 +0000
Subject: [eSens] Re: Clinical Trial
















 



 


   
     
     
      Hello again,



You all seem to totally miss the point. As I mentioned it can't be taken long term.



~ Snoshoe



--- In [hidden email], Elizabeth thode <lizt777@...> wrote:

>

>

> Good one Kathy!

> the side effects are worse then the benefits.

> Ugh!

> Lizzzie

>

> To: [hidden email]

> From: calicocat477@...

> Date: Sun, 27 May 2012 13:07:59 -0700

> Subject: [eSens] RE: Clinical Trial

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re: clinical trial

Amanda Kolter
In reply to this post by Amanda Kolter
So benzos are too toxic to take long term.  However, I believe there is
something to Snowshoe's theory.  ES bodies are not producing the proper
chemicals.  I would wonder about something like methadone.  Natural is
better, but natural opiates may be useful (like as a tea) and none of these
are available.  Medical marijuana is something to consider, but at least in
the US, that's still illegal.  Has anyone tried this?  Another thing that
might be really useful but is too strictly regulated (thanks government!)
to be available in small doses is Lithium.

And as Lizzie says, with any of these things, including a lot of herbs and
supplements, you have to be super careful about the liver.  I take
Ultraclear Plus PH which seems like a good thing to detox the liver and
heavy metals.  But I'm only taking chinese herbs, no pharmaceuticals -
which are on a whole other level.

-Amanda


[Non-text portions of this message have been removed]

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re: clinical trial

Elizabeth thode


Many sources say that
Lithium is being added to the water supply in some areas. While this is highly
controversial, and there seems to be a lot of misinformation and not well
documented- I myself, wouldn't be in the least bit surprised if this turns out
to be true. So if this does turn out to be true, about Lithium being added
to the water supplies, then its not being strictly regulated....at least not
in the sense of how you meant it.
By the way- Lithium is toxic to the thyroid.
Medical Marijuana is legal in some states,
but you need a prescription for it. Kind of hard to get, being that most
mainstream doctors don't have a clue about ES, but that remedy might
actually hold some answers.
 Lizzie


To: [hidden email]
From: [hidden email]
Date: Mon, 28 May 2012 12:32:25 -0700
Subject: [eSens] re: clinical trial
















 



 


   
     
     
      So benzos are too toxic to take long term.  However, I believe there is

something to Snowshoe's theory.  ES bodies are not producing the proper

chemicals.  I would wonder about something like methadone.  Natural is

better, but natural opiates may be useful (like as a tea) and none of these

are available.  Medical marijuana is something to consider, but at least in

the US, that's still illegal.  Has anyone tried this?  Another thing that

might be really useful but is too strictly regulated (thanks government!)

to be available in small doses is Lithium.



And as Lizzie says, with any of these things, including a lot of herbs and

supplements, you have to be super careful about the liver.  I take

Ultraclear Plus PH which seems like a good thing to detox the liver and

heavy metals.  But I'm only taking chinese herbs, no pharmaceuticals -

which are on a whole other level.



-Amanda



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re: clinical trial

Amanda Kolter
In reply to this post by Snoshoe
In terms of lithium, it's toxic in large doses.  In small doses, it's
actually like a mineral, and not bad.  The most violent areas in the US
have the lower lithium concentrations in the water.  So actually, I think
adding a tiny amount of lithium to the water supply may be a good thing.
 It might chill people out a bit.  But if they are doing this
intentionally, it's probably in a high dose for numbing effects.
Homeopathic lithium used to be used effectively for psychosis.  Taking
large doses just knocks people out and ruins all sparks of creativity (if
you've ever known anyone on lithium, you can see it in their eyes).

Medical marijuana is legal in some states, but marijuana is still federally
illegal, and that could still overrule.  Still, if it's legal in your
state, and you're desperate, this may be a good thing to try.  (Eat or
vaporize it, preferably - smoking anything regularly causes cancer).

For the rest of this discussion, I don't know, I've taken vicodin for plane
rides because the radiation is so bad. I've not gotten addicted, though it
messes up my digestion enough that I'd rather not take it.  Using benzos a
couple times a year for severe exposures may not be a horrible idea.  It's
not ideal, but ideal would be if they made wireless infrastructure illegal.
 And that's not happening in the foreseeable future.

-Amanda

Re: clinical trial<http://groups.yahoo.com/group/eSens/message/26631;_ylc=X3oDMTJzYW11Y3FtBF9TAzk3MzU5NzE1BGdycElkAzExOTc5MzA0BGdycHNwSWQDMTcwNTA2MjIxNQRtc2dJZAMyNjYzMQRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzM4Mjk2NDQw>
Posted
by: "Elizabeth thode" [hidden email]
<[hidden email]?Subject=+Re%3A%20clinical%20trial>
  lizziethode <http://profiles.yahoo.com/lizziethode> Mon May 28, 2012
7:11 pm (PDT)




Many sources say that
Lithium is being added to the water supply in some areas. While this is
highly
controversial, and there seems to be a lot of misinformation and not well
documented- I myself, wouldn't be in the least bit surprised if this turns
out
to be true. So if this does turn out to be true, about Lithium being added
to the water supplies, then its not being strictly regulated...**.at least
not
in the sense of how you meant it.
By the way- Lithium is toxic to the thyroid.
Medical Marijuana is legal in some states,
but you need a prescription for it. Kind of hard to get, being that most
mainstream doctors don't have a clue about ES, but that remedy might
actually hold some answers.
Lizzie


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Re: Clinical Trial

melissascotthasmail
In reply to this post by Snoshoe
I do horrible with prescription drugs. But I wouldn't poo-poo them as I have seen them save the live of others.

One neighbor would have killed herself if she hadn't tried Fen Fen which got rid of her depression, and by the time it was banned she had her life in order so that she could manage the depression through a more natural approach.

I thought botox was the most ridiculous thing on earth until it had the side effect of helping those with chronic migraines.

What we are dealing with is unnatural, so strong difficult drugs might be the only solution for some.

My life is currently so horrible that if I thought heroin would help—I'd would be trying it! And all the people who know my tea-toddling and goodie-two-shoes ways would faint at hearing me say that!




--- In [hidden email], "snoshoe_2" <snoshoe_2@...> wrote:
>
> Hello again,
>
> You all seem to totally miss the point. As I mentioned it can't be taken long term.
>
> ~ Snoshoe

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Re: Clinical Trial

chucka2651
In reply to this post by Snoshoe

Hi Snoshoe:

I am posting again only with a feeling of unity with your wish to find something helpful. I will only say that I believe that Benzos can be addictive very quickly--weeks or days and there is no clear data  about safe periods of time to take these--that is periods brief to assure the absence of long term effects.  All the best, Chuck
--- In [hidden email], "snoshoe_2" <snoshoe_2@...> wrote:

>
> Hello again,
>
> You all seem to totally miss the point. As I mentioned it can't be taken long term.
>
> ~ Snoshoe
>
> --- In [hidden email], Elizabeth thode <lizt777@> wrote:
> >
> >
> > Good one Kathy!
> > the side effects are worse then the benefits.
> > Ugh!
> > Lizzzie
> >
> > To: [hidden email]
> > From: calicocat477@
> > Date: Sun, 27 May 2012 13:07:59 -0700
> > Subject: [eSens] RE: Clinical Trial
> >
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> > http://www.benzo.org.uk/manual/
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Re: clinical trial

kikkie2004-2
In reply to this post by Amanda Kolter
Hi there

Alcohol helps me a lot with ES symptoms as well- think the EMF is still upsetting my system the way it usually does, but I don't feel it at the time. My very ES friend says it's the same for him, although he doesn't use alcohol because it affects him to adversely in itself.

Have tried googling re to see if I could find answers to this, my theories involving alcohol :

 - raising/lowering certain neurotransmitters
 - stabilizing mast cells
 - alcohol having an effect on the sodium/potassium balance in   tissues (via kidneys or effect on aldosterone)
 - being central nervous system depressant.

When i became so severely EMF sensitive, I was on benzos at the time, and I tried to wean off them not long after. Felt more ES every time I did succumb to them.




--- In [hidden email], Amanda Kolter <kolama29@...> wrote:

>
> I wouldn't want to drug myself (I hate how anesthesia feels) but I have
> noticed that despite much naturopathic advice to the contrary, alcohol
> seems able to help with ES symptoms.  My partner and I have a theory that
> it's due to the fact that it lessens brain activity.
>
> Good luck with your research!
>
> -Amanda
>
>
> [Non-text portions of this message have been removed]
>


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Re: clinical trial

melissascotthasmail
I have never drunk alcohol except in the occasional medicine or cough syrup. I probably don't do well with alcohol, but I am willing to try anything that might help. How much do I need to drink and does it matter what form? I hear Vodka is high in alcohol so I assume I wouldn't have to drink much, but how much? How long until you feel the positive effects? Do you drink it in the morning when you get up, throughout the day, or just when you've had a bad exposure?

I realized every person is different and reacts differently, but since I have no experience with alcohol I need some guidelines.


--- In [hidden email], "kikkie2004" <kikkiehealth@...> wrote:

>
> Hi there
>
> Alcohol helps me a lot with ES symptoms as well- think the EMF is still upsetting my system the way it usually does, but I don't feel it at the time. My very ES friend says it's the same for him, although he doesn't use alcohol because it affects him to adversely in itself.
>
> Have tried googling re to see if I could find answers to this, my theories involving alcohol :
>
>  - raising/lowering certain neurotransmitters
>  - stabilizing mast cells
>  - alcohol having an effect on the sodium/potassium balance in   tissues (via kidneys or effect on aldosterone)
>  - being central nervous system depressant.
>
> When i became so severely EMF sensitive, I was on benzos at the time, and I tried to wean off them not long after. Felt more ES every time I did succumb to them.
>

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alcohol Re: clinical trial

Snoshoe
I think it depends on your own tolerance. A couple mouthfuls of wine or a spoonful of liquor is enough for me.

Just start there and notice how you feel over the next half hour.
You might try making a tincture with some herbs you use at the same
time, in it too. That way you get more when you take it.

I made some bitters, which really are, but helps the digestion at the same time, and it also helps prevent wanting to overindulge, lol!

~ Snoshoe

--- In [hidden email], "melissascotthasmail" <melissascotthasmail@...> wrote:
>
> I have never drunk alcohol except in the occasional medicine or cough syrup. I probably don't do well with alcohol, but I am willing to try anything that might help. How much do I need to drink and does it matter what form? I hear Vodka is high in alcohol so I assume I wouldn't have to drink much, but how much? How long until you feel the positive effects? Do you drink it in the morning when you get up, throughout the day, or just when you've had a bad exposure?
>
> I realized every person is different and reacts differently, but since I have no experience with alcohol I need some guidelines.
>
>